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PODCAST

Matters of Engagement

mattersofengagement

Matters of Engagement examines issues at the intersection of health, health care and society. Including: how people in Canada access and experience health care service delivery and distribution; how those experiences impact both individual and community health; and the multitude of environmental, systemic, and political factors that favour some and disadvantage many. Jennifer Johannesen and Emily Nicholas Angl produce each episode with the aim of illuminating difficult or confounding issues, to

science social sciences

All Episodes

27:05

Health Policy Series Kick-off!: A retrospective look...

Matters of Engagement ·

2022/05/19

We're back! We're excited to get rolling on this new series on Health Policy! We have a range of questions we want to explore, including: who is involved in making policy, and how are public needs identified? How is public engagement defined? And who is included or excluded? We're kicking off the series with a conversation with Julia Abelson. Julia is a professor at McMaster University in the Department of Health Evidence and Impact and an associate member in the Department of Political Science.

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03:18

Onwards and upwards: Jen and Emily check in

Matters of Engagement ·

2022/04/13

Just a quick check in to say hello and share what's next! [download transcript]

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45:40

Season 3 Finale: Patient Partner Reflections, brought...

Matters of Engagement ·

2022/03/29

For this final episode of Season 3, we want to acknowledge the Ontario SPOR SUPPORT Unit for supporting us to get this project off the ground and establish a solid foundation for critical dialogue about patient engagement and partnership. So we're turning things over to members of OSSU's Patient Partner Working Group: Annette McKinnon, Bilqis Williams, and honourary member, Stuart Nicholls. We invited them to share their thoughts on patient partnership today, and where they think it's heading. Stay

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42:24

Moral Distress in Engagement Professionals, with Mark...

Matters of Engagement ·

2022/02/03

Our guest Mark Weir is a seasoned engagement professional working in healthcare. Typically, engagement-related communities of practice tend to focus on things like best practices and 'how to' - not so much on the emotional toll it can take to fully engage in the work. In a recent IAP2 Canada workshop, Mark explored the effects of "moral distress", which he defines as feeling stuck and wanting to do the right thing but constrained due to systemic or institutional barriers - which are beyond the

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27:11

Engagement in Context: Reflections from Jenn Broad...

Matters of Engagement ·

2021/12/20

Most of our episodes have been about engagement in institutional healthcare spaces - places like hospitals or research institutes. But of course, there are a multitude of other places where patient or service user engagement takes place. Our guests are Jenn Broad and Paula Tookey. They work out of the South Riverdale Community Health Center in East Toronto. Jenn is the Program Manager of Harm Reduction and Hep C. And Paula is the Manager of Keep Six, a consumption and treatment service, which is a

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41:33

Discussing Failures in Participatory Research, with...

Matters of Engagement ·

2021/12/13

We initially invited Lori Ross on the podcast to discuss the PEERS (Peers Examining Experiences in Research) Study - a 2 yr federally funded research project looking at the experiences of peer researchers with lived experience in communities that face structural oppression in Canada, including mental health service users, people who use drugs, trans and non-binary communities, and racialized communities. Not only was the project team studying peer researchers, but they employed peer researchers

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01:36

We‘re looking for patient partner stories and...

Matters of Engagement ·

2021/11/28

Hi there – Jennifer here! We know everyone’s busy this time of year, so just a quick announcement! We’re looking for some short contributions for an upcoming episode. The one we’re working on examines some of the challenges of conducting participatory research in an academic or institutional setting. So… if you’ve been involved in a participatory research project as a patient partner, we’d love to hear from you! We’re interested in your perspective. How was the experience for you? And how was it

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34:30

Interview Extra: Advocacy and Health Equity, feat....

Matters of Engagement ·

2021/11/25

Our guest, Biba Tinga, is President and Executive Director of the Sickle Cell Disease Association of Canada. We initially spoke with Biba to ask for her reflections on the Equity and Diversity episode with Nav Persaud. But once we started talking, we realized that Biba's experience as an advocate was almost a perfect case study of what we've been talking about - the importance of focusing on health equity, as opposed to comparatively simple notions of diversity. So even though this episode is an

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58:35

Equity, Diversity, and Patient Engagement - with Dr....

Matters of Engagement ·

2021/11/16

There's increasing pressure on government and healthcare institutions to address barriers to health equity, which disproportionately impact people who experienced systemic racism, and other disadvantage or mistreatment. And these barriers have always existed. But awareness has been heightened lately in the public consciousness by news coverage of recent world events. And we're now hyper-aware of race related health disparities and inequities, unequal access to health care for people who experience

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35:20

Webinar Extra: Paula Rowland presents Dilemmas of...

Matters of Engagement ·

2021/11/02

On October 12 2021, Emily and Jennifer moderated an online presentation featuring Paula Rowland. Paula was a guest way back in Season One, discussing a paper she co-authored with Arno Kumagai, called Dilemmas of Representation. We wanted to post the session here because it revisits and also builds on the themes in the original paper. This presentation was part of a series called Best Practice in Education Rounds, co-sponsored through the Center for Faculty Development, The Wilson Centre, and the

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47:05

Patient-Oriented to Patient-Partnered: Aspirations,...

Matters of Engagement ·

2021/10/19

In this first episode of Season 3, we go back to basics. What does "patient-oriented" (as in patient-oriented research) actually mean? To answer this and other questions, we're joined by Vasanthi Srinivasan, Executive Director of the Ontario SPOR SUPPORT Unit, and Maureen Smith, Chair of OSSU's Patient Partner Working Group and member of OSSU's Board of Directors. (OSSU is a generous financial supporter of this podcast.) Vasanthi outlines the hopes and dreams of the patient-partnership movement,

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01:18:54

Webinar Extra: Podcasts and Patient Engagement - with...

Matters of Engagement ·

2021/03/04

We're busy preparing for our next season. But in the meantime, we have a fun episode to share with you! It's the recording of the webinar we did in collaboration with our friends at PEP Talks and SPORcast, in January 2021. It was a live session called "Podcasts and Patient Engagement" and features Paul Fairie and Sandra Zelinsky of PEP Talks, Bev Pomeroy of SPORcast, and Jennifer Johannesen and Emily Nicholas Angl, hosts of Matters of Engagement. We each talk about our respective podcast projects,

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25:58

Walking a Tightrope: Inside the Engagement...

Matters of Engagement ·

2021/01/25

The Ontario Center of Excellence for Child and Youth Mental Health is an organization that supports the child and youth mental health sector through a number of initiatives and services. Their approach to developing and delivering that support is done in active collaboration with young people and their families. In healthcare spaces, we often see engagement practice as something separate, maybe adjacent, to everyday operations. But here, youth and family involvement is deeply embedded. Kelli

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33:19

Research Ethics Boards and Patient Partnership

Matters of Engagement ·

2021/01/12

Back in December 2020, Jennifer moderated a panel for Child-Bright titled "Roles and Relationships: Ethical Considerations Related to Involving Children and Parents in Patient-Oriented Research". Child-Bright and the panelists generously agreed to let us use 'tape' from that session to explore some of the themes we thought our listeners would find especially interesting. (The panelists are: Elizabeth Stephenson, Franco Carnevale, Gillian Backlin, Antonia Palmer, Thierry Lacaze-Masmonteil. Profiles

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37:06

Engaging in Storytelling, Part 3: "Creating Spaces...

Matters of Engagement ·

2020/12/17

We have a special mini-series we’re releasing this week: Engaging in Storytelling: A 3-part collaborative podcast series with SPOR Cast, Matters of Engagement and PEP Talks. We each cover a different angle on patient stories and storytelling – together they provide a rich picture of some of the challenges, concerns, and also opportunities when it comes to engaging in storytelling. We will be sharing all three episodes on our platforms. This is the last of 3, and it’s produced by PEP Talks

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54:47

Engaging in Storytelling, Part 2: "Organizations and...

Matters of Engagement ·

2020/12/16

We have a special mini-series we’re releasing this week: Engaging in Storytelling: A 3-part collaborative podcast series with SPOR Cast, Matters of Engagement and PEP Talks. We each cover a different angle on patient stories and storytelling – together they provide a rich picture of some of the challenges, concerns, and also opportunities when it comes to engaging in storytelling. We will be sharing all three episodes on our platforms. This is the 2nd of 3, and it’s produced by us! Organizations

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42:50

Engaging in Storytelling, Part 1: "The Patient Story...

Matters of Engagement ·

2020/12/15

We have a special mini-series we’re releasing this week: Engaging in Storytelling: A 3-part collaborative podcast series with SPOR Cast, Matters of Engagement and PEP Talks. We each cover a different angle on patient stories and storytelling - together they provide a rich picture of some of the challenges, concerns, and also opportunities when it comes to engaging in storytelling. We will be sharing all three episodes on our platforms. This is the first of 3, and it’s produced by our friends at

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36:13

Vagueness of language, unarticulated assumptions, and...

Matters of Engagement ·

2020/11/23

This is a conversation we've been sitting with for many weeks, thinking hard about how to present it. We spoke to our guests with the idea we would simply talk about the paper they co-authored... and we did... but we also ventured into spaces we didn't anticipate! Although they are not from the patient engagement world, Amy and Melody's research and insights cast a different sort of light on engagement activities. Hosts Jennifer and Emily think through ideas of power, obfuscation, accountability,

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36:40

Patient Experience as Evidence, with Miles Sibley

Matters of Engagement ·

2020/11/08

The Patient Experience Library is a UK-based online archive of research and reports focused on patient experience. They just published a report titled "Inadmissible Evidence" which outlines, in direct and accessible terms, why they think patient experience evidence is not valued alongside medical evidence. Their answer? It's healthcare's culture of minimizing patient accounts, complaints, and reports... essentially, a discounting of patient voice that is pervasive throughout healthcare and which

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23:06

Hosts Jennifer and Emily learn to "let go of perfection"

Matters of Engagement ·

2020/11/02

It'll be another week or so until we release our next scheduled episode. So we thought this would be a perfect opportunity to give listeners a bit of insight into how we approach making this podcast! This is our unscripted (but lightly edited) conversation about everything from interviewing guests to how we think about scripting and editing to why we love working together on this podcast. [download transcript]

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