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PODCAST

Narcolepsy Navigators Podcast

Narcolepsy Navigators isn"t just another podcast; it"s a lifeline, a space where every story shared is a step towards changing the narrative around narcolepsy, idiopathic hypersomnia and Klein-Levin syndrome.Every episode is a peek into the lives of people navigating these conditions every single day. It"s raw, it"s real, and it’s about sharing stories that are way too important to miss.Because when we share, we have the power to change narratives – that’s our mantra, "Share a story to change a

society & culture mental health

All Episodes

00:41:35

Storytelling with a Purpose: How Tre Burge is Making...

Narcolepsy Navigators Podcast ·

2025/02/27

Summary ️ What if the world saw narcolepsy for what it truly is? Meet Tre Burge, an educator, designer, and fierce narcolepsy advocate, as he takes us through his journey of living with Narcolepsy Type 1. Diagnosed at 18, Tre quickly realized the lack of awareness, representation, and resources surrounding sleep disorders—especially in Black and Brown communities. In this episode, Tre shares how he turned his experience into a mission: from launching Wake Up Entertainment, a

en

00:41:35

Storytelling with a Purpose: How Tre Burge is Making...

Narcolepsy Navigators Podcast ·

2025/02/27

Summary ️ What if the world saw narcolepsy for what it truly is? Meet Tre Burge, an educator, designer, and fierce narcolepsy advocate, as he takes us through his journey of living with Narcolepsy Type 1. Diagnosed at 18, Tre quickly realized the lack of awareness, representation, and resources surrounding sleep disorders—especially in Black and Brown communities. In this episode, Tre shares how he turned his experience into a mission: from launching Wake Up Entertainment, a

en

00:58:26

Jamie Nicole: Turning Diagnosis into Purpose

Narcolepsy Navigators Podcast ·

2025/02/13

In this inspiring episode of Narcolepsy Navigators, we meet Jamie Nicole, a certified Holistic Health Coach, Autoimmune Strategist, and unstoppable advocate. Diagnosed with narcolepsy type 2 at 39, Jamie shares her journey of battling years of exhaustion, misdiagnoses, and systemic barriers—all while juggling life as a student, mother, and professional. Jamie dives deep into her experience with autoimmune diseases, the emotional toll of undiagnosed narcolepsy, and how holistic

en

00:58:26

Jamie Nicole: Turning Diagnosis into Purpose

Narcolepsy Navigators Podcast ·

2025/02/13

In this inspiring episode of Narcolepsy Navigators, we meet Jamie Nicole, a certified Holistic Health Coach, Autoimmune Strategist, and unstoppable advocate. Diagnosed with narcolepsy type 2 at 39, Jamie shares her journey of battling years of exhaustion, misdiagnoses, and systemic barriers—all while juggling life as a student, mother, and professional. Jamie dives deep into her experience with autoimmune diseases, the emotional toll of undiagnosed narcolepsy, and how holistic

en

00:56:33

Sleeping for Weeks: Imaarl’s Story with KLS

Narcolepsy Navigators Podcast ·

2025/02/04

London’s rush never stops—but for Imaarl Duprey, time did. At 18, what should have been a typical New Year’s Eve turned into the beginning of a mystery illness that would steal weeks, even months, of her life at a time. Diagnosed with Kleine-Levin Syndrome (KLS), or Sleeping Beauty Syndrome, Imaarl found herself trapped in a cycle of disbelief, misdiagnosis, and isolation, waking up to a world that had moved on without her. In this episode of Narcolepsy Navigators, Imaarl shares

en

00:56:33

Sleeping for Weeks: Imaarl’s Story with KLS

Narcolepsy Navigators Podcast ·

2025/02/04

London’s rush never stops—but for Imaarl Duprey, time did. At 18, what should have been a typical New Year’s Eve turned into the beginning of a mystery illness that would steal weeks, even months, of her life at a time. Diagnosed with Kleine-Levin Syndrome (KLS), or Sleeping Beauty Syndrome, Imaarl found herself trapped in a cycle of disbelief, misdiagnosis, and isolation, waking up to a world that had moved on without her. In this episode of Narcolepsy Navigators, Imaarl shares

en

01:01:17

Dreams, Hallucinations, and Chloe's Life with Narcolepsy

Narcolepsy Navigators Podcast ·

2025/01/12

In this episode, we are joined by Chloe, who shares her compelling journey of balancing narcolepsy type 1 and obstructive sleep apnea while pursuing a career in optometry. From the thrill of quad biking to the challenges of everyday tasks like getting a haircut, this episode uncovers the rollercoaster ride of managing sleep disorders. From the comical to the challenging, we explore how everyday tasks like getting a haircut can become monumental experiences. Our conversation

en

01:01:17

Dreams, Hallucinations, and Chloe's Life with Narcolepsy

Narcolepsy Navigators Podcast ·

2025/01/12

In this episode, we are joined by Chloe, who shares her compelling journey of balancing narcolepsy type 1 and obstructive sleep apnea while pursuing a career in optometry. From the thrill of quad biking to the challenges of everyday tasks like getting a haircut, this episode uncovers the rollercoaster ride of managing sleep disorders. From the comical to the challenging, we explore how everyday tasks like getting a haircut can become monumental experiences. Our conversation

en

00:57:58

20 Years to Clarity: Glenn's Narcolepsy Experience

Narcolepsy Navigators Podcast ·

2024/12/31

Summary Glenn takes us through his remarkable journey to a proper diagnosis of narcolepsy type 2 after 20 long years, sharing how his life and career in local government have been influenced by his symptoms and the critical importance of workplace understanding and accommodation. The episode sheds light on many struggles faced by those with undiagnosed narcolepsy, like Glenn, whose excessive yawning and unintended naps were often misinterpreted. We talk about the broader

en

00:57:58

20 Years to Clarity: Glenn's Narcolepsy Experience

Narcolepsy Navigators Podcast ·

2024/12/31

Summary Glenn takes us through his remarkable journey to a proper diagnosis of narcolepsy type 2 after 20 long years, sharing how his life and career in local government have been influenced by his symptoms and the critical importance of workplace understanding and accommodation. The episode sheds light on many struggles faced by those with undiagnosed narcolepsy, like Glenn, whose excessive yawning and unintended naps were often misinterpreted. We talk about the broader

en

01:05:41

Rachel’s Superpower: Advocacy Through Sleep and Song

Narcolepsy Navigators Podcast ·

2024/12/23

Summary In this episode of Narcolepsy Navigators, Rachel Nesmith, also known as Sleepy American, shares her personal journey with narcolepsy, the challenges of motherhood, and how she uses music as a platform for advocacy. Rachel discusses her diagnosis, the impact of narcolepsy on her life and family, and the importance of community support. She emphasizes the need to change public perceptions of narcolepsy through her music, aiming to raise awareness and provide relatable

en

00:50:08

Redefining Rest: Haley’s Resilience with IH and...

Narcolepsy Navigators Podcast ·

2024/12/03

Years ago, Hayley Wall made the bold decision to transition from a demanding hospital role to a flexible occupational therapy position in pediatric home health. This change not only suited her professional skills but also provided the adaptability needed to manage her idiopathic hypersomnia (IH). In this episode, Hayley opens up about how this career shift has empowered her to effectively balance her health with her work and personal life. We also hear from our co-host Liz, who

en

00:50:16

Redefining Rest: Haley’s Resilience with IH and...

Narcolepsy Navigators Podcast ·

2024/12/03

Years ago, Hayley Wall made the bold decision to transition from a demanding hospital role to a flexible occupational therapy position in pediatric home health. This change not only suited her professional skills but also provided the adaptability needed to manage her idiopathic hypersomnia (IH). In this episode, Hayley opens up about how this career shift has empowered her to effectively balance her health with her work and personal life. We also hear from our co-host Liz, who

en

00:39:48

Living with Narcolepsy & Autism: Rahmat's Path

Narcolepsy Navigators Podcast ·

2024/11/29

Rahmat Farina's journey with narcolepsy began at the age of 20, and it has been marked by resilience and introspection. Imagine trying to maintain your education and daily life while being suddenly overtaken by sleep attacks and sleep paralysis—this was Rahmat's reality. His initial struggles were compounded by disbelief from his family, but understanding grew as his condition became more visible to those around him. With a background in psychology, Rahmat was well-equipped to

en

00:39:48

Living with Narcolepsy & Autism: Rahmat's Path

Narcolepsy Navigators Podcast ·

2024/11/29

Rahmat Farina's journey with narcolepsy began at the age of 20, and it has been marked by resilience and introspection. Imagine trying to maintain your education and daily life while being suddenly overtaken by sleep attacks and sleep paralysis—this was Rahmat's reality. His initial struggles were compounded by disbelief from his family, but understanding grew as his condition became more visible to those around him. With a background in psychology, Rahmat was well-equipped to

en

00:01:24

Narcolepsy's Brother :Kleine–Levin

Narcolepsy Navigators Podcast ·

2024/11/19

Hello Everyone, We are so excited to be back for Season 2 of Narcolepsy Navigators Podcasts. Here is a brief announcement thanking all of our wonderful listeners from around the world. Welcome To Season 2. We look forward to hearing your stories. Follow and support Narcolepsy Navigators:Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/ Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/ LinkedIn:

en

00:01:24

Narcolepsy's Brother :Kleine–Levin

Narcolepsy Navigators Podcast ·

2024/11/19

Hello Everyone, We are so excited to be back for Season 2 of Narcolepsy Navigators Podcasts. Here is a brief announcement thanking all of our wonderful listeners from around the world. Welcome To Season 2. We look forward to hearing your stories. Follow and support Narcolepsy Navigators:Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/ Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/ LinkedIn:

en

00:46:13

Awake in Colour: Angela’s Creative Outlet for Narcolepsy

Narcolepsy Navigators Podcast ·

2024/11/17

In this compelling episode of Narcolepsy Navigators, we meet Angela, an inspiring artist living with narcolepsy and cataplexy. Through her candid storytelling, Angela reveals how creativity and support systems have become her sanctuary amidst the challenges of living with unpredictable sleep disorders. What You’ll Learn: How Angela uses bead art as a therapeutic escape from medical trauma and daily challenges. The role of emotional support animals, including Angela’s beloved

en

01:00:34

Narcolepsy’s Hidden Toll: Tamby’s Journey

Narcolepsy Navigators Podcast ·

2024/10/28

Welcome back to Narcolepsy Navigators for an eye-opening Season Two episode that dives into Tamby's journey with narcolepsy. In this heartfelt conversation, Tamby shares the raw reality of living with a misunderstood condition, navigating cultural misconceptions, and dealing with a whirlwind of challenges, from hallucinations to unexpected cataplexy attacks. She recounts memorable moments, like when family members tried to ward off “evil spirits” by breaking eggs over her head,

en

01:00:34

Narcolepsy’s Hidden Toll: Tamby’s Journey

Narcolepsy Navigators Podcast ·

2024/10/28

Welcome back to Narcolepsy Navigators for an eye-opening Season Two episode that dives into Tamby's journey with narcolepsy. In this heartfelt conversation, Tamby shares the raw reality of living with a misunderstood condition, navigating cultural misconceptions, and dealing with a whirlwind of challenges, from hallucinations to unexpected cataplexy attacks. She recounts memorable moments, like when family members tried to ward off “evil spirits” by breaking eggs over her head,

en

64 results

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