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PODCAST

My journey with Parkinson"s

I have had a blog called "Parkies and me - my journey with Parkinson"s" for the past four years. Now that I have finished work and have more time, I wanted to add a Podcast to provide more information and interest for my followers. I also hope to get guests on my Podcast on specialist subjects that would be useful to know for both carers and those they support. Look out for interviews regarding important legal decisions that is well worth a look. If you are interested in my Blog, you can find it on

health & fitness

All Episodes

00:04:50

Tears for Breakfast - Episode 32

My journey with Parkinson"s ·

2025/01/15

I had a bit of a blue day yesterday, so this reflects that mood. In line with my intentions to always be authentic and real, I will post even when the mood is not the best. We all get that sometimes don't we?

en-nz

00:06:44

Why I think I'm qualified to talk about Parkinson's -...

My journey with Parkinson"s ·

2025/01/13

This podcast gives some background to me as a podcaster and why I feel I am qualified to talk about Parkinsons.

en-nz

00:05:40

Maybe I've been a bit harsh - Episode 31

My journey with Parkinson"s ·

2025/01/12

A lesson in judgements that we can all be guilty of.

en-nz

00:10:08

Parkinson's peculiarities or Morphine madness -...

My journey with Parkinson"s ·

2025/01/11

Just in a reflective mood and that shows in this podcast, where it's not as upbeat as most others have been. I wrote it a couple of days ago and it does sound a bit flat, but I figure that's the real me in the moment. Lot's going on right now!

en-nz

00:11:01

Culling my Facebook friends - nothing beats a real...

My journey with Parkinson"s ·

2025/01/08

Social media is all very well, but sometimes I think it causes us to be lazy. Giving a hug emoji when someone is going through stuff, is nothing compared to coming round and giving a real hug. If you are in the same town and a hug emoji is the sum total of your support? Not doing it for me, I'm afraid. So, this is a podcast with an emotional bit in amongst it, where I am actually crying due to a memory of a huge thing my eldest brother did for me. I always said I would be real and this is as real as

en-nz

00:13:35

A bucket of joy - not a bucket list - Episode 28

My journey with Parkinson"s ·

2025/01/06

I was in a reflective mood this afternoon and thought about 'Bucket Lists' and how people sometimes create one when they are told they have little time left to live. I decided to have a 'bucket of joy' instead, filled with my memories.

en-nz

00:11:41

The weird things you need to know about me - Episode 27

My journey with Parkinson"s ·

2025/01/05

I think we all have weird things that we prefer in life. Like my sandwiches have to be cut corner to corner or they are not right. Or, the toilet roll. Some people are quite passionate about how they like it. Rolling over the top? Of course the only way it should go!!! Or rolling down the wall. Wrong absolutely wrong! When a person goes into care, preferences for 'silly little things' or 'weird things' might be the only thing they can control, so they take on a whole new importance.

en-nz

00:07:01

I pity those who support me - Episode 26

My journey with Parkinson"s ·

2025/01/03

Why I pity those....? Well, I know I must be difficult to live with. For oh so many reasons, but Parkies is certainly one of them. One minute I am saying 'I need my independence and to try to do things for myself!' Next minute, I find myself saying 'Why didn't you help me?' Who of us can identify with that! This is also an acknowledgement of the special people who are there for us, even though we may be difficult souls at times!

en-nz

00:04:07

Two poems - 'Where is the little boy?' and 'Have you...

My journey with Parkinson"s ·

2025/01/02

As the names suggest, these are two quite different poems. As they are short I thought I would record them together. I wonder if at the end of the first poem, you can tell me where the little boy is? I hope you enjoy them both, they both make me smile for different reasons. Thank you for following me.

en-nz

00:08:03

Pods and Blogs and Odds and Sods - Episode 24

My journey with Parkinson"s ·

2025/01/01

This is a podcast inspired by my seeking information about what structure people usually have for their podcasts. How many series, how many episodes etc. To give me an idea of how I might structure my podcast. I came out of my brief investigations realising that I cannot be constrained by 'shouldisms' or what others think is the ideal. This podcast is about me and my life with Parkinsons, but equally about my life that is not about Parkinsons. It will have variety, it may be somewhat unpredictable,

en-nz

00:19:00

Legal Stuff - Enduring Powers of Attorney - Episode 23

My journey with Parkinson"s ·

2024/12/31

Hi, this is the second interview with Louise Taylor, a well-respected lawyer whom I have known for several years. It emphasises the importance of a Will and the reasons for this. Note that the information contained in this podcast is relevant to a New Zealand context and may be different in other countries. It would pay to check with your lawyer, if you have one for advice regarding whether there is an equivalent option in the country in which you reside.

en-nz

00:18:20

Legal Stuff - Wills - Episode 22

My journey with Parkinson"s ·

2024/12/31

Welcome to my first interview on My Journey with Parkinson's. The interview is with a well-respected lawyer, Louise Taylor who I have known for several years now. She gives some excellent advise on Wills in this session and it is well worth listening to. A point to note, however, is that the advice is given in a New Zealand context and may not apply in other countries. It would pay to check these things with your lawyer if you have one. Whatever your local situation, Wills are incredibly

en-nz

00:01:43

To my love - Episode 21 - a poem

My journey with Parkinson"s ·

2024/12/29

A sentimental poem this time. Written some time ago, when I was neither old, nor gray.

en-nz

00:01:41

Now I'm retired - a poem - Episode 20

My journey with Parkinson"s ·

2024/12/29

I wrote this poem shortly after retiring. It felt so free to be able to have control of my life, with no boss telling me what to do, my time was my own. Given the health issues that have plagued me, it is not unlikely that I would have been forced into retirement, but luckily I was able to decide when it suited me not what suited others.

en-nz

00:07:04

The next generation - Episode 19

My journey with Parkinson"s ·

2024/12/29

Spending time with my children and grandchildren this Christmas, gave me an opportunity to see what my children and grandchildren might want in the way of items I have treasured when I am no longer here. The girls chose vases that I have collected so they can put a flower in them to remember me. Talking about what value is placed on things we have treasured and sharing the stories that make them precious.

en-nz

00:07:24

Perfect imperfection and Parkies - Episode 18

My journey with Parkinson"s ·

2024/12/27

I have never strived for perfection. Instead, I have tried to be the best I can and that can change moment to moment, day to day and hour to hour. It would be easy to give up and just accept that we can no longer do some of the things in our lives that may have become difficult. Instead I try to do at least a part of something. For instance, I may not be up to a six hour tramping trip, but might be able to work up to one hour, then two hours and more if I can. Life can be full of losses, but I feel

en-nz

00:01:58

Who am I? - Episode 17

My journey with Parkinson"s ·

2024/12/26

Another poem. This time, about identity. Who we are, and how we are seen can have a huge impact on our sense of self.

en-nz

00:01:38

Pills, pills, pills - A poem - Episode 16

My journey with Parkinson"s ·

2024/12/26

This is a poem that many will identify with. The endless amount of pills we seem to be prescribed will be familiar to many I'm sure.

en-nz

00:12:30

What do we leave our children? Memories, Money and...

My journey with Parkinson"s ·

2024/12/25

Sharing Christmas with my two children, my daughter-in-law and my six grandchildren. Reflecting on what I might pass on to them one day and telling them the history behind some of the 'junk' in my china cabinet. It brought home to me, that there is no reason why they should feel inclined to keep any of it, without knowing the stories that go with some of the items. So, I will write down the stories, so that they can be passed on with the items they choose to retain.

en-nz

00:02:16

Christmas 2024 - Episode 14

My journey with Parkinson"s ·

2024/12/21

I thought I would write a quick poem about Christmas to share with you. I hope you like it. I'd love to hear your comments on this or any of my podcasts.

en-nz

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