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PODCAST

The Heart of Hospice Podcast

Hosted by Helen Bauer, BSN RN CHPN

The Heart of Hospice podcast is dedicated to helping personal and professional caregivers who are caring for someone with serious illness. We"re here to provide information and education so people can make informed choices about end of life care.

health & fitness medicine

All Episodes

00:53:23

How to Provide LGBTQ Inclusive Care From Kimberly...

The Heart of Hospice Podcast ·

2024/03/29

The story of the terminal illness and death of Kimberly Acquaviva’s wife Kathy is powerful, intense, real… and human. As a hospice social worker and LGBTQ+ community advocate, Kim knows what good end of life care looks like. During their experience with Kathy’s end stage cervical cancer, the women discovered that none of the hospice agencies where they lived had LGBTQ - inclusive non-discrimination statements. Both Kathy and Kim were determined not to settle for anything less than the best

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00:56:58

How a State Senator Improved Hospice Care in Her Home...

The Heart of Hospice Podcast ·

2024/03/22

Senator Meg Kappel turned her experience as a caregiver for her terminally ill mother into advocacy and now works to promote hospice care in her home state. Meg believes a true legacy - one that lasts - is a legacy of kindness. Years of working as a special education teacher taught her the importance of seeing people and meeting them where they are. As a caregiver along with her siblings, Meg experienced all the nuances of caregiving for her mom. Her mom chose hospice care when her ovarian

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00:52:11

Help Texts Offers Expert Grief Support With Text...

The Heart of Hospice Podcast ·

2024/03/15

Supporting people who are grieving is fulfilling, joyful work. Just ask Help Texts founder Emma Payne. After having a personal loss, Emma realized how much we could improve how we support grievers. She’d spent years working in the tech space. That knowledge helped launch Help Texts. Their service provides grief support for events like pregnancy loss, pet loss, and death of a loved one. The needs of grievers came into sharp focus for Emma when she was asked to deliver a eulogy for a close

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00:59:41

How to Improve Patient Care With Pastoral...

The Heart of Hospice Podcast ·

2024/03/08

Joelle Johns believes telling people they’re dying gives them an opportunity to say the goodbyes, do the final things they want to do, apologize, and forgive. Joelle is a death midwife and grief counselor, as well as a pastoral thanatologist and clinical chaplain, having just completed her designation as a Board Certified Clinical Chaplain (BCC). She also holds a certificate in Death Midwifery. As a pastoral thanatologist, Joelle supports those dying and those grieving, coaching them

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00:55:51

Life Experiences Offer Opportunities for Death Doula...

The Heart of Hospice Podcast ·

2024/03/01

Death Doula Jo-Anne Haun has found growth and meaning in working with the dying. As co-founder of Death Doula Network International, Jo-Anne works to support and educate about the work of death doulas. Jo-Anne uses her personal gift of gentle humor in her volunteer work as a therapy clown (Code Name: Buttons). Jo-Anne’s habit of incorporating a little fun into a discussion about end of life wishes is a gentle lead-in to deeper conversations about dying and death. You can connect with

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00:59:57

Francesca Arnoldy Is A Guide For End Of Life Planning

The Heart of Hospice Podcast ·

2024/02/23

Death literacy advocate and Community Doula Francesca Arnoldy is sharing the role of a death doula and how to support someone through a time of intensity. She’s the author of The Death Doula's Guide to Living Fully and Dying Prepared, a workbook that offers the opportunity to explore mortality and end-of-life care planning. In her work as an end of life doula, Francesca focuses on end of life planning conversations. She’s seen the benefits of exploring those EOL wishes, freeing us to live

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00:46:43

Barbara Karnes on How to Care for a Person With Dementia

The Heart of Hospice Podcast ·

2024/02/16

Award-winning End of Life Educator Barbara Karnes takes a deep dive into the unique challenges of caring for someone with dementia at end of life. Caregivers often find their responsibilities accumulating over time as the disease trajectory continues. They’re forced to live in the present, to see their loved one as who they are today. The goal is to bring joy and quality of life to a beloved today, in this moment.Hospice care for a person with end stage dementia can be tricky. The timing

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00:59:11

Valuable Lessons Learned From a Mom Who Lost a Child

The Heart of Hospice Podcast ·

2024/02/09

*Trigger warning - this episode contains a description of an intense death event and the death of a child. Please make space for your self care if you find the topic overwhelming. Juli Henderson has turned the loss of her son into meaningful advocacy, sharing her wisdom with other caregivers. Juli and her husband Chris were the parents of a son, Robert. Robert had a rare mitochondrial disorder. Genetic testing revealed that he had a gene alteration that predisposed him to seizures and

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00:58:35

Dr. Karen Wyatt Shares a Physician's Perspective on...

The Heart of Hospice Podcast ·

2024/02/02

Hospice physician Dr. Karen Wyatt wants people to get comfortable thinking about death, and have time to plan for the end of their lives. Karen is the host of the End of Life University podcast and author of 7 Lessons for Living from the Dying. She’s considered a thought leader in end of life care. We talked about lots of topics related to hospice in this great conversation, including trends in the industry, advance care planning, and how bedside hospice professionals are giving their best

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00:58:47

Doula Karen Hendrickson Shares Her Powerful Story of...

The Heart of Hospice Podcast ·

2024/01/26

*Trigger warning - this episode contains a description of an intense death event. Please make space for your self care if you find the topic overwhelming. Death doula Karen Hendrickson’s brother died suddenly when she was sixteen years old. That event became a lifelong lesson in death and dying, grief, and how to support teens during a loss. As co-founder of Death Doula Network International, Karen Hendrickson specializes in end of life planning and education. As a death doula, she provides

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00:49:22

Gabby Jimenez Offers Guidance on Medical Aid in Dying...

The Heart of Hospice Podcast ·

2024/01/19

Hospice nurse and end of life doula Gabby Jimenez of the Hospice Heart shared her thoughts in our great conversation about supporting MAID caregivers, and her new book Dignity Day. Hospice and end of life workers should know what Medical Aid in Dying (MAID) is, regardless of their personal opinion about MAID. If patients and caregivers ask questions, every EOL worker should be able to answer questions and provide resources. Gabby wrote her new book Dignity Day to respond to the fear and

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00:45:16

Dr. Lucy Kalanithi Tells Her Remarkable Story of Life...

The Heart of Hospice Podcast ·

2024/01/12

Caregiver, physician, wife, and griever - Dr. Lucy Kalanithi shares her remarkable journey with her husband Dr. Paul Kalanithi, author of When Breath Becomes Air. Lucy’s experience with her terminally-ill husband and his death has shaped how she approaches patient care and thinks about human suffering. Dr. Kalanithi is a Fellow of the American College of Physicians, a member of the Alpha Omega Alpha national medical honor society and an honoree of Mass General Cancer Center’s “the one

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00:54:47

Chaplains Complete a Sacred Space Between Machine and...

The Heart of Hospice Podcast ·

2024/01/05

Chaplain J.S. Park has a powerful voice - raw, transparent, and real. He’s using it to influence how people care for people at the end of life. J.S. will tell you he’s heard all the regrets in his work with the dying. As a hospital chaplain in a Trauma 1 center, J.S. provides grief counseling, attends every death, helps with end-of-life decision-making, and advocates for patients and families in crisis. He’s also worked as a chaplain for the homeless, including trauma-informed care, grief

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00:57:05

A Conversation With Diane Hullett of the Best Life...

The Heart of Hospice Podcast ·

2023/12/29

Diane Hullet, host of the Best Life Best Death podcast, believes in authentic conversations, holding space for those who are dying, and supporting others as they define their own “best death”. With the experience in her own family of eight deaths supported at home by hospice and having worked as a teacher for many years, Diane felt drawn to combine teaching with end of life work. She completed the Sacred Passage End of Life Doula course at The Conscious Dying Institute and the volunteer

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00:46:37

Dr. Kaishauna Guidry Teaches Doctors How to Have...

The Heart of Hospice Podcast ·

2023/12/22

Dr. Kaishauna Guidry is keeping it real when it comes to difficult conversations about hospice, dying, and death. As the host of the Dr. G at the Heart of Healthcare podcast, she’s teaching her listeners about challenging healthcare issues. She’s a fierce advocate for quality care, and empowers others to get the best from their care. She’s comfortable with the hard topics, discussing what people and caregivers need at end of life. Her mobile medical service provides care for patients who may

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00:42:30

Looking Into the Heart of a Hospice Physician

The Heart of Hospice Podcast ·

2023/12/15

Hospice physician Lauren Templeton knows the power of pausing, taking a moment to reflect on end of life wishes even when things are tense and chaotic. Dr. Templeton is a fierce advocate and a strong voice for advance care planning, palliative care, and upstream discussions about end of life. As a hospice medical director, Lauren walks alongside seriously ill patients and their caregivers. She says she’s learned to appreciate the fullness of her own life from working in hospice. Dr. Templeton

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00:49:38

How a Daring Nurse From California Began a Hospice in...

The Heart of Hospice Podcast ·

2023/12/08

Hospice nurse Juli Boit works to care for the dying in Kenya, providing desperately needed care and services. She is an author, community builder, and nonprofit leader working at the intersection of faith, global health, and human dignity. For eighteen years, Juli has lived and worked in Africa, founding and serving as International Director of Living Room International, a community-led nonprofit providing hospice and palliative care services to adults and children in Western Kenya. A Family

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00:48:37

Wind Phones Are Helping Grievers in Unexpected Ways

The Heart of Hospice Podcast ·

2023/12/01

Sending a message to someone we love on the wind using a Wind Phone is a beautiful way to express grief. Amy Dawson knows the power of being able to express grief emotions. She’s a Master Grief Coach and manages the My Wind Phone website. Amy didn’t originate the Wind Phone but she promotes the phones on her website. The first Wind Phone was created in Japan by Itaru Sasaki, using a phone booth and a rotary phone. The phones aren’t connected to any phone lines or modern wireless service. The

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00:55:19

The Hidden Value of Chaplains at End of Life

The Heart of Hospice Podcast ·

2023/11/24

Chaplain Wes Moldogo is an advocate for integrating spiritual care into the care of patients, service members, and their families. As a chaplain for the military as well as hospital and hospice patients, Wes educates about the value chaplains bring to the care of people with life-limiting illness. 1 in 4 Medicare hospice patients is a US military veteran. That’s 25% of the patients who utilize the Medicare benefit to pay for their hospice care. Wes learned early how powerful listening can be,

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01:01:49

Death Doulas are Expert Guides at End of Life

The Heart of Hospice Podcast ·

2023/11/17

Death Doula Jill McClennen helps clients transform their fear of death and dying while they work to live life fully, eventually dying with a feeling of closure. Whether it’s advance care plan conversations or supporting family members when a loved one is actively dying, death doulas provide expert guidance. Jill McClennen is a certified death doula, a non-medical professional specially trained to provide holistic care for individuals in their final stages of life. She offers comprehensive

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606 results

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