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PODCAST

Celiac Straight Talk

Let"s get real about living with celiac disease. The ups, the downs and the temptations. Hear real stories from real people with the autoimmune disease.

health & fitness nutrition

All Episodes

11:01

20: Asia's Story

Celiac Straight Talk ·

2020/07/24

Asia shares her personal story with celiac disease. Find out what its like being 18 years old living with celiac disease. Asia addresses some of the unseen struggles that many people face while living with celiac disease.

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33:41

19: Living With Celiac Disease Part 2

Celiac Straight Talk ·

2020/07/17

Part 2 On November 15, Beyond Celiac held its 2nd research summit. The 2019 Summit built on the results of our innovative 2015 summit, which was widely hailed as highly impactful and led to new scientific collaborations and sharpening of the focus of celiac disease physician scientists. Our 2019 summit took place against the backdrop of at least 12 clinical trials for celiac disease treatments. Our aim was to comprehensively address elements that must be in place to get a drug to market, including

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30:17

18: Living with Celiac Disease

Celiac Straight Talk ·

2020/07/03

On November 15, Beyond Celiac held its 2nd research summit. The 2019 Summit built on the results of our innovative 2015 summit, which was widely hailed as highly impactful and led to new scientific collaborations and sharpening of the focus of celiac disease physician scientists. Our 2019 summit took place against the backdrop of at least 12 clinical trials for celiac disease treatments. Our aim was to comprehensively address elements that must be in place to get a drug to market, including the

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41:53

17: June Book Club Discussion

Celiac Straight Talk ·

2020/06/30

In this podcast, the Beyond Celiac book club (Claire, Amy, Maria and Bill) discussed In Memory of Bread by Paul Graham. A funny, poignant memoir of one man’s struggle to come to terms with his celiac disease diagnosis, forcing him to reexamine his relationship with food. This podcast was taken from the live zoom discussion held on the Beyond Celiac facebook page. The video can be found here.

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32:01

16: Beyond Celiac Book Club Discussion

Celiac Straight Talk ·

2020/05/29

This is a special Beyond Celiac Book Club (BCBC) edition. The discussion is on the book I Contain Multitudes: The Microbes Within Us and a Grander View of Life by Ed Yong. Video of our May 20th discussion can be found on our facebook page. Enjoy!

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27:20

15: Beyond Celiac Ambassador Arturo Chacon Cruz

Celiac Straight Talk ·

2020/05/22

Claire and Arturo Chacon Cruz chat (and sing) about his experiences with celiac disease, life during the pandemic, celiac awareness month and more. Audio taken from their Facebook live video from May 19, 2020.

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22:53

14: Celiac Disease and College

Celiac Straight Talk ·

2020/05/15

Valerie is on Beyond Celiacs patient and family advisory council. She is a Junior at Vanderbilt University and has celiac disease. In this weeks podcast Valerie talks about her journey getting diagnosed with celiac disease and the challenges she faced when looking at colleges.

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08:31

13: Kids and Family

Celiac Straight Talk ·

2020/05/08

Claire chats with Lindsey about her experiences with celiac disease. Both her and her young daughter have celiac disease. The conversation covers diagnosis, kids, family life and challenges faced. Beyondceliac.org

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27:25

12: Book Club Discussion

Celiac Straight Talk ·

2020/04/24

Beyond Celiac Book Club (BCBC) Edition A special Beyond Celiac book club discussion! The group read and reviewed brain on fire by Susannah cahalan. Audio taken from their live discussion on April 15th which can be found on the Beyond Celiac facebook page.

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18:07

11: New surveys and Science!

Celiac Straight Talk ·

2020/04/17

Kate and Amy did a facebook live to discuss two new surveys that are out now on the Go Beyond Celiac Database and app. They also talked about other subjects related to the Beyond Celiac science team.

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22:39

10: Dr. Salvo Alesci Is Back!

Celiac Straight Talk ·

2020/04/10

Dr. Salvo Alesci returns to discuss treatments in the pipeline for the coronavirus as well as new coronavirus surveys on our Go Beyond Celiac database and app!

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23:19

9: Salvatore Alesci, MD, PhD Beyond Celiac Chief...

Celiac Straight Talk ·

2020/03/27

Salvatore Alesci, MD, PhD Beyond Celiac Chief Scientist and Strategy Officer gives his take on how the coronavirus is affecting those with celiac disease. Stay healthy. Stay informed. Stay Engaged. Audio taken from Dr. Alesci's facebook video which you can watch on our Beyond Celiac facebook page and our website. Send your feedback, comments or questions to podcast@beyondceliac.org.

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16:30

8: Doctor Alan Ehlrich

Celiac Straight Talk ·

2020/03/20

Amy interviews Dr. Alan Ehrlich. Dr Ehrlich is a family physician and chair of the board of Beyond Celiac who has celiac disease himself. He is also on the faculty at the University of Massachusetts medical school in Worcester, Massachusetts. Send your feedback, comments, or questions to podcast@beyondceliac.org.

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20:26

7: SPECIAL UPDATE: Coronavirus and Celiac Disease

Celiac Straight Talk ·

2020/03/11

March 11th, 2020 In this podcast our in-house experts sat down to address concerns regarding the coronavirus and people living with celiac disease. Are they more at risk? Later we took questions from followers related to the coronavirus and answered them live. The audio was taken from our March 9th Facebook Live which can be viewed on our website (Beyondceliac.org) or on our Beyond Celiac facebook page. The coronavirus situation is rapidly changing and evolving. Stay tuned and up to date by checking

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37:49

6: Interview with registered dietitian Nancy Falini

Celiac Straight Talk ·

2020/03/06

Nancy Falini, MA., RDN, LDN Nancy holds a Bachelor of Science Degree in Dietetics and a Master of Art Degree in Nutrition Education from California State University, Chico. Her internship experience took place at both a community hospital and a metropolitan childrens' hospital in California. Nancy Patin Falini, a registered dietitian, licensed dietitian nutritionist, national speaker, author/writer, and consultant is the founder/owner of Nutritional Graces, LLC. By incorporating nutrition and

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07:13

5: The Doggie Bag Study with Jocelyn Silvester, MD

Celiac Straight Talk ·

2020/02/28

Taken from our Voice & Visions series on Youtube. Listen as Dr. Silvester explains the Doggie Bag Study and why its important for the celiac disease research community. When you finish listening, head over to our site and read our updated article about the findings from the study. Thanks for listening! Sign up to receive research news Here Send your feedback, comments and questions to podcast@beyondceliac.org.

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39:14

4: Why the Gluten-Free Diet is Not Enough!

Celiac Straight Talk ·

2020/02/21

Sign up to receive research news at Beyondceliac.org/research Send your feedback, comments or questions to podcast@beyondceliac.org Visit Beyondceliac.org/podcast to hear other stories from the Beyond Celiac community

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44:40

3: Celiac Disease Patients On Their Own

Celiac Straight Talk ·

2017/06/20

Most people who get diagnosed with celiac disease don't go back to their doctor for follow up care, shows a study done by Beyond Celiac and researchers from Columbia and Vanderbilt universities. Patients manage the diet and deal with whatever symptoms they suffer on their own. But what are the consequences? Is celiac disease silently doing damage that could lead to other autoimmune conditions? Are they being deprived of important vitamins and minerals? We examine these topics and look for ways to

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44:24

2: Walking Away from the Gluten-Free Diet

Celiac Straight Talk ·

2017/05/08

Candid community members talk about the one thing we never really discuss: cheating on the gluten-free diet. Habitual cheaters and one-timers share when and why they've strayed. Sign up to receive research news at beyondceliac.org/research. Send your feedback, comments, or questions to podcast@beyondceliac.org. Visit beyondceliac.org/podcast to hear other stories from the Beyond Celiac community. ----- Produced by: Amy Ratner, Claire Baker, Christopher Snider

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45:41

1: The Elusive Celiac Disease Diagnosis

Celiac Straight Talk ·

2017/03/28

There are well-established tests for identifying celiac disease. So why can it be so hard to get a diagnosis? Three Beyond Celiac community members take us through their stories, complete with misdiagnoses, unnecessary tests and procedures, and psychiatric evaluations. Sign up to receive research news at beyondceliac.org/research. Send your feedback, comments, or questions to podcast@beyondceliac.org. Visit beyondceliac.org/podcast to hear other stories from the Beyond Celiac community. -----

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100 results

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