PODCAST

Sarc Fighter: Living with Sarcoidosis and other rare diseases

John Carlin

Fighting sarcoidosis as well as other rare diseases.

health & fitness medicine

All Episodes

01:14:33

Bonus Episode | Universal Barriers in Dealing with a...

Sarc Fighter: Living with Sarcoidosis and other rare... ·

2022/02/07

In this Bonus Episode of the Sarc Fighter podcast, listen in to the special seminar hosted by The Foundation for Sarcoidosis Research as a physician and two sarc patients look at barriers to health care that cannot be overcome unless we all begin to recognize that they are real and won't go away on their own. The discussion is led by Sarc Fighter host John Carlin. Show Notes More on Universal Barriers

01:20:26

Episode 52 | Dr Divya Patel and Novartis are looking...

Sarc Fighter: Living with Sarcoidosis and other rare... ·

2022/01/31

As we begin 2022, there is even more reason for hope. On this episode of the Sarc Fighter podcast, Dr. Divya Patel joins me. Dr. Patel explains the clinical trial process and describes the trial she is working on at the University of Florida in connection with the Foundation for Sarcoidosis Research. Show notes Learn about the clinical trial from Novartis: https://bit.ly/3o9LXKk Sarcoidosis Awareness Film: https://www.purpledocumentary.com/ Nourish by Lindsey:

59:41

Episode 54 | Calvin Harris’ lungs are clogged with...

Sarc Fighter: Living with Sarcoidosis and other rare... ·

2022/01/17

Calvin Harris lives in New York City, where he balances his time working as a CFO with running and giving back to his community. He also writes a popular blog called Run Your Own Race. And that's what he is doing. In this episode of the Sarc Fighter podcast, Calvin talks about how he deals with all the medications he is taking to keep his sarcoidosis under control, while he trains for a marathon with his sights set on completing the famous New York City marathon in the near future. Read

41:21

Episode 53 | Reasons for hope in the fight against...

Sarc Fighter: Living with Sarcoidosis and other rare... ·

2022/01/03

As we begin a new year it's time to take a look at what's ahead in 2022. Both for ourselves and for the sarcoidosis community at large. In episode 53 I take a look at what you can do to fight sarc in your own personal battle as you make your new year's resolutions, as well as a look t what researchers, doctors and others are doing to further the fight against the disease, whether it's a new medicine, sarcoidosis awareness or patient outreach. Show notes Sarcoidosis Awareness Film:

01:07:14

Episode 51 | Amy Whaley fights on through a life that...

Sarc Fighter: Living with Sarcoidosis and other rare... ·

2021/12/20

Amy Whaley is a caregiver. Her husband, Bobby suffers from a severe case of sarcoidosis. They are fighting sarc together. In this episode of the Sarc Fighter podcast, Amy talks about her life, her role as a a caregiver and how life changed shortly after she and Bobby were married. Amy is the first care giver to appear on the Sarc Fighter podcast. Like all caregivers, she is essential to the life of the person with Sarcoidosis. Without these loving people's sacrifice, we could not go on with

01:04:34

Episode 50 | Warren Robinson‘s father died suddenly. ...

Sarc Fighter: Living with Sarcoidosis and other rare... ·

2021/12/06

Warren D. Robinson is a Television Producer with a law degree to boot. When his father suddenly died from sarcoidosis he decided he wanted to join the fight to help patients suffering from Sarc. In this episode of the Sarc Fighter podcast, Warren tells the story of how his father showed no signs of the disease until after his sudden death. Here was a man who lived to help others and always took great care of himself, from getting proper exercise to eating right and everything else healthy people

58:23

Episode 49 | Adam Bernardi has sarc in all the wrong...

Sarc Fighter: Living with Sarcoidosis and other rare... ·

2021/11/22

Adam Bernardi has a great job working in Hollywood. He's met some big name celebs, and even worked with them. He's edited or worked on projects you've likely seen. But none of that could prevent sarcoidosis from attacking his nervous system. In Episode 49 of the Sarc Fighter podcast, Adam shares the story of how difficult it was for doctors to diagnose his sarcoidosis, and how the disease has shut down parts of his body that at times can cause embarrassing situations. Thanks to Adam for an

01:08:29

Episode 48 | Dr. Jinny Tavee is a neurosarcoidosis...

Sarc Fighter: Living with Sarcoidosis and other rare... ·

2021/11/08

Dr. Jinny Tavee, the Chief, Division of Neurology at National Jewish Health clinic in Denver is one of the leading experts in the United States when it comes to neurosarcoidosis. Neuro sarc only affects a small percentage of all sarcoidosis patients, but her approach for treatment extends beyond those who are unfortunate enough to have sarc in their brain or spinal cord. In Episode 48 of the Sarc Fighter Podcast, Dr. Tavee delves into how your entire body, mind, and spirit can be engaged to help

58:40

Episode 47 | Women of Color Fight Back!

Sarc Fighter: Living with Sarcoidosis and other rare... ·

2021/10/25

African American Women are three times more likely to suffer from sarcoidosis than whites, and their sarcoidosis mortality rate is 13 times higher than Caucasians and 1.5 times higher than African American men. Why? What is going on with women of color that isn't happening in other groups? Why are they having a harder time than everyone else. There are multiple reasons, and the Foundation for Sarcoidosis Research is hoping to get to the bottom of it. FSR has created the Women of Color Patient

01:00:38

Episode 46 | Lisa Pflug is early in her journey with...

Sarc Fighter: Living with Sarcoidosis and other rare... ·

2021/10/11

Lisa Pflug's hand started shaking one day and she couldn't make it stop. For months neither she nor her doctors could explain it. Then they started looking at her spinal cord, and they found the problem. In this Episode of the Sarc Fighter Podcast, Lisa shares the story of her journey through sarcoidosis, from her shaking hand to life on prednisone and hopefully a better life thanks to Remicade. Lisa is right handed and she is thankful sarcoidosis has only affected her left hand, allowing her to

01:05:52

Episode 45 | Fantastic results from trial of new...

Sarc Fighter: Living with Sarcoidosis and other rare... ·

2021/09/27

Atyr Pharma has just released the results of a patient trial of a drug called aTyr 1923. The drug had shown early promise, and the trial more than verified that thinking. Atyr 1923 Not only allowed patients to dose down or even off of Prednisone, but it actually improved lung function in patients -- something that is rarely if ever accomplished. In this episode of the Sarc Fighter podcast, aTyr President and CEO, Dr. Sanjay Shukla joins me to talk about the results, the meaning behind the trial and

48:10

Episode 44 | Brandi Cleaver faces down what may be a...

Sarc Fighter: Living with Sarcoidosis and other rare... ·

2021/09/13

Living in a rural area can be tough when you are faced with a rare disease like sarcoidosis. So Imagine living in remote North Dakota and trying to find a diagnosis and medical care. That is the case for Brandi Cleaver. At one point she and her friends held fundraisers in order to get her to Cleveland and the care she needed. At one point in her life Brandi was one of those people who showed up on horseback during search and rescue operations. Now, she is stuck at home most of the time,

01:06:23

Episode 43 | Joe McCorry has been fighting...

Sarc Fighter: Living with Sarcoidosis and other rare... ·

2021/08/30

Maybe we could call it "sarcoidosis creep." For people who have chronic sarc, it seems like if it doesn't get better, it slowly gets worse. When that happens, people's lives change. Their activities become more and more curtailed. Usually because their health is declining. That's what happened to Joe McCorry of Chicago. In this episode of the Sarc Fighter podcast, Joe talks about how sarc has taken over different organs in his body and how it's forced him to slow his life to a crawl. The

01:11:44

Episode 42 | Juliet Coffer can barely walk without...

Sarc Fighter: Living with Sarcoidosis and other rare... ·

2021/08/16

Juliet Coffer lives in a cottage in the UK. By her description, it is a small home, yet her lungs only permit her to take a few steps at a time without running out of oxygen. In this episode, Juliet describes what it is like to push on when every breath seems to be an adventure. But not only that -- she has found a way to get around her house in a way that has raised tens of thousands of dollars to fight the disease. Learn more about her remarkable spirit in this episode of the Sarc Fighter

57:57

Episode 41| Dr. Matt Baker is researching a promising...

Sarc Fighter: Living with Sarcoidosis and other rare... ·

2021/08/02

Dr. Matt Baker at Stanford University is studying Sarilumab also known as KEVZARA as a treatment for sarcoidosis. Sarilumab is already approved for rheumatoid arthritis, but it's anti-inflammatory properties make it a great candidate to treat sarcoidosis as well. In this interview, Dr. Baker explains in layman's terms how Sarilumab works in your body to keep the autoimmune process from creating inflammation, which in turn causes many of the problems people suffer with sarcoidosis. Matt Baker's bio

01:05:20

Episode 40 | Writer Rebecca Stanfel is bringing the...

Sarc Fighter: Living with Sarcoidosis and other rare... ·

2021/07/19

Rebecca Stanfel has been dealing with sarcoidosis for 17 years. Not just dealing with it, but at times, barely hanging on. All of this from a once world class cyclist, wife and mother who happens to have an amazing gift for writing. Her essays on living with sarcoidosis while struggling with the pandemic have been published in the Washington Post and HuffPost. During the pandemic, Rebecca moved away from her family for eight months -- to ensure her immune system would not be compromised by her

53:03

Episode 39 | Dr. William Damsky may be on the verge...

Sarc Fighter: Living with Sarcoidosis and other rare... ·

2021/07/05

Dr. William Damsky, MD, Ph.D., is a leading researcher at Yale University. He is pioneering a study using the off label drug, Xeljanz (say:ZEL-janz) to fight sarcoidosis of the skin, with so far - great success. Damsky and his team have been able to make disfiguring cases of dermatological sarcoidosis disappear in a handful of cases. They are now moving ahead with a more robust clinical trial to see just how promising this treatment may be -- perhaps for sarcoidosis in other parts of the body as

01:06:30

Episode 38 | Sarcoidosis is world wide. How they...

Sarc Fighter: Living with Sarcoidosis and other rare... ·

2021/06/21

Sarcoidosis UK is doing its best to fight sarc in the United Kingdom. The organization is small but mighty and looking to grow its influence as it raises awareness about the disease and reaches out to patients to offer them help in a confusing sarcoidosis world. In Episode 38 of the Sarc Figher podcast, Leo Casimo, Senior Executive, joins in from London to talk about the efforts of Sarcoidosis UK , and how patients there are coping with the disease while tryng to help one another and raise

48:21

Episode 37 | Sarc Fighter Charlton Harris is having a...

Sarc Fighter: Living with Sarcoidosis and other rare... ·

2021/06/07

Charlton Harris is a strong voice for Sarcoidosis patients, thanks to his blog, No Tears for Sarcoidosis. And he knows the Sarc story first hand, as the disease has severely damaged his lungs to the point he needs to stay on oxygen much of the time, and a long walk is a hard day. Despite all that, Charlton perseveres and continues his work as a professional video editor and producer. In this episode of the Sarc Fighter podcast we meet the man behind the blog and learn about his personal struggle

01:09:16

Bonus Episode | Sarcoidosis and COVID-19 Presented by...

Sarc Fighter: Living with Sarcoidosis and other rare... ·

2021/05/31

With vaccines for COVID-19 now available, Sarcoidosis Warriors are rightfully concerned about how the vaccines might impact them. Will they interact negatively with my condition or my medications? Can the vaccine trigger a flare? Will the vaccine work if I'm immune suppressed? Sarc Fighter Podcast Host John Carlin interviews two leading doctors to get answers to your questions. Dr. Peter Sporn, the Director of the Northwestern University Sarcoidosis Center of Excellence and Dr. Wonder Drake of

159 results

Sarc Fighter: Living with Sarcoidosis and other rare diseases

All Episodes

Similar Podcasts

Доктор Тройняшкин

Доктор Тройняшкин

The Dry Eye Treatment PODCAST

Dry Eye Treatment

Différent et alors ?

PATRICK SULAY

Kyle Kingsbury Podcast

Kyle Kingsbury

The Real Weight Loss Coach

Matty Lansdown