x

75% of people globally want unbiased news (Pew Research) but are concerned they're not getting that.

Get balanced coverage with Symby. See how stories are covered across diverse outlets and spot when one side covers a story the other skips.

PODCAST

Narcolepsy Navigators Podcast

Narcolepsy Navigators isn"t just another podcast; it"s a lifeline, a space where every story shared is a step towards changing the narrative around narcolepsy, idiopathic hypersomnia and Klein-Levin syndrome.Every episode is a peek into the lives of people navigating these conditions every single day. It"s raw, it"s real, and it’s about sharing stories that are way too important to miss.Because when we share, we have the power to change narratives – that’s our mantra, "Share a story to change a

society & culture mental health

All Episodes

00:52:18

Mathilda: Thriving with Narcolepsy from Age Three

Narcolepsy Navigators Podcast ·

2024/09/22

Imagine being the youngest person ever diagnosed with narcolepsy at just three years old. Today, we're honoured to share the extraordinary journey of Mathilda, who has spent her life battling and thriving despite this complex condition. Joined by our Marketing Manager Iris, also living with narcolepsy type 1, we dive into Mathilda's world—from her early diagnosis to the release of her mother Claire's heartfelt memoir, "Waking Mathilda." In this deeply personal episode, Mathilda

en

00:52:18

Mathilda: Thriving with Narcolepsy from Age Three

Narcolepsy Navigators Podcast ·

2024/09/22

Imagine being the youngest person ever diagnosed with narcolepsy at just three years old. Today, we're honoured to share the extraordinary journey of Mathilda, who has spent her life battling and thriving despite this complex condition. Joined by our Marketing Manager Iris, also living with narcolepsy type 1, we dive into Mathilda's world—from her early diagnosis to the release of her mother Claire's heartfelt memoir, "Waking Mathilda."In this deeply personal episode, Mathilda opens up about

en

01:19:06

Raising a Narcoleptic Dog: Toast’s Story

Narcolepsy Navigators Podcast ·

2024/09/20

Join us on this heartwarming episode of Narcolepsy Navigators as we welcome our special guests Laura, an experienced animal foster parent from Illinois, and her narcoleptic dog, Toast. From being a breeder dump to becoming a beloved family member, Laura's journey is filled with challenges, adaptations, and the joy of raising a special needs pet. Laura recounts her initial struggles with understanding Toast's condition, the unique measures taken to manage his narcolepsy, and the

en

01:19:06

Raising a Narcoleptic Dog: Toast’s Story

Narcolepsy Navigators Podcast ·

2024/09/20

Join us on this heartwarming episode of Narcolepsy Navigators as we welcome our special guests Laura, an experienced animal foster parent from Illinois, and her narcoleptic dog, Toast. From being a breeder dump to becoming a beloved family member, Laura's journey is filled with challenges, adaptations, and the joy of raising a special needs pet. Laura recounts her initial struggles with understanding Toast's condition, the unique measures taken to manage his narcolepsy, and the joyous connections

en

01:02:16

Sarah: Dreams Interrupted

Narcolepsy Navigators Podcast ·

2024/08/28

Experience the raw and transformative journey of Sarah Duncan, a courageous 29-year-old from Oregon, as she navigates the complexities of life with narcolepsy. From her pre-med college days filled with relentless fatigue to the frustrating misdiagnoses that dismissed her symptoms as mere anxiety and depression, Sarah's story highlights the often-overlooked struggles of those living with this condition. This episode of Narcolepsy Navigators sheds light on the emotional and physical challenges Sarah

en

01:02:16

Sarah: Dreams Interrupted

Narcolepsy Navigators Podcast ·

2024/08/28

Experience the raw and transformative journey of Sarah Duncan, a courageous 29-year-old from Oregon, as she navigates the complexities of life with narcolepsy. From her pre-med college days filled with relentless fatigue to the frustrating misdiagnoses that dismissed her symptoms as mere anxiety and depression, Sarah's story highlights the often-overlooked struggles of those living with this condition. This episode of Narcolepsy Navigators sheds light on the emotional and

en

01:06:47

Christine's Journey: Mental Health and Work Life

Narcolepsy Navigators Podcast ·

2024/08/13

Can navigating life with narcolepsy impact your mental health and career? Join us on Narcolepsy Navigators as we explore these pressing questions with our special guest, Christine from Northern Ireland. You'll hear firsthand about her journey with narcolepsy type 1 and cataplexy, and how symptoms manifest uniquely in her jaw. We share our personal struggles with exhaustion and anxiety, emphasizing the critical need for balance to avoid burnout. This episode sheds light on the

en

01:06:47

Christine's Journey: Mental Health and Work Life

Narcolepsy Navigators Podcast ·

2024/08/13

Can navigating life with narcolepsy impact your mental health and career? Join us on Narcolepsy Navigators as we explore these pressing questions with our special guest, Christine from Northern Ireland. You'll hear firsthand about her journey with narcolepsy type 1 and cataplexy, and how symptoms manifest uniquely in her jaw. We share our personal struggles with exhaustion and anxiety, emphasizing the critical need for balance to avoid burnout. This episode sheds light on the emotional toll and

en

00:50:54

Katy: Parenting Through the Fog of IH

Narcolepsy Navigators Podcast ·

2024/07/06

Can you imagine trying to balance parenting, a creative passion, and a chronic sleep disorder? Join us on Narcolepsy Navigators as we explore this challenging reality through the inspiring life of Katie, a 30-year-old mom from South Dakota. Diagnosed with idiopathic hypersomnia (IH) in early 2022, Katie shares her journey of self-discovery and the long path to understanding her incessant sleepiness. She opens up about how her daily interactions were impacted and the adjustments she made to manage

en

00:50:54

Katy: Parenting Through the Fog of IH

Narcolepsy Navigators Podcast ·

2024/07/06

Can you imagine trying to balance parenting, a creative passion, and a chronic sleep disorder? Join us on Narcolepsy Navigators as we explore this challenging reality through the inspiring life of Katie, a 30-year-old mom from South Dakota. Diagnosed with idiopathic hypersomnia (IH) in early 2022, Katie shares her journey of self-discovery and the long path to understanding her incessant sleepiness. She opens up about how her daily interactions were impacted and the adjustments

en

00:35:49

Henry's Narcolepsy Journey: A 13-year Battle

Narcolepsy Navigators Podcast ·

2024/05/23

What if a sleep study could be the key to unlocking a 13-year mystery? Join us as we sit down with Henry from Queens, New York, who shares his deeply personal journey from experiencing his first symptoms of narcolepsy type 2 in 1996 to finally receiving a diagnosis in 2009. In this episode, Henry opens up about his trial-and-error process with medications, to experiencing the highs and lows of finding the right combination, including his experiences with Xyrem. Learn how

en

00:35:49

Henry's Narcolepsy Journey: A 13-year Battle

Narcolepsy Navigators Podcast ·

2024/05/23

What if a sleep study could be the key to unlocking a 13-year mystery? Join us as we sit down with Henry from Queens, New York, who shares his deeply personal journey from experiencing his first symptoms of narcolepsy type 2 in 1996 to finally receiving a diagnosis in 2009.In this episode, Henry opens up about his trial-and-error process with medications, to experiencing the highs and lows of finding the right combination, including his experiences with Xyrem. Learn how narcolepsy impacted his work

en

00:42:00

Adapting to the Unpredictable: Natalie's Narrative

Narcolepsy Navigators Podcast ·

2024/04/29

Nobody wants to embark on a journey across the turbulent seas of narcolepsy, but Natalie, a German mother and teacher, offers her moving story of doing just that. In her world, the emergence of narcolepsy in her late twenties was only the start of a journey marked by delayed diagnosis, developing cataplexy, and the struggle with ineffective sleep apnea therapies. This episode gives us access to her universe. Her narrative is not limited to the difficulties she faced; it also

en

00:42:00

Adapting to the Unpredictable: Natalie's Narrative

Narcolepsy Navigators Podcast ·

2024/04/29

Nobody wants to embark on a journey across the turbulent seas of narcolepsy, but Natalie, a German mother and teacher, offers her moving story of doing just that. In her world, the emergence of narcolepsy in her late twenties was only the start of a journey marked by delayed diagnosis, developing cataplexy, and the struggle with ineffective sleep apnea therapies. This episode gives us access to her universe. Her narrative is not limited to the difficulties she faced; it also explores the resiliency

en

00:46:20

When Sleep Interrupts Life - Sakhara's Story

Narcolepsy Navigators Podcast ·

2024/04/07

Discover the untold stories of life with narcolepsy as Sakhara Johnson joins us for an intimate conversation about her journey. We peel back the curtain on her day-to-day battles, from the initial misdiagnoses and the arduous path to discovering she had severe narcolepsy, to the ongoing struggles with treatments and their impact on her personal life. Sakhara doesn't hold back in sharing the gritty details of using a CPAP machine, undergoing surgeries, and the toll these take on

en

00:46:20

When Sleep Interrupts Life - Sakhara's Story

Narcolepsy Navigators Podcast ·

2024/04/07

Discover the untold stories of life with narcolepsy as Sakhara Johnson joins us for an intimate conversation about her journey. We peel back the curtain on her day-to-day battles, from the initial misdiagnoses and the arduous path to discovering she had severe narcolepsy, to the ongoing struggles with treatments and their impact on her personal life. Shakara doesn't hold back in sharing the gritty details of using a CPAP machine, undergoing surgeries, and the toll these take on her academic and

en

01:07:45

A Deep Dive Into Idiopathic Hypersomnia with Ross

Narcolepsy Navigators Podcast ·

2024/02/27

This has been a highly anticipated episode for us here on the Narcolepsy Navigators podcast. Our hosts Kerly and Liz, are both taking on an incredibly deep and detailed dive into what living with Idiopathic Hypersomnia is really like and what is actually the difference between narcolepsy and IH? Chapters (01:57 - 05:22) Living With Idiopathic Hypersomnia in UK (05:19 - 05:37) Unusual Problem With Unknown Cause (07:20 - 09:38) Sleep Patterns in Idiopathic Hypersomnia (14:14 -

en

01:07:45

A Deep Dive Into Idiopathic Hypersomnia with Ross

Narcolepsy Navigators Podcast ·

2024/02/27

This has been a highly anticipated episode for us here on the Narcolepsy Navigators podcast. Our hosts Kerly and Liz, are both taking on an incredibly deep and detailed dive into what living with Idiopathic Hypersomnia is really like and what is actually the difference between narcolepsy and IH?Subscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences. Follow us on Instagram for

en

00:56:12

Navigating the World with Narcolepsy: Liz's Travel Tales

Narcolepsy Navigators Podcast ·

2024/01/30

In this engaging episode, host Kerly Bwoga chats with Liz, who shares her experiences of traveling with narcolepsy. Diagnosed at 18, Liz offers a candid look into the highs and lows of her travel adventures, providing valuable insights for anyone facing similar challenges.Key Topics: Welcoming Liz and Introduction [0:00] Liz's Narcolepsy Diagnosis and Background [2:15] The Realities of Traveling with Narcolepsy [5:30] Joyful Experiences in Liz's Travels [10:45] Confronting Travel Challenges

en

00:56:12

Navigating the World with Narcolepsy: Liz's Travel Tales

Narcolepsy Navigators Podcast ·

2024/01/30

In this engaging episode, host Kerly Bwoga chats with Liz, who shares her experiences of traveling with narcolepsy. Diagnosed at 18, Liz offers a candid look into the highs and lows of her travel adventures, providing valuable insights for anyone facing similar challenges. Chapters: Welcoming Liz and Introduction [0:00] Liz's Narcolepsy Diagnosis and Background [2:15] The Realities of Traveling with Narcolepsy [5:30] Joyful Experiences in Liz's Travels [10:45] Confronting

en

64 results

Similar Podcasts

The Daily Horoscope

The Daily Horoscope

The Michael Decon Program

Michael Decon

Kalimera Koveos

Andrea Koveos

The Documentary Podcast

BBC World Service

Smarter leben

DER SPIEGEL