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PODCAST

Tales from the Heart

Hypertrophic Cardiomyopathy Association / Lisa Salberg

Tales from the Heart is a unique collection of educational, inspirational, and enlightening discussions with the stakeholders in the field of cardiology that come straight from the heart. The guests are patients, physicians, healthcare professionals, industry leaders, state and federal regulators and legislators, journalists, and more. Each story delves into the world of the Hypertrophic Cardiomyopathy Associations network and uncovers the true face of HCM from every angle. Patients will inspire

health & fitness non-profit

All Episodes

01:02:03

Episode 58: Balancing work/family/HCM while keeping...

Tales from the Heart ·

2022/06/04

In this episode of Tales from the Heart, Lisa Salberg, Dr. Marty Maron and Dr. Prem Shekar discuss exercise and balancing work/family/HCM while keeping fit (mentally and physically). This episode was broadcasted live from the new Lahey Hospital & Medical Center Hypertrophic Cardiomyopathy (HCM) medical and surgical center.

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49:53

Episode 57:Medical Management, Managing Symptoms and...

Tales from the Heart ·

2022/06/01

In this episode of "Tales from the Heart", Lisa Salberg and her guest Dr. Harry Lever discuss medical management, managing symptoms and medication side effects.

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01:11:02

Episode 56: A Review of REDWOOD HCM OLE with Dr....

Tales from the Heart ·

2022/06/01

In this episode of Tales From the Heart, Lisa Salsberg has a discussion with representatives: Dr. Steve Heitner and Dr. Dan Jacoby from Cytokinetics about REDWOOD HCM OLE.

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01:03:30

Episode 55:Special Edition: Camzios is here!! with Dr...

Tales from the Heart ·

2022/05/02

In this special edition episode of Tales from the Heart, host Lisa Salsberg and Dr. Milind Desai of Clevaland discuss the arrival of the new drug Camzyos. Camzyos is the first and only FDA-approved cardiac myosin inhibitor that specifically targets the source of obstructive HCM

en

58:48

Episode 54: Communicating about Genetics/Family...

Tales from the Heart ·

2022/04/25

In this episode of "Tales from the Heart" host, Lisa Salberg, and her guest, Dr. Steve Ommen discuss Genetics/Family History in HCM and Communicating (genetics/FH) with family. The conversation includes a background on genetic mutations known to cause HCM (sarcomere, autosomal dominant, etc.). They also answer the questions: What do genetic tests for HCM mean? Who should be tested? What do genetic tests for HCM NOT mean? What does the genetic test involve?

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01:08:58

Episode 53: The Role of Patient Advocacy for Uncommon...

Tales from the Heart ·

2022/04/24

In this episode of Tales from the Heart, Lisa Salsberg and Dr. Turer discuss the role of patient advocacy for uncommon disorders

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45:43

Episode 52: Arrythmias / Life with Devices Part II...

Tales from the Heart ·

2022/03/28

In this episode of Tales from the Heart, host Lisa Salsberg and Dr. Harry Lever of Cleveland Clinic will discuss risk assessment for sudden death, the effectiveness of therapies, assessment of non-life-threatening arrythmias (atrial fibrillations, PVC, SVT), decreasing stroke risk and more.

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20:17

Episode 51: Special Edition: Student athlete...

Tales from the Heart ·

2022/03/25

In this special edition episode of Tales From the Heart, Lisa Salsberg and Dr. Matthew Martinez discuss student athlete screening as it relates to COVID and the COVID Vaccine. New Jersey Statue C.18A:40-41.6 clearly communicates the role of student-athlete preparticipation physical examinations. The Hypertrophic Cardiomyopathy Association, HCMA, and other organizations in NJ worked to pass updates to this legislation to ensure all student-athletes are protected from all forms of cardiac

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01:00:20

Episode 50: Discussing Timely HCM Topics with Dr....

Tales from the Heart ·

2022/03/23

Dr. Alex De Feria joins host Lisa Salsberg for this episode of Tales from the Heart to discuss timely HCM topics. Being diagnosed with HCM, Dr. Feria brings a unique point of view on HCM from both a doctor's and patients perspective.

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59:26

Episode 49: Arrythmias / Life with Devices Part I...

Tales from the Heart ·

2022/03/16

The HCMA theme for the month of March is: "Arrythmias / Life with Devices". In this episode of Tales from the heart, host Lisa Salsberg and Dr. Maron will discuss risk assessment for sudden death, the effectiveness of therapies, assessment of non-life-threatening arrythmias (atrial fibrillations, PVC, SVT), decreasing stroke risk and more.

en

36:42

Episode 48: Reflections of February 2022 HCM...

Tales from the Heart ·

2022/03/08

In this episode of Tales from the Heart, host Lisa Salsberg reflects on HCM Heart Month this past February and why it was important.

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59:33

Episode 47: Why is HCM Awareness so important? - with...

Tales from the Heart ·

2022/02/28

In this episode of Tales from the Heart, host Lisa Salsberg wraps up Heart Month with a discussion about why HCM Awareness is so important with Dr. Steve Ommen of Mayo Clinic. Dr Steve Ommen leads the HCM program and talk about HCM history and a vision of the future in HCM. ACC Survey Link: Survey link: https://www.surveys.acc.org/se/0B87B7442D11B879 Imbria Trial: https://www.surveymonkey.com/r/hcmawareness Celltrion: https://www.surveymonkey.com/r/hcmacelltrion Please share this story to bring

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54:33

Episode 46: Discussing the HCM act with Billur Dowse:...

Tales from the Heart ·

2022/02/21

In this episode of Tales from the Heart, host Lisa Salsberg talks to Heart Billur Dowse, HCMA board member and Chair of the Elizabeth T. McNamee Legislative Advocacy Committee about the role of the committee and the HCM Act.

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41:37

Episode 45: Heart Month Discussion: How do we find...

Tales from the Heart ·

2022/02/11

In this episode of Tales from the Heart, Lisa and Dr. Maron discuss delay to diagnosis, the right time to go to a COE, the importance of expert care, family screening, how to find HCM families, and more. #4HCMAwareness #HCMStrong #HCMDay #4HCMWarriors #4HCM

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39:18

Episode 44: Heart Month and Health Equity with Celina...

Tales from the Heart ·

2022/02/08

In this episode of Tales from the Heart WomanHeart CEO Celina Gorre, joins HCMA CEO Lisa Salberg for a discussion about Heart Month and health equity for the HCM community.

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48:53

Episode 43: Planning your HCM Year with Dr. Harry Lever

Tales from the Heart ·

2022/02/01

In this episode of Tales From the Heart, Lisa Salberg, CEO of the HCMA and Dr. Harry Lever of the Cleveland Clinic gives tips on how to plan your HCM year.

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57:51

Episode 42: Mike Papale: HCM Warrior, Cardiac Arrest...

Tales from the Heart ·

2022/01/25

In this episode of Tales from the Heart, Lisa talks to Mike Papale: HCM warrior, cardiac arrest survivor, author, and advocate. Mike talks about his book "A Big Heart: A Memoir" which tells the story of his diagnosis with HCM and how it's shaped his life.

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55:03

Episode 41: What will 2022 bring for the HCM...

Tales from the Heart ·

2022/01/18

In this episode of Tales from the Heart, Lisa Salberg and Dr. Martin Maron discuss what is coming to the HCM community in 2022, how to plan as a patient for the new year, and the exciting new programs we are starting.

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33:06

Bonus: HCMA International Part I: The Sweden Chapter

Tales from the Heart ·

2021/12/22

As the HCMA grows we know how important it is for patients to receive information in a language they are comfortable speaking. Additionally, we know that every country has a unique healthcare system. This is why we have launched HCMA International to help bridge gaps in knowledge, understanding, and access to care for patients around the world. In this bonus episode of Tales From the Heart, we talk to our Sweden chapter.

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01:30:08

Episode 40: Health Equity in HCM: Diving into the...

Tales from the Heart ·

2021/12/14

This episode of Tales from the Heart focuses on health equity and the HCM experience within the Black/African American community. It was originally recorded on Facebook live on December 9, 2021

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