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PODCAST

RealTalk MS

Jon Strum cuts through all the jargon and breaks down the latest multiple sclerosis news. You"ll meet the scientists who are creating tomorrow"s MS treatments today. You"ll hear from the experts discussing how the latest tweaks and changes to our healthcare laws will impact your MS treatment. And we"ll be talking to the courageous MS warriors who are out there advocating on behalf of the MS community every day, as well as the men and women who are committed to living their best lives with MS and

health & fitness medicine

All Episodes

35:54

Episode 233: COVID-19: Going from Pandemic to Endemic...

RealTalk MS ·

2022/02/14

With hospital rates starting to decline and mask mandates being lifted in several states there seems to be a general sense that we're seeing COVID-19 becoming an endemic virus. And we have to wonder what that means for people living with MS. Dr. Nancy Sicotte joins me to talk about the preventative treatments for COVID-19 that are available today for people who are living with MS, the importance of receiving 4 doses of the COVID-19 mRNA vaccines if you're living with MS, and some of the things we

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29:42

Episode 232: Managing MS and Comorbidities with Dr....

RealTalk MS ·

2022/02/07

Research shows that about 50% of the people living with MS will develop another chronic health condition, or comorbidity, in their lifetime. Whether it's high blood pressure, diabetes, or something else, living with comorbid conditions adds extra challenges to living with MS. Joining me to discuss how comorbidities affect people living with MS and what you can do to avoid developing some of those comorbidities is one of the leading experts on the subject, Dr. Ruth Ann Marrie. We're also talking

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30:10

Episode 231: Evidence Shows EBV Triggers MS --...

RealTalk MS ·

2022/01/31

Now that Harvard researchers have presented compelling evidence that MS is triggered by the Epstein-Barr Virus (EBV), what does it mean in terms of ending MS in the world? What does it mean for people already living with MS? And how will this announcement impact MS research? Joining me to unpack the details and implications of this research breakthrough is the Executive Vice-President of Research for the National MS Society, Dr. Bruce Bebo. We're also talking about new research from Stanford

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29:01

Episode 230: Managing MS Fatigue with Dr. Elizabeth...

RealTalk MS ·

2022/01/24

Fatigue is one of the most common symptoms of MS. It just gets in the way of fully engaging in life, making fatigue one of the most bothersome symptoms of MS. And because MS fatigue is one of the main causes of early withdrawal from the workforce, fatigue is an MS symptom that can impose a hefty financial penalty on a household. Joining me to talk about managing and even reducing MS fatigue is Dr. Elizabeth Gromisch, a neuropsychologist at the Mandell Center for Multiple Sclerosis in Hartford,

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13:32

Bonus Episode: MS In the 21st Century -- Challenges...

RealTalk MS ·

2022/01/19

This special episode of RealTalk MS is sponsored by EMD Serono and MS in the 21st Century. In this special episode of RealTalk MS, we're talking with Pieter van Galen and Amanda Montague about that sometimes-challenging conversation with your healthcare provider about MS progression. We're also highlighting My MS Roadmap, a free tool designed to make conversations with your healthcare provider easier by offering clear and easy to understand definitions of the complex language used to describe

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31:39

Episode 229: Evidence Shows MS is Triggered by the...

RealTalk MS ·

2022/01/17

Last week, a research team at the Harvard T.H. Chan School of Public Health presented compelling evidence that the Epstein-Barr Virus (EBV) triggers multiple sclerosis. So, we're taking a deep dive into the role of EBV and MS. We'll review the breakthrough results of this research and we'll re-share our conversation with one of the researchers in this game-changing study. We'll review the status of an experimental cell therapy that's designed to remove the EBV virus from infected b-cells in people

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16:07

Bonus Episode: MS in the 21st Century --The Impact of...

RealTalk MS ·

2022/01/12

This special episode of RealTalk MS is sponsored by EMD Serono and MS in the 21st Century. Cognitive impairment affects more than 50% of the people living with MS. In this special episode of RealTalk MS, we're talking with Dr. Sarah Morrow and Paola Kruger about how people living with MS can work together with their healthcare providers to develop a constructive dialogue about cognition and MS. Dr. Sarah Morrow is an Associate Professor of Neurology in the Department of Clinical Neurological

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29:36

Episode 228: Headaches and MS with Meagan Adamson,...

RealTalk MS ·

2022/01/10

For some people, getting a headache means experiencing mild discomfort. For others, it can mean debilitating pain, compromised vision, and other serious effects. You don't have to be living with MS to experience a headache. But research has shown that people living with MS are more likely to experience headaches than people who don't have MS. And there's some evidence to suggest that headaches may be one of the earliest symptoms of MS. Meagan Adamson is a nurse practitioner who specializes in

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34:21

Episode 227: Why Your New Year Resolutions Matter if...

RealTalk MS ·

2022/01/03

We're four days into 2022 and, for a lot of us, that means that we're four days into a new diet, four days into a new exercise regimen, or four days into some other life-changing behavior. Making healthy lifestyle changes is good for everyone and there's plenty of evidence that shows these kinds of behavioral changes can be especially beneficial if you're living with MS. But too often, we see the well-intentioned resolutions that we make in January fade into distant memories by March. It doesn't

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35:12

Episode 226: Re-Visiting Our ECTRIMS 2021 Research...

RealTalk MS ·

2021/12/27

Today, we're re-visiting my favorite conversation of the entire year and it seems that you and I agree! You've made it this year's most downloaded and listened-to episode. In this episode, Dr. Bruce Bebo, the Executive Vice-President of Research at the National MS Society, briefs us about some of the most interesting and important research shared at ECTRIMS 2021, the largest MS research conference in the world. We have a lot to talk about! Are you ready for RealTalk MS??! Wishing you a happy and

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31:37

Episode 225: Two of This Year's Most Important...

RealTalk MS ·

2021/12/20

I've always believed that the holiday season is an ideal time for reflection. For looking back and looking ahead. And in that spirit, today we're re-visiting two of the most important conversations that we've had this year on RealTalk MS. When you consider the nearly one million people living with MS in the United States, you might conclude that MS doesn’t discriminate – it impacts people of all ages, sexual orientations, and ethnic backgrounds. However, when you drill down a bit further and look at

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26:21

Episode 224: The Secrets to Having a...

RealTalk MS ·

2021/12/13

The 2021 holiday season is underway, and the availability of the COVID-19 vaccines means that this year, many of us are getting caught up in cooking, eating, drinking, shopping, and connecting face-to-face with family and friends. For some of us, it also means having that important but sometimes-awkward conversation about vaccine status. For too many people, 'tis the season....to feel stressed. Stress can feel overwhelming and make everyday life challenging for anyone, but it can be especially

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39:18

Episode 223: Assistive Technology for People with MS...

RealTalk MS ·

2021/12/06

If you're living with MS, you know by now that quitting smoking, getting exercise, and making smart food choices have all been shown to improve your physical health and your quality of life. There's one more tool that, when necessary, can be a game-changer. Joining me to talk about how assistive technology can help people living with MS maintain their independence and improve their quality of life are assistive technology experts Alex Burnham and Bill Binko. We'll also share one more reason why

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36:12

Episode 222: The Poetry of MS with Tamara Kaye Sellman

RealTalk MS ·

2021/11/29

Tamara Kaye Sellman is a poet, short story writer, journalist, and essayist. So, when she was diagnosed with MS in 2013, Tamara did what she does best -- she began writing about it. That writing turned into Intention Tremor, a book of poetry and prose written over the five years following Tamara's diagnosis. In this special episode, we'll talk with Tamara about how she chose to artistically interpret being diagnosed with MS. We'll discuss why she's quite literally invested in MS research. And

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27:40

Episode 221: Diet, Nutrition, and MS with Mona...

RealTalk MS ·

2021/11/22

Eating well is an important part of a wellness plan. At first glance, making healthy food choices seems simple. But with so much conflicting information and opinion masquerading as fact on websites and in social media, what do you believe and where do you begin? Joining me to separate fact from fiction and share smart strategies that will get you started on solid nutritional footing is my guest, Mona Bostick. Mona is a registered dietician-nutritionist and a multiple sclerosis certified specialist

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40:44

Episode 220: New MRI Recommendations for MS with Dr....

RealTalk MS ·

2021/11/15

Before the availability of MRI technology in the 1980s, MS was frequently misdiagnosed or even missed completely. Today, an MRI exam is a valuable tool in diagnosing MS, following disease progression, and evaluating someone's response to their MS treatment. Recently, a team of international experts updated the MRI recommendations for people living with MS. Dr. Scott Newsome, a member of that expert panel, is joining me today to talk about some of those recommendations and to help us understand how

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40:40

Episode 219: Update on an Investigational T Cell...

RealTalk MS ·

2021/11/09

We met Dr. AJ Joshi, Chief Medical Officer at Atara Biotherapeutics, at ECTRMS 2019, when he gave us our first update on ATA 188, Atara's investigational cell therapy for MS. This is the third year in a row that we've connected with Dr. Joshi during ECTRIMS for an update on the progress of ATA 188. This year, he's also sharing news about an unexpected discovery that investigators encountered during their Phase 1 clinical trial (HINT: It's a pretty interesting discovery!) We'll get an advocacy

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34:53

Episode 218: ECTRIMS 2021 Research Wrap-Up with Dr....

RealTalk MS ·

2021/11/01

Just a couple of weeks ago, 9,000 MS research scientists and clinicians from 100 countries gathered virtually for the annual meeting of the European Committee for Treatment and Research in Multiple Sclerosis, otherwise known as ECTRIMS. The largest MS research conference in the world lived up to its name, featuring 200 speakers and 1,700 research abstracts. In what has become an annual RealTalk MS tradition, Dr. Bruce Bebo, the Executive Vice President of Research at the National MS Society, joins

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39:01

Episode 217: Living with MS and Managing...

RealTalk MS ·

2021/10/25

Research shows that more than 50% of the people living with MS will experience another chronic health condition in their lifetime. These additional health conditions, known as comorbidities, have been shown to negatively affect disability progression and health-related quality of life. In other words, living with comorbidities makes living with MS more challenging than it has to be. Joining me to talk about living with MS while managing and even avoiding comorbidities is Dr. Alissa Willis, Chair of

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31:10

Episode 216: Open Enrollment with Nicole Vasquez

RealTalk MS ·

2021/10/18

The annual health insurance open enrollment period has begun! And a lot of people tend to get through open enrollment on autopilot, assuming that the health insurance that they had last year will continue to serve them well next year. But policies change. Physician networks change. And prescription drug formularies change. If you're living with MS, you can't afford to be on autopilot when it comes to making health insurance decisions. Those decisions can cost you -- in time, money, and unnecessary

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