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PODCAST

Celiac Straight Talk

Let"s get real about living with celiac disease. The ups, the downs and the temptations. Hear real stories from real people with the autoimmune disease.

health & fitness nutrition

All Episodes

41:33

40: Navigating Friendships with Celiac Disease

Celiac Straight Talk ·

2022/01/04

When it comes to getting a new diagnosis, friends can be your greatest ally or a crushing loss if they don’t understand your new needs. Our Reach Beyond Celiac Ambassadors discuss the ins and outs of how celiac disease can affect a friendship, old or new. Note: at timestamps 17:14 and 18:33, the term “cross-contamination” should be “cross-contact.”

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25:42

39: Jennifer Sealey-Voyksner, Co-Founder of ImmunogenX

Celiac Straight Talk ·

2021/12/15

In this episode we sit down with Jennifer Sealey-Voyksner, co-founder and chief scientific officer at ImmunogenX, a biotech company developing latiglutenase, a potential treatment for celiac disease. Jennifer, who has celiac disease herself, discusses her journey to diagnosis, why a treatment beyond the diet is important, and how latiglutenase works. Today's episode is brought to you by Solutions for Celiac. Join their clinical trial currently researching a study medication to treat symptoms

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38:20

38: Parenting and Celiac Disease

Celiac Straight Talk ·

2021/12/08

Even without an autoimmune disease, parenting can be tough. But if you’re a parent of a child with a food restriction like the gluten-free diet, this episode is for you. It features our Reach Beyond Celiac Ambassadors explaining their approach to raising children with celiac disease, including planning family vacations, becoming an advocate for their kid’s health, and how to get your little one the care and food they need, whether it’s at home, at school, or at a friend’s house.

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01:01:53

37: Biggest Changes in the Celiac Disease World, ft....

Celiac Straight Talk ·

2021/12/01

Listen in to this thoughtful conversation between Amy Ratner of Beyond Celiac and Erica Dermer of Celiac and the Beast on some of the biggest changes in the celiac disease world since the 1990s, when Amy’s daughter was diagnosed. The pair also speculate about what the next decade or two might hold for our community. Today's episode is brought to you by Solutions for Celiac. Join their clinical trial currently researching a study medication to treat symptoms commonly suffered by celiac disease

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58:38

36: Child Care with CHOP Celiac Center

Celiac Straight Talk ·

2021/11/16

In this episode we sit down with Lisa Fahey, MD and Betsy Turner, PhD from the Children's Hospital of Philadelphia (CHOP) to discuss pediatric care of celiac disease. The conversation covers topics like introducing gluten to babies at risk, helping children cope with their diagnosis, transitioning to adult care and so much more! Today's episode is brought to you by Solutions for Celiac. Join their clinical trial currently researching a study medication to treat symptoms commonly suffered by celiac

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27:35

35: Family Matters, part 2

Celiac Straight Talk ·

2021/11/03

In this episode our Reach Beyond Celiac Ambassadors continue their conversation on how a celiac disease diagnosis can affect family relationships and give tips for eating together when some family members just don’t seem to understand your diagnosis. Today's episode is brought to you by Solutions for Celiac. Join their clinical trial currently researching a study medication to treat symptoms commonly suffered by celiac disease patients who are still experiencing symptoms while on a gluten-free diet

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29:06

34: Family Matters

Celiac Straight Talk ·

2021/09/30

Our Reach Beyond Celiac Ambassadors discuss how a celiac disease diagnosis can affect family relationships and how to navigate eating safely when some family members just don’t seem to understand your diagnosis.

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21:39

33: "Can You Brush Your Teeth?" Dating with Celiac...

Celiac Straight Talk ·

2021/08/18

In this episode, Reach Beyond Celiac Ambassadors Bill, Lauren, Hayden and Clayton continue to discuss finding love when you have celiac disease. This interview was conducted remotely and followed all COVID-19 protocols, as have all our podcast episodes filmed since the pandemic began.

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29:03

32: "Can You Brush Your Teeth?" Dating with Celiac...

Celiac Straight Talk ·

2021/07/26

In the upcoming weeks, a small group of Reach Beyond Celiac Ambassadors will sit down and talk about living with celiac disease. In this episode, Bill, Lauren, Hayden and Clayton discuss finding love when you have celiac disease. This interview was conducted remotely and followed all COVID-19 protocols, as have all our podcast episodes filmed since the pandemic began.

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28:20

31: Kari Wells of Bravo's Married to Medicine

Celiac Straight Talk ·

2021/06/23

In this edition, Beyond Celiac CEO Alice Bast sits down with Kari Wells, producer and former cast member on the Bravo show Married to Medicine. They dive into Kari’s celiac disease journey, discuss the benefits of travel, offer advice for the newly diagnosed, and reflect on what has improved in our community over the last 20 years. Note: This episode and all episodes released in 2021 have been filmed over video chat in accordance with COVID-19 social distancing protocols.

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32:42

30: Finding Strength after Celiac Disease—An...

Celiac Straight Talk ·

2021/05/25

In this episode of the Celiac Straight Talk podcast, Beyond Celiac CEO Alice Bast sits down with Miss Kansas USA Gracie Hunt as she recounts her transition from competitive athletics to the world of pageantry, and how her celiac disease journey has influenced her decisions along the way. This introspective conversation on unwanted, unexpected change and the stigma surrounding celiac disease has insights for anyone struggling to come to terms with a life that they could never have predicted.

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19:35

29: The Beyond Celiac Science Plan

Celiac Straight Talk ·

2021/05/12

Beyond Celiac CEO Alice Bast and Chief Scientist and Strategy Officer Dr. Salvatore Alesci sit down with News Reporter Diana Rocco to discuss the Beyond Celiac strategy for finding treatments toward a cure for celiac disease by 2030. To Beyond Celiac, a cure means those with celiac disease can live healthier lives and eat without fear. Our mission has evolved to one of advancing the science of celiac disease because we firmly believe that with a strategic approach to funding-focused research,

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20:54

28: Jessica Kapusta and her Superb Sauces

Celiac Straight Talk ·

2021/04/15

Welcome to season three of the Beyond Celiac podcast, Celiac Straight Talk! We're excited to bring you more stories, research, and news about celiac disease. Our first guest is Jessica Kapusta, an entrepreneur who's putting her experience with celiac disease to good use by developing delicious gluten-free sauces. COVID-19 put a hold on manufacturing, but you can get a sneak peek at the taste with her new cookbook, John + Jane's Sauces (excerpt below). What led her to start her own food business

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26:50

27: The Gaer Family's Story

Celiac Straight Talk ·

2021/01/11

The first podcast of 2021! In this episode director of communications, Claire Baker spoke with Courtney and Mitchell Gaer about celiac disease in their family. Courtney speaks on her experiences as a mother caring for a child with celiac disease and the journey of how Mitchell was finally diagnosed. Mitchell speaks about what it's like being diagnosed and living with celiac disease as a young man. He is now in college and offers great advice on successfully living gluten-free as a college student

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44:42

26: Dr. Kari Nadeau's New Book!

Celiac Straight Talk ·

2020/10/04

We discussed Dr. Nadeau’s new book, The End of Food Allergy which is out now. Dr. Nadeau, who is on the Beyond Celiac Scientific Advisory Council answered viewer questions from the live stream and held a great conversation about different food allergies and diseases including...you guessed it! Celiac Disease. Download the Celiac Straight Talk Podcast on Itunes, Stitcher and Google Play Now!

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23:05

25: Gluten-Free Travel With Suzanne

Celiac Straight Talk ·

2020/09/27

The Gluten Free Destinations blog has become popular for those traveling on a strict gluten-free diet. Suzanne, the owner of the blog recently sat down with Beyond Celiac to share her experiences eating gluten-free around the world. She shares her own celiac disease story, tips and tricks for traveling on a gluten-free diet and more. You can find her Gluten Free Destinations blog at https://glutenfreedestinations.com/ Thanks to Suzanne for coming on! We enjoyed the conversation and hope you do as

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51:15

24: Emma is back!

Celiac Straight Talk ·

2020/09/04

Emma Leger was a part of Beyond Celiac's very first summer intern council (SIC) for college students. She was a big hit when she shared her story on Instagram as part of the SIC Instagram takeover, so we're thrilled that her and her mom came back to share their story on the podcast. We covered what its like being a parent of a child with celiac disease, what its like growing up with celiac disease, challenges faced while attending college on a strict gluten-free diet, Emma's experience working with

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39:34

23: Registered Dietitian, Julie Kennedy

Celiac Straight Talk ·

2020/08/28

In episode 23 of the Celiac Straight Talk podcast we welcomed Julie Kennedy, registered dietitian and owner of Julie Kennedy Nutrition. They discuss Julie's journey with celiac disease, her work as a registered dietitian and her connection to Beyond Celiac. Julie can be found on her website Juliekennedynutrition.com and on social media @Juliekennedynutrition. We really enjoyed this one and hope you do too! For all of your celiac related information please visit BeyondCeliac.org.

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17:06

22: Step Beyond Celiac 5k

Celiac Straight Talk ·

2020/08/07

Beyond Celiac is taking our entire 2020 Step Beyond Celiac 5K series to the virtual streets with a multi-city tour for individuals and teams across the country to support celiac disease research efforts. Five event dates are planned between August and October! Join us for one or many with our 3 and 5 city tour options. The Step Beyond Celiac 5K is a family-friendly event and fundraiser for Beyond Celiac. We encourage all participants to raise funds by running or walking 3.1 miles either in the event

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27:30

21: Michael Savett from the Gluten Free Philly Blog

Celiac Straight Talk ·

2020/07/31

We talked with Michael Savett of the popular Gluten Free Philly blog. Beyond Celiac Director of Communications Claire Baker talks to Michael Savett of Gluten Free Philly about gluten-free life, his son's journey growing up with celiac disease and getting gluten-free goodies at Philly stadiums.

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