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Living While Dying: An ALS Story

Minnesota Public Radio

Bruce Kramer lived a remarkably rich life because of – not despite – an incurable, always fatal disease: Amyotrophic Lateral Sclerosis, or Lou Gehrig’s Disease. He was diagnosed with ALS December 6, 2010. While the disease diminished his body, it expanded his life and spirit. He shared that experience with Minnesota Public Radio News host Cathy Wurzer over nearly five year of conversations.

science & medicine

All Episodes

00:12:29

12. Adaptive yoga

Living While Dying: An ALS Story ·

2015/08/28

After being diagnosed with ALS, Bruce Kramer learned to appreciate the value of yoga. He found it to be a freeing and emotional experience. It helped Bruce reconnect with parts of his body that were affected by the disease.

en-us

00:09:39

11. spirituality

Living While Dying: An ALS Story ·

2015/08/21

Bruce Kramer reflects on how having ALS has affected his belief in God. He says it has not shaken his faith. He thinks ALS proves that there is something greater than us.

en-us

00:10:05

10. Drug trial disappointment

Living While Dying: An ALS Story ·

2015/08/14

Bruce Kramer participated in a drug trial to determine if Dexpramipexole could slow the progression of ALS. Kramer felt the drug was working for him and was frustrated when the trial was terminated.

en-us

00:12:23

9. Christmas reflections

Living While Dying: An ALS Story ·

2015/08/07

Two years since being diagnosed with ALS, Bruce Kramer re-evaluates his priorities. As Christmas approaches, he has the time and solitude to appreciate the season more than ever.

en-us

00:09:52

8. An Early Retirement

Living While Dying: An ALS Story ·

2015/07/31

People who've been hit hard by a very serious health challenge wrestle with a lot of questions right after their diagnosis. One of them is, "can I, should I, keep working?" Bruce Kramer talks about his battle with this question.

en-us

00:06:58

7. Questioning science

Living While Dying: An ALS Story ·

2015/07/24

Bruce Kramer talks about participating in a drug trial, and how it led him to question the bureaucracy of the medical care system.

en-us

00:10:33

6. Shedding skins

Living While Dying: An ALS Story ·

2015/07/17

Bruce Kramer describes how he adjusts mentally to the changes in his physical capabilities brought on by the progression of ALS. He likens it to a snake shedding skins.

en-us

00:13:50

5. A wife becomes a caregiver

Living While Dying: An ALS Story ·

2015/07/10

A conversation with Bruce Kramer and his wife Ev Emerson about their evolving relationship. As his ALS progresses, she is becoming a caregiver.

en-us

00:10:17

4. Being a teacher

Living While Dying: An ALS Story ·

2015/07/03

When he was diagnosed with ALS, Bruce Kramer was a dean and professor in the University of St. Thomas School of Education. As the disease weakened his body, it made teaching more difficult. It also helped him focus on what was important in his professional life.

en-us

29 results

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