Power to the Patients

As the dedicated Foundation Manager for the Pediatric Retinal Research Foundation (PRRF), Stephanie Saville offers a unique and enlightening perspective into the specialized area of pediatric retinal research. The PRRF is a volunteer-driven organization that focuses on rare pediatric retinal diseases, offering support for children and adults who experience vision loss.Throughout our conversation, Stephanie emphasized the challenges rare diseases face and explored the complexities of rare disease

As the dedicated Foundation Manager for the Pediatric Retinal Research Foundation (PRRF), Stephanie Saville offers a unique and enlightening perspective into the specialized area of pediatric retinal research. The PRRF is a volunteer-driven organization that focuses on rare pediatric retinal diseases, offering support for children and adults who experience vision loss.Throughout our conversation, Stephanie emphasized the challenges rare diseases face and explored the

In today’s healthcare landscape, the term ‘patient-centric’ has been showing up more and more. It emphasizes the importance of considering the patient’s needs, experiences, and preferences. In the realm of oncology clinical trials, patient-centricity plays a pivotal role. But achieving it isn't easy. In this episode, our guest Deb Kientop, a pharmaceutical professional with 27+ years of experience, including research, clinical, medical affairs, strategy and management, explores

In today’s healthcare landscape, the term ‘patient-centric’ has been showing up more and more. It emphasizes the importance of considering the patient’s needs, experiences, and preferences. In the realm of oncology clinical trials, patient-centricity plays a pivotal role. But achieving it isn't easy. In this episode, our guest Deb Kientop, a pharmaceutical professional with 27+ years of experience, including research, clinical, medical affairs, strategy and management,

In today’s healthcare landscape, the term ‘patient-centric’ has been showing up more and more. It emphasizes the importance of considering the patient’s needs, experiences, and preferences. In the realm of oncology clinical trials, patient-centricity plays a pivotal role. But achieving it isn't easy. In this episode, our guest Deb Kientop, a pharmaceutical professional with 27+ years of experience, including research, clinical, medical affairs, strategy and management, explores the complex world of

In this episode, Scott Schliebner, a life sciences and digital health executive with experience across the biopharma, CRO, medtech, and non-profit sectors,discusses the evolution of patient-centricity. With over 30 years of experience, Scott provides insights into patient-centered design in clinical research. The discussion also covers the necessity of using more humanizing terms for patients, the crucial balance in patient recruitment, the role of patient advocacy, and the future of the

In this episode, Scott Schliebner, a life sciences and digital health executive with experience across the biopharma, CRO, medtech, and non-profit sectors, discusses the evolution of patient-centricity. With over 30 years of experience, Scott provides insights into patient-centered design in clinical research. The discussion also covers the necessity of using more humanizing terms for patients, the crucial balance in patient recruitment, the role of patient advocacy, and the future of the

In this episode, Scott Schliebner, a life sciences and digital health executive with experience across the biopharma, CRO, medtech, and non-profit sectors, discusses the evolution of patient-centricity. With over 30 years of experience, Scott provides insights into patient-centered design in clinical research. The discussion also covers the necessity of using more humanizing terms for patients, the crucial balance in patient recruitment, the role of patient advocacy, and the