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PODCAST

Celiac Straight Talk

Let"s get real about living with celiac disease. The ups, the downs and the temptations. Hear real stories from real people with the autoimmune disease.

health & fitness nutrition

All Episodes

22:02

75: The Empowered Patient with guest TV Personality...

Celiac Straight Talk ·

2023/11/10

This episode of Celiac Straight Talk is a dive deep into inspiring stories and advocacy for health and wellness. In this thought-provoking episode, Beyond Celiac CEO Alice Bast sits down with renowned TV personality Jenna Wolfe for a candid discussion on patient empowerment. Don't forget to like, share, and subscribe to stay updated on all things celiac disease! Get all the episodes of Celiac Straight Talk wherever you get your podcasts.

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59:37

74: Living Your Best Gluten-Free Life

Celiac Straight Talk ·

2023/10/30

This is a recording of the "Living Your Best Gluten-Free Life" panel from our 2023 Community Summity. It features four gluten-free influencers, Phil, Liz, Erin and Emily, discussing how they've tackled their health conditions and thrived on the gluten-free diet. Phil is the creator behind @PhilHatesGluten, a popular TikTok and Instagram account. He uses humor to allieviate the burden of managing eosinophilic esophagitis. Liz Purvis is a celiac disease advocate and content creator (@yeet.that.wheat

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46:28

73: Patient Empowerment with Juanita Belton

Celiac Straight Talk ·

2023/09/05

In this episode, we sit down with Juanita Belton, PA-C, MPH, physician assistant in gastroenterology and Director of Patient Empowerment at Color of Crohn’s & Chronic Illness (COCCI). COCCI was created to improve the quality of life for BIPOC who are affected by IBD, digestive disorders, and associated chronic illnesses through community, research, education, and advocacy. Juanita gives tips for talking with your doctor about your unique health needs. Learn more about Celiac Straight Talk at

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28:12

72: Being an Athlete With Celiac Disease

Celiac Straight Talk ·

2023/08/24

Ambassadors Hayden and Alyssa join podcast coordinator Leah Popovic as they discuss what it's like to experience an athletic life style with celiac disease. To hear more episodes of Celiac Straight Talk, visit https://www.beyondceliac.org/news-events/podcast-series/

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24:49

71: On Opera with Traveling Tenor Arturo Chacón Cruz

Celiac Straight Talk ·

2023/08/07

We sat down with Arturo Chacón Cruz to learn just how he manages to stay gluten-free while traveling all over the world to sing opera, as well as his advice for convincing others that, while the gluten-free diet can be annoying, your health is worth it. To hear more episodes of Celiac Straight Talk, visit https://www.beyondceliac.org/news-events/podcast-series/

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22:14

70: Dr. Hilary Jericho, Stanford University Develop...

Celiac Straight Talk ·

2023/07/25

Dr. Hilary Jericho became a part of the Stanford University team at the beginning of this year, working for the newly developed celiac disease program at the Lucile Packard Children’s Hospital. Learn about how Dr. Jericho's research in the psychosocial effects of celiac disease has made an impact on the Bay area. To hear more episodes of Celiac Straight Talk, visit https://www.beyondceliac.org/news-events/podcast-series/

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44:19

69: Lehigh Valley Gluten Free Creates Community,...

Celiac Straight Talk ·

2023/06/28

Looking for gluten free restaurants in Lehigh Valley, Pennsylvania? Look no further! Meet Jeff Vilson, the creator of Gluten Free Lehigh Valley—a platform where the gluten-free community can connect with peers, doctors and more. This project is pioneering an effort to make celiac disease and gluten intolerance better understood not only in Lehigh Valley, but in communities across the country.

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28:48

68: DIY TikToker Emily Shaw Conquers Celiac Disease

Celiac Straight Talk ·

2023/06/06

By sharing her DIY interior design creations on TikTok, Emily Shaw became a social media sensation practically overnight. Shaw, who renovates spaces and repurposes budget household items, has nearly six million followers on TikTok alone, and has dedicated her career to this niche craft. Something her fans may not know is that she happens to have celiac disease, an autoimmune disease. As a true innovator, she’s learned to nimbly navigate her newfound fame while managing celiac disease. Get to know

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55:52

67: Fatigue and Autoimmunity Mark Davis, PhD

Celiac Straight Talk ·

2023/04/04

In March, Beyond Celiac teamed up with Dr. Mark Davis, the Director of the Stanford Institute for Immunity, for a town hall session on t-cell dynamics in autoimmunity. Join us in learning about the importance of human studies and how the development mitochondrial physiology can help those suffering from non-GI symptoms of celiac disease.

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28:16

66: Safely & Deliciously Dine Out With Senza Gluten

Celiac Straight Talk ·

2023/03/14

Looking for an authentic gluten-free Italian meal? Teona Khaindrava will happily provide at Senza Gluten, located in the heart of Greenwich Village, New York City. Khaindrava, who opened the business in 2014, trains her hard working staff to prepare gluten-free pasta, cocktails, desserts and more while adhering to traditional Italian recipes and techniques. Learn how Senza Gluten has heightened the dining experience for people with celiac disease, as well as their mission to spread awareness.

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23:09

65: MyMeal CEO Kayla King Kickstarts New App

Celiac Straight Talk ·

2023/02/21

Kayla King has been living with celiac disease for over 17 years, “centering her life” around food and maintaining a safe, healthy diet. After receiving a business degree and becoming a nutrition coach, King recently launched MyMeal, an app helping people with restricted diets find restaurants which cater to their needs. Learn about how King is using online advocacy to change the way people with celiac disease, chronic illnesses and allergies can safely go out to eat.

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11:24

64: The State of Celiac Disease

Celiac Straight Talk ·

2023/02/07

Our webinar from January 19, 2023 discusses some of the biggest celiac disease news and research from the past year. Learn about what is to come with these discoveries and how patients come upon a proper diagnosis, as well as celebrating the organization's 20 years of searching for life-changing services.

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39:28

63: “The Show Must Go On” with Sam Doumit

Celiac Straight Talk ·

2023/01/24

Join Podcast Coordinator Leah Popovic as she speaks to well renowned actress and producer Sam Doumit about her experience living with a wheat allergy. Doumit, who starred alongside Rob Schnieder in the film “The Hot Chick,” provides insight to working in Hollywood with dietary restrictions, as well as how her attitude and self-advocacy has played a role in her health today.

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01:01:09

62: Is a Genetic Test or Biopsy Necessary?

Celiac Straight Talk ·

2022/12/19

In this episode, we chat with two renowned gastroenterologists, Dr, Benjamin Lebwohl and Dr. Ritu Verma, about the role genetic tests and biopsies play in diagnosing celiac disease. What can these tests tell us about a patient's health? Are they necessary to diagnose celiac disease? The conversation is followed by a community Q&A. Dr. Lebwohl and Dr. Verma are members of The Society for the Study of Celiac Disease (SSCD). The SSCD is a professional organization of physicians, nurses, dietitians,

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32:15

61: Sister, Sister

Celiac Straight Talk ·

2022/12/05

In this episode, we chatted with Colleen and Libby, two sisters who were diagnosed with celiac disease at the same time, shortly after their older brother was diagnosed. Their story emphasizes the importance of getting relatives tested, regardless of symptoms, and sheds light on what it's like to grow up with celiac disease today. This episode is sponsored by imaware. Use our code to get a discount on at-home testing kits!

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01:04:37

60: Related Conditions Patient Q&A with Celiac Expert...

Celiac Straight Talk ·

2022/11/21

World-renowned celiac disease expert Dr. Stefano Guandalini, MD, sat down with us to answer your questions about celiac disease and the gluten-free diet. In this episode, the audience-submitted questions focused on conditions that are commonly seen alongside celiac disease. Dr. Guandalini is also the medical advisor for the sponsor of this Town Hall, imaware™.

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47:17

59: Therapies Beyond the Gluten-Free Diet with Dr....

Celiac Straight Talk ·

2022/11/07

We facilitated a community Q&A with Amelie Therrien, MD, gastroenterologist at Beth Israel Deaconess Medical Center, about potential non-dietary treatments for celiac disease. She answers your questions about how some of these potential treatments work, the role of the gluten challenge in clinical trials, and whether treatments may work for other autoimmune conditions, too. This event was sponsored by the Solutions for Celiac study on latiglutenase.

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23:28

58: Age is Just a Number for Noah Lustbader

Celiac Straight Talk ·

2022/10/13

Beyond Celiac ambassador Noah Lustbader is one of the youngest scientists working hands-on towards a cure for celiac disease. As a junior in college at Vanderbilt University, Noah is already pioneering a multi-centered project with Vanderbilt’s Clinic Director Dr. Dawn Adams, including centers such as Mayo Clinic and Harvard. In this episode, he talks about his experience as an undergraduate research assistant alongside Dr. Arnold Han at Columbia University's Irving Medical Center, studying t-cells

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30:27

57: Himanshi’s Hardships With Celiac Disease in India

Celiac Straight Talk ·

2022/09/27

Healthcare systems across the globe often fall short when caring for celiac disease patients. Himanshi Pareek shares how misinformation from her doctors in India worsened her condition, leading to her own scientific discoveries which countered the medical advice she received.

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15:50

56: Do You Believe in (Roby’s) Magic?

Celiac Straight Talk ·

2022/09/12

Roby Sobieski is an actor, model and magician whose appearance on “The Bachelorette” has lended him lots of social media popularity. His aunt, Alice Bast, founder and CEO of Beyond Celiac, connects him to our organization, where Roby has advocated for greater celiac disease awareness, and even volunteered at our 2020 virtual event entitled “An Evening Beyond Celiac.” In this episode, Podcast Coordinator Leah Popovic learns more about Roby’s connections to celiac disease, as well as his experience

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