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PODCAST

AliveandKick"n the podcast

The movers and shakers in the lynch syndrome field. Join patient advocates, physicians, geneticists, genetic counselors and others in the space, as we go deep into what it"s like to LIVE in a world with Lynch Syndrome genetic mutations.

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All Episodes

32:14

AliveAndKickn Podcast - Dr Bryson Katona

AliveandKick"n the podcast ·

2021/10/26

Dave sits down with Bryson Katona, Gastroenterologist at the University of Pennsylvania. We talk about med school and the teaching of genetics and Lynch Syndrome "back in the day." Regardless of how many times it's discussed, people are still amazed at the prevalence. A silver lining of Covid has been the increase of genetic testing and telemedicine. We re-hash the usual debate of screening guidelines for someone with Lynch Syndrome when it comes to testing and frequency. Bryson talks about

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38:35

AliveAndKickn Podcast - Kerry Evers

AliveandKick"n the podcast ·

2021/10/10

Dave sits down with Kerry Evers, lynch syndrome previvor and co-President and CEO of Pro-Change Behavior Systems. Dave had met Kerry at Dana Farber's Lynch Syndrome awareness day, LynkedIn. We talk Ben and Jerry's mint chip ice cream, Genetic Information Non Disclosure Act (GINA) and traveling for colonoscopy and care. If anyone was prepared for having lynch syndrome and helping people, it's Kerry. Helping individuals with changing behaviors for the better is her life. Developing skills for

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29:28

AliveAndKickn Podcast - Chris Tarver

AliveandKick"n the podcast ·

2021/09/23

Dave sits down with Chris Tarver, Lynch Syndrome survivor, and they talk about how he found out he had colon cancer and subsequently lynch from his first colonoscopy. Chris talks about his decisionmaking, what went into it, and how he wants to share his journey so others can benefit from it. We talk about having conversations with our doctors, and how it truly benefits the relationship for the long run.

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31:51

AliveAndKickn Podcast - Brian Shawn

AliveandKick"n the podcast ·

2021/08/28

Dave sits down with Brian Shawn, sportscaster, lynch syndrome cancer survivor, and fan of all things sports. Interestingly enough, it was Sanford Health reminding Brian to get tested that got him to finally go ahead with it. Now as a colon cancer survivor, he's using his microphone to spread awareness for lynch syndrome. We also talk about Minnesota United soccer, and my trips to Minneapolis for meetings with our partners, the Colon Cancer Coaltion, and Get Your Rear in Gear. Of course, we

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35:34

AliveAndKickn Podcast - Don Helgeson

AliveandKick"n the podcast ·

2021/08/22

I talk lynch syndrome, prostate cancer, melanoma, Man Up to Cancer, and being a retired Canadian police officer. Don is that rare combination of being a guy who is willing and actually eager to discuss his cancer with other guys. I look forward to someday getting back there one day and fishing on the Campbell River and surfing in Tofino. Apologies for the technical difficulties including the dog barking. www.prostatecancer51.com is his story

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32:30

AliveAndKickn Podcast - Maggie Muir

AliveandKick"n the podcast ·

2021/08/02

I sit down with Maggie Muir, high school Spanish teacher and marathon runner who is looking to raise awareness for lynch syndrome as a number of her family members have been affected, including her father who had kidney cancer and melanoma. As a recently diagnosed previvor, I think you'll love her energy, but if you run with her, she may talk your ear off. Pets dogs and loves ice cream.

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37:50

AliveAndKickn Podcast - Dr Brian Shirts

AliveandKick"n the podcast ·

2021/07/18

All Lynch Syndrome people can check out Connect My Variant. I sit down with Dr. Brian Shirts, Professor of Laboratory Medicine and Pathology from University of Washington. We discuss tumor sequencing, germline testing, cascade screening and the Connect My Variant Project. Connect My Variant is graciously funded by the Brotman Baty Institute for Precision Medicine. Interestingly enough, family members without the mutation tend to be some of the most active in recruiting family members with

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28:09

AliveAndKickin Podcast - Reija Kime

AliveandKick"n the podcast ·

2021/07/02

Sat down with Reija Kime who is womb cancer survivor with Lynch Syndrome who is Cycling for Cancer across Europe. Reija is giving back for her care at Royal Marsden before going back to her mother country Finland. I learned that Lynch Syndrome has colors. Who knew?

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33:50

AliveAndKickn Podcast - Dr Don Dizon

AliveandKick"n the podcast ·

2021/06/25

Dave sits down with Dr Don Dizon and discusses social media, clinical outcomes and survivorship, sexual health after cancer and of course lynch syndrome. We really talk about quality of life, and how it's not always tied to the clinician's office. I'm still not on TikTok, but I'm getting closer.

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46:58

AliveAndKickn Podcast - Maureen O'Brien Writer

AliveandKick"n the podcast ·

2021/05/30

Sunday morning conversation with Maureen O'Brien, author and Lynch Syndrome cancer survivor. We talk about the stress of living with Lynch, life in general, and finding the focus that keeps you going. Favorite quote - The passion of the scientist and the precision of the poet. Maureen turned to the psalms to see her through. Life is a series of pivots and changes.

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46:16

AliveAndKickn Podcast - Dr Eduardo Vilar Sanchez

AliveandKick"n the podcast ·

2021/05/28

My conversation with Dr Eduardo Vilar Sanchez from the University of Texas MD Anderson Cancer Center about Living with Lynch Syndrome, immunotherapy and the Naproxen study. Of course we talk Real Madrid, MD Anderson, the Houston Dynamo, and fellow colleagues in CGAIGC and the return to conferences in person. Stick around for the shoutouts and name-dropping.

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58:05

AliveAndKickn Podcast - Amy Hart

AliveandKick"n the podcast ·

2021/05/16

I talk with Amy Hart, the Barefoot Professional about her experience with Lynch Syndrome, her surgery during Covid and being a colon cancer survivor with an ostomy. We also discuss messaging and perception as a survivor, especially on social media.

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34:16

AliveAndKickn. Podcast - Dr Rick Boland

AliveandKick"n the podcast ·

2021/04/28

My conversation with Rick Boland, lynch syndrome patient, author of Cancer Family professor, and physician. Rick talks about his. Lynch Syndrome research over the years including into Microsatellite Instability. My favorite part is how proud he is of the next generation Matt and Patrick and how they've become researchers and oncologists as well.

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31:02

AliveAndKickn Podcast - Natya Porter

AliveandKick"n the podcast ·

2021/04/17

My conversation with Natya Porter, Lynch Syndrome previvor, talking about her family history with cancer both in Eastern Europe, the Soviet Union and in America. Initially, she was tested for BRCA and was relieved for many years thinking she was in the clear. As a fashion designer, I did manage to make Natya laugh imagining me wrapped in lycra and flannel. We both share the love of the wrap-dress.

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31:54

AliveAndKickn Podcast - Sara Riordan

AliveandKick"n the podcast ·

2021/04/09

My conversation with Sara Riordan, board certified genetic counselor and current President of the National Society of Genetic Counselors. We discuss HR 2144, the Access to Genetic Counselor Services Act, currently before Congress and getting involved. We also discuss tumor biomarker testing, lynch syndrome, MSI, and the role of the genetic counselor in tumor boards and educating physicians.

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38:17

AliveAndKickn Podcast - Dr Noura Abul-Husn

AliveandKick"n the podcast ·

2021/04/05

My conversation with Dr Noura Abul-Husn, internist and Medical Geneticist at the Icahn School of Medicine at Mount Sinai, talking about making genomic medicine a reality that is going to help patients across a wide range, including Lynch Syndrome. We also discuss diverse populations, biobanks, and the process of going from research to clinical application. Of course scaling family history information is still an issue when it comes to meeting criteria for testing.

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29:43

AliveAndKickn Podcast - Dr George Charames

AliveandKick"n the podcast ·

2021/04/02

My conversation with Dr George Charames of Mount Sinai in Toronto, discussing oncogenomics capturing molecular targets and biomarkers, and clinical trials. Of course we talk Lynch Syndrome and MSI as well, plus Sick Kids hospital and CMMRD. We manage to talk soccer and Thierry Henry somehow and I get Toronto and Montreal mixed up.

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43:28

AliveAndKickn Podcast - Lisa Schlager

AliveandKick"n the podcast ·

2021/03/28

I sat down with Lisa Schlager of FORCE (Facing our Risk of Cancer Empowered) to discuss FORCE's mission, policy, and the comparison between Lynch Syndrome and BRCA. We talk GINA/health insurance versus Life Insurance, and how Angelina Jolie is stalking me.

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29:58

AliveAndKickn Podcast - Dr Joseph Grzymski

AliveandKick"n the podcast ·

2021/03/21

My conversation with Dr Joseph Grzymski, Principal Investigator for the Healthy Nevada Project and Chief Scientific Officer at Reknown Health. We talk population health, CDC Tier 1 initiatives, screening and more. Studies are showing that 90% of the population don't know their inherited risk of these conditions. We also talk New Jersey and growing up losing a parent to cancer, and how that influences your life.

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38:31

AliveAndKickn Podcast - Dena DNA

AliveandKick"n the podcast ·

2021/03/19

My conversation with Dena Goldberg, Genetic Counselor and entertainer, discussing Lynch Syndrome, her role at UCSF cancer center and Kintalk, and her tag line of genetics made easy. I have offered to be the narrator in the docuseries but apparently she wants my middle son to play the role as he's more attractive and has his entire digestive tract.

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