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PODCAST

RealTalk MS

Jon Strum cuts through all the jargon and breaks down the latest multiple sclerosis news. You"ll meet the scientists who are creating tomorrow"s MS treatments today. You"ll hear from the experts discussing how the latest tweaks and changes to our healthcare laws will impact your MS treatment. And we"ll be talking to the courageous MS warriors who are out there advocating on behalf of the MS community every day, as well as the men and women who are committed to living their best lives with MS and

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All Episodes

35:00

Episode 273: Spasticity and MS with Dr. Michelle Cameron

RealTalk MS ·

2022/11/21

Spasticity is one of the most common symptoms of MS, impacting up to 80% of the people living with MS. It can feel like mild muscle tightness that you wish would just go away or it can be so painful and debilitating that it keeps you from moving. Dr. Michelle Cameron joins me in this episode to discuss what spasticity is and how to best manage it. Dr. Cameron is a neurologist and physical therapist, a professor in the Department of Neurology at Oregon Health & Science University, Interim Chief of

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34:51

Episode 272: Live from the National MS Society...

RealTalk MS ·

2022/11/14

This week's episode of RealTalk MS was recorded in front of a LIVE audience at the National MS Society's 2022 Leadership Conference. Joining me in this special episode are Lori Turley, who was diagnosed with MS in 2021, and whose commitment to fundraising and advocacy is already producing dividends, and Dr. Bradley Zuchero, an MS Society-funded research fellow whose lab has discovered the biological mechanism that produces myelin in our central nervous system. In addition to my questions, our

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30:33

Episode 271: Acupuncture and MS with Jennifer...

RealTalk MS ·

2022/11/07

When we talk about managing MS on this podcast, we're usually talking about treatments based upon traditional Western medicine. But there are also complementary therapies that have been shown to improve MS symptoms. And acupuncture is one of those complementary therapies that's been shown to be effective in treating pain, spasticity, numbness or tingling, bladder problems, and depression. Joining me to talk about the therapeutic effects of acupuncture in treating MS symptoms are Jennifer

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22:16

Episode 270: From the 2022 ECTRIMS Congress with Dr....

RealTalk MS ·

2022/10/31

Last week, over 7,000 MS researchers and clinicians from more than 100 countries traveled to Amsterdam to attend the 2022 ECTRIMS (European Committee for Treatment and Research in Multiple Sclerosis) Congress, the largest MS research conference in the world. As has become an annual ECTRIMS tradition on RealTalk MS, the National MS Society's Executive Vice-President of Research, Dr. Bruce Bebo, and I took up our vantage point on the steps right outside of the convention center to discuss the

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35:08

Episode 269: How and When the Inflation Reduction Act...

RealTalk MS ·

2022/10/24

A couple of months ago, the Inflation Reduction Act was signed into law. And while it touches on many different areas, it will be remembered as the most consequential healthcare bill since the Affordable Care Act. From the emails I've received, I know that many of you are wondering how and when this new law will impact what you pay for your prescription medications. The National MS Society's Vice-President of Advocacy, Steffany Stern, and MS activist Judy Wilson, join me in this episode to explain

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34:04

Episode 268: What You Need to Know About Open...

RealTalk MS ·

2022/10/17

If you're on Medicare, or you get your health insurance through the healthcare.gov marketplace or one of the state health insurance exchanges, then you might already know that the annual open enrollment period is about to get underway or, in some cases, is already underway. Health insurance policies change. Physician networks change. Drug formularies often change. Deductibles change. And if you're living with MS, you can't afford to go through open enrollment assuming that the health insurance

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34:57

Episode 267: All You Need to Know About Vaccines and...

RealTalk MS ·

2022/10/10

It's flu season and that makes it an excellent time to talk about vaccines. People living with MS often have questions about whether a particular vaccine is good for them or whether it might carry with it the risk of a relapse or other negative health consequence. Dr. Lisa Doggett joins me to brief us on all things related to vaccines and MS. Dr. Doggett is a family doctor as well as the Senior Medical Director at HGS AxisPoint Health. She was a 2021-2022 American Academy of Family Physicians

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38:29

Episode 266: Making Life with MS Easier with Dr....

RealTalk MS ·

2022/10/03

Living with MS can make everyday run-of-the-mill tasks like bathing, cooking, and driving more challenging than they have to be. The National MS Society's Associate Vice President of Research, Dr. Kathy Zackowski, joins me with a whole list of simple adjustments and easy modifications that you can make that will make the things you do every day easier. Get ready to take some notes! A lot of you have reached out to me, sharing your thoughts about Selma Blair competing on Dancing with the Stars

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33:36

Episode 265: Making MS Research Accessible to People...

RealTalk MS ·

2022/09/26

Living with MS comes with its own set of sometimes significant challenges. But being in the dark, unaware of the noteworthy and remarkable advances being made in MS research is one challenge that we're learning to overcome. Sharon Roman is a patient-partner and writer for the British Medical Journal Group. Sharon lives with MS and she also writes a blog called Tremlett's MS Research Explained. The blog features plain-English posts detailing the research being done by Professor Helen Tremlett and

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39:40

Episode 264: It's Our 5-Year Anniversary with CNN's...

RealTalk MS ·

2022/09/19

We're celebrating the 5th anniversary of RealTalk MS and we're kicking it off with my exclusive conversation with CNN national correspondent and anchor, John King. John was diagnosed with MS in 2008. However, John didn't disclose his diagnosis until 2021 -- in an unplanned moment on national television. John shares his MS journey from the day he was diagnosed through his unplanned disclosure. And he also shares a message for anyone who is newly diagnosed with MS. Then, we're doing something

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32:39

Episode 263: Managing Your Mental Health When You're...

RealTalk MS ·

2022/09/12

In addition to its physical symptoms, MS can also affect your emotional well-being. Depression, persistent anxiety, and extreme irritability are common. And, just like the physical symptoms of MS, they require treatment. But people living with MS tend to focus on their physical health and, too often, end up neglecting their mental health. Dr. Dawn Ehde joins me to talk about maintaining and strengthening your emotional well-being when you're living with MS, and she'll introduce you to a new

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32:11

Episode 262: Making Shared Decision-Making Work For...

RealTalk MS ·

2022/09/05

The conversation between a doctor and patient is evolving from a time when that conversation was often limited to the doctor prescribing a particular disease-modifying medication and the patient silently nodding their head in agreement to something much more closely resembling a real conversation. Shared decision-making offers the patient an opportunity to discuss their treatment goals, explain their risk tolerance, and talk about their comfort level with side effects. But not every neurologist,

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37:54

Episode 261: Service Dogs for People Living With MS...

RealTalk MS ·

2022/08/29

When you're living with MS, even the most mundane daily tasks can sometimes be challenging. There are days when opening a door, taking things out of a drawer or a cupboard, or picking something up from the floor can all seem out of reach. Those just happen to be some of the many tasks that a service dog can help you with. This week, attorney Trevor Hardy joins me to talk about the impact that his service dog, Tristan, has had on his life. We're also reviewing what you need to know about monkeypox

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32:28

Episode 260: MS and Men with Dr. Robert Shin

RealTalk MS ·

2022/08/22

Women are roughly 3 times more likely to develop MS compared to men. But when men develop MS, they're more likely to experience a more aggressive disease course. Men are more likely to experience motor problems, loss of coordination and balance, and cognitive difficulties. When they experience a relapse, men are more likely to see their exacerbated symptoms continue, even during times of remission. Given these evidence-based observations, it seems sadly ironic that, as they develop MS symptoms, men

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37:21

Episode 259: How Lack of Sleep Affects MS (and What...

RealTalk MS ·

2022/08/15

More than half of the people living with MS report significant disruptions in their sleep and difficulty maintaining a consistent sleep schedule. Sleep-related problems can lead to additional health issues, not to mention an overall decline in quality of life and well-being. The Director of the Sleep, Health, and Wellness Lab at the University of Kansas Medical Center Department of Physical Therapy and Rehabilitation Science, Dr. Katie Siengsukon, returns to the podcast to talk about how sleep

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33:36

Episode 258: Living with the Invisible Symptoms of MS...

RealTalk MS ·

2022/08/08

One of the realities of living with MS is that you're often dealing with invisible symptoms. And because symptoms like numbness and tingling, fatigue, depression, vision issues, and pain aren't apparent to others, it can be hard for people around you to understand what MS is all about and, specifically, what you might be struggling with. Kathy Costello returns to the podcast to discuss how to best manage the invisible symptoms of MS and how you can constructively shut down those conversations that

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30:32

Episode 257: Dating With MS with Alaya McKinney and...

RealTalk MS ·

2022/08/01

Dating can be tricky for anyone. And it doesn't get any easier if you happen to be living with MS. In addition to all the typical dating considerations, you also have to think about things like if, how, and when to disclose your MS. You want to make sure your dating activities are physically doable. That might mean no long walks on the beach when the temperature is soaring. It might mean no hikes up steep mountain trails. And it might even mean having to postpone your date because your symptoms are

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35:49

Episode 256: How NeuraLight May Revolutionize Drug...

RealTalk MS ·

2022/07/25

Imagine that, using your smartphone, you log into a Zoom call from home. You connect with your MS specialist and, while you're chatting, an artificial intelligence-based system is analyzing biometric measurements that will enable your doctor to deliver or fine-tune an MS treatment plan that's been personalized to meet your exact needs. That's the vision driving NeuraLight, an early-stage company that's, first, aiming to re-write clinical trial design and accelerate new drug development. Joining me

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34:51

Episode 255: Aging With MS with Dr. John Corboy

RealTalk MS ·

2022/07/18

In last week's episode, we looked at talking with kids about MS. This week, we'll visit the opposite end of the spectrum as Dr. John Corboy discusses some of the things you'll want to think about as you age with MS. Dr. Corboy is a professor of neurology at the University of Colorado School of Medicine, and the Director of the Rocky Mountain Multiple Sclerosis Center at the University of Colorado. Dr. Corboy is also the Principal Investigator in a recently completed clinical trial that focused on

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30:37

Episode 254: Talking to Kids About MS with Erin Martin

RealTalk MS ·

2022/07/11

Whether we adults admit it or not, kids see everything. That includes seeing a parent or other family member who's living with MS. And because kids don't have an understanding of neurological conditions, they use their imaginations to fill in the blanks. That can very quickly take them down a rabbit-hole that's far scarier than the reality of living with MS. So, when do you talk to your kids about MS? And what do you say? Licensed social worker and behavioral specialist Erin Martin joins me to talk

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