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PODCAST

Mogil"s Mobcast-A Scleroderma Chat

The goal of my podcast is to have a central place for people afflicted with Scleroderma and a place for their families and friends to be informed by specialists in either Scleroderma or autoimmune topics. I will cover a wide range of topics like nutrition, medications, vitamins, and lifestyles. I will also showcase stories from others affected by Scleroderma and how they have dealt with the disease. For additional information you can visit my website-Mogilsmobcast.com, or follow me on

health & fitness medicine

All Episodes

43:58

Episode #92 Dr. David Collier: MD Rheumatologist

Mogil"s Mobcast-A Scleroderma Chat ·

2025/01/27

Today, we have an incredible guest joining us—rheumatologist Dr. David Collier. With 28 years as a Professor of Medicine at the University of Colorado Medical School and 25 years leading the scleroderma clinic, Dr. Collier is a true expert in the field. Currently, he’s consulting with Kyverna Therapeutics, working on groundbreaking (CAR) T-cell therapy.We’ve all been hearing the buzz about this innovative treatment for scleroderma, and today, we’re diving in to learn what it’s all about. Get ...

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45:16

Episode #91 Dr. Cristina Padilla: MD Rheumatologist

Mogil"s Mobcast-A Scleroderma Chat ·

2025/01/13

Today, I’m thrilled to introduce Dr. Cristina Padilla, a remarkable physician I had the pleasure of meeting at a recent conference. In this episode, we delve into the work being done at the Pittsburgh Scleroderma Center, where Dr. Padilla focuses on translational research into interstitial lung disease. Through our conversation, you’ll not only learn about her invaluable contributions to the field but also hear her deep passion for advancing scleroderma research and improving patient care. Le...

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47:12

Episode #90 Melissa Marquis: MS, RN, Scleroderma...

Mogil"s Mobcast-A Scleroderma Chat ·

2024/12/30

Today’s guest is Melissa Marquis, who shares her incredible journey of perseverance and advocacy. It took 10 years for Melissa to receive a diagnosis of undifferentiated connective tissue disease—a condition where the immune system attacks connective tissues, but the symptoms and lab results don’t fully align with any specific connective tissue disease. Three years later, she was diagnosed with limited cutaneous systemic sclerosis. After years of uncertainty and navigating frustrating symptom...

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40:53

Episode #89 Alison Zheng: Scleroderma Warrior Founder...

Mogil"s Mobcast-A Scleroderma Chat ·

2024/12/16

What an inspiring guest we have today! Allison Zhang’s story is a testament to resilience and determination. Living 24 years with scleroderma is no small feat, and founding the first national scleroderma NGO in China shows her incredible dedication to helping others in similar situations.Through this conversation, we’ll not only get a glimpse into her personal journey of managing scleroderma since childhood but also learn about her efforts to advocate for and empower the scleroderma community...

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35:37

Episode #88 Danielle Rice: Ph.D., C. Psych,...

Mogil"s Mobcast-A Scleroderma Chat ·

2024/12/02

In today’s episode, I’m joined by Danielle Rice, a clinical and health psychologist whose PhD research zeroed in on a unique perspective: how to support caregivers of scleroderma patients. Believe it or not, before Danielle’s work, there had only been one small study on this crucial topic! We often overlook how scleroderma affects not only the patients but also their loved ones. Danielle has done incredible work to bring much-needed support to caregivers, and today, she shares insights on the...

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40:13

Episode #87 Dr. DeAnna Baker Frost: MD PhD...

Mogil"s Mobcast-A Scleroderma Chat ·

2024/11/18

Today, I’m thrilled to chat with Dr. Deanna Baker Frost—whom I had the privilege of meeting at the National Scleroderma Conference. When I asked her to join me on the podcast, she agreed enthusiastically, requesting a topic that would be impactful for patients. I suggested osteoporosis, given that 80% of scleroderma patients are women, and 80% of the estimated 10 million Americans with osteoporosis are women, too. In this episode, we dive into everything osteoporosis. Buckle up—there’s a lot ...

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50:56

Episode #86 Sean Fortier, MD: Assistant Professor of...

Mogil"s Mobcast-A Scleroderma Chat ·

2024/11/04

Today, I talk with Dr. Sean Fortier, a specialist in pulmonary medicine. Since more than 40% of scleroderma patients show evidence of interstitial lung disease, I thought it was important to discuss pulmonary fibrosis and pulmonary hypertension. Dr. Fortier and I also discuss his research, which I found very encouraging—and I believe you will, too.

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53:12

Episode #85 Kim Rodning: Scleroderma Warrior, First...

Mogil"s Mobcast-A Scleroderma Chat ·

2024/10/21

In the last episode, you heard Dr. Shah discuss autologous stem cell transplants. In today’s episode, you’ll meet Kim Rodning, the first non-trial recipient of an autologous stem cell transplant at Duke University. Like many scleroderma warriors, Kim remains positive and upbeat, even in the face of adversity. Her story is truly heartwarming.

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42:10

Episode #84 Dr. Ankoor Shah MD: Rheumatologist,...

Mogil"s Mobcast-A Scleroderma Chat ·

2024/10/07

Today's guest is Dr. Ankoor Shah. He is the Director of the Duke Scleroderma Clinic. In our episode today, we discuss his clinic and what it has to offer to scleroderma patients. We then dive into the main topic of our talk, stem cell transplant. I learned so much about what stem cell transplant involves and how it has helped the scleroderma community.

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44:12

Episode #83 Terri Pilawa: Double Lung Recipient, CEO...

Mogil"s Mobcast-A Scleroderma Chat ·

2024/09/23

Today's guest is Terri Pilawa. Terri started feeling ill in 2008 and was finally diagnosed correctly after 4 years of not knowing what was wrong in 2012 with Idiopathic Pulmonary Fibrosis. She was told she needed a lung transplant. In 2015, she had a successful double lung transplant. As a part of her journey she became involved with the One Breath Foundation and is now the CEO. Let's hear about both her IPF journey and her involvement in the One Breath Foundation.

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34:18

Episode #82 Ezra Halsted: Scleroderma Warrior

Mogil"s Mobcast-A Scleroderma Chat ·

2024/09/09

Today's podcast is with Ezra Halsted who was diagnosed with scleroderma at the age of 16. It was very interesting to hear the perspective of someone who was diagnosed young and how that changed her youth.

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37:47

Episode #81 Jeremy Quinby: Integrative health...

Mogil"s Mobcast-A Scleroderma Chat ·

2024/08/26

Today's guest is Jeremy Quinby. Jeremy is an integrative health practitioner and educator, Certified Craniosacral Therapist, Nationally Certified Massage Therapist, and Certified Movement and Post-rehab Specialist. In today's episode, we discuss what craniosacral therapy is and how it can help scleroderma patients as well as others with pain.

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43:07

Episode 80 Yen Chen: Postdoctoral Research Fellow ...

Mogil"s Mobcast-A Scleroderma Chat ·

2024/08/12

Today's guest is Yen Chen. Yen is a health behavioral researcher in the Department of Physical Medicine and Rehabilitation and Rheumatology Division at the University of Michigan. Yen is doing a study called Brain Boost program which deals with cognitive dysfunction or brain fog. Today we talk about the definition of brain fog, general causes of brain fog, and how it pertains to scleroderma patients. We also cover activities that can be done to help if you're having brain fog. Lots of great i...

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35:12

Episode 79 Ilaria Galetti: Vice President:...

Mogil"s Mobcast-A Scleroderma Chat ·

2024/07/29

Today's guest is Ilaria Galetti, a scleroderma warrior for over 27 years and currently awaiting a lung transplant. Like many scleroderma warriors she is an advocate for the disease. Ilaria is the Vice President of the Federation of European Scleroderma Associations FESCA. Listen to hear about her journey and her advocacy work.

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50:06

Episode #78 Dr. Thomas Medsger: MD Rheumatologist...

Mogil"s Mobcast-A Scleroderma Chat ·

2024/07/15

Today’s topic is on the evolution of scleroderma. Dr. Medgser joins us in this discussion as he is a rheumatologist who practiced for 46 years and is currently retired. He started his interest in rheumatology at the University of Pittsburgh, which was the first institution to have a scleroderma center. It was here that Dr. Medgser met and worked with Dr. Rodnan, who is considered the "father of scleroderma”. It was really interesting to hear how practices and diagnosis has changed over the ye...

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49:07

Episode #77 James Stempel: Scleroderma Warrior, Lung...

Mogil"s Mobcast-A Scleroderma Chat ·

2024/07/01

Today’s guest is Jim Stempel. Jim has been a scleroderma warrior for almost 2 decades. For him scleroderma attacked his lungs, resulting in a lung transplant in 2018. He then decided to retire which led him to volunteer. Jim is doing wonderful advocacy for the scleroderma community. Listen to hear his journey and how is giving back.

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41:50

Episode #76 Tami Yap: Oral Medicine Specialist

Mogil"s Mobcast-A Scleroderma Chat ·

2024/06/17

Today's guest is Tami Yap. She is an oral medicine specialist. Tami deals with everything in the mouth except the teeth and gums. She is the connection between dentistry and medicine. Today we talk about 3 major concerns for scleroderma patients: the changing of the mouth's elasticity, changes in saliva, and whether the teeth will be affected by these changes.

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36:49

Episode #75 Dr. Afton Hassett: Associate Professor...

Mogil"s Mobcast-A Scleroderma Chat ·

2024/06/03

Today's guest is Dr. Afton Hassett. She is an Associate Professor and the Director of Pain and Opioid Research in the Department of Anesthesiology at the University of Michigan. She recently published a book called Chronic Pain Reset, 30 Days of Activities, and Skills to Help You Thrive. In our discussion, she explains the different types of pain, the different domains within the 30 activities, and samples of activities to help with chronic pain. The activities are so helpful.

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48:41

Episode #74 Dr. Beth Vukin MD: Scleroderma Warrior,...

Mogil"s Mobcast-A Scleroderma Chat ·

2024/05/20

Today’s guest is Dr. Beth Vukin. Beth is a Scleroderma warrior and a pediatric doctor. Beth was diagnosed recently but has had signs for 3 years. We discuss how, even as a doctor, it is hard to diagnose Scleroderma.

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41:00

Episode #73 Dr. Julia Spierings: Rheumatologist...

Mogil"s Mobcast-A Scleroderma Chat ·

2024/05/06

Today’s guest is Dr. Julia Speirings. Dr. Speirings is a rheumatologist from the Netherlands. She is doing a research project on the hands called Handsome. I was so excited to know that there was a project that deals with hands. My hands are a source of most of my frustration with Scleroderma. Listen to learn all about this project.

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