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PODCAST

Behind the Genes

Genomics England

We are Genomics England and our vision is to create a world where everyone benefits from genomic healthcare. Introducing our refreshed podcast identity: Behind the Genes, previously known as The G Word. Join us every fortnight, where we cover everything from the latest in cutting-edge research to real-life stories from those affected by rare conditions and cancer. With thoughtful conversations, we take you behind the science. You can also tune in to our Genomics 101 explainer series which breaks

science life sciences

All Episodes

29:49

Vivienne Parry, Jillian Hastings Ward and Mark...

Behind the Genes ·

2022/12/07

This week we are celebrating the 10-year anniversary of the announcement of the 100,000 Genomes Project. To mark this ground-breaking project, our Head of Public Engagement, Vivienne Parry OBE, is joined by two guests who have played a critical role over the last 10 years: Professor Sir Mark Caulfield, who led the strategic oversight and delivery of the project, and Jillian Hastings Ward, Chair of the Participant Panel at Genomics England. Jillian and her family joined the project in 2015, in

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40:35

Rob Annan: Conversations with the CEOs of genomics

Behind the Genes ·

2022/11/23

Genome Canada is an independent, federally funded not-for-profit organisation and a national leader for Canada’s genomics ecosystem. Working in partnership, and across sectors, they invest in, and coordinate, genomics research, innovation, data and talent to generate solutions to today’s biggest challenges. CEO Rob Annan joins us in an inspiring and fascinating discussion. You can view our Transcript here: https://files.genomicsengland.co.uk/documents/Podcast-transcripts/Rob-Annan.docx "We do

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20:54

Vivienne Parry and Professor Dame Sue Hill: The...

Behind the Genes ·

2022/11/16

Another brilliant session from the last genomics England Research Summit, where Chris Wigley spoke with Professor Dame Sue Hill and Vivienne Parry, about the state of genomics research and the pathway to clinical implementation. What does it take to scale an idea like whole genome sequencing diagnostics across an entire health service? You can find our transcript here: https://files.genomicsengland.co.uk/documents/Podcast-transcripts/Genomics-England-Research-Summit-2.docx "the NHS is both the

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47:53

Amanda Pichini: What role do genetic counsellors play...

Behind the Genes ·

2022/11/10

Genetic counsellors are a highly specialised group of healthcare professionals, who have the expertise to help patients and families understand complex information relating to genomics, as well as provide guidance and emotional support. Whether that's to understand their family history, make informed choices about genetic testing, or come to terms with a result or a new diagnosis. As genomics becomes more commonly used in health care, more and more people are likely to require genetic counselling

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14:48

Jillian Hastings Ward and Baroness Nicola Blackwood:...

Behind the Genes ·

2022/11/02

The Genomics England Research Summit is an exciting one-day event that explores the latest research and technology innovations from Genomics England, partners, and complementary fields. The summit covers all things genetics from Cancer Genomics, Emerging Technologies, Rare Diseases to Policies and Initiatives. You can view our transcript, here: https://files.genomicsengland.co.uk/documents/Podcast-transcripts/Genomics-England-Research-Summit.docx "...one of the most important things is to

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53:57

Siddhartha Mukherjee: The song of the cell

Behind the Genes ·

2022/10/26

A doctor, a scientist, an entrepreneur, and a Pulitzer Prize-winning author is Siddhartha Mukherjee. His new book is called 'The Song of the Cell, An Exploration of Medicine and the New Human'. Siddhartha Mukherjee is a cancer physician and researcher. He is an assistant professor of medicine at Columbia University and a staff cancer physician at Columbia University Medical Center. A Rhodes scholar, he graduated from Stanford University, University of Oxford, Harvard Medical School. He has published

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41:39

Martin Mendoza: Health equity engagement of special...

Behind the Genes ·

2022/10/19

Before joining All of Us, Martin Mendoza served as director of the Division of Policy and Data at the Office of Minority Health in the Office of the Secretary at the U.S. Department of Health and Human Services, charged with developing health policies and initiatives to eliminate health disparities and advance health equity. View our transcript here: https://files.genomicsengland.co.uk/documents/Podcast-transcripts/Martin-Mendoza.docx "Information can then help to improve the ways to diagnose,

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33:06

Mai Shehab, Zaynah Asad and Aman Ali: The Muslim Census

Behind the Genes ·

2022/10/14

Muslim Census surveyed 1,007 Muslims aged 18-65+ living in the UK to understand whether these pre-conceptions about Muslim’s attitudes towards health research and genomics more broadly, as well as health information, are based in fact. Our aim is for the findings to help explore how to engage with Muslims to increase Muslim representation in genetic research. Aman Ali, one of Genomics England's proud ambassadors is joined by two health researchers from Muslim Census, Mai Shehab and Zaynah Asad. They

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20:53

Kate Grafton: Not quantity of life, quality of life

Behind the Genes ·

2022/10/05

This Breast Cancer Awareness Month, Kate Grafton shares her journey with breast cancer at the Genomics England Research Summit hosted earlier this year. She talks living with breast cancer and the side effects of cancer treatments and the importance of engaging with the patient community. If you're a researcher wanting to understand how and where to connect with your patients, listen to this episode. You can find our transcript here:

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54:08

Professor Matthew Hurles: The Sherlock Holmes moment

Behind the Genes ·

2022/09/28

The genome itself was the beginning of a whole technological revolution. Matt and Chris talk about taking on the challenge, searching for the needle in the haystack, and making it work at scale! Join Chris and population geneticist Prof Matthew Hurles this week as they delve into the genetic detective work and the future of research while engaging the research and participant community. If you're a student wanting to get into the field, Matt gives his take on how to go about it. You can find our

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33:56

Bettina Lundgren: CEO of the Danish National Genome...

Behind the Genes ·

2022/09/21

“I like ambitious visions, I like try to break the codes in order to get something to work to get a result. But on top of that, I want to make a change for the patient today, and a change for the future patients. And actually to use the knowledge and technology in order to change that to make a better healthcare system to make a better life for each patient today, each citizen.” Today on The G Word, Chris Wigley, CEO of Genomics England is joined by Bettina Lundgren, CEO of the Danish National

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01:01:18

Julia Vitarello: Mila’s story - from Mila to millions

Behind the Genes ·

2022/09/07

"We took a look and we perform whole genome sequencing of Mila, her mother, her father, as well as her little brother. And we looked for something that might have been missed in those dark regions of the genome. And we found something quite unusual..." In Todays Episode, Dr Richard Scott, Chief Medical Officer of Genomics England is joined by Julia Vitarello, the mother of Mila, a young girl who was diagnosed with Battens Disease, and Dr Tim Yu, the doctor who designed a medicine just for her. We'll

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47:58

Reed Jobs: Philanthropy and venture funding the...

Behind the Genes ·

2022/08/31

"I was driven by a personal desire to see this problem solved." On Today's Episode, Parker Moss, our Chief Ecosystems and Partnership Officer, is joined with Reed Jobs, the Managing Director of Health at Emerson Collective, a for-profit organisation focused on education, immigration reform, the environment, media and journalism, and health. Reed Jobs leads Emerson's team in the health care space. With a sole focus on oncology, his team accelerates the discovery and translation of cancer research to

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36:16

Rebecca Middleton: The patient’s voice

Behind the Genes ·

2022/08/24

"I know the power of a word, I know the power of a story, I know the power of a phrase, and language really is so meaningful and so valuable. […] Every data point has a face, there is a person there, it's not just a number, it's not just a code. Principle number two, treat people as you would like to be treated." On today's episode, Chris Wigley is joined by Rebecca Middleton, Vice Chair of the Participant Panel and founder of Hereditary Brain Aneurysm Support (HBA Support). They discuss Rebecca's

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28:23

Georgia Whitton: Changing course

Behind the Genes ·

2022/08/17

"Getting your genetic information isn't just [of] your own, it belongs to your ancestry too." On today's episode of The G Word, Chris Wigley, our CEO is joined by Georgia Whitton, the Senior Genomic Data Scientist at the Wellcome Sanger Institute. She is also a broadcaster on YouTube. She hosts 'Genomics with Georgia', and is bringing new talent into the tech and science field through volunteering with Code First Girls and many other great activities. From aspiring actress to senior genomic data

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47:01

Professor Martin Levermore: HDR UK’s Black Internship...

Behind the Genes ·

2022/08/10

"It's so important to have companies that represent [black] people. Because if you see people like you, who look like you, you're gonna feel like they have your best intentions." On Today's episode of The G Word, Sophia, the Design Researcher for our Diverse Data team, is joined by Professor Martin Levermore, hub member and pioneer of the programme, alongside two of the programme's interns, Samuel and Mbasan. They discuss the need for black talents in genomics and how the Black Internship Programme

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37:53

Lucy McKay: Opening the door to rare diseases

Behind the Genes ·

2022/08/03

"Every disease is a rare disease because it's a disease in you, and it's interacting with you. So, this idea that there are rare diseases, and there are common diseases, [is] kind of nonsense because everything is rare in the context of a given human being." On today's episode of The G Word, our CEO, Chris Wigley, is joined by Dr Lucy McKay, CEO and founder of Medics for Rare Diseases. Medics for Rare Diseases is a grassroots charity created to change the attitude towards rare diseases and changing

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38:55

Professor Sir Mark Caulfield: The predecessor’s view

Behind the Genes ·

2022/07/27

"In cancer, it's been more challenging, because we had to get a community that hadn't really worked on the scale of data at all, to come to terms with that." On today's episode, Matt Brown, our Chief Scientific Officer at Genomics England is joined by professor Sir Mark Caulfield, one of the founding employees of Genomics England and predecessor to Matt Brown as Chief Scientific Officer. Today, they'll be discussing Mark's recollections of his time as Chief Scientific Officer of Genomics England,

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38:12

Data science: The need for health equity

Behind the Genes ·

2022/07/20

"Biomedical datasets are biased towards Western white rich men typically. This means that historically underserved groups are less likely to be represented in the data." Today on The G Word, Maxine Mackintosh, the Programme Lead for Diverse Data at Genomics England, is joined by Alisha Davies from Public Health Wales and the Alan Turing Institute, and Brieuc Lehmann, from UCL, and both of whom are involved in the data science for Health Equity community. They discuss the role of data and data

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32:53

Zoe Conway: Sarcoma awareness month, part 2

Behind the Genes ·

2022/07/13

"Chris had been somewhere between a father and a brother to people in Downing Street. He wasn't just principal private secretary." Today on The G Word, Vivienne Parry, our Head of Public Engagement at Genomics England is joined by BBC journalist Zoe Conway whose husband, Chris Martin, died of a rare form of sarcoma in 2015. They discuss the story of Chris Martin and his sarcoma journey. They talk about how difficult it is to diagnose sarcoma and its subtypes. They also discuss how it affected

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143 results

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