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PODCAST

AliveandKick"n the podcast

The movers and shakers in the lynch syndrome field. Join patient advocates, physicians, geneticists, genetic counselors and others in the space, as we go deep into what it"s like to LIVE in a world with Lynch Syndrome genetic mutations.

health & fitness parenting

All Episodes

42:49

AliveAndKickn Podcast - Joan Rush

AliveandKick"n the podcast ·

2022/06/11

I sit down with Joan Rush, Founder of the Jacqueline Rush Foundation. Joan shares the story of how her daughter was misdiagnosed and finally diagnosed at an extremely young age. Joan and her husband Alan are determined to inform the public & medical community about Lynch Syndrome & help people realize the power of knowing what’s in their genes. We talk about immunotherapy, clinical trials, and the potential vaccine. We also talk about what it's like to be involved in the non-profit world, which

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36:36

AliveAndKickn Podcast - Mo Haque (for the 2nd time)

AliveandKick"n the podcast ·

2022/05/22

In honor of Tottenham's strong finish in the top 4 of the Premier League, Mo Haque is back. For the first time, I have a returning guest to the podcast, having been on previously in 2020. Mo and I celebrate getting older, as he had a much tougher road than me. Thankfully, immunotherapy with Keytruda has allowed Mo to survive and thrive. Mo was in the inaugural Living with Lynch patient workshop, has written a book Choosing to Stay, has done public speaking including stand-up comedy and truly is

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36:10

AliveAndKickn Podcast - Dr Jason Wright

AliveandKick"n the podcast ·

2022/04/19

I sit down with Jason Wright, and talk about Lynch Syndrome and gynecological cancers. Columbia's clinical program is a comprehensive center for hereditary abnormalities, including BRCA, Lynch and others. Obviously the goal is to identify those with a variant before they have cancer. There's still a greater awareness of BRCA, even before the Angelina effect. We talk about screening fatigue that can set in over time when you haven't had cancer for a considerable period of time, but you need to

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39:11

AliveAndKickn Podcast - Michele Elliott

AliveandKick"n the podcast ·

2022/04/16

I sit down, or at least try to sit down with Michele Elliott, the wandering Lynchie. Michele tells her Lynch Syndrome story, but she also tells the story of how she sold her house, and packed up her little dog and decided to live in a camper and spread the word about Lynch Syndrome. Michele also does RV inspections while on the road. Now Michele dons her AliveAndKickn shirt and talks to anyone who wants to know more or what it means.

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41:42

AlliveAndKickn Podcast -Dr. Sid Yadav

AliveandKick"n the podcast ·

2022/04/05

I sit down with Dr Sid Yadav, Gynecological Oncologist in Women’s Cancer Program who does research in DNA damage repair deficiencies & familial cancers. Dr Yadav talks about a protocol for anyone who has surgery for colon and/or endometrial cancer to have tumor sequencing as well as germline testing. We talk about basket clinical trials that may have taken place before people were being tested for lynch syndrome and how the field of oncology is evolving. I of course want to know once a person has

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40:38

AliveAndKickn Podcast - Dr Sid Yadav

AliveandKick"n the podcast ·

2022/04/05

I sit down with Dr Sid Yadav, Breast & GYN Oncologist in Women’s Cancer Program who does research in DNA damage repair deficiencies & familial cancers. Dr Yadav talks about a protocol for anyone who has surgery for colon and/or endometrial cancer to have tumor sequencing as well as germline testing. We talk about basket clinical trials that may have taken place before people were being tested for lynch syndrome and how the field of oncology is evolving. I of course want to know once a person has

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38:35

AliveAndKickn Podcast - Angela Ross

AliveandKick"n the podcast ·

2022/03/26

I sit down with Angela Ross, Genetic Counselor who sees a number of Lynch Syndrome patients at Memorial Sloan Kettering. MSK has created a program called MSK Catch, a clinical care program for people with hereditary cancer syndromes. They are collaborating with Hackensack Meridian and others that are MSK approved for those outside of Manhattan, namely north Jersey. Angie also discusses the Impact protocol of assessing the tumor genetically, as well as the germline. Angie says I'm not screwed up,

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35:19

AliveAndKickn Podcast - Kory Jasperson

AliveandKick"n the podcast ·

2022/03/22

I sit down with Kory Jasperson, Genetic Counselor who has focused on Lynch Syndrome and colon cancer for about 15 years. Kory is seeing the new model of the remote genetic counseling and how it is playing out, well before Covid. Are we getting closer to screening more of the general population? Almost. New and efficient strategies moving forward will be needed to effectively identify, educate, and empower patients. We're building the train as it's chugging along the tracks.

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36:30

AliveAndKickn Podcast - Leon Squadrito

AliveandKick"n the podcast ·

2022/03/18

I sit down with Leon Squadrito, husband to Melissa Squadrito, who passed away recently. Melissa, who had Lynch Syndrome, was previously on the podcast in November 2020, then as a previvor, but developed soft tissue sarcoma, a rare cancer. Leon talks about their lives together, including the tough part of watching her go through so much, but also the effect that Melissa had on her patients as a Nurse Practitioner and as a donor.

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52:52

AliveAndKickn Podcast - Pat Fahey

AliveandKick"n the podcast ·

2022/03/13

I sit down with my cousin from another mother Pat Fahey, founder of Lynch Syndrome Ireland. Pat talks about his long lost sister in the States and her history with cancer and how she found him. Pat talks about why he started LS Ireland and his associate Roberta Horgan. So while Pat will claim he's not as eloquent as Sir John or Ian Frayling, he certainly has a way of explaining Lynch Syndrome in such as fashion that anyone can understand. Apparently my ice cream habit is well known across the

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33:13

AliveAndKickn Podcast - Sam Alexandra Rose

AliveandKick"n the podcast ·

2022/03/12

I sit down with Sam Alexandra Rose, Lynch Syndrome survivor and self-publilshed author of Gut Feelings, Coping with Cancer and Living with Lynch Syndrome. Sam has CMMRD, as both of Sam's parents have Lynch Syndrome and she has inherited it from both. Sam's brother was 16 when he passed away from a brain tumor, but also a sister who did not inherit a mutation from either parent. Sam is doing her PhD around cancer as well.

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30:54

AliveAndKickn Podcast - Amanda Boitnott

AliveandKick"n the podcast ·

2022/03/10

I sit down with Amanda Boitnott, as we discuss her family's extensive history with Lynch Syndrome and cancer, but also previvorship for extended periods for several members of her familly. Our families have taken similar approaches to discussing and sharing and setting the example. We also talk Yellowstone, ranching, and life with massive lapdogs Hobbes and Zeus. Amanda and her daughter both have AliveAndKickn tattoos, which is awesomely cool, but also a great conversation starter.

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43:02

AliveAndKickn Podcast - Margaret Hitchcock

AliveandKick"n the podcast ·

2022/03/05

I sit down with Margaret Hitchcock, virologist, Lynch Syndrome patient, and Vice President of the California Colorectal Cancer Coalition. Melanoma and Triple Negative Breast Cancer survivor and we discuss celebrating cancerversaries and what it's like to be a survivor, knowing there's a distinct possibility, if not likelihood, there will be at least once reoccurrence. Margaret talks about her extensive family history of cancer, and not your typical ones. Since 2006, Margaret's C4 group

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52:04

AliveAndKickn Podcast - Kelly Anne Giggler

AliveandKick"n the podcast ·

2022/03/05

I sit down with Kelly Ann Giggler, Lynch Syndrome previvor and photographer for ESPN. We discuss rubber ducks, peaches, Peloton, and her family's extensive medical history, including negative testing for BRCA. We also talk about our mutual admiration for Dr Xavier Llor at Yale. Kelly Anne received 4 out of 5 stars on Yelp for how clean her first colonoscopy. We also talk about the celebritizing of Lynch Syndrome in order to get the word out more.

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39:55

AliveAndKickn Podcast - Jim Baral

AliveandKick"n the podcast ·

2022/02/20

I sat down with Jim Baral just before the New Year, and we discussed his experience with colon cancer as a lynch syndrome patient, as well as the upcoming colonoscopy ESPY (colonEscapy) awards ceremony as we both walk the blue carpet for 25 plus times. Proof that we're all originally from Brooklyn. We have very similar stories and attitude about this. Jim's LA cleansing is the stuff of legend. We talk about branding and what will move the needle from a marketing standpoint, but we also talk

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38:12

AliveAndKickn Podcast - Laura McCullough

AliveandKick"n the podcast ·

2022/02/07

I sit down with Laura McCollough, Lynch Syndrome survivor. We talk about our dads with Lynch yet outliving their spouses, kids, family history, and the perils of driving on the NJ Turnpike. Laura's family has had some unusual cancers, even for Lynch. We talk about the current state, but hopeful outcomes from the Covid pandemic. Joy and interconnectedness and sourdough bread are her current projects. Hope her son Luke comes on the podcast. I have officially changed my name to Carmela

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42:40

AliveAndKickn Podcast - Janice Berliner

AliveandKick"n the podcast ·

2022/02/07

I speak with Janice Berliner, Genetic Counselor, Author, and Genetic Counseling Program Director at Bay Path University. We talk about Genetic Counseling training, telemedicine, and the logistics of getting to Longmeadow, Massachusetts. In Good Conscience, her fictional book, talks about a celebrity with Lynch Syndrome. I may have commented in the back of book. Little known fact is that Janice discovered genetics and is on Mount Rushmore.

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43:40

AliveAndKickn Podcast - Erica and Nick Vargo Fielder

AliveandKick"n the podcast ·

2022/02/06

I chat with Erica and Nick Vargo Fiedler as they discussed Erica's family history with Lynch Syndrome as well how she is turning her witnessing medical dedication into potentially pursue a career in medicine. One Colon at a Time will be the name of the practice, have its own match making web site, and Nick will wear it on his headband. We also discuss the evolution of their relationship with running distances and in running clubs. Thankfully their dog Maddox didn't react to Hobbes' barking. Oh

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40:34

AliveAndKickn Podcast - Dr Robert Huneburg

AliveandKick"n the podcast ·

2022/02/06

I sit down with Dr Robert Huneberg, who not only does research as a Gastroenterologist at the National Center for Hereditary Tumor Syndromes in Germany, but also has a lynch syndrome in his family story. We discuss ChromoEndoscopy and adenoma detection rates. We also discuss lynch syndrome specific research (upper GI) taking place from a number of groups in the States as well as internationally. We of course talk football and futbol.

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27:50

AliveAndKickn Podcast - JJ Singleton

AliveandKick"n the podcast ·

2022/02/06

I sit down with JJ Singleton, Lynch Syndrome survivor, and he talks about his chemotherapy and immunotherapy history, microsatellite instability and more. JJ is still AliveAndKickn 5 years after his diagnosis. We also discuss our common affinity for Moon Pies from Chattanooga.

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170 results

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