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PODCAST

COR2ED - Rare Diseases Medical Conversation

COR2ED Medical Education

Join medical experts as they discuss their approaches to identifying, treating, and managing rare diseases, like primary biliary cholangitis, neuroendocrine tumours, rare bone diseases, and growth disorders. The conversations also explore the evolving treatment landscape, including exciting innovations in gene therapies and the use of somatostatin analogues. This independent medical education podcast is for HCPs with the ultimate goal of improving care for their patients. For more information,

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All Episodes

00:22:50

Primary Biliary Cholangitis (PBC): Highlights from...

COR2ED - Rare Diseases Medical Conversation ·

2023/12/06

Robert Mitchell-Thain, CEO of the PBC Foundation, Edinburgh, UK and Kath Houghton, Autoimmune Specialist Nurse, Newcastle upon Tyne Hospitals NHS Foundation Trust, Newcastle, UK, discuss their ‘Primary Biliary Cholangitis (PBC) highlights from EASL 2023’ in this podcast. Their discussion covers the relationship between initial symptoms and disease trajectory, the association of biochemical control and outcomes in PBC, and the impact and assessment of patient reported outcomes.

en

00:22:50

Primary Biliary Cholangitis (PBC): Highlights from...

COR2ED - Rare Diseases Medical Conversation ·

2023/12/06

Robert Mitchell-Thain, CEO of the PBC Foundation, Edinburgh, UK and Kath Houghton, Autoimmune Specialist Nurse, Newcastle upon Tyne Hospitals NHS Foundation Trust, Newcastle, UK, discuss their ‘Primary Biliary Cholangitis (PBC) highlights from EASL 2023’ in this podcast. Their discussion covers the relationship between initial symptoms and disease trajectory, the association of biochemical control and outcomes in PBC, and the impact and assessment of patient reported outcomes.

en

00:30:45

Primary Biliary Cholangitis (PBC): Highlights from...

COR2ED - Rare Diseases Medical Conversation ·

2023/12/06

Prof. Gideon Hirschfield, Professor of Medicine, Division of Gastroenterology, University of Toronto, Canada and Dr Emma Culver, Consultant Hepatologist and Honorary Senior Lecturer at the John Radcliffe Hospital and University of Oxford, UK discuss their ‘Primary Biliary Cholangitis (PBC) highlights from EASL 2023’ in this podcast. Their discussion focuses on cancer risk associated with PBC; liver stiffness and prognosis; and outcomes and response prediction in second-line therapy.

en

00:30:45

Primary Biliary Cholangitis (PBC): Highlights from...

COR2ED - Rare Diseases Medical Conversation ·

2023/12/06

Prof. Gideon Hirschfield, Professor of Medicine, Division of Gastroenterology, University of Toronto, Canada and Dr Emma Culver, Consultant Hepatologist and Honorary Senior Lecturer at the John Radcliffe Hospital and University of Oxford, UK discuss their ‘Primary Biliary Cholangitis (PBC) highlights from EASL 2023’ in this podcast. Their discussion focuses on cancer risk associated with PBC; liver stiffness and prognosis; and outcomes and response prediction in second-line

en

00:32:39

Neuroendocrine tumours: The role of SSA at...

COR2ED - Rare Diseases Medical Conversation ·

2023/12/06

In this podcast, Prof. Martyn Caplin and Dr Aman Chauhan discuss the role of somatostatin analogues (SSAs) at progression and whether to continue or not. In patients with well-differentiated Grade 1/2 neuroendocrine tumours (NETs) and slowly progressive asymptomatic disease, potential strategies for continuing SSA at progression include increasing the SSA dose frequency from every four to every two weeks, increasing the monthly SSA dose, using SSA as maintenance therapy in

en

00:32:39

Neuroendocrine tumours: The role of SSA at...

COR2ED - Rare Diseases Medical Conversation ·

2023/12/06

In this podcast, Prof. Martyn Caplin and Dr Aman Chauhan discuss the role of somatostatin analogues (SSAs) at progression and whether to continue or not. In patients with well-differentiated Grade 1/2 neuroendocrine tumours (NETs) and slowly progressive asymptomatic disease, potential strategies for continuing SSA at progression include increasing the SSA dose frequency from every four to every two weeks, increasing the monthly SSA dose, using SSA as maintenance therapy in stable patients unable to

en

00:23:01

Rare bone disease: Highlights from ASBMR 2022 - Part 3

COR2ED - Rare Diseases Medical Conversation ·

2023/12/06

In this third episode of a three-episode podcast series, COR2ED and ASBMR have partnered with patient advocates Inês Alves (European Rare Bone Forum) and Tracy Hart (Osteogenesis Imperfecta Foundation) to provide rare bone disease highlights from the ASBMR 2022 Annual Meeting, focusing on the patient perspective. The experts opened the podcast with the importance of engaging diverse patient communities. Independent of geography, patients should be educated about their condition

en

00:23:01

Rare bone disease: Highlights from ASBMR 2022 - Part 3

COR2ED - Rare Diseases Medical Conversation ·

2023/12/06

In this third episode of a three-episode podcast series, COR2ED and ASBMR have partnered with patient advocates Inês Alves (European Rare Bone Forum) and Tracy Hart (Osteogenesis Imperfecta Foundation) to provide rare bone disease highlights from the ASBMR 2022 Annual Meeting, focusing on the patient perspective. The experts opened the podcast with the importance of engaging diverse patient communities. Independent of geography, patients should be educated about their condition and prepared

en

00:15:17

Rare bone disease: Highlights from ASBMR 2022 - Part 2

COR2ED - Rare Diseases Medical Conversation ·

2023/12/06

In this second episode of a three-episode podcast series, COR2ED and ASBMR have partnered with Professor Eric Rush (Children’s Mercy Hospital) to provide rare bone disease highlights from ASBMR 2022 Annual Meeting. Prof. Rush opens with detailed information on fibrodysplasia ossificans progressiva (FOP): symptoms of this severe congenital condition include permanent heterotopic ossifications preceded by painful soft tissue swelling. Nearly all patients have the same ACVR1

en

00:15:17

Rare bone disease: Highlights from ASBMR 2022 - Part 2

COR2ED - Rare Diseases Medical Conversation ·

2023/12/06

In this second episode of a three-episode podcast series, COR2ED and ASBMR have partnered with Professor Eric Rush (Children’s Mercy Hospital) to provide rare bone disease highlights from ASBMR 2022 Annual Meeting. Prof. Rush opens with detailed information on fibrodysplasia ossificans progressiva (FOP): symptoms of this severe congenital condition include permanent heterotopic ossifications preceded by painful soft tissue swelling. Nearly all patients have the same ACVR1 receptor variant, and

en

00:16:37

Rare bone disease: Highlights from ASBMR 2022 - Part 1

COR2ED - Rare Diseases Medical Conversation ·

2023/12/06

In this first episode of a three-episode podcast series, COR2ED and ASBMR have partnered with Professor Anna Teti (University of L’Aquila) to provide rare bone disease highlights from the Rare Diseases Symposium that preceded the ASBMR 2022 Annual Meeting. Opening with an overview of ongoing clinical research in several rare bone diseases, Prof. Teti highlights the importance of preparing clinicians for unexpected adverse events. Notably, therapies used in the context of rare bone diseases can

en

00:16:37

Rare bone disease: Highlights from ASBMR 2022 - Part 1

COR2ED - Rare Diseases Medical Conversation ·

2023/12/06

In this first episode of a three-episode podcast series, COR2ED and ASBMR have partnered with Professor Anna Teti (University of L’Aquila) to provide rare bone disease highlights from the Rare Diseases Symposium that preceded the ASBMR 2022 Annual Meeting. Opening with an overview of ongoing clinical research in several rare bone diseases, Prof. Teti highlights the importance of preparing clinicians for unexpected adverse events. Notably, therapies used in the context of rare

en

00:19:34

Primary Biliary Cholangitis (PBC): Highlights from...

COR2ED - Rare Diseases Medical Conversation ·

2023/12/06

In this podcast episode, Prof. Kris Kowdley, Director, Liver Institute Northwest, Washington State University, USA and Prof. Jörn Schattenberg, Director, Metabolic Liver Research, University Medical Centre Mainz, Germany provide their take-home messages on primary biliary cholangitis (PBC) data presented at the International Liver Congress 2022. The two experts discuss how to improve PBCdiagnosis, the importance of listening to patient needs when considering PBC treatment options,

en

00:19:34

Primary Biliary Cholangitis (PBC): Highlights from...

COR2ED - Rare Diseases Medical Conversation ·

2023/12/06

In this podcast episode, Prof. Kris Kowdley, Director, Liver Institute Northwest, Washington State University, USA and Prof. Jörn Schattenberg, Director, Metabolic Liver Research, University Medical Centre Mainz, Germany provide their take-home messages on primary biliary cholangitis (PBC) data presented at the International Liver Congress 2022. The two experts discuss how to improve PBCdiagnosis, the importance of listening to patient needs when considering PBC treatment

en

00:18:42

Primary Biliary Cholangitis (PBC): Highlights from...

COR2ED - Rare Diseases Medical Conversation ·

2023/12/06

In this podcast, Prof. Gideon Hirschfield, Professor of Medicine, Division of Gastroenterology, University of Toronto, Canada and Prof. Ana Lleo, Professor of Internal Medicine, Humanitas University, Milan, Italy, discuss key abstracts on primary biliary cholangitis (PBC) from the International Liver Congress 2022. Their discussions focus on treatments currently available, treatment sequencing, management of adverse events, expected future therapeutic options and how to address the unmet clinical

en

00:18:42

Primary Biliary Cholangitis (PBC): Highlights from...

COR2ED - Rare Diseases Medical Conversation ·

2023/12/06

In this podcast, Prof. Gideon Hirschfield, Professor of Medicine, Division of Gastroenterology, University of Toronto, Canada and Prof. Ana Lleo, Professor of Internal Medicine, Humanitas University, Milan, Italy, discuss key abstracts on primary biliary cholangitis (PBC) from the International Liver Congress 2022. Their discussions focus on treatments currently available, treatment sequencing, management of adverse events, expected future therapeutic options and how to address

en

00:14:01

Rare bone disease: Highlights from ASBMR 2021. Part 4

COR2ED - Rare Diseases Medical Conversation ·

2023/12/06

We have partnered with international experts to provide rare bone disease highlights from ASBMR 2021. This is the final episode in a series of four podcasts, in this episode Dr Eekhoff and Dr Rush discuss their rare bone disease highlights from the meeting.

en

00:14:01

Rare bone disease: Highlights from ASBMR 2021. Part 4

COR2ED - Rare Diseases Medical Conversation ·

2023/12/06

We have partnered with international experts to provide rare bone disease highlights from ASBMR 2021. This is the final episode in a series of four podcasts, in this episode Dr Eekhoff and Dr Rush discuss their rare bone disease highlights from the meeting.

en

00:20:25

Rare bone disease: Highlights from ASBMR 2021. Part 3

COR2ED - Rare Diseases Medical Conversation ·

2023/12/06

We have partnered with international experts to provide rare bone diseases highlights from ASBMR 2021. This is the third episode in a series of four podcasts. In this episode Charlene Waldman (RBD Alliance) and Inês Alves (European Rare Bone Forum) discuss their highlights.

en

00:20:25

Rare bone disease: Highlights from ASBMR 2021. Part 3

COR2ED - Rare Diseases Medical Conversation ·

2023/12/06

We have partnered with international experts to provide rare bone diseases highlights from ASBMR 2021. This is the third episode in a series of four podcasts. In this episode Charlene Waldman (RBD Alliance) and Inês Alves (European Rare Bone Forum) discuss their highlights.

en

44 results

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