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PODCAST

RealTalk MS

Jon Strum cuts through all the jargon and breaks down the latest multiple sclerosis news. You"ll meet the scientists who are creating tomorrow"s MS treatments today. You"ll hear from the experts discussing how the latest tweaks and changes to our healthcare laws will impact your MS treatment. And we"ll be talking to the courageous MS warriors who are out there advocating on behalf of the MS community every day, as well as the men and women who are committed to living their best lives with MS and

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All Episodes

37:01

Episode 374: Grieving When You're Living With MS with...

RealTalk MS ·

2024/10/28

Learning to live with MS is learning to live with loss. For some, those losses may be minor and seem relatively insignificant. For others, those losses can be huge and life-altering. The definition of grief is an emotional response to a significant loss. It's not unusual to grieve over those things in your life that have been lost due to MS. In fact, healthy grieving is a necessary emotional step to moving forward in life. Dr. Holly Hendin, a faculty physician and psychiatrist at St. Joseph’s

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27:45

Episode 373: ECTRIMS Research Roundup Part 2 with Dr....

RealTalk MS ·

2024/10/21

Now that he's had a chance to digest all of the research presented at ECTRIMS, Dr. Bruce Bebo, the National MS Society's Executive Vice President of Research, is back to share the key research presented at the largest MS research conference in the world. This episode of RealTalk MS is the perfect follow-up to my initial conversation with Bruce, which occurred just minutes after ECTRIMS ended. (If you missed our conversation, you may want to check out Episode 369 of RealTalk MS.) We have a lot to

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29:28

Episode 372: Medicare Changes That Will Affect You in...

RealTalk MS ·

2024/10/14

Open enrollment is underway! And if you're one of the 25% of people living with MS who get their coverage through Medicare, there are some major changes coming in 2025. So, it's especially important that you review your prescription drug coverage to make sure you're enrolled in the Medicare Part D plan that's best for you. Sarah Anderson, pharmacist and senior director of clinical resources and programming at the National MS Society, joins me to help us decipher those changes and navigate the

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38:35

Episode 371: A Difference-Making Mobility Device with...

RealTalk MS ·

2024/10/07

In the seven years that I've been hosting RealTalk MS, no one has ever described a mobility device as life-changing. That is until listener Dee Ecklund reached out to tell me about her experience with the Alinker. One of my goals in producing this podcast is to introduce the RealTalk MS listener community to people who are difference-makers. And Dee's initial DM led to my conversation with Dee and the inventor of the Alinker, a true difference-maker, BE Alink. The National MS Society's 3rd annual

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08:06

ECTRIMS Extra: Results from the Tolebrutinib Phase 3...

RealTalk MS ·

2024/10/03

With more than 9,000 MS researchers and clinicians in attendance, the 2024 ECTRIMS meeting in Copenhagen was the largest MS research conference in the world. During the meeting, I had an opportunity to talk with some of the best and brightest minds in MS research and clinical practice. This is your invitation to listen in on my ECTRIMS EXTRA conversation with Dr. Jiwon Oh. Dr. Oh is a neurologist, scientist, and the Medical Director of the Barlo Multiple Sclerosis Program at St. Michael’s

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31:34

Episode 370: Understanding the Updated Pathways to...

RealTalk MS ·

2024/09/30

In 2020, the National MS Society convened the Pathways to Cures Think Tank. I shared news and interviews from what I considered a historic meeting back in Episode 125 of RealTalk MS. The information shared and the work generated by that Think Tank led to the Pathways to Cures Global Summit in 2023. In Episodes 297and 298 of RealTalk MS, I shared news and interviews from what I described as yet another historic meeting. The Pathways to Cures Research Roadmap has been updated, and I'm devoting this

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09:04

ECTRIMS Extra: Revisions to the Way MS is Diagnosed...

RealTalk MS ·

2024/09/28

With more than 9,000 MS researchers and clinicians in attendance, the 2024 ECTRIMS meeting in Copenhagen was the largest MS research conference in the world. During the meeting, I had an opportunity to talk with some of the best and brightest minds in MS research and clinical practice. This is your invitation to listen in on my ECTRIMS EXTRA conversation with Dr. Peter Calabresi. Dr. Peter Calabresi is the Director of the Division of Neuroimmunology and the Director of the Multiple Sclerosis

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11:48

ECTRIMS Extra: Rachel Horne and Professor Kerstin Helwig

RealTalk MS ·

2024/09/25

With more than 9,000 MS researchers and clinicians in attendance, the 2024 ECTRIMS meeting in Copenhagen was the largest MS research conference in the world. During the meeting, I had an opportunity to talk with some of the best and brightest minds in MS research and clinical practice. This is your invitation to listen in on my ECTRIMS EXTRA conversation with Rachel Horne and Professor Kerstin Hellwig. Professor Kerstin Hellwig is the 2024 recipient of the Rachel Horne Prize for Women's Research

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30:32

Episode 369: ECTRIMS 2024 with Kristine Werner Ozug...

RealTalk MS ·

2024/09/23

ECTRIMS 2024, the largest MS research conference in the world concluded last week, and in this week's episode, we'll be hearing two slightly different perspectives on which news, announcements, and presentations stood out at this year's meeting. The ECTRIMS conference can feel almost overwhelming. You find yourself among 9 or 10 thousand other attendees, trying to determine which of the more than 1700 scientific presentations you want to learn more about. It's both a marathon and a sprint that

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07:26

ECTRIMS EXTRA: New Course Descriptors for MS with Dr....

RealTalk MS ·

2024/09/21

With more than 9,000 MS researchers and clinicians in attendance, the 2024 ECTRIMS meeting in Copenhagen was the largest MS research conference in the world. During the meeting, I had an opportunity to talk with some of the best and brightest minds in MS research and clinical practice. This is your invitation to listen in on my ECTRIMS EXTRA conversation with Dr. Fred Lublin. Dr. Fred Lublin is the Director of the Corrine Goldsmith Dickinson Center for Multiple Sclerosis at Mount Sinai. He

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34:50

Episode 368: Living a More Purposeful Life with MS...

RealTalk MS ·

2024/09/16

Living with the unpredictability of MS sometimes feels like riding a rollercoaster. As you experience the twists and turns of life with MS, you can sometimes feel unmoored from the person you thought you were. You can sense your priorities, motivations, and values shifting. And, in those moments, it becomes easy to lose your sense of purpose. Clinical assistant professor and rehabilitation psychologist at the University of Michigan, Dr. Evan Smith, joins me to discuss how to identify and

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34:46

Episode 367: Budgeting for Living with MS with Bruce...

RealTalk MS ·

2024/09/09

Living with MS is expensive. A recent study funded by the National MS Society found the average cost of living with MS in the United States is $88,487 a year. Even with insurance, that can turn out to be a heavy lift. One thing you don't need is to be worrying about money while you're already worrying about MS. So, when I think about discussing budgeting and managing your personal finances when you're living with MS, I think we're really talking about preserving your quality of life. Joining me

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35:13

Episode 366: Medicare and MS -- Getting Your Ducks In...

RealTalk MS ·

2024/09/02

Most of us know Medicare as health insurance for Americans who are 65 or older, but when they qualify for Social Security disability benefits, people younger than 65 automatically qualify for Medicare. Today, between 25 and 30% of the people living with MS are Medicare beneficiaries. Whether you already have Medicare or you'll be signing up for Medicare in the future, getting the right coverage requires making some important choices. Licensed Medicare Advisor Laquel Thomas joins me with tips,

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41:35

Episode 365: It's the Episode Where I Get Interviewed...

RealTalk MS ·

2024/08/26

If you're a regular listener, you know that I rely on the RealTalk MS listener community to let me know which topics you'd like to hear about on this podcast. A few years ago, in episode 264, listener Dawnia Baynes did a podcast takeover, and interviewed me. Since then, I've heard from a bunch of you who, for some reason, want to hear more about me. So, when listener Kyra Millich asked if she could interview me, it felt like it was time. In today's episode, you'll find out what I like to do when

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30:09

Episode 364: Understanding the Signs and Symptoms of...

RealTalk MS ·

2024/08/19

Getting an MS diagnosis is not always the quick, straightforward process we'd like it to be. For some people, the process can drag on for years. But getting that diagnosis only happens when you and your primary care physician recognize that something's going on. It might be a sudden vision issue. Maybe it's unexplained tingling in an arm or leg. Or maybe it's something more acute that gets your attention. A wide variety of signs could point to MS, but they could also point to other health

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32:57

Episode 363: Safe Driving When You're Living with MS...

RealTalk MS ·

2024/08/12

For some people, getting in their car and heading for, well, anywhere represents freedom and independence. For others, it's a way to get to their jobs, get to their medical appointments, get the kids to school, and run necessary errands. MS can change all of that. Occupational Therapist and Certified Driver Rehabilitation Specialist Jenny Nordine joins me to discuss how to preserve your independence while protecting yourself and the people around you when you're driving with MS. You'll also meet

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29:33

Episode 362: The Role of Integrative Medicine in...

RealTalk MS ·

2024/08/05

Integrative medicine brings conventional and complementary treatments together in a coordinated way. This approach to health and wellness represents a growing trend across the United States, especially among people who live with a chronic disease like MS. Dr. Lynne Shinto joins me to explain what integrative medicine is and how to safely incorporate complementary treatments into your MS care plan. We'll also tell you about study results that show how the common cold, flu, or a urinary tract

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30:23

Episode 361: Meet the new President and CEO of the...

RealTalk MS ·

2024/07/29

Less than two weeks ago, the National MS Society announced the appointment of Dr. Tim Coetzee as its new President and CEO. The MS Society's board chair, Peter Porrino, commented, "Tim is a trusted voice of the global MS community, a highly respected scientist, and we are excited for him to bring his transformative leadership to drive us into our next era to achieve a world free of MS." I thought it was important for everyone in the RealTalk MS listener community to hear from Tim and learn

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30:44

Episode 360: How Digital Technology Is Changing the...

RealTalk MS ·

2024/07/22

It's hard to imagine any area of our lives that hasn't been transformed by digital technology. That's certainly true for healthcare in general and MS diagnosis and treatment in particular. Dr. Riley Bove joins me to discuss the role that digital technology already plays in the diagnosis and treatment of MS and to share a preview of what's coming next. The National MS Society has named its new President and CEO. We're sharing the details! We'll tell you about some of the benefits that are being

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31:06

Episode 359: The Unraveling with Dr. Nara Michaelson

RealTalk MS ·

2024/07/15

As Harvard Fellow Dr. Nara Michaelson treated women who had been recently diagnosed with MS, she recognized they shared characteristics that she had observed in victims of violent domestic abuse. Dr. Michaelson's observation led her to write The Unraveling, an essay that highlights the fear that can accompany the uncertainty of living with MS. Dr. Michaelson joins me to discuss the experiences that led to her award-winning essay and to share resources that can help maintain your emotional health

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