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PODCAST

Tales from the Heart

Hypertrophic Cardiomyopathy Association / Lisa Salberg

Tales from the Heart is a unique collection of educational, inspirational, and enlightening discussions with the stakeholders in the field of cardiology that come straight from the heart. The guests are patients, physicians, healthcare professionals, industry leaders, state and federal regulators and legislators, journalists, and more. Each story delves into the world of the Hypertrophic Cardiomyopathy Associations network and uncovers the true face of HCM from every angle. Patients will inspire

health & fitness non-profit

All Episodes

01:18:40

Episode 24: Cleveland Clinic's long history with HCM...

Tales from the Heart ·

2021/05/09

In this episode of Tales from the heart Dr. Nick Smedira introduces a new member of the Cleveland Clinic HCM surgical team,: Dr. Doug Johnston.Cleveland Clinic has a long history with HCM and myectomy. Currently they are preforming an estimated 220 myectomies per year.

en

55:11

Episode 23: Obstruction in HCM with Dr. Harry Lever

Tales from the Heart ·

2021/05/09

In this episode of Tales from the Heart, host Lisa Salberg, CEO and Founder of the HCMA and Co-Host Dr. Harry Lever discuss obstruction in HCM. Q&A at the 30 minute mark.

en

55:43

Episode 22: HCMA Founder Lisa Salberg and Dr. Martin...

Tales from the Heart ·

2021/04/12

In this episode of Tales from the Heart, Lisa Salber, CEO and Co-host Dr. Martin Maron discuss atrial fibrillation in HCM. We take a look into some of the unique issues HCM patients and their care team encounter while attempting to manage this common pathway in the HCM journey. Approximately 30% of the HCM population will experience a-fib at some point in their life with HCM. Q&A at the end of the episode. 4hcm.org

en

52:14

Episode 21: Adults with HCM and Competitive Athletic...

Tales from the Heart ·

2021/03/28

In this episode of Tales from the Heart, Lisa and Co-Host Dr. Martin Maron, Tufts Medical Center/Morristown Medical Center HCM Director talk with HCM Warrior Seth P. This episode focuses on adults with HCM and competitive athletic participation. Disclaimer: This podcast does not discuss children, college athletics, or professional participation in competitive athletics. Join us to hear how Seth managed his HCM and his life’s passion.

en

55:14

Episode 20: Lisa Salberg and Co-host Dr. Harry Lever...

Tales from the Heart ·

2021/03/28

In this episode of Tales from the Heart, Lisa and Co-host Dr. Harry Lever, Cleveland Clinic. take a deeper look into medications used in HCM. Dr. Lever’s sides he used for this segment can be viewed on the HCM YouTube channel

en

01:09:07

Episode 19: A Conversation with Dr. Martin Maron and...

Tales from the Heart ·

2021/02/22

In this episode of Tales from the Heart, Lisa Salberg and Co-Host Marty Maron are joined by Karen, an HCM Warrior. This is an inspirational story of how HCMA Center of Excellence care, HCM research, and the HCMA support helped create the infrastructure for a fantastic journey!

en

01:02:29

Episode 18: A discussion with Dr. Harry Lever and...

Tales from the Heart ·

2021/01/27

In this episode of Tales From the Heart, Lisa talks to Dr. Harry Lever and special guest HCM Warrior Kathy Wilson. Kathy tells a story of misdiagnosis, anxiety, open heart surgery (myectomy), and recovery.

en

42:37

Episode 17: A discussion about family screening with...

Tales from the Heart ·

2021/01/11

In this episode of Tales From the Heart, recorded January 8, 2021, Lisa talks to Dr. Martin Maron, director of the HCM Center, Tufts Medical Center, Associate Professor at Tufts University School of Medicine about family screening in families with HCM. Dr. Martin Maron also gives his thoughts on the Covid-19 vaccine and what HCM patients should do if they test positive for Covid-19.

en

49:51

Episode 16: Euan Ashley, MD, PhD Professor of...

Tales from the Heart ·

2020/12/31

In this episode, Euan Ashley, MD, PhD Professor of Medicine & Genetics Stanford and HCM Program Co-Director discusses his new book, The Genome Odyssey - Medical Mysteries, and the incredible question to solve them. We are also joined by Leilani Graham, who is featured in the book. The ties to HCM are made clear in the podcast! Q&A live at the conclusion of the interview. Available for preorder https://us.macmillan.com/books/9781250234995

en

29:11

Episode 15: Author RA Anderson discusses her new book...

Tales from the Heart ·

2020/12/22

In this episode of Tales from the Heart, author RA Anderson discusses her ties to the HCM community and her new book, Once Upon the Rhine - Cody the Cockatrice Series Book One. In which we meet Brody a young boy with a diagnosis of HCM. The book is currently available through the HCMA: https://www.4hcm.org/store_product.asp?prodid=45

en

01:16:26

Episode 14: Discussing New HCM Guidelines Part 2-...

Tales from the Heart ·

2020/12/14

In part two of this special episode of Tales From the Heart, Lisa continues to talk about the new HCM guidelines released on 11/20/2020 with Dr. Harry Lever and Dr. Martin Maron. Q and A included.

en

01:02:25

Episode 13: Discussing New HCM Guidelines Part 1...

Tales from the Heart ·

2020/12/14

In part one of this special episode of Tales From the Heart, Lisa talks with Dr. Harry Lever about the New HCM guidelines released on 11/20/2020.

en

50:33

Episode 12: A look to the future - a little research...

Tales from the Heart ·

2020/11/22

In this episode of Tales from the Heart, Lisa talks to Dr. Martin Maron, the Director of the Hypertrophic Cardiomyopathy Center at Tufts Medical Center and Associate Professor at Tufts University School of Medicine. His specialties include cardiac imaging, hypertrophic cardiomyopathy, and cardiac magnetic resonance imaging. Lisa and Dr. Maron talk about the how HCM treatment has improved over the years and how it will evolve in the future.

en

01:01:54

Episode 11: Special Guest Robert Blum: President &...

Tales from the Heart ·

2020/11/06

In this episode, Lisa speaks with Robert Blum, President and CEO of Cytokinetics about future therapies for HCM and how industry and advocacy can work together to improve the lives of those with HCM. The current status of Cytokinetics clinical trials in HCM is discussed. Q&A included.

en

01:06:00

Episode 10: When is it time for invasive therapy for...

Tales from the Heart ·

2020/10/28

In this episode, Lisa talks with Dr. Harry Lever of Cleveland Clinic for a discussion about invasive therapy for obstruction. We take a deep dive in to "when" to think about getting moving to myectomy or alcohol septal ablation. Dr. Lever also talks about the various treatments for obstruction. Q&A included.

en

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