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PODCAST

Real Talk: Eosinophilic Diseases

American Partnership for Eosinophilic Disorders

Eosinophils are a type of white blood cell that play a role in immune responses and help fight off infections. When these cells build up and cause inflammation in the digestive system, tissues, organs, and/or bloodstream, without a known cause, it may be the result of an eosinophil-associated disease. Join the American Partnership for Eosinophilic Disorders (APFED) for a series of conversations with researchers, clinicians, patients, and other community members as we discuss practical strategies for

health & fitness medicine

All Episodes

41:08

Aeroallergens and EoE with Dr. Amal Assa’ad

Real Talk: Eosinophilic Diseases ·

2022/05/31

Host Ryan Piansky and co-host Mary Jo Strobel, talk with guest Dr. Amal Assa’ad about aeroallergens, food allergies, and eosinophilic esophagitis. Dr. Assa’ad is a pediatric allergist. She is a Professor at the University of Cincinnati in the Department of Pediatrics, as well as the Director of Clinical Services and Associate Director of the Division of Allergy and Immunology at Cincinnati Children's Hospital Medical Center. She is an accomplished, award-winning researcher who has published more

en

30:20

Growing Up with EGIDs with Kayla Abramowitz

Real Talk: Eosinophilic Diseases ·

2022/04/26

Growing up with an eosinophilic gastrointestinal disorder (EGID) can be a challenge. In this episode, host Ryan Piansky, and guest host Mary Jo Strobel, talk to 19-year-old Kayla Abramowitz to discuss her journey living with eosinophilic colitis. Kayla Abramowitz started having symptoms of an EGID at the age of six but was not diagnosed until many years later. Today, she is a sophomore in college majoring in Public Advocacy at the University of Miami. She is also the Founder, Chief Kid Officer, and

en

39:44

Co-morbidity of Eosinophilic Esophagitis (EoE) and...

Real Talk: Eosinophilic Diseases ·

2022/03/22

Many patients diagnosed with eosinophilic esophagitis (EoE) are initially diagnosed with food allergies. What is the relationship between food allergies and EoE, and what is the research available on this topic? In this episode, host Ryan Piansky, guest host Mary Jo Strobel, and Dr. Ruchi Gupta discuss the co-morbidity of EoE and food allergies. Dr. Ruchi Gupta is a Professor of Pediatrics & Medicine at the Northwestern University Feinberg School of Medicine, Clinical Attending at Ann & Robert H

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31:15

Drug Development and Approval: A Conversation with...

Real Talk: Eosinophilic Diseases ·

2022/02/23

For many subsets of eosinophilic associated disease, there is not yet an FDA-approved therapy available. There are several therapies in various stages of development for eosinophilic esophagitis, but what exactly are the steps that need to be taken to bring a therapy to market and what is the role of the U.S. Food and Drug Administration (FDA) in medications coming to market? In this episode, host Ryan Piansky, guest host Mary Jo Strobel, and Dr. Scott Winiecki discuss this topic. Dr. Scott

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58:22

History of Eosinophils with Dr. Gerald Gleich

Real Talk: Eosinophilic Diseases ·

2022/01/25

Eosinophil-related diseases are a relatively recent discovery in the medical field, and patient advocacy in this area has an even shorter history. In this episode, host Ryan Piansky, guest host Beth Allen, and world-renowned expert Dr. Gerald Gleich discuss eosinophils, the evolution of patient advocacy, and progress within this field. Dr. Gerald Gleich is a Professor of Dermatology and Medicine at the University of Utah and has had a lifelong professional commitment to understanding eosinophils

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32:11

Research Advances in Identifying EoE-causal Foods...

Real Talk: Eosinophilic Diseases ·

2021/12/28

Recent findings from research co-funded by APFED and the American Academy of Allergy, Asthma & Immunology could have a major impact on food allergy testing for people with eosinophilic esophagitis (EoE). In this episode, co-hosts Dawn McCoy and Ryan Piansky discuss the research that could better identify food triggers that cause EoE symptoms with the principal investor of the study, David Hill, MD, PhD. Dr. Hill is an Assistant Professor of Pediatrics at the Perelman School of Medicine at the

en

35:56

Understanding and Managing Eosinophilic...

Real Talk: Eosinophilic Diseases ·

2021/12/17

Eosinophilic Granulomatosis with Polyangiitis (EGPA), formerly known as Churg-Strauss Syndrome, is a rare condition that can be challenging to diagnose. In this episode, co-hosts Dawn McCoy and Ryan Piansky explore the topic of EGPA and how it can be managed with expert Peter A. Merkel, MD, MPH. Dr. Merkel is the Chief of Rheumatology and a Professor of Medicine and Epidemiology at the University of Pennsylvania. Dr. Merkel is an internationally recognized research and clinical expert in vasculitis

en

40:27

Understanding and Managing Eosinophilic Asthma with...

Real Talk: Eosinophilic Diseases ·

2021/11/19

There has been a growing awareness of eosinophilic asthma in recent years, and thereare increasingly more treatment options for people with this type of asthma. In thisepisode, co-hosts Ryan Piansky and Mary Jo Strobel explore the topic of eosinophilicasthma, triggers, treatment options, and more with Ravi Viswanathan, MD. Dr. Viswanathan is a board-certified Allergist & Immunologist, and Assistant Professorin the Section of Allergy, Pulmonary & Critical Care at the University of WisconsinSchool of

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33:25

EGID Elimination Diets: Creative Strategies to Make...

Real Talk: Eosinophilic Diseases ·

2021/09/17

There is no denying that mealtime can be a challenge for those with eosinophilic gastrointestinal diseases (EGIDs) who are on elimination diets. In this episode, co-hosts Dawn McCoy and Ryan Piansky discuss some creative strategies that can help make mealtimes easier with Holly Knotowicz, MS, CCC-SLP. Holly Knotowicz is a Speech-Language Pathologist and a Feeding and Swallowing Specialist. Her background is in Communication Sciences and Disorders, and her areas of clinical interest include

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43:31

Self-Advocating With an Eosinophil-Disease

Real Talk: Eosinophilic Diseases ·

2021/08/20

Hypereosinophilic Syndromes (HES) are a rare, chronic group of diseases and there are many unanswered questions as to the cause and prevention. Living with HES can be challenging, and in this episode, Debbie Alves shares insights about what it is like to live with HES, her road to getting diagnosed and treated, and what she has learned from her journey that could help others. Debbie Alves has a number of medical conditions including asthma and HES. She managed her asthma well into adulthood and

en

33:42

The Impact of Chronic Illness on Relationships with...

Real Talk: Eosinophilic Diseases ·

2021/07/16

Living with a chronic illness can take a toll not just on the patient, but also on their partner, and their relationship. Whether it is a relationship between a couple, a parent and a child, family members, or even friends, living with chronic illness significantly changes the dynamic. In this episode, Barbara Kivowitz, MSW, shares insights about what these changes are, and how to cope with them. Barbara is a clinician, consultant, and author specializing in healthcare innovation with the goal of

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28:33

Patient-Powered Research in Eosinophilic Diseases...

Real Talk: Eosinophilic Diseases ·

2021/06/18

In recent years, there has been a greater focus on infusing the patient voice in clinical research in the space of eosinophilic disorders. In this episode, co-hosts Dawn McCoy and Ryan Piansky discuss the shift toward patient-led research for eosinophilic diseases with Evan Dellon, MD, MPH. Dr. Dellon is an adult gastroenterologist with a clinical focus on eosinophilic gastrointestinal diseases (EGIDs) at the University of North Carolina at Chapel Hill. He also serves as a member of APFED’s Health

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01:58

TRAILER - Real Talk: Eosinophilic Diseases

Real Talk: Eosinophilic Diseases ·

2021/05/17

Eosinophils are a type of white blood cell that play a role in immune responses and help fight off infections. When these cells build up and cause inflammation in the digestive system, tissues, organs, and/or bloodstream, without a known cause, it may be the result of an eosinophil-associated disease. Join the American Partnership for Eosinophilic Disorders (APFED) for a series of conversations with researchers, clinicians, patients, and other community members as we discuss practical strategies for

en

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