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PODCAST

RealTalk MS

Jon Strum cuts through all the jargon and breaks down the latest multiple sclerosis news. You"ll meet the scientists who are creating tomorrow"s MS treatments today. You"ll hear from the experts discussing how the latest tweaks and changes to our healthcare laws will impact your MS treatment. And we"ll be talking to the courageous MS warriors who are out there advocating on behalf of the MS community every day, as well as the men and women who are committed to living their best lives with MS and

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All Episodes

25:43

Bonus Episode: Everything You Need to Know About...

RealTalk MS ·

2023/07/28

This special episode of RealTalk MS is sponsored by Sanofi. In this special episode of RealTalk MS, Dr. Aaron Boster walks us through everything you need to know about clinical trials. If you've ever wondered what the difference is between a Phase 1 clinical trial, a Phase 2 clinical trial, or a Phase 3 clinical trial, you're about to find out. If you're curious about how a clinical trial participant's privacy is protected, how safety is ensured, and how you can learn about clinical trials that

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36:20

Episode 308: Improving Your Balance and Walking When...

RealTalk MS ·

2023/07/24

Experiencing difficulty walking is one of the most common mobility challenges faced by people living with MS. The good news is that there are things you can do -- both with a physical therapist and by yourself, at home -- that can make a real difference. Joining me to discuss improving your gait, avoiding falls, and what experts are learning from the latest research in this area is the Director of Research for the Department of Health Care Sciences at Wayne State University School of Medicine, Dr

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34:54

Episode 307: Managing Stress and Anxiety When You're...

RealTalk MS ·

2023/07/17

Learning to effectively manage stress and anxiety is important for everyone. And if you're living with the unpredictability of MS, it may be doubly important. Joining me to discuss the impact that stress and anxiety can have on your physical and mental health, along with strategies you can use to manage the stress and anxiety in your life, is Dr. Bree Wannamaker. Dr. Wannamaker lives with MS, and she's a Licensed Professional Counselor and Chief Therapist & Consultant in her practice, Just Us

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31:02

Episode 306: Making Meal Planning and Prep Easier...

RealTalk MS ·

2023/07/10

Living your best life with MS often means planning ahead and, when circumstances require, knowing when and how to adapt. Many of us find ourselves in the kitchen every day. And, while cooking can be pleasurable, it can also be a chore that only gets worse if you're dealing with pain, fatigue, mobility issues, tingling in your hands and arms, unsteady balance, or other MS symptoms. Award-winning author, chef, and blogger, Trevis Gleason joins me to talk about how planning ahead and adopting new

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31:42

Episode 305: 30 Years Later -- Looking Back (and...

RealTalk MS ·

2023/07/03

2023 marks 30 years since the very first MS disease-modifying therapy received FDA approval. To say that changed everything would be an understatement. Two of the top MS experts in the world have published a reflection, looking back at how MS research and treatment has progressed over the past 30 years and looking ahead at the challenges that remain in solving the riddle of MS. Joining me this week are the authors of that reflection, Dr. Fred Lublin and Dr. Stephen Krieger. Dr. Lublin participated

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41:00

Episode 304: The International Progressive MS...

RealTalk MS ·

2023/06/26

Just a couple of weeks ago, the International Progressive MS Alliance convened its fourth Scientific Congress in Vienna, Austria, bringing together nearly 200 international scientists and MS leaders, including people affected by progressive MS, to report and review the progress being made in developing new, effective treatments for progressive MS. In Part 2 of our coverage, we're taking you back inside this Scientific Congress, where you'll hear from some of the top MS researchers in the world who

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54:33

Episode 303: The International Progressive MS...

RealTalk MS ·

2023/06/19

Last week, the International Progressive MS Alliance convened its fourth Scientific Congress in Vienna, Austria, bringing together nearly 200 international scientists and MS leaders, including people affected by progressive MS, to report and review the progress being made in developing new, effective treatments for progressive MS. In Part 1 of our coverage, we're taking you inside this Scientific Congress, where you'll hear from some of the top MS researchers in the world who participated in this

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39:34

Episode 302: De-Stressing Air Travel If You're Living...

RealTalk MS ·

2023/06/12

When you’re living with MS, air travel can sometimes get complicated. We’re heading into the summer vacation season, so the timing couldn’t be better to talk with Dr. Scott Crawford. Dr. Crawford is a neuropsychologist who lives with MS and has extensive experience as a passenger on commercial airlines. Dr. Crawford is also an MS Activist and he's joining me to walk us through how to de-stress airline travel and to explain your rights as an airline passenger if you're living with a disability.

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49:39

Episode 301: From the Consortium of Multiple...

RealTalk MS ·

2023/06/05

Last week, the Consortium of Multiple Sclerosis Centers brought together over 2,000 neurologists, MS nurses, rehabilitation specialists, and other healthcare professionals in Aurora Colorado, for their annual conference. This week, we're taking you inside the meeting and sharing our conversations with some of the difference-makers in the MS Movement. Next week, we're traveling to Vienna, Austria to attend the International Progressive MS Alliance Scientific Congress, where we'll hear updates on

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33:32

Episode 300: Healthcare Disparities Among Minority...

RealTalk MS ·

2023/05/29

Welcome to the 300th episode of RealTalk MS! Yikes! In last week's episode of the podcast, Dr. Bruce Bebo walked us through the latest research on the prevalence of MS in the United States, and the data serves as a clear reminder that anyone can get MS. However, not everyone with MS receives the same quality of care. My guest today is clinician-researcher Dr. Lilyana Amezcua, and we're discussing her work in exploring healthcare disparities among minority populations. In addition to celebrating

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35:31

Episode 299: Update on the Prevalence of MS in the...

RealTalk MS ·

2023/05/22

Evidence shows that MS can affect members of minority communities differently. But how does that impact the total number of people who are living with MS? For multiple reasons, it's a tricky problem to solve. Yet, it's important that the numbers reflect everyone living with MS and no one is left behind. This week, the National MS Society's Executive Vice-President of Research, Dr. Bruce Bebo, is on hand to walk us through the just-published results of a study that provides a more granular

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37:26

Episode 298: From the Pathways To Cures Global Summit...

RealTalk MS ·

2023/05/15

Don't miss the second installment of our Pathways To Cures Global Summit coverage. For this unprecedented event, the National MS Society brought together the best and brightest minds in MS research, the CEOs of major MS Societies, representatives from the pharmaceutical industry, and people affected by MS to update the scientific foundation of the Pathways To Cures research roadmap and set the global MS research agenda for the next 3-5 years. In Part 2 of our coverage, we're taking you back inside

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40:40

Episode 297: From the Pathways to Cures Global Summit...

RealTalk MS ·

2023/05/08

This past week, the National MS Society hosted the Pathways To Cures Global Summit, bringing together the best and brightest minds in MS research, the CEOs of major MS Societies, representatives from the pharmaceutical industry, and people affected by MS to update the scientific foundation of the Pathways To Cures research roadmap and set the global MS research agenda for the next 3-5 years. In Part 1 of our coverage, we're taking you inside this historic meeting, where you'll hear from some of

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35:30

Episode 296: Everything You Should Know About MS...

RealTalk MS ·

2023/05/01

This week, we're in New York, attending the Pathways To Cures Global Summit. The National MS Society is convening the world -- bringing together the best and brightest minds in MS research, the CEOs of major MS Societies, representatives from the pharmaceutical industry and people affected by MS -- to update the scientific foundation of the Pathways To Cures research roadmap and set the global MS research agenda for the next 3-5 years. Don't miss next week's episode of RealTalk MS, when you'll hear

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43:22

Episode 295: Numbness, Tingling, Pain, Itch --...

RealTalk MS ·

2023/04/24

In this week's episode, we're talking about a set of MS symptoms that can range in intensity from mildly annoying to completely debilitating. These symptoms include numbness, tingling, pain, that "electric shock" feeling you might experience traveling down the back of your neck, and the infamous MS hug. Joining me to walk us through how to best manage these sensory symptoms is Dr. Jeffrey Hernandez. Dr. Hernandez is a doctorally prepared nurse practitioner who specializes in multiple sclerosis.

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37:26

Special Episode: Barancik Prize Conversations -- Part 2

RealTalk MS ·

2023/04/19

Welcome to Part 2 of a special two-part RealTalk MS series highlighting conversations with past recipients of the Barancik Prize for Innovation in MS Research. The Barancik Prize is awarded at the annual meeting of the Americas Committee for Treatment and Research in Multiple Sclerosis, a meeting better known as the ACTRIMS Forum. Several past Barancik Prize winners gathered at the 2023 ACTRIMS Forum to celebrate the 10th anniversary of the Barancik Prize, and I took that opportunity to chat with

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31:22

Episode 294: Disclosing Your MS in the Workplace with...

RealTalk MS ·

2023/04/17

Disclosing your MS to your employer is an important decision that can sometimes be tricky and can sometimes lead to unintended consequences. Joining me to discuss some of the things you want to be thinking about when it comes to disclosing your MS in the workplace is a Manager on the Benefits, Employment, and Insurance Team at the National MS Society, Christina Forster. We're also extending an invitation for you to spend a quick couple of minutes taking the RealTalk MS listener survey...and we're

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30:47

Special Episode: Barancik Prize Conversations -- Part 1

RealTalk MS ·

2023/04/12

Welcome to Part 1 of a special two-part RealTalk MS series highlighting conversations with past recipients of the Barancik Prize for Innovation in MS Research. The Barancik Prize is awarded at the annual meeting of the Americas Committee for Treatment and Research in Multiple Sclerosis, a meeting better known as the ACTRIMS Forum. Several past Barancik Prize winners gathered at the 2023 ACTRIMS Forum to celebrate the 10th anniversary of the Barancik Prize, and I took that opportunity to chat with

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40:31

Episode 293: An Update on Diet and MS with Dr. Ilana...

RealTalk MS ·

2023/04/10

You've told me that the subject of diet and MS is one of your top three interests. And a quick scan of social media platforms reveals that a lot of people living with MS agree! This week, Dr. Ilana Katz Sand, the Associate Director of the Corinne Goldsmith Dickinson Center for Multiple Sclerosis at Mount Sinai, joins me with an update on what the latest research is revealing about the impact of diet on MS, and to answer that eternal question -- Is there an MS diet? We're also talking about the

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30:59

Episode 292: Could This Be the Cause of MS? With Dr....

RealTalk MS ·

2023/04/03

If you've listened to this podcast before, you already know that we avoid hype, and we stick to talking about evidence-based science. So, let me say right up front -- today, the cause of multiple sclerosis is unknown. However, a research team has identified a bacterial toxin that may prove to be the cause of MS onset as well as MS relapses. Joining me for an exclusive conversation about this discovery is Dr. Timothy Vartanian, who leads the team that made the discovery, and Dr. Richard Rudick,

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