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PODCAST

From The Heart: The HeartKids Podcast

Join us as we explore stories of Australians impacted by childhood-onset heart disease (CoHD) - including congenital heart disease.We"ll tackle the big issues - what it"s like receiving a new diagnosis, preparing for open-heart surgery, looking after your mental health, and much more. The show features cardiologists and experts sharing their knowledge about the topics you want to know more about. This show is for anyone impacted by CoHD - parents, carers, family members, friends, and those of us

health & fitness parenting

All Episodes

38:31

Amber Adamson - Ask a nurse anything!

From The Heart: The HeartKids Podcast ·

2024/03/21

Welcome to a very special episode of the HeartKids From The Heart. n this episode Rachael chats with Amber Adamson, a dedicated Clinical Nurse Consultant at Prince Charles Hospital, who specialises in Adult Congenital Heart Disease. Before the episode was recorded, we put out a call on social media for young people and adults to submit questions to be answered on air, and you responded with thoughtful topics and queries about navigating life and healthcare with a heart condition. So, in this episode

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26:07

My heart kid dad journey: From childhood to adulthood...

From The Heart: The HeartKids Podcast ·

2024/03/02

In this episode of "From the Heart," join our host, Sami, for a conversation with Matt Tognini. Matt is the father of a heart kid, Alessandra, who was born with a complex congenital heart condition.Sami and Matt chat about the impacts of flying across the country for heart surgery, the parent perspective of the process of transition from paediatric care to adult care, and supporting his heart kid adult as she prepares for upcoming surgery.HEARTKIDSFrom The Heart is brought to you by

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39:52

Missing School, and the impact of critical health on...

From The Heart: The HeartKids Podcast ·

2024/02/17

In this episode of "From the Heart," join our host, Sami, for a conversation with Missing School CEO Megan Gilmour.Sami and Megan chat about the impact of periods of absence from school, for those with critical health concerns. Megan takes us through initiatives that Missing School can put in place, or connections to additional supports, that assist kids who are experiencing loneliness, and gaps in learning while away from the classroom.HEARTKIDSFrom The Heart is brought to you by

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22:41

What is Childhood-onset Heart Disease? HeartKids CEO...

From The Heart: The HeartKids Podcast ·

2024/02/03

In this episode of "From the Heart," join our host, Sami, for a conversation with HeartKids CEO Lesley Jordan.Sami and Lesley chat about congenital heart disease, as well as the term Childhood-onset Heart Disease (CoHD) and what this means. Lesley gives us a quick catch-up on all things CoHD for new listeners, and takes us through some exciting upcoming events.Be sure to stick around and hear the Love Letters to the CoHD Community segment, where we play your dedications, shout-outs, and

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29:53

2023 Encore #3: What is Genetic Counselling? Laura...

From The Heart: The HeartKids Podcast ·

2024/01/20

This summer (in Australia!), we're bringing you some fan favourite episodes of From the Heart Season 2, 2023! Here is Encore #3 - Genetic Counselling with Laura Yeates.Laura is a cardiac genetic counsellor and current PhD candidate with research projects focusing on inherited cardiomyopathy and arrhythmia. In this episode, Laura talks about what genetic counselling is, who can access it, and how genetic counselling is used to understand more about health conditions, and accessing the right

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25:56

2023 Encore #2: How Cardiomyopathy Impacted My...

From The Heart: The HeartKids Podcast ·

2024/01/06

This summer (in Australia!), we're bringing you some fan favourite episodes of From the Heart Season 2, 2023! Here is Encore #2 - Matt Nelson's StoryMatt has been touched by childhood heart disease (CHD) as both a husband and a father. Matt’s first wife Tina passed away in 2013 due to complications from hypertrophic cardiomyopathy. Two of Matt’s sons also live with this condition. In this episode Matt talks about the complexity of navigating diagnoses, bereavement, and the strength of his

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31:10

2023 Encore #1: Growing Up With A Heart Condition......

From The Heart: The HeartKids Podcast ·

2023/12/23

This summer (in Australia!), we're bringing you some fan favourite episodes of From the Heart Season 2, 2023! Here is Encore #1 - Eve's StoryEve is a 23-year-old from Melbourne who lives with a congenital heart condition. Eve is a keen skier, ice hockey player and cold water swimmer! In this episode, Eve talks about how having a heart condition has impacted her body image and relationship with her body, her journey to becoming more independent with her health care, and the importance of

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12:11

Life, footy and supporting the HeartKids community...

From The Heart: The HeartKids Podcast ·

2023/12/09

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29:05

High school and life beyond as a HeartKid - Monica's...

From The Heart: The HeartKids Podcast ·

2023/11/25

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28:25

Navigating the financial aspects of Childhood Heart...

From The Heart: The HeartKids Podcast ·

2023/11/11

In this episode of From the Heart, we're joined by Elle Pendrick, a HeartKid herself and member of our HeartKids Board. Elle is also the founder of Adulting Well - on a mission to empower and educate people with chronic illnesses. In this episode Elle discusses navigating the financial aspects of living with, or caring for someone, with a childhood heart condition.For those new to From the Heart we highly recommend you check out an earlier interview we conducted with Elle on preparing for Open

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31:38

My Adult Congenital Heart Disease Diagnosis Journey:...

From The Heart: The HeartKids Podcast ·

2023/10/28

In this episode of From the Heart, we're joined by Tess Waterhouse who shares her remarkable journey of receiving a diagnosis of Congenital Heart Disease (CHD) at age 23. Tess shares her experience with open-heart surgery for her atrial septal defect (ASD) and reflects on her recovery process, coping strategies, and the crucial support networks that helped her. She offers valuable insights on self-advocacy and a message of hope and guidance for others facing a similar diagnosis. HEARTKIDSFrom

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33:56

Deadly Heart Trek, and Rheumatic Heart Disease: Dr...

From The Heart: The HeartKids Podcast ·

2023/10/14

This episode, Sami chats to Dr Gavin Wheaton about Rheumatic Heart Disease, and the Deadly Heart Trek.Dr Wheaton is a paediatric cardiologist at Adelaide’s Women and Children’s Hospital, and part of the Deadly Heart Trek.Deadly Heart Trek is a group of experienced doctors, local health workers and aboriginal leaders visiting communities across Australia to diagnose, treat and help prevent RHD, while learning and responding to the needs of communities.HEARTKIDSFrom The Heart is brought to you by

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35:13

CHD Community and Me: Ellen Mitchell's Story

From The Heart: The HeartKids Podcast ·

2023/09/30

This episode, Sami chats to Ellen Mitchell about the impact of becoming a Heart Mum, and how she gives back to the CHD community.Ellen is the Regional Community Coordinator for HeartKids in South Australia. Through her work, Ellen attends regional cardiac clinics, assists in facilitating community events, connecting peers across South Australia, and supporting the community in innovative ways.HEARTKIDSFrom The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on

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25:30

Exercise Physiology and CHD - Fitness for Life: Dr...

From The Heart: The HeartKids Podcast ·

2023/09/16

This episode, Sami chats to Dr Derek Tran, about exercise physiology, and supporting fitness for those with Congenital or Childhood-Onset Heart Disease (CHD)Dr Tran is a lecturer at the University of Sydney School of Medicine and Senior Exercise Physiologist at the Department of Cardiology, Royal Prince Alfred Hospital. Derek is also the co-coordinator of the world’s largest, and most inclusive CHD exercise clinical trials, called CH-FIT – striving to optimise exercise prescription and delivery for

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22:20

Empowering Health: A Conversation with RN Jayhrani...

From The Heart: The HeartKids Podcast ·

2023/09/02

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20:51

From Heart Transplant to Wheelchair Sport: Ahmad's...

From The Heart: The HeartKids Podcast ·

2023/08/19

In this episode, Rachael chats with Ahmad, a remarkable 17-year-old who faced a life-saving heart transplant during the pandemic. His journey is a testament to unwavering resilience, overcoming challenges which included a leg amputation in his journey with CHD. Get ready to be inspired by Ahmad's indomitable spirit and unwavering determination to embrace all that life has to offer.Content note: The content touches on medical procedures and challenges faced. If you or someone you know may find

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27:47

Cardiac Surgery Care: May Chan and Bambang Kurnia

From The Heart: The HeartKids Podcast ·

2023/08/05

In this episode, Rachael interviews May Chan and Bambang Kurnia, from the Royal Children's Hospital in Melbourne. May is an experienced Clinical Nurse Consultant in Cardiac Surgery, with a tenure at RCH since 1985. Her primary role involves managing and coordinating teams for cardiac surgeries, ensuring the highest standard of care for patients and their families. Joining May is her colleague Bambang Kurnia, an Associate Unit Manager at RCH. Bambang works closely with May in the cardiac theatre

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33:02

HeartKid Sibling and Health Care Advocate: Syeda's Story

From The Heart: The HeartKids Podcast ·

2023/07/22

In this episode of From the Heart, Rachael Knowles speaks with Syeda Sultana a devoted sibling and steadfast advocate for her brother who sadly passed away in 2022. A passionate advocate for equitable healthcare, Syeda is now an aspiring medical student with a keen interest in congenital heart defects, hoping to one day to make a difference in the field of paediatric cardiology.Content note: This episode of From the Heart contains discussions of loss and grief related to a congenital heart defect

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26:24

1800 Helpline: How Can I Be the Support You Need? ......

From The Heart: The HeartKids Podcast ·

2023/07/08

Mel is a project coordinator at HeartKids, as part of the National Action Plan, implemented to reduce the impact of childhood heart disease in Australia and achieve the goal that people with childhood-onset heart disease live longer, healthier and more productive lives. In this episode, Mel chats about the projects she runs at HeartKids, focusing on increasing support for families online, and over the phone.HEARTKIDS From The Heart is brought to you by HeartKids, the only national not-for-profit

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42:50

Paediatric CHD Surgery: Dr Prem Venugopal

From The Heart: The HeartKids Podcast ·

2023/06/24

Dr Prem is cardiothoracic surgeon based in Queensland, at Queensland Children’s Hospital. He performs lifesaving surgeries on children with CHD, and is involved in cardiac initiatives across the state and overseas. In this episode, Prem talks about CHD surgery, the close-knit team of professionals he works alongside, and his everlasting bond with each of the children he operates on.CONTENT WARNINGThis episode contains information about surgery. Please listen in a safe space and remember you can

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