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PODCAST

RealTalk MS

Jon Strum cuts through all the jargon and breaks down the latest multiple sclerosis news. You"ll meet the scientists who are creating tomorrow"s MS treatments today. You"ll hear from the experts discussing how the latest tweaks and changes to our healthcare laws will impact your MS treatment. And we"ll be talking to the courageous MS warriors who are out there advocating on behalf of the MS community every day, as well as the men and women who are committed to living their best lives with MS and

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All Episodes

31:57

Episode 323: Support for Veterans with MS with Izzy...

RealTalk MS ·

2023/11/06

More than 70,000 U.S. veterans are living with MS. That's why the only federal funding specifically earmarked for MS research comes from the U.S. Department of Defense. It's why the U.S. Department of Veterans Affairs has established the Multiple Sclerosis Centers of Excellence. And it's why, in 2019, the National MS Society established a strategic partnership with the U.S. Department of Veterans Affairs. This week, we're saluting the men and women of our armed services, and we're highlighting some

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33:38

Episode 322: Women's Research in MS with Rachel Horne...

RealTalk MS ·

2023/10/30

Rachel Horne is a journalist who was diagnosed with MS in 2009. Since then, Rachel has developed a first-hand understanding of the knowledge gaps that remain when it comes to understanding the impact of MS on women's health and the impact of women's health issues on MS. As Rachel reviewed MS research, she also observed that when it came to acknowledging outstanding MS research, it was rare that a female researcher was singled out to receive recognition for their work. This year, Rachel took action

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10:20

ECTRIMS EXTRA: Dr. Robert Motl

RealTalk MS ·

2023/10/28

With more than 9,000 MS researchers and clinicians in attendance, the 2023 combined ECTRIMS-ACTRIMS meeting in Milan was the largest MS research conference in the world. During the meeting, I had an opportunity to talk with some of the best and brightest minds in MS research and clinical practice. This is your invitation to listen in on my ECTRIMS EXTRA conversation with Dr. Robert Motl. Dr. Motl is a professor in the department of Kinesiology and Nutrition, and a professor in the department of

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09:03

ECTRIMS EXTRA with Dr. Daniel Ontaneda

RealTalk MS ·

2023/10/27

With more than 9,000 MS researchers and clinicians in attendance, the 2023 combined ECTRIMS-ACTRIMS meeting in Milan was the largest MS research conference in the world. During the meeting, I had an opportunity to talk with some of the best and brightest minds in MS research and clinical practice. This is your invitation to listen in on my ECTRIMS EXTRA conversation with Dr. Daniel Ontaneda. Dr. Ontaneda is a neurologist at the Cleveland Clinic Neurological Institute's Mellen Center for Multiple

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06:20

ECTRIMS EXTRA: Dr. Annette Langer-Gould

RealTalk MS ·

2023/10/26

With more than 9,000 MS researchers and clinicians in attendance, the 2023 combined ECTRIMS-ACTRIMS meeting in Milan was the largest MS research conference in the world. During the meeting, I had an opportunity to talk with some of the best and brightest minds in MS research and clinical practice. This is your invitation to listen in on my ECTRIMS EXTRA conversation with Dr. Annette Langer-Gould. Dr. Langer-Gould is an MS Specialist at Kaiser-Permanente, and while at the ECTRIMS-ACTRIMS meeting,

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08:43

ECTRIMS EXTRA with Dr. Anthony Feinstein

RealTalk MS ·

2023/10/25

With more than 9,000 MS researchers and clinicians in attendance, the 2023 combined ECTRIMS-ACTRIMS meeting in Milan was the largest MS research conference in the world. During the meeting, I had an opportunity to talk with some of the best and brightest minds in MS research and clinical practice. This is your invitation to listen in on my ECTRIMS EXTRA conversation with Dr. Anthony Feinstein. Dr. Feinstein is a Professor of Psychiatry at the University of Toronto, and his expertise is in the

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22:59

Episode 321: More from the 2023 Joint ECTRIMS-ACTRIMS...

RealTalk MS ·

2023/10/23

This week, we're sharing more from the 2023 joint ECTRIMS (European Committee for Treatment and Research in Multiple Sclerosis) and ACTRIMS (Americas Committee for Treatment and Research in Multiple Sclerosis) annual meeting. What if we could identify MS before anyone experienced any of the typical clinical symptoms? Would treating that person with a high-efficacy disease-modifying therapy prevent the clinical symptoms of MS from even developing? Those are the questions that make the study of the MS

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10:19

ECTRIMS EXTRA with Dr. Jiwon Oh

RealTalk MS ·

2023/10/19

With about 9,000 MS researchers and clinicians in attendance, the 2023 combined ECTRIMS-ACTRIMS meeting in Milan was the largest MS research conference in the world. During the meeting, I had an opportunity to talk with some of the best and brightest minds in MS research and clinical practice. This is your invitation to listen in on my ECTRIMS EXTRA conversation with Dr. Jiwon Oh. Dr. Oh is a neurologist, scientist, and the Medical Director of the Barlo Multiple Sclerosis Program at St. Michael's

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17:53

Episode 320: From ECTRIMS-ACTRIMS 2023 with Bonnie...

RealTalk MS ·

2023/10/16

Last week, more than 9,000 MS research scientists and clinicians from more than 110 countries traveled to Milan to attend the largest MS research conference in the world, the 2023 joint ECTRIMS (European Committee for Treatment and Research in Multiple Sclerosis) and ACTRIMS (Americas Committee for Treatment and Research in Multiple Sclerosis) annual meeting. In keeping with a RealTalk MS tradition, just as the meeting was ending and the thousands of attendees were heading for the exits, I connected

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28:54

Episode 319: Global Survey Results Support a New...

RealTalk MS ·

2023/10/09

We've been using the same MS clinical course descriptors (relapsing-remitting, secondary progressive, and primary progressive) for almost three decades. As research has provided so much additional information and insight, is it time to update the way we describe, diagnose, and treat MS? The International Advisory Committee on Clinical Trials in Multiple Sclerosis has established a working group to explore this question. And, as a means of eliciting feedback from stakeholders around the world, a

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36:05

Episode 318: Understanding Shared-Decision Making...

RealTalk MS ·

2023/10/02

In this episode of RealTalk MS, we're talking about what you should be talking about with your neurologist or MS Specialist. Shared decision-making is a key component of patient-centered health care. It's a process in which clinicians and patients work together to make evidence-based decisions on tests, treatments, and care plans that balance risks and expected outcomes with patient preferences and values. But is shared decision-making actually occurring? Or are people living with MS still being

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19:20

Episode 317: It's Our 6th Anniversary! These Are the...

RealTalk MS ·

2023/09/25

RealTalk MS is now 6 years old! We've covered a lot of ground in more than 300 episodes over the past 6 years. And I'm marking our 6-year anniversary by highlighting the most impactful conversations we've had in each of the past 6 years. We have a lot to talk about! Are you ready for RealTalk MS??! SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/317 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast

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31:00

Episode 316: Sex and MS with Madelyn Esposito

RealTalk MS ·

2023/09/18

It's not unusual to see sex and intimacy become unintended and unnecessary collateral damage in the day-to-day-challenges of living with MS. But it doesn't have to be that way. Madelyn Esposito, LPC, NCC, CST, joins me to discuss some of the common sexual problems faced by people living with MS, ways to maintain intimacy in your relationships, and tips for maintaining a healthy sex life. Kristine Werner-Ozug and Cheryl Weeks-Frey take you inside the workings of the MS Society's Community Review of

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39:11

Episode 315: Understanding Generic and Biosimilar...

RealTalk MS ·

2023/09/11

Just a couple of weeks ago, the FDA approved the first biosimilar medication for treating MS. As generics and now, biosimilars, become more available, it seems like the right time for us to get clear on the similarities and differences between generics, biosimilars, and the name-brand drugs that they mimic. Dr. Jiwon Oh joins me to explain everything you need to know to be an informed medical consumer when it comes to generic and biosimilar disease-modifying therapies. Dr. Oh is a neurologist,

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24:10

Episode 314: Pelvic Floor Health and MS with Jill...

RealTalk MS ·

2023/09/04

When you're living with MS, managing your pelvic floor health may not be among the first things you think about. But pelvic floor dysfunction, and the problems that arise from it, like bladder and bowel issues, can seriously impact your health, well-being, and quality of life. Jill Ehrmantraut, a physical therapist and women's health clinical specialist with advanced training in pelvic rehabilitation, joins me to explain what pelvic floor rehab is all about, why it's important, and how you can get

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29:46

Episode 313: Disaster Preparedness for People...

RealTalk MS ·

2023/08/28

Fire, flood, record-setting heat, tropical storm, earthquake -- we've seen it all in the past several weeks! Natural disasters can present a whole series of unique challenges for people affected by MS. Last year, I had an opportunity to talk about disaster preparedness for people affected by MS with Mary Casey-Lockyer, the Senior Medical Advisor to Disaster Operations at the American Red Cross. As extreme weather events become a more frequent and regular occurrence in our everyday weather patterns,

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30:11

Episode 312: Adapting Exercise for MS with Dr....

RealTalk MS ·

2023/08/21

Contrary to what was once believed to be true, we now know that exercise and physical activity can deliver several important benefits for people living with MS, and actually improve your quality of life. Experts recommend exercise and physical activity for everyone living with MS, at every level of ability. Dr. Gretchen Hawley joins me this week to talk about what kinds of exercises you can and should be doing -- at your level of ability. We'll also tell you about an experimental Epstein-Barr

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40:27

Episode 311: Prehabilitation with Dr. Kathy Zackowski

RealTalk MS ·

2023/08/14

Rehabilitation can help people regain, keep, or improve the physical or cognitive abilities they need to successfully navigate their daily lives, which makes it an important aspect of managing MS. In this episode of RealTalk MS, we're focusing on a concept that may not be as familiar to you -- prehabilitation, a proactive approach to maintaining your mobility and independence longer. Returning to RealTalk MS to discuss the value and benefits of prehabilitation is the National MS Society's

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30:56

Episode 310: The Face Laughs While the Brain Cries...

RealTalk MS ·

2023/08/07

Dr. Stephen Hauser's research as a physician-scientist has revolutionized our understanding of the genetics, immunology, and treatment of MS. It was Dr. Hauser's research that led to the development of a b-cell therapy for MS, which has been shown to be highly effective in treating all forms of MS and the only treatment approved for treating progressive MS. Dr. Hauser joins me this week, to discuss some of the pivotal moments in his remarkable career. Dr. Hauser's memoir, The Face Laughs While the

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36:24

Episode 309: Solving Speech and Swallowing Problems...

RealTalk MS ·

2023/07/31

The ability to speak is something so basic to our day-to-day lives that you may not ever stop to consider it until you realize something about your speech may be changing. And swallowing is something that's so automatic, we take it for granted. Until, that is, something changes, and you find yourself choking on a sip of water. Speech and swallowing problems are fairly common MS symptoms. And joining me to discuss some of the most common speech and swallowing disorders people with MS might encounter,

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