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PODCAST

Arthritis Life

Arthritis life features real patient stories, expert advice, life hacks and more to help you feel more empowered and less alone. Host Cheryl Crow shares her insights from both as a rheumatoid arthritis patient for over twenty years and as an occupational therapist, a health profession that focuses on empowering people with health challenges to function in their daily lives. This podcast also includes reflections on how you can have the best quality of life possible despite chronic pain, anxiety and

health & fitness medicine

All Episodes

00:59:40

Research, Resilience, and JIA: Dr. Kaleb’s Journey

Arthritis Life ·

2024/09/13

Through his experiences, Dr. Kaleb offers practical advice on navigating life with rheumatoid arthritis, focusing on self-management strategies like getting enough rest and using ergonomic tools.He and Cheryl also dive into pain management, discussing evolving research on the potential benefits of cannabis. Dr. Kaleb’s personal insights into balancing work and life offer hope for finding purpose and joy despite the challenges of living with arthritis. Together, they emphasize the importance of

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01:23:33

“Healing is a Messy Process:” Sonia’s RA and Graves’...

Arthritis Life ·

2024/09/01

Sonia talks about how daily gratitude, yoga, medications, and the support of groups like Rheum to THRIVE have helped her pursue joy amidst the challenges of rheumatoid arthritis (RA), Graves’ disease and other chronic conditions. Sonia shares how the Rheum to THRIVE support group provided her with the courage to be vulnerable and set boundaries. Cheryl and Sonia reflect on how these groups become sacred spaces where individuals can fully engage with their emotions, be witnessed without judgment, and

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00:51:03

What’s it Like to Truly Partner with Your Doctor? The...

Arthritis Life ·

2024/08/24

In this episode, Cheryl Crow and Dr. Liana Fraenkel dive into the crucial concept of "Shared Decision Making" (SDM) in rheumatoid arthritis care. SDM is a collaborative approach where patients and doctors work together to develop a treatment plan. It empowers patients to express their preferences and values, while doctors listen actively and consider these when recommending treatments.The discussion also touches on the role of education in SDM, especially when it comes to understanding the pros and

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01:30:25

“It’s Like Managing a Circus”: How Maggie Thrives...

Arthritis Life ·

2024/08/19

In this episode, Maggie shares valuable insights from life with axial spondyloarthritis, sjogren’s, osteoarthritis, hypermobility, migraine, and POTS. She also shares her treatment journey which she divides into a “discovery phase, treatment phase, and tinkering phase.”Maggie and Cheryl discuss practical advice for managing multiple chronic illnesses, including the importance of social support and finding joy in daily experiences. They also discuss their best coping skills for times when managing

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00:41:39

It’s not Just Joint Pain and 8 things Everyone who...

Arthritis Life ·

2024/08/09

Back in January 2021, I shared the eight most important things that loved ones should know, so they can best support people with autoimmune arthritis. This episode includes messages and insights from twenty-eight other patients!Today, I’m re-releasing this episode with some additional insights I’ve gained after leading patient support and self-management groups over the last 4 years. Did I miss anything? Let me know in the comments!Episode at a glance:One – We want you to learn what the disease is

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00:44:09

Elevating the Patient Voice in Rheumatology Research:...

Arthritis Life ·

2024/07/21

Cheryl and Jen share exciting trends in rheumatology research that will help improve quality of life and develop better targeted treatments for rheumatic disease. They also discuss the importance of involving patients at all levels of research, and shared simple ways that listeners can get involved. Additionally, Cheryl and Jen reflected on the importance of social support in their personal journeys living with rheumatoid arthritis, and the importance of support groups in navigating life with

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01:01:04

Tackling Rheumatoid Arthritis with Obstinance and...

Arthritis Life ·

2024/07/12

In this episode, Stasha shares her diagnosis journey for rheumatoid arthritis and reflects on what it was like being a parent to small children while learning how to adapt to rheumatoid arthritis. Stasha also shares how her quest to merge science-based and natural methods led her to starting a blog. Cheryl and Stasha reflect on the role “obstinance” or stubbornness has played, and reflect on the therapeutic benefits of humor.They also discuss how they view assistive devices in a positive light, and

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00:55:10

“Joined at the Joints:” How Marissa Became a YA...

Arthritis Life ·

2024/07/05

Have you ever read a love story that features someone with chronic illness? In this episode, author Marissa Eller shares how living with RA led her to write her debut young adult (YA) romantic comedy book "Joined at the Joints." She and Cheryl discuss the importance of authentic representation in books and media, particularly for those with invisible disabilities.Marissa also shares what it’s like to be an author with RA, including strategies to accommodate her needs and how writing can be a

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01:25:35

“Bald Girl Big World:” Colleen’s Alopecia Story

Arthritis Life ·

2024/06/17

What’s it like to suddenly go bald at age 22? In this episode, Cheryl interviews Colleen Kydd, who speaks candidly about living with autoimmune alopecia. She shares how she went from covering her baldness with wigs to confidently, unapologetically embracing her identity as a “bald girl in a big world!” Colleen shares how she managed her alopecia in the corporate world, dating life, world travels and new role as an entrepreneur.Throughout the episode, Cheryl and Colleen discuss acceptance, self

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01:10:41

Comedy, Chronic Illness, and Coping: Katie’s...

Arthritis Life ·

2024/06/04

In this episode, Katie reflects on the crucial role that parental and patient advocacy played in her her journey to a diagnosis of juvenile idiopathic arthritis (JIA). She also shares her college experience, and discusses the roles that comedy and humor have played in helping her cope. Cheryl and Katie express the importance of accepting the need for assistive devices, setting boundaries, believing in oneself, prioritizing needs, and having a support system to thrive with chronic illness.Medical

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00:52:22

Creating a Better Future for Autoimmune Care With...

Arthritis Life ·

2024/05/21

Cheryl, Dr. Yu and Dr. Feldman share their patient experiences and exploring problems with current healthcare systems. They then share how these problems led them to form creative patient programs and services. Cheryl shares the origin story for her Rheum to THRIVE program, and Dr. Yu and Dr. Feldman share how they created Rheumission, a virtual first integrative Rheumatology and Lifestyle clinic for people living with autoimmune disease. Overall, our passion for reimagining autoimmune care shines

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01:20:17

What’s it like to run Half Marathons with Autoimmune...

Arthritis Life ·

2024/05/13

After facing skepticism from some medical professionals who doubted her ability to run, Gretchen defied expectations and has completed over 100 half marathons, all while raising money and awareness for autoimmune causes. She and Cheryl also discuss the importance of self compassion in their journeys with chronic autoimmune disease. Gretchen shares why she resonates with progress over perfection and encourages others to be gentle with themselves while navigating life with autoimmune

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00:59:45

How Mindfulness Helped Paulina Reconnect with Her...

Arthritis Life ·

2024/05/02

On episode 125, Paulina Buryzynska shares how self-compassion and mindfulness help her thrive with rheumatoid arthritis. She also highlights the importance of reconnecting with her body after experiencing a period of dissociation as a coping mechanism for pain. Cheryl and Paulina discuss the power of non-judgmental awareness and loving curiosity in navigating emotions and thoughts, as well as acceptance. They also emphasize seeking support while navigating the challenges of chronic illness

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00:53:24

What do People with Rheumatoid Arthritis Need to Know...

Arthritis Life ·

2024/04/22

Dr Dave & Dr Campbell answer Cheryl’s burning questions about long COVID, vaccine efficacy and safety for people with autoimmune conditions, and potential links between autoimmunity and long COVID. They also talk about cutting edge research and new therapies including CAR T-cell therapy.Dr. Campbell encourages participation in research studies to better understand these complex issues. Dr. Dave emphasizes the need for precision medicine approaches in treating autoimmune diseases like RA, where

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01:06:39

“Disability is not a Dirty Word:” Catherine’s Story...

Arthritis Life ·

2024/04/11

Through sharing her own story publicly, Catherine learned the importance of disability representation and advocacy for young people. She also delves into why it is crucial to include the voices of young adults in the research and advocacy process. Cheryl and Catherine explore the process of dismantling their own internalized ableism and challenging societal norms around what constitutes a "normal" life. They also challenge the idea that disability is necessarily a “bad” word. They emphasize the

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01:01:51

Overcoming Denial, Confronting Food Phobia, and...

Arthritis Life ·

2024/03/28

Trigger warning: orthorexia / eating disorders; fear of foodsIn Episode 122, Ray shares the shock and emotional turmoil he experienced upon receiving his diagnoses of rheumatoid arthritis (RA), ankylosing spondylitis (AS), and osteoarthritis (OA). He described the initial denial he felt and the process of coming to terms with his diagnoses, acknowledging the emotional toll it took on him and his family. Cheryl and Ray discuss coping strategies, the role of social media, and finding a supportive

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01:22:17

Demystifying Chronic Pain, Fibromyalgia, Rheumatic...

Arthritis Life ·

2024/03/19

Christine highlights the importance of lifestyle methods to manage chronic conditions including sleep hygiene, stress management, anti inflammatory nutrition, exercise and more. They discuss the importance of focusing on what brings joy and meaning to one's life while managing chronic illness.Overall, the conversation underscores the importance of a comprehensive approach to chronic pain management that addresses both the physical and emotional aspects of the patient's well-being.Episode at a

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01:10:55

What’s it like to be an Adult Living with Juvenile...

Arthritis Life ·

2024/03/11

Cheryl and Rebecca also share misconceptions and talk about the variability and fluctuations of symptoms, as well as reframing limitations and embracing flexibility. They explore the idea of living a "good life" with rheumatic diseases, acknowledging the challenges while emphasizing the possibility of thriving and pursuing one's dreams despite the condition.Episode at a glance:Advocacy and Awareness: Cheryl and Rebecca emphasize the importance of advocating for individuals with juvenile idiopathic

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01:15:39

Dancing Through Deformities: Christine’s Rheumatoid...

Arthritis Life ·

2024/03/05

Episode Summary****Please see the episode trigger warning below. On episode 119 of the Arthritis Life Podcast, Christine Troyano shares her journey of living, traveling the world and dancing with rheumatoid arthritis. She also opens up about pressures she experienced as a young person to treat her arthritis without medication, and then shares her experiences navigating different treatments to manage her RA over the past 32 years. Christine shares stories of her travels through South Korea and

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01:24:11

Living through Diagnostic Purgatory and Rare...

Arthritis Life ·

2024/02/25

Rosemary also shares her experience with a mystery skin rash that ended up being a rare psoriatic arthritis medication side effect: leukocytoclastic vasculitis triggered by drug-induced lupus, and an eventual diagnosis of Palisaded Neutrophilic and Granulomatous Dermatitis. Throughout the episode, Rosemary and Cheryl discuss the importance of coping skills for difficult medical experiences. They also emphasize the importance of finding the right medications, lifestyle strategies, and the role of

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198 results

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