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PODCAST

From The Heart: The HeartKids Podcast

Join us as we explore stories of Australians impacted by childhood-onset heart disease (CoHD) - including congenital heart disease.We"ll tackle the big issues - what it"s like receiving a new diagnosis, preparing for open-heart surgery, looking after your mental health, and much more. The show features cardiologists and experts sharing their knowledge about the topics you want to know more about. This show is for anyone impacted by CoHD - parents, carers, family members, friends, and those of us

health & fitness parenting

All Episodes

36:58

One Of My Twins Was Born With A Heart Condition......

From The Heart: The HeartKids Podcast ·

2022/08/27

When Hannah noticed one of her twins wasn't taking as much milk from the bottle during feeding, she never thought it could be a problem with her baby daughter's heart. The diagnosis that followed was serious. Baby Maddie needed multiple surgeries in her first years of life. In this episode, Hannah talks about her journey with bottle-feeding, the impact the CHD journey can have on siblings, what it's like starting school with a heart kid, managing developmental delays, the importance

en-au

25:20

What's The Connection Between CHD And...

From The Heart: The HeartKids Podcast ·

2022/08/13

What is neurodevelopment? What is the connection between CHD and neurodevelopment in children?What are the early indicators that a child may be experiencing neurodevelopmental difficulties?How are neurodevelopmental issues diagnosed? What sort of treatments and therapies are available? What research is happening in this area? What is the CHD Life+ research program and how could it transform neurodevelopmental care for young cardiac patients in Australia?Cardiologists Rob Justo and Will Parsonage

en-au

35:34

Common Cardiac Procedures... Professor David Celermajer

From The Heart: The HeartKids Podcast ·

2022/07/30

ECGs, chest x-rays, blood tests, ultrasounds, exercise tests, CT scans, MRI scans and catheters. If you have a childhood heart condition, you have likely encountered some or all of these tests before. Professor David Celermajer is one of the top adult cardiologists in Australia and the world. In this episode, he explains what each of these tests are, what's involved in getting them, why cardiologists use them, and the importance of regular check-ups. HEARTKIDSFrom The Heart is brought to you

en-au

27:59

Growing Up With My Heart Condition... Caitlin's Story

From The Heart: The HeartKids Podcast ·

2022/07/16

Caitlin was born with pulmonary atresia with a VSD, requiring three surgeries before the age of one. In Year 12, Caitlin was busy thinking about what formal dress she wanted to wear and her university admission score, when she was told she would need another procedure. Caitlin is now 20 and is about to sit the admission exam to study medicine. Her experience with her heart is part of the drive behind why she wants to become a doctor and help others.Caitlin is an amazingly resilient, driven and

en-au

25:50

How Becoming A Father Helped Me Understand What Heart...

From The Heart: The HeartKids Podcast ·

2022/07/02

Levi is a young father and amateur triathlete from Brisbane. In his early twenties, Levi dropped out of care. Levi's hospital had been trying to get in touch with him as he needed a third surgery on his heart. Like when he was young, Levi's parents were there to help him through his third open-heart surgery. Levi is now 36 and a father to two beautiful children. Through parenthood, he has developed a new understanding of the support his parents gave him growing up as a heart kid.

en-au

61:40

How To Prepare For Open-Heart Surgery... Tips And...

From The Heart: The HeartKids Podcast ·

2022/06/18

After 5 open heart surgeries, Elle is a pro. She shares tips for how to prepare, what to expect during it, and the best ways to recover.How do you make sure you've got the right people on your medical team? How do you prepare psychologically? How can you manage the impact on work or study? What's it like waking up after surgery? What does pubic hair have to do with any of this? Elle and Sam answer these questions and more!For more information and tips, check out Elle's Ultimate

en-au

28:18

What Is Wadja Aboriginal Family Place? Annette...

From The Heart: The HeartKids Podcast ·

2022/06/04

Kooma woman Netty Gaulton is an Aboriginal Case Manager within the cardiac unit at the Royal Children's Hospital in Melbourne. In this role, Netty provides emotional, social and cultural support to Aboriginal and Torres Strait Islander children and families visiting the hospital. Why do you think Aboriginal and Torres Strait Islander people don't always feel comfortable accessing health services? How can we make hospital environments more welcoming? What's the best part about your

en-au

22:13

My Daughter's Heart Transplant... Ebony's Story

From The Heart: The HeartKids Podcast ·

2022/05/21

Ebony had no idea her two-year-old daughter Milly even had a heart condition when she became unwell and was rushed to hospital one night. The doctors thought it might be Milly's kidneys, but soon discovered it was her heart. Ebony was told Milly was in heart failure and urgently needed a heart transplant. Milly is now six years post-transplant and is a happy and healthy nine-year-old thanks to what she calls her 'angel heart'.HEARTKIDSFrom The Heart is brought to you by HeartKids, the

en-au

16:47

RESEARCH UPDATE: The Genetic Causes of Congenital...

From The Heart: The HeartKids Podcast ·

2022/05/11

Mirana and her research team have identified 35 new genes associated with congenital heart disease. Their research is changing what we know about the genetic causes of congenital heart disease... all with the help of vinegar flies! Listen in to this bonus episode to find out how these Australian researchers are expanding what we know about genes and CHD.HEARTKIDSFrom The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people

en-au

21:39

My Son Needed 4 Surgeries In 16 Months For His...

From The Heart: The HeartKids Podcast ·

2022/04/27

Mandela is a Yawuru woman from Broome in Western Australia. Mandela was 29 weeks pregnant with her first child when she received the news that her baby had a heart condition.What followed was four surgeries in 16 months for her baby Myles and many months away from home and family. Mandela shares advice for other families who may be receiving a new diagnosis of congenital heart disease in their child, or dealing with surgeries.HEARTKIDSFrom The Heart is brought to you by HeartKids, the only national

en-au

25:57

Our Rheumatic Heart Disease Journey... Lynette's Story

From The Heart: The HeartKids Podcast ·

2022/04/27

Lynette is a Torres Strait woman from Moa Island. Lynette had never heard of rheumatic heart disease (RHD) before her son Jalil was diagnosed four years ago. To keep his heart healthy and strong, Lynette and Jalil must now go to the local hospital every four weeks for his antibiotic injection. Jalil struggled with the pain at first but now with the help of the buzzy bee, Entonox gas, and support from his family and nurses at the hospital, Jalil is feeling better about his injections. Lynette shares

en-au

24:08

What's It Like Growing Up With A Heart Condition?...

From The Heart: The HeartKids Podcast ·

2022/04/23

Growing up with a scar on his chest, Sam sometimes felt different from his friends. Attending his first HeartKids Teen Camp and meeting other teens with the same zipper was a huge turning point for him. Sam is now 22 and is studying law, a decision which he says his heart played a vital role in. Sam talks about about his experience transitioning to the adult health care system and how he's learning to balance his life alongside his condition.HEARTKIDSFrom The Heart is brought to you by

en-au

28:47

Pregnancy, Contraception, Family Planning and CHD......

From The Heart: The HeartKids Podcast ·

2022/04/10

What does having a congenital heart condition mean for pregnancy and fertility? How can my health care team help me prepare for pregnancy and starting a family? What can happen to the heart after having a baby? What is the best contraception to use when not trying for a baby?Cardiologist Dominica Zentner answers these questions and more on this information-packed episode of the podcast.HEARTKIDSFrom The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on

en-au

25:35

How Meeting Other Parents Helped On Our Congenital...

From The Heart: The HeartKids Podcast ·

2022/03/26

Ten years ago, Tash had never heard of congenital heart disease or HeartKids. That all changed in 2012. A routine visit to the GP with her three-year-old son turned into an urgent referral to a cardiologist. A few weeks later, Tash was finding out her son had congenital heart disease. This shock diagnosis meant major heart surgery. Tash felt isolated and alone, until she met a Family Support Coordinator from HeartKids. Many of the support team members at HeartKids are other heart parents. HeartKids

en-au

30:48

My Family's Journey Of Congenital Heart Disease,...

From The Heart: The HeartKids Podcast ·

2022/03/12

Dom's message for anyone experiencing grief is simple: You are not alone. The Frawley family experienced devastating loss in 2013 when their youngest son, Malachy, passed away due to his complex congenital heart condition. Dom recently published a book reflecting on his family's journey through love, loss, grief and hope. In the book and in this episode, Dom opens up about the impact of the CHD journey on siblings, parenting through hardship and loss, and how we can all better support the

en-au

27:20

My Heart and My NRLW Footy Career! Kennedy...

From The Heart: The HeartKids Podcast ·

2022/02/26

Kennedy had open-heart surgery when she was eight years old. Today she plays in the NRLW for the Parramatta Eels and is one of the brightest young talents in the league. In this episode, Kennedy opens up about her mindset and how she has overcome challenges on her journey. Kennedy is a HeartKids ambassador and an incredible role model within our community. This episode is for parents of heart kids, young people with a heart condition, and footy fans!HEARTKIDSFrom The Heart is brought to you by

en-au

24:29

The Grief At The Heart Of It... Rachael Knowles' Story

From The Heart: The HeartKids Podcast ·

2022/02/13

Can you be strong about your heart condition and grieve for it at the same time? Growing up, Rachael never let her heart condition get in her way. She found herself pushing through rather than processing some of the trauma she experienced. Rachael is now 24 and with the support of her family and health care team, she is navigating a journey to healing.Rachael also talks about what it was like growing up with CHD in a small rural town, how to advocate for yourself on your medical journey, and why

en-au

23:01

Why Exercise Is Good For Congenital Heart Disease...

From The Heart: The HeartKids Podcast ·

2022/01/31

Should I exercise if I have a heart condition? The answer is, almost everyone with a congenital or childhood heart condition can benefit from exercise. When done safely, regular exercise is one of the best things you can do for your heart and overall health. Cardiologist Rachael Cordina joins us to bust some exercise and CHD myths and help all listeners learn more about exercise.HEARTKIDSFrom The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and

en-au

31:41

How My Baby's Congenital Heart Disease Diagnosis...

From The Heart: The HeartKids Podcast ·

2021/12/20

When your child is unwell, often it's the only thing you can focus on or think about. But what happens if you start to notice you are struggling? Kimberley opens up on the recovery she has had to navigate since bringing her daughter home from surgery. This story is about parent's mental health, self-care, and learning how to reach out for help when you need it. Kimberley also talks us through what it's like receiving a new diagnosis and taking your child in for surgery. HEARTKIDSFrom

en-au

21:57

What Pregnancy Is Like When You Have A Congenital...

From The Heart: The HeartKids Podcast ·

2021/12/20

What is pregnancy like when you have a congenital heart condition? Tegan had a Fontan procedure as a child. She's now 34 years old and a mother of three. Her experience of pregnancy has been different each time, and not always smooth, but each time it's been made possible through the support and careful guidance of her cardiology and health care team.HEARTKIDSFrom The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for

en-au

101 results

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