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PODCAST

From The Heart: The HeartKids Podcast

Join us as we explore stories of Australians impacted by childhood-onset heart disease (CoHD) - including congenital heart disease.We"ll tackle the big issues - what it"s like receiving a new diagnosis, preparing for open-heart surgery, looking after your mental health, and much more. The show features cardiologists and experts sharing their knowledge about the topics you want to know more about. This show is for anyone impacted by CoHD - parents, carers, family members, friends, and those of us

health & fitness parenting

All Episodes

27:34

Supporting the Sibling... Chloe Peck's Heart Sibling...

From The Heart: The HeartKids Podcast ·

2025/02/04

Welcome to From the Heart: The HeartKids Podcast, Season 4.In this episode of "From the Heart," join our host, Sami, for a conversation with Chloe Peck, a young adult who is a sibling to a heart teen.Join Sami and Chloe as they discuss the complexities of a heart journey, for siblings and extended family members, and the extraordinary efforts and routines Chloe's family implemented to bolster their whole support network.HEARTKIDSFrom The Heart is brought to you by HeartKids, the only

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37:38

From the Heart: 2024 Wrapped. Erin Ferguson and Happy...

From The Heart: The HeartKids Podcast ·

2025/01/21

Welcome to From the Heart: 2024 Wrapped!As we have closed off 2024 and into 2025, we're bringing you some fan favourite episodes of From the Heart, season 3.Here is Encore #5 - Erin FergusonIn this episode of From the Heart, Tahnee Jash is joined by Erin Ferguson, a dedicated paediatric Rheumatic Heart Disease (RHD) clinical nurse consultant from the Happy Heart Clinic in Far North Queensland. Erin discusses her team's efforts to improve healthcare experiences for young patients with RHD,

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50:51

From the Heart: 2024 Wrapped. Danielle Green's Story

From The Heart: The HeartKids Podcast ·

2025/01/07

Welcome to From the Heart: 2024 Wrapped!As we have closed off 2024 and looking into 2025, we're bringing you some fan favourite episodes of From the Heart, season 3.Here is Encore #4 - Danielle GreenDanielle is a mother to two children, Sonny and Airlie, who have both passed away due to a rare genetic condition known only as PPA2.Sami and Danielle chat about Danielle and her husband Leon's journey with this extremely rare condition, advocating for genetic testing and counselling, and the

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38:31

From the Heart: 2024 Wrapped. Amber Adamson: Ask a...

From The Heart: The HeartKids Podcast ·

2024/12/24

Welcome to From the Heart: 2024 Wrapped!As we close off the end of this year, we're bringing you some fan favourite episodes of From the Heart, season 3.Here is Encore #3 - Amber Adamson: Ask a NurseIn this episode Rachael chats with Amber Adamson, a dedicated Clinical Nurse Consultant at Prince Charles Hospital, who specialises in Adult Congenital Heart Disease.Before the episode was recorded, we put out a call on social media for young people and adults to submit questions to be answered on

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35:52

From the Heart: 2024 Wrapped. Kate Strickland's Story

From The Heart: The HeartKids Podcast ·

2024/12/10

Welcome to From the Heart: 2024 Wrapped!As we close off the end of this year, we're bringing you some fan favourite episodes of From the Heart, season 3.Here is Encore #2 - Kate Strickland, Child Life Therapist.Kate is a Child Life Therapist, who works in the community with children - one of the first Child Life Therapists to work outside of a hospital framework.Sami and Kate chat about how to prepare a child for surgery, what to expect, and how to process the event after families return home

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30:38

From the Heart: 2024 Wrapped. Elijah Hill's Story

From The Heart: The HeartKids Podcast ·

2024/11/26

Welcome to From the Heart: 2024 Wrapped!As we close off the end of this year, we're bringing you some fan favourite episodes of From the Heart, season 3.Here is Encore #1 - Elijah's StoryElijah, a proud Kamilaroi/Wiradjuri man, shares his remarkable journey living with childhood-onset heart disease (CoHD) with our host, Tahnee Jash.Elijah works as an Indigenous Liaison Officer for the Department of Infrastructure in Meanjin. Diagnosed with pulmonary atresia with VSD at birth, Elijah has

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30:45

Navigating a New Diagnosis Pathway, for Heart Kid #...

From The Heart: The HeartKids Podcast ·

2024/11/12

In this episode of "From the Heart," join our host, Sami, for a catch-up conversation with podcast producer, Mel.Mel and Sami chat about Sami's current pathway to seeking a diagnosis for her daughter, as well as updates from all the incredible events and outcomes from HeartKids for the year.HEARTKIDSFrom The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected by childhood-onset heart disease.For

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30:35

Supporting a Heart Kid, to a Heart Teen... Amy...

From The Heart: The HeartKids Podcast ·

2024/10/29

In this episode of "From the Heart," join our host, Sami, for a conversation with Amy Heafield.Many families who have spent time at the Royal Children's Hospital in Melbourne will have crossed paths with Amy; Amy is a Support Coordinator with HeartKids, and a parent to a heart teen.Amy and Sami chat about what HeartKids Support looks like, the joys of supporting teens on teen camp, and considerations in supporting a heart kid, as they transition through childhood, to their teen years,

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40:34

Life as an Adult with CHD... Jaden Dixon's Story

From The Heart: The HeartKids Podcast ·

2024/10/15

In this episode of "From the Heart," join our host, Rachael, for a conversation with Jaden Dixon.Jaden is a 29-year-old from Brisbane who was born with Hypoplastic Left Heart Syndrome (HLHS). Jaden studied social work and now works for Queensland Health. Listen in as Rachael and Jaden discuss their heart journeys, Jaden's involvement with HeartKids, the importance of connecting with the peer community, finding your people, and living life with a heart condition! HEARTKIDS From The

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42:43

The Complete Race Driver... Wes McDougall's journey...

From The Heart: The HeartKids Podcast ·

2024/10/01

In this episode of "From the Heart," join our host, Sami, for a conversation with Wes McDougall.Wes is a heart adult, who has a stunning career as a racing engineer – now working with Supercheap Auto as chief engineer, as well as an instructional coach for his own business, the Complete Race Driver.Wes and Sami connect about his experiences growing up as a heart kid, surgery as an adult, and pursuing an exciting career. HEARTKIDS From The Heart is brought to you by HeartKids, the only

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27:36

My CHD Journey: Audrey Keillor

From The Heart: The HeartKids Podcast ·

2024/09/17

In this episode of "From the Heart," join our host, Rachael, for a conversation with Audrey Keillor.Audrey is a 19-year-old heart adult, who was born with Tetralogy of Fallot. Audrey and Rachael connect over their experiences as young adults with CHD, transitioning to adult care, and the importance of community and connecting with peers.HEARTKIDSFrom The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected by

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50:51

PPA2: Rare Genetic Conditions - Danielle Green's Story

From The Heart: The HeartKids Podcast ·

2024/08/27

In this episode of "From the Heart," join our host, Sami, for a conversation with Danielle Green. Danielle is a mother to two children, Sonny and Airlie, who have both passed away due to a rare genetic condition known only as PPA2. Sami and Danielle chat about Danielle and her husband Leon's journey with this extremely rare condition, advocating for genetic testing and counselling, and the importance of family and community during the most difficult of times.A content warning: This

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35:52

Child Life Therapy and CoHD: Kate Strickland

From The Heart: The HeartKids Podcast ·

2024/08/13

In this episode of "From the Heart," join our host, Sami, for a conversation with Kate Strickland. Kate is a Child Life Therapist, who works in the community with children - one of the first Child Life Therapists to work outside of a hospital framework.Sami and Kate chat about how to prepare a child for surgery, what to expect, and how to process the event after families return home. Kate offers fantastic tips, resources, and information to anyone bolstering support around their HeartKid

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37:11

Health, happiness and connection: Emma Psaros CHD...

From The Heart: The HeartKids Podcast ·

2024/07/30

In this episode of From the Heart, host Rachael chats with Emma Psaros, a 25-year-old who has grown up with congenital heart disease (CHD). Emma shares her journey of managing her heart condition while leading a balanced and full life.Emma discusses her transition from paediatric to adult care, the importance of open communication with healthcare professionals, and the support she receives from family and friends. She highlights her strategies for managing mental health, including therapy and having

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44:48

Growth and Resilience Through the Journey: Laura...

From The Heart: The HeartKids Podcast ·

2024/07/15

In this episode of From the Heart, Rachael sits down with Laura Achilles, a heart adult living with congenital heart disease (CHD). Laura, an actor in her 30s, shares her journey of growing up with CHD, moving from the UK to Australia, and navigating a new healthcare system on her own. She opens up about the challenges and triumphs of managing her mental health, dealing with grief after losing a friend, and undergoing significant surgery without her family nearby.Laura also discusses her short film

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44:03

An active and full life with CHD: Jeremy Richardson's...

From The Heart: The HeartKids Podcast ·

2024/07/03

Join our host Rachael Knowles as she chats with Jeremy Richardson, an adventurous adult in his 30s living with truncus arteriosus. Jeremy leads an active life filled with travel, a passion for the snow fields, and has a family history connected to the origins of HeartKids.Tune in to hear about Jeremy's journey from growing up in South Australia to moving overseas to pursue a videography career, filming snowboarding in Canada! He shares his experiences with multiple heart surgeries, the import...

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30:38

Elijah's Journey: Embracing Identity, Culture, and...

From The Heart: The HeartKids Podcast ·

2024/05/15

In this episode of From the Heart, Elijah, a proud Kamilaroi/Wiradjuri man, shares his remarkable journey living with childhood-onset heart disease (CoHD) with our host, Tahnee Jash. Elijah, now 24, works as an Indigenous Liaison Officer for the Department of Infrastructure in Meanjin (Brisbane). Diagnosed with pulmonary atresia with VSD at birth, Elijah has faced numerous challenges and undergone several surgeries, including a significant operation two years ago to replace three leaking valves.Join

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37:38

Better Care for RHD: Insights from Erin Ferguson at...

From The Heart: The HeartKids Podcast ·

2024/05/07

In this episode of From the Heart, Tahnee Jash is joined by Erin Ferguson, a dedicated paediatric Rheumatic Heart Disease (RHD) clinical nurse consultant from the Happy Heart Clinic in Far North Queensland. Erin discusses her team's efforts to improve healthcare experiences for young patients with RHD, focusing on their practical and supportive approaches. Learn about the strategies that are making a difference in providing consistent and equitable care to both RHD and CoHD patients across Au...

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26:58

Resilience & Discovery: Sarah's heart journey

From The Heart: The HeartKids Podcast ·

2024/04/21

In this episode, Rachael chats to Sarah Purdom, a wonderful heart adult who is not only navigating life with a heart condition (Transposition of the Great Arteries (DTGA) and pulmonary stenosis) but is also excelling in her academic and personal pursuits. Sarah is currently in her Honours year in Geology at the University of Tasmania, where she has been exploring the origins of gold within granite formations (wow)!Beyond her academic achievements, Sarah manages part-time work while exploring in her

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15:39

Creativity, optimism, and community: CJ's journey...

From The Heart: The HeartKids Podcast ·

2024/04/07

In this episode, meet CJ , a 17-year-old from Melbourne, Victoria, who shares his experiences of growing up with bicuspid aortic valve. Tune in to hear CJ's story, how he managed his surgeries, and finds positivity through art and support through friends and community.CREDITSHost: Rachael KnowlesGuest: CJ GagliardiProducer: Becky OakleyHEARTKIDSFrom The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected by

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