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PODCAST

AliveandKick"n the podcast

The movers and shakers in the lynch syndrome field. Join patient advocates, physicians, geneticists, genetic counselors and others in the space, as we go deep into what it"s like to LIVE in a world with Lynch Syndrome genetic mutations.

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All Episodes

41:08

AliveAndKickn Podcast - Dr Harsha Vyas

AliveandKick"n the podcast ·

2023/06/01

I talk community oncology with Dr Harsha Vyas, Oncologist at Cancer Center of Middle Georgia. Dr Vyas is also Advocacy Chair for the Community Oncology Alliance (COA). Belk, Kroger, and WalMart are the centers of the area, so people will come to Dr Vyas and make a day of it while there. Truly appreciate Dr Vyas' perspective on what he sees, as well as his own "why" for becoming an oncologist. It's important to have the family involved if possible to ensure a higher success rate, which is the art

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43:14

AliveAndKickn Podcast - Brian Kelly

AliveandKick"n the podcast ·

2023/05/26

I had a conversation with Brian Kelly, life sciences and diagnostics professional. Brian's career is expansive but working with pharma on advanced diagnostics has been his passion for the last dozen years. Precision therapy is not a simple triangle. A lot of parties are involved. Molecular classification of disease has evolved. MSI, BRAF, KRAS has crossed the silicon valley chasm from early adoptors to main street. The FDA and the other global approval bodies deserve a lot of credit for upping

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43:50

AliveAndKickn Podcast - Melissa Carr

AliveandKick"n the podcast ·

2023/05/17

I talk with Melissa Carr where we talk Lynch Syndrome, meteorology, and how she has dedicated herself to a number of public health initiatives in Wisconsin. We also talk soccer and the Forward Madison (fla)mingos, her team Wildflowers team participation in the Badger Challenge bike ride/run/walk. Melissa is also co-founder of Soles United, a collective of orgs that bring inclusivity to the forefront. Melissa is also Wisconsin chapter lead for Mom's Demand Action trying to protect people from

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37:19

AliveAndKickn Podcast - Angela (Shutterdoodles)

AliveandKick"n the podcast ·

2023/05/06

I sit down with Angela, psychotherapist in the UK and we talk Lynch Syndrome. Angela went through her cancer journey during Covid, which has its own challenges. We talk about coping with the mental and emotional strain and putting things into place after a medical trauma. We talk toxic positivity and embracing that it's difficult and you're allowed to be human in this space. You'll have to listen to know where shutterdoodles came from.

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59:22

AliveAndKickn Podcast - Dr Marilena Mela

AliveandKick"n the podcast ·

2023/04/16

I talk with Dr Marilena Mela and discuss her scientific evolution to where she is now. Thankfully Dr Mela was exposed to Lynch Syndrome so much that she has focused on molecular genetics. Dr Mela is PhD trained and is taking her board exams in August. We also talk about her role at the New York Genome Center, and her role as a Junior Board Member at the Cancer Genomics Consortium. We talk MSI and TMB, tumor normal sequencing and RNA.

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41:28

AliveAndKickn Podcast - Shweta Walia

AliveandKick"n the podcast ·

2023/04/07

I talk with Shweta Walia, Lynch Syndrome patient from northern India. Shweta has a significant history of cancer in her family, but she is the first to look into genetic testing and do something about it, both for herself and her daughter. I truly admire Shweta for her persistence and her willingness to stand up for her family and herself.

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51:40

AliveAndKickn Podcast - Dave Helm

AliveandKick"n the podcast ·

2023/04/01

I talk the colonoscopy business with Dave Helm for colon cancer awareness month. We talk about technology upgrades, ASCs, hospitals and more. I shared the story of how my brother and I scheduled our colonoscopies on the same day without telling each other. We also discussed how sharing stories can make a difference in ways and with people that would surprise you. We also discussed Dave and Courtney's SpinTowel business called Drip Accessory, how it got started, and its success, which reminds me

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24:44

AliveAndKickn Podcast - Dr Dana Chase

AliveandKick"n the podcast ·

2023/03/25

I sit down with Dr Dana Chase to discuss the role of the Gynecologic Oncologist. Gyn Oncs as they're called frequently, is a labor of love as there's tremendous amount of time and effort put into initially attaining this unique role in the care of women, including those with Lynch Syndrome. We talk ovarian cancer, endometrial cancer, fallopian tubes and more.

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54:07

AliveAndKickn Podcast - Robert Rikard

AliveandKick"n the podcast ·

2023/03/16

Timely conversation with Robert Rikard, Lynch Syndrome survivor and attorney from South Carolina. We talk about survivorship and being positive yet informative. Robert has some real good friends in the right places, as he's still with us after having kidney cancer, as well as colon cancer. Robert and his wife instituted the no "BS" rule in their lives, focusing on the positive, entering mindfulness with meditation. Find some positivity and move forward every day. We also talk social media

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35:34

AliveAndKickn Podcast - Hope Lutz Firsel

AliveandKick"n the podcast ·

2023/03/04

I sit down with Hope as she shares her Lynch Syndrome story of developing colon cancer in her mid-30s. It goes to show that you should listen to your parents when they're sharing articles with you. It also shows that a good persistent clinician can be a lifesaver. Hope feels so strongly after her experiences that she is giving back to other women who could benefit from her knowledge. Hope considered herself as a fighter when she was in the thick of treatment, but as a thriver now. Also a

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33:59

AliveAndKickn Podcast - Carrie Vee

AliveandKick"n the podcast ·

2023/02/06

I sit down with Carrie Vee, speaker and author and of course Lynch Syndrome patient. Carrie's history with cancer and her family's history is extensive. She tells her story and is using her voice to make a difference in this hereditary syndrome that is so prevalent but still unknown. Choices have consequences and her desire is to help people choose wisely. Thankfully ice cream fits in the choose wisely category.

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53:33

AliveAndKickn Podcast - Michaela Marchi

AliveandKick"n the podcast ·

2022/12/31

Michaela Marchi shares her Lynch Syndrome story. I truly appreciate her ethnic background, how she approaches life. Michaela uses her art and her song to bring people to a place of cosmic and spiritual beauty. Through all of the cancer and death, she can find peace in her world. Michaela so far is the only guest to quote Dante. Michaela gives her account of how advocacy literally saved her life, helping her to find a clinical trial that cured her. Her spirit animal, the turtle continues to

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48:30

AliveAndKickn Podcast - Malvina Kefalas

AliveandKick"n the podcast ·

2022/11/19

I sit down with Malvina Kefalas, who I first met at the Get Your Rear in Gear New York 5k, and whose mother passed away of colon cancer. Actually I was lying down as I had a bad cold and I sounded. like I was growling. Malvina opens up about how she turned her grief into a mission to make a difference in this space. Malvina talks about how she inherited a CHEK2 mutation as well as a APC VUS from her mother, and is now routinely screened and can be proactive in her care. Malvina has recently

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44:37

AliveAndKickn Podcast - Dr Jeffrey Weitzel

AliveandKick"n the podcast ·

2022/11/10

Talking everything Lynch Syndrome with Dr Jeffrey Weitzel, board certified Medical Oncologist and Clinical Geneticist who has been a pioneer in the field of hereditary cancer. Dr Weitzel is Vice President Medical Affairs Hereditary Cancer at Natera. Truly engaging conversation with one of the names you think of when you think about hereditary cancer.

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31:12

AliveAndKickn Podcast - Isaac Ro

AliveandKick"n the podcast ·

2022/10/30

As the summer was ending,I sat down with Isaac Ro, Life Sciences Executive, who I originally met at the Blue Genes Bash several years ago. Isaac left Goldman Sachs for Thrive Early Detection, where Bert Vogelstein and the group were working on liquid biopsy. After Thrive was acquired by Exact Sciences, Isaac left and became CFO at Sema4, which was a company where I worked as well. After taking Sema4 public, Haystack oncology is his newest venture which works on MRD in cancer. We talk data, the

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31:38

AliveAndKickn Podcast - Travis Mayberry

AliveandKick"n the podcast ·

2022/10/20

I sit down with Travis Mayberry, President of Mayberry Memorial. Travis is a MSH2 lynch syndrome previvor. Before his father passed away in 2011, he was an avid BBQ cookoff competitor and for years after, the nonprofit foundation did BBQs as fundraisers. Very similar story to AliveAndKickn, Mayberry has evolved to be a specifically lynch syndrome focused foundation. Mayberry's Project Conquer enables high risk candidates to get scholarships for genetic counseling and genetic testing.

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43:45

AliveAndKickn Podcast - Dr. Annelie Vogt von Heselholt

AliveandKick"n the podcast ·

2022/10/01

I sit down with Dr Annelie Vogt von Heselholt as we talk about green bananas, cancer prevention, diet, Huntsville Alabama, Lynch Syndrome and how the two of us are entwined in all of this.

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37:07

AliveAndKickn Podcast - Robin Beth Dubin

AliveandKick"n the podcast ·

2022/09/29

I talk with Robin about life with Lynch Syndrome, why we started AliveAndKickn, how it is run and by whom, and what life is like to be caregiver to someone with Lynch as well as to kids as previvors. Robin has the ability to compartmentalize the programming of running the foundation versus the understanding that living with Lynch Syndrome has a number of emotional and physical challenges.

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33:38

AliveAndKickn Podcast - Eve Brue

AliveandKick"n the podcast ·

2022/07/02

I sit down with Eve Breu as we discuss her lynch syndrome story. Since the podcast was renewed for another season, Eve was willing to come on and talk about her VUS. Eve is a story of persistence in the face of uncertainty, showing that being your own advocate is the best advice. Eve has also participated in the Connect My Variant program. According to Eve, there are a number of folks with the same variant in the same gene but it's still not classified as pathogenic. We also discuss

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41:35

AliveAndKickn Podcast - Kimmy Niemi

AliveandKick"n the podcast ·

2022/06/17

I talk with Kimmy Niemi, Boston based actor and voiceover actor and lynch syndrome cancer survivor. Unlike me, Kimmy didn't do her own narration under anesthesia during her colonoscopy. Since upper endoscopy, I've given up the narration for full anesthesia. Kimmy talks about breaking into show tunes during her MOHS surgery with her physician during her skin carcinoma removal. Kimmy went from musical theatre to music and songwriting, and learning guitar, to acting in TV and movies and narration.

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