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PODCAST

From The Heart: The HeartKids Podcast

Join us as we explore stories of Australians impacted by childhood-onset heart disease (CoHD) - including congenital heart disease.We"ll tackle the big issues - what it"s like receiving a new diagnosis, preparing for open-heart surgery, looking after your mental health, and much more. The show features cardiologists and experts sharing their knowledge about the topics you want to know more about. This show is for anyone impacted by CoHD - parents, carers, family members, friends, and those of us

health & fitness parenting

All Episodes

29:53

What is Genetic Counselling? Laura Yeates

From The Heart: The HeartKids Podcast ·

2023/06/10

Laura is a cardiac genetic counsellor and current PhD candidate with research projects focusing on inherited cardiomyopathy and arrhythmia. In this episode, Laura talks about what genetic counselling is, who can access it, and how genetic counselling is used to understand more about health conditions, and accessing the right supports around those conditions.HEARTKIDS From The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people

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37:06

Living with CHD in the '60s... Marjorie Doyle's Story

From The Heart: The HeartKids Podcast ·

2023/05/27

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37:14

Championing for Change: My Rheumatic Heart Disease...

From The Heart: The HeartKids Podcast ·

2023/05/13

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33:24

Greek Sweets and Good Will: How I Support The CHD...

From The Heart: The HeartKids Podcast ·

2023/04/29

Arthur is a dad to a daughter with CHD, and a passionate fundraiser for HeartKids through his workplace. In this episode, Arthur talks about his family’s grassroots fundraising efforts, Greek sweets, and the joy of supporting the heart kids community with scholarships via his workplace, Drake’s Supermarkets.HEARTKIDS From The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected by congenital and childhood heart

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26:55

Starting School and CHD: What Do We Need To Know?......

From The Heart: The HeartKids Podcast ·

2023/04/15

Catherine is a mother to a 13-year-old with CHD and has worked in the education system for 18 years. In this episode, Catherine talks about children with CHD entering the education system, and the preparations and supports that are beneficial in this space HEARTKIDS From The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected by congenital and childhood heart disease. For support, information or guidance on your CHD

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25:56

How Cardiomyopathy Impacted My Family... Matt...

From The Heart: The HeartKids Podcast ·

2023/04/01

Matt has been touched by CHD as both a husband and a father. Matt’s first wife Tina passed away in 2013 due to complications from hypertrophic cardiomyopathy. Two of Matt’s sons also live with this condition. In this episode Matt talks about the complexity of navigating diagnoses, bereavement, and the strength of his sons. Content WarningThis episode contains information about bereavement. Please listen in a safe space and remember you can pause if you need to. If any of the information about

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31:10

Growing Up With A Heart Condition... Eve's Story

From The Heart: The HeartKids Podcast ·

2023/03/18

Eve is a 23-year-old from Melbourne who lives with a congenital heart condition. Eve is a keen skier, ice hockey player and cold water swimmer! In this episode, Eve talks about how having a heart condition has impacted her body image and relationship with her body, her journey to becoming more independent with her health care, and the importance of support networks. LINKSJoin HeartKids' Instagram for teens and young people @youthzone_heartkids:

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24:05

HeartKids Dads: A Support Group For Fathers Of...

From The Heart: The HeartKids Podcast ·

2023/03/04

Ben Taylor runs HeartKids Dads, a national support group for fathers of children with heart conditions. In this episode he talks about his own family's journey with CHD, as well as all the different ways the HeartKids Dads group provides support to the community. The group has been running for 9.5 years and has grown from 6 members to over 250 today. LINKSJoin the HeartKids Dads group: HeartKids Dads Facebook Support GroupHEARTKIDSFrom The Heart is brought to you by HeartKids, the only national

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29:29

I Had No Idea I Was About To Become A Heart Mum......

From The Heart: The HeartKids Podcast ·

2023/02/18

At Sami's 21-week scan, she was told her unborn baby had a heart condition. In that moment, life changed forever. In this episode, Sami bravely opens up about losing parts of her identity after becoming a heart mum. She talks about what it's like entering the extreme caregiver role and the sacrifices she made as a result, like missing some of her other children's milestones, and hitting pause on her career for a time.Frank is now eight years old. Frank also has some vision impairment

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31:41

BEST OF 2022 #1: Kimberley's Story

From The Heart: The HeartKids Podcast ·

2023/02/04

Counting down our most popular episodes of 2022... #1!When your child is unwell, often it's the only thing you can focus on or think about. But what happens if you start to notice you are struggling?Kimberley opens up on the recovery she has had to navigate since bringing her daughter home from surgery. This story is about parent's mental health, self-care, and learning how to reach out for help when you need it. Kimberley also talks us through what it's like receiving a new diagnosis

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25:20

BEST OF 2022 #2: Neurodevelopment and CHD

From The Heart: The HeartKids Podcast ·

2023/01/21

Counting down our most popular episodes of 2022... #2!What is neurodevelopment?What is the connection between CHD and neurodevelopment in children?What are the early indicators that a child may be experiencing neurodevelopmental difficulties?How are neurodevelopmental issues diagnosed?What sort of treatments and therapies are available?What research is happening in this area?What is the CHD Life+ research program and how could it transform neurodevelopmental care for young cardiac patients in

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23:01

BEST OF 2022 #3: Exercise and CHD

From The Heart: The HeartKids Podcast ·

2023/01/07

Counting down the most popular episodes of 2022... #3!Should I exercise if I have a heart condition?The answer is, almost everyone with a congenital or childhood heart condition can benefit from exercise. When done safely, regular exercise is one of the best things you can do for your heart and overall health. Cardiologist Rachael Cordina joins us to bust some exercise and CHD myths and help all listeners learn more about exercise.HEARTKIDSFrom The Heart is brought to you by HeartKids, the only

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18:35

We Know How To Prevent It, So Why Does This Type Of...

From The Heart: The HeartKids Podcast ·

2022/12/17

Dr Ben Reeves is a paediatric cardiologist in North Queensland. He's one of only three paediatric cardiologists you'll find north of Brisbane. Between 30-40% of Dr Reeves workload is related to rheumatic heart disease (RHD), a type of childhood heart disease. RHD was common in Australia's big cities in the 1950s and 1960s. Since then it's largely been eradicated in white populations in our major cities. However, rates of RHD persist in Aboriginal and Torres Strait Islander,

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29:12

Can CHD Impact Mental Health? Dr Liza Morton

From The Heart: The HeartKids Podcast ·

2022/12/03

Liza is a psychologist. She also lives with a congenital heart condition. In this episode, we talk all about the psychological needs and challenges that come along with living with a childhood heart condition. Dr Morton also shares psychological coping strategies for people living with CHD and talks about her upcoming book 'Healing Hearts and Minds: A Holistic Approach to Coping Well With Congenital Heart Disease'. LINKSPre-order Dr Liza Morton's book:

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23:52

What Happens When I Move To The Adult Hospital?...

From The Heart: The HeartKids Podcast ·

2022/11/19

Evelyn has helped thousands of young people transition from the paediatric to adult health care system. Out of the Royal Children's Hospital in Melbourne, Evelyn runs one of the most successful transition programs in the country. She answers all our health care transition questions in this episode. What makes a positive transition experience? Why is a positive health care transition important? What can teens do to promote a positive transition? What can parents do? What are some of the barriers

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45:33

How HeartKids Teen Camps Changed My Life... Claire's...

From The Heart: The HeartKids Podcast ·

2022/11/05

Growing up in regional NSW, Claire was the only heart kid in town. Attending HeartKids Teen Camp and meeting other young people was a gamechanger for her. In this episode, Claire talks about her life growing up with a heart condition and shares some messages for teens and young adults living with CHD. LINKSLearn more about HeartKids Teen Camps: https://www.heartkids.org.au/page/169/teen-campsHEARTKIDSFrom The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on

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36:46

Australian National Standards of Care for...

From The Heart: The HeartKids Podcast ·

2022/10/22

The Standards of Care for the Childhood-onset Heart Disease (CoHD) community are over 10 years in the making. What are the CoHD Standards? They outline the healthcare requirements for CoHD services in Australia. Having these Standards in place will help all patients, families and carers affected by CoHD to live their best and healthiest lives. Professor Gary Sholler is the Co-Chair of the CoHD Standards of Care project. In this episode, he explains why and how the CoHD standards project came about,

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24:16

Growing Up In The 70s With A Congenital Heart...

From The Heart: The HeartKids Podcast ·

2022/10/08

Deb was born in 1968 with a complex heart condition. It wasn't until the late 70s that Deb was able to have surgery for her condition. Deb credits her personal strength and resilience back to her experiences growing up with a heart condition.HEARTKIDSFrom The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected by congenital and childhood heart disease. For support, information or guidance on your CHD journey,

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30:42

Heart And Life Updates With Rachael and Sam

From The Heart: The HeartKids Podcast ·

2022/09/24

We catch up with co-hosts Rachael and Sam to hear how they are going on their journeys. Rachael and Sam also chat about the podcast - what they've learnt since starting the series, embarrassing moments they've shared during recordings, their favourite episodes, and more.HEARTKIDSFrom The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected by congenital and childhood heart disease. For support, information or

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25:14

My Heart Condition Doesn't Define Me... George's Story

From The Heart: The HeartKids Podcast ·

2022/09/10

George is 21 years old from Tasmania. Born with a complex heart condition, George has had six open-heart surgeries.In this episode, George talks about what it was like travelling to Melbourne for surgery as a young kid, how he navigated his teenage years despite some physical limitations, how he looks after his mental health and how attending HeartKids Teen Camps changed his life. George is passionate about mentoring and shares lots of advice for younger heart kids navigating their own

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