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PODCAST

Thriving Over Surviving Multiple Sclerosis

Multiple sclerosis (MS) is an incurable autoimmune disease. Thriving Over Surviving shares the experiences of those living with MS who lean into their core values to live their best lives. Our host, Edie, was diagnosed with RRMS in 2015. In each episode, she chats it up with MS thrivers to learn and grow from each other"s experiences. Chronic illnesses such as MS can impact our lives in ways that may become overwhelming. It is nice to know that others out there who focus on thriving despite their

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All Episodes

31:00

76 Adapting To Life With MS By Speaking Your Truth

Thriving Over Surviving Multiple Sclerosis ·

2022/06/28

I don't know anyone with multiple sclerosis that signed up for it. Nobody stands in line with great expectations hoping that someone will say, "Yes, you have MS". But if you have this disease, you might as well make the most of it. So how do you do that? Stand up and share your story. As I chatted it up with David Beneby Jr, I realized there is something about him that emotes a positive outlook on life. There is no magic wand, but maintaining a mindset focused on the possibilities in life is a

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39:12

75 Connecting With Your Spirituality To Overcome...

Thriving Over Surviving Multiple Sclerosis ·

2022/06/14

Have you ever been lonely? I'm talking about that deep loneliness leading down the road to depression. How did you get out of it? Anna shares with us the journey of healing she has been on since MS took away her ability to walk. Join me as I chat it up with Anna. Instagram: @immakeepstandin Blog: https://linktr.ee/AnnaGiannakouros Instagram: @thrivingoversurvivingpodcast https://thrivingoversurvivingpodcast.com

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33:30

74 The UK's Strongest Disabled Man Is Also The...

Thriving Over Surviving Multiple Sclerosis ·

2022/06/07

Dave Walsh is a strongman, a dad, a husband, and is hilarious. He is competing for the world's strongest disabled man in Canada June 2022. But he is not just all muscles. This is a man who also helps others understand what it is like from his perspective in a wheelchair. Let's chat it up and cheer for Dave AKA SittingbullUK! Instagram & Facebook: @Sitting_bull_uk Instagram: @thrivingoversurvivingpodcast https://thrivingoversurvivingpodcast.com

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40:03

73 The Stigma Around Obesity and Disability

Thriving Over Surviving Multiple Sclerosis ·

2022/05/31

If you have ever struggled with your weight or self-esteem, you know how we can be our own worst enemy. Why do we let that negative voice creep into our heads and control us? Jae shares with us that although it is a daily struggle, she stomps all over that voice to make sure she is making decisions to live the life she wants to live. Let's chat it up with Jae. Instagram: @rollingwithms Instagram: @thrivingoversurvivingpodcast https://thrivingoversurivivngpodcast.com

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30:50

72 The Twins Coast 2 Coast Share Why Fundraising and...

Thriving Over Surviving Multiple Sclerosis ·

2022/05/24

Terry is back and this time, her twin sister Tamara is joining us as well. These two women, who call themselves Twins Coast 2 Coast, give so much of themselves to help others with multiple sclerosis. Their journey is unique because they both have MS, but even more, because they are thriving despite having the disease for over 25 years. Fundraising to support research is a passion of theirs. Listen as we chat it up about the importance of family, Epstein Barr, and so much more. Instagram:

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34:45

71 Caring For Family Despite An MS Diagnosis

Thriving Over Surviving Multiple Sclerosis ·

2022/05/17

Alexis had quite the time getting her multiple sclerosis diagnosis. In fact, she was living overseas when she finally got some answers. She was able to get back home to California, and help take care of her mother who was diagnosed with Alzheimer's Disease. Watching her mother's struggle has helped her gain perspective in her own life. Let's chat it up with Alexis. Oh yeah... listen closely and you can hear Alexis's kids playing in the background. We are all about family here at TOSP! Instagram:

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34:46

70 Embracing MS As An Unwelcome Friend Almost 3...

Thriving Over Surviving Multiple Sclerosis ·

2022/05/10

How do you cope with your MS? Do you fight against it, or embrace the challenges set before you? Steve believes MS is an unwanted friend, and he has adapted his life to ensure he is thriving. Fifteen years ago Steve proclaimed that aerobic exercise just was not for him. Now he is determined to get that 5K medal. Join me as I chat it up with Steve. Steve's Fundraising Couch to 5K Challenge LinkedIn: linkedin.com/in/wellmindcoach/ Facebook: @TheMSTiger @Thesugarstealerband Instagram:

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44:21

69 Relying on Jesus and Medical Cannabis to Manage MS...

Thriving Over Surviving Multiple Sclerosis ·

2022/05/03

Jodi has seen some hard times. Between her husband's bipolar disorder to her own multiple sclerosis diagnosis, she has been through all the things. Her book, Letters To An Unbelieving Woman is available on Amazon and chronicles her journey of broken friendships, sickness, love & family, and more. Join us as we chat about how medical cannabis and Jesus have impacted her life. Instagram: @jodi.marie.nix Instagram: @thrivingoversurvivingpodcast https://thrivingoversurvivingpodcast.com

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35:48

68 Using The Pain Of The Gym To Fight The Pain Of...

Thriving Over Surviving Multiple Sclerosis ·

2022/04/26

Montreal Canadian, Marie shares her struggle beginning with her prolonged diagnosis of MS. Now she uses a motorized wheelchair to get her where she needs to go. Marie uses this as ammunition to focus on healing her body through weightlifting. She is gearing up for a big competition in 2025. Help me cheer on this fashionista. Let's chat it up! Instagram: @mariepontini See her weight loss transformation on her YouTube Channel Instagram: @thrivingoversurvivingpodcast

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36:46

67 Coping With Chronic Illness By Taking Time For...

Thriving Over Surviving Multiple Sclerosis ·

2022/04/19

How do you cope with MS? Samantha Bromfield lets it all out, in her own words, no holds barred. Her blog highlights her journey with multiple sclerosis. But there's another side to this thriver. As an avid reader, Samantha knows how to take time for herself to feed her soul. Instagram: @chronically.sam Blog: https://chronicallysam.co.uk Instagram: @thrivingoversurviving https://thrivingoversurvivingpodcast.com

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31:30

66 Maintaining Sobriety Despite An MS Diagnosis

Thriving Over Surviving Multiple Sclerosis ·

2022/04/12

Substance abuse and mental health issues plague the chronic illness community. Mykee Dilks-Byrne was diagnosed with MS after she gained her sobriety over alcohol. She told me it is a daily struggle to maintain, but focusing on compassion and gratitude does help. Listen as she shares her story of addiction, mental illness, recovery, and MS diagnosis. If you struggle with substance abuse, please call the National Drug and Alchohol Treatment Hotline at 1-800-662-HELP (4357). BTW, recorded this while I

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35:08

65 This Healthy Unicorn Says FUMS

Thriving Over Surviving Multiple Sclerosis ·

2022/04/05

Perseverance is doing something despite difficulty or delay in achieving success. For me, the words, grit, determination, and tenacity come to mind. Jessica Turner believes that as warriors, we can not give up. She is not afraid to follow her gut! A wife, a mother, and an MS thriver who found purpose in her diagnosis by helping others take back control of their health and wellbeing. Let's chat it up with Jessica. Instagram: @beingahealthyunicorn https://beingaunicorn.com Instagram:

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43:57

64 Choosing Empathy Over Shame When Needing a...

Thriving Over Surviving Multiple Sclerosis ·

2022/03/29

Noelle is a mother of three, a wife, and a licensed social worker whose goal is to help others struggling with chronic illness. Although she has Secondary Progressive Multiple Sclerosis (SPMS), Noelle maintains her independence by taking full advantage of the use of mobility aids. In this episode, she allows herself to be vulnerable as she shares the details of her disability, the love she shares with her family, and how empathy has helped her on her journey. Instagram: @ms.livingbalanced

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36:54

63 Holding Herself Accountable to Battle MS Symptoms

Thriving Over Surviving Multiple Sclerosis ·

2022/03/22

Latoya shares with us how she got out of the "yuck" she was in due to her multiple sclerosis diagnosis. When you listen to this episode, you will hear that I was in some yuck myself. I was eight days into my Covid-19 diagnosis when we recorded this. My voice isn't quite back to normal yet. We managed though. https://www.itsneighbormade.com/ Instagram: @msscentscandleco Twitter: @mstrue2toya https://thrivingoversurvivingpodcast.com Instagram: @thrivingoversurvivingpodcast Twitter: @ms_thriving

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48:53

62 Claustrophobia And MS Do Not Mix

Thriving Over Surviving Multiple Sclerosis ·

2022/03/15

If you have multiple sclerosis, then you have probably had an MRI. Even though I'm not afraid the walls are closing in on me, I am not excited to get in the tube each year. Lorin shares her experience of getting her brain scanned and what she has to do to get through it. Let's chat it up with this funny lady, teacher, and thriver. Instagram: @studentsaywhat Instagram: @thrivingoversurvivingpodcast https://thrivingoversurvivingpodcast

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47:28

61 Advocating at the State, Community, Family, and...

Thriving Over Surviving Multiple Sclerosis ·

2022/03/08

What is an advocate? Jenna Green helps us understand how we all can be involved in supporting our Thriving MS Community! Shownotes are available on the website. https://thrivingoversurvivingpodcast.com Instagram: @thrivingoversurvivingpodcast Instagram: @thejennagreen

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33:25

60 Positivity, Perspective, and Spirituality oh My!...

Thriving Over Surviving Multiple Sclerosis ·

2022/03/01

Mathew Embry shares his thoughts regarding the future of multiple sclerosis research and the search for a cure. Mathew is the man behind the documentary Living Proof. Cofounder of MS Hope, his goal is to help our community by sharing the science-based strategies that have enabled him to live a drug-free, healthy life for more than 25 years since his diagnosis. Mathew says #nocheatdays! https://mshope.com/ https://www.mathewembry.com/ Instagram: @embry.mathew https://thrivingoversurvivingpodcast.com

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41:52

59 A Couple Takes on MS with Faith & Teamwork

Thriving Over Surviving Multiple Sclerosis ·

2022/02/22

Dan & Jennifer Digmann say that he's walking and she's rolling, and they are moving forward together. And together they do. With the core values of faith and teamwork, these two MS'rs are thriving as they write their blog, record their podcast, and speak to legislators about how people with chronic diseases navigate our healthcare system. blog: https://acoupletakesonms.com twitter: @jendandig Instagram: @digmannd Instagram: @thrivingoversurvivingpodcast https://thrivingoversurvivingpodcast

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10:01

58 TMTB Finding Your Multiple Sclerosis Community

Thriving Over Surviving Multiple Sclerosis ·

2022/02/17

This Ten Minute Tid Bit (TMTB) episode explores the concept of support groups. For full show notes and supporting information, please visit the website https://thrivingoversurvivingpodcast.com

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45:07

57 Persevering Through Whatever Multiple Sclerosis...

Thriving Over Surviving Multiple Sclerosis ·

2022/02/15

Little did Rachel and I know when we began our conversation that we would end up chatting so long. In Part II, Rachel shares how her cores values of perseverance and making a difference make all this MS stuff not only manageable but fulfilling. Instagram: @tri_to_recover_from_ms https://thrivingoversurvivingpodcast.com Instagram: @thrivingoversurvivingpodcast

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