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PODCAST

The Heart of Hospice Podcast

Hosted by Helen Bauer, BSN RN CHPN

The Heart of Hospice podcast is dedicated to helping personal and professional caregivers who are caring for someone with serious illness. We"re here to provide information and education so people can make informed choices about end of life care.

health & fitness medicine

All Episodes

00:50:26

What You Need to Know About VSED

The Heart of Hospice Podcast ·

2026/04/17

When Kate Christie’s mom chose to utilize VSED at the end of her life, Kate became a caregiver and advocate, never losing sight of role as a daughter. Kate’s mom faced a diagnosis of Alzheimer’s disease and made the choice to use VSED (Voluntarily Stopping Eating and Drinking). Kate stayed by her mom’s side through the dying process and death, experiencing all the facets of being a VSED caregiver. Now Kate’s sharing her story and advocating for caregivers and anyone with a serious illness who

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00:40:40

Alua Arthur on Honoring the Full Humanity of the Dying

The Heart of Hospice Podcast ·

2026/04/10

Death Doula Alua Arthur brings fresh air, compassion, and humor to her work with the dying. After ten years working as an attorney, Alua found herself burned out, depressed, and looking for deeper meaning. She found her purpose and passion in end of life work. As a Death Doula and founder of Going with Grace, Alua educates clients and future death doulas about working with those experiencing serious illness. She brings an open mind to advance care planning conversations, allowing clients to

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00:49:59

Learn About the Sacred Mission of The INN Between

The Heart of Hospice Podcast ·

2026/04/03

By providing end of life care for the homeless population, The INN Between fills a special need in the Salt Lake City community. Executive Director Jillian Olmsted’s journey with The INN Between is both personal and purposeful. Jillian’s connection to the mission was shaped by her own family’s experiences with cancer—within a single year, her mother, father, and stepfather each faced the disease. Two parents required hospice care before their deaths, and Jillian personally cared for her father

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00:57:12

How to Manage Death Anxiety With Social Worker Rosie...

The Heart of Hospice Podcast ·

2026/03/27

Most of us carry some fear of death, even if we rarely say it out loud. In this episode, we talk honestly with hospice Social Worker Rosie Gaston about death anxiety—what it feels like, where it comes from, and how to have conversations that reduce it. Death is a universal human experience that carries mystery, fear, and a lot of anxiety. In western culture, conversations about death don’t happen as early and often as they should to really be beneficial. End of life and hospice workers deal

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00:41:23

Back to Basics: What You Need to Know About a Death...

The Heart of Hospice Podcast ·

2026/03/20

This week’s episode features hospice nurse Shelley Henry in an in-depth discussion about what should happen when a death occurs at home. Many hospice patients chose to die at home, in familiar surroundings with their family members. It’s important that patients, caregivers, and end of life workers understand the things that happen at the time of a death.Here are some highlights to know: • A hospice team member might not be there when your Person dies. • Hospice agencies

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00:45:54

Find Help for the Administrative Tasks After a Loss

The Heart of Hospice Podcast ·

2026/03/13

David Mulqueen has seen first hand the challenges of being an executor of an estate. He’s got some great insight and advice about managing the heavy lift of handling administrative tasks after a death. His company AnnCare was built to solve that problem, making the role of an executor so much easier and easing the grief burden of survivors. So many people avoid conversations about death. Often there’s no end of life or estate planning. It creates a mountain of to-do’s while the executor is

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00:49:47

Learn How Technology Keeps Seniors Happy and Safe at...

The Heart of Hospice Podcast ·

2026/03/06

As a caregiver for his wife, David Walsh found purpose and meaning. As a business owner he’s carrying that purpose forward supporting seniors to live safely in their own homes. David’s wife Beatrice faced the end of her life with courage, and asked David to do the same as her caregiver. They had been partners for 30 years when Beatrice was told she had only four weeks to live during the Covid pandemic. While he acknowledged how difficult the caregiving was , David viewed his caregiving

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00:32:30

Back to Basics: What to Know About General Inpatient...

The Heart of Hospice Podcast ·

2026/02/27

We're getting back to the basics of hospice care, taking a deep dive into hospice General Inpatient Care. Patients (and providers!) need to know the what/when/where of the GIP level of care inside hospice care. Here are some highlights of this episode:• General Inpatient Care is used for crisis symptom management that can't be done in the patient's home. • GIP is provided in a Medicare-certified facility (so there's 24/7 nursing care). • Medicare does not consider actively dying a crisis. •

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00:46:50

Documenting the Final Journey of Hospice Nurse Allyson

The Heart of Hospice Podcast ·

2026/02/20

What happens when the hospice nurse who has long stood at the bedside of the dying becomes the patient herself? A Butterfly Has Been Released is a death-positive documentary film that follows Allyson from her terminal brain tumor diagnosis to her final breath—revealing courage, love, and the raw realities of letting go. Filmmakers Jason Zamer and Barry Koch capture Allyson’s journey in an intimate way that bears witness to the reflections of Allyson, her family, and friends during her last 39

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00:46:50

What You Need to Know About Meditative Heartbeat Therapy

The Heart of Hospice Podcast ·

2026/02/13

Hospice chaplain and end of life doula Daniel DeLoma is devoted to the sacred task of helping others die well, with dignity, presence, and the steady rhythm of the heart as their guide. His work has purpose. From the very start of Daniel’s work in end of life care, he knew the importance of working with the dying. Daniel’s chaplain work made him realize that presence and prayer were not enough to meet the spiritual needs of his patients and caregivers. The development of meditative heartbeat

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00:49:25

The Dementia Darling Shares Practical Tips for...

The Heart of Hospice Podcast ·

2026/02/06

Encore episode - Carrie Aalberts (AKA the Dementia Darling) supports dementia caregivers with her heart and soul, and a whole lot of strength. As the founder of Dementia Darling, Carrie has established herself as a leading voice in dementia education and support. She’s cultivated an online community of more than 63,000 followers, creating a nurturing space for caregivers to find education, resources, and support. Carrie's mission is to empower caregivers by fighting isolation, challenge

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00:46:44

A Palliative Doctor's Personal Story of Her Father's...

The Heart of Hospice Podcast ·

2026/01/30

Trigger Warning: The content of this episode includes narratives about suicide. If you need to, catch up with us on another episode and take time to care for yourself.Dr. Delia Chiaramonte shares the story of her father’s suicide in this deeply emotional and personal episode. She wanted the best end of life experience for her father. Because his renal failure was at the end stage, he had a terminal prognosis. As a palliative care physician, Dr. Chiaramonte made sure she and her dad had

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00:43:25

A Rare Look at the Life and Work of Dr. Elisabeth...

The Heart of Hospice Podcast ·

2026/01/23

We're honored to feature this intimate and warm conversation with Ken Ross, founder of the Elisabeth Kubler-Ross Foundation and son of Dr. Elisabeth Kubler-Ross. Ken describes the life and work of his mom, as well as her unconventional approach to the dying. Towards the end of Dr. Kubler-Ross's life, Ken was her caregiver. He describes how her open-hearted nature drove her to become one of the most widely known experts in the field of death and dying. Ken is carrying that work forward at the

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00:42:09

Spotlight on Pediatric Palliative Care With Dr. Jared...

The Heart of Hospice Podcast ·

2026/01/16

Pediatric palliative care physician Dr. Jared Rubenstein opens up about what it really means to show up for families when there’s no easy fix. Jared and his team support seriously ill kids and their families, bringing compassion and utilizing Dignity Therapy techniques modified especially for kids. The unique medical and emotional needs of those sick kids shape everything the palliative care team does. Dr. Rubenstein unpacks the realities of caring for children and their families in the midst

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00:46:58

How to Be a Badass Advocate For Your Loved One

The Heart of Hospice Podcast ·

2026/01/09

Anyone with a serious illness needs a strong advocate who has their back and makes sure their needs are met. Erin Galyean did that for her sister, learning on the job how to be an advocate as a caregiver. When her sister became ill with cancer and a serious lung disease, Erin became a long-distance champion for her sister’s care. Her book Badass Advocate: Becoming The Champion Your Seriously Ill Loved One Deserves covers everything from building a support team for both the caregiver and the

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00:42:52

How to Live Well by Learning What Matters Most

The Heart of Hospice Podcast ·

2026/01/02

End of Life Doula Diane Button has been taught how to live well by caring for the dying. Her life’s work has been to support people to find meaning, comfort, joy, and peace in life and in death. One of the biggest influences on how Diane lives was her Grandpa Charlie, and she continues to be inspired by how he lived his life. Diane has collected stories and wisdom from every person for whom she’s provided care while they were dying. In 2022, during the pandemic, Diane wrote an article for

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00:37:24

Learn About the Important Work of the Conscious Dying...

The Heart of Hospice Podcast ·

2025/12/26

RamDev Dale Borglum is a pioneering figure in the conscious dying movement, known for his contributions to end-of-life care and spiritual support. In his 40 years of work with the dying, he thinks the U.S. has made progress in our attitude towards death, but there’s still room for improvement. Dale defines conscious dying as the practice of living consciously as we die. Meditation and gratitude practices support conscious dying. Working with the dying has allowed RamDev to be present with

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00:35:30

Back to Basics: What You Need to Know About Disease...

The Heart of Hospice Podcast ·

2025/12/19

We’re deep diving into advance care planning with hospice Social Worker Rosie Gaston, talking about diagnosis specific advance directives. With diseases like Alzheimer’s and other types of dementia on the rise, the need to plan for end of life situations for neurodegenerative diagnoses is increasing. It’s hard to predict every scenario, but considering basic care needs and wants is important. Some of the things that should be considered include where the person wants to live out their life,

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00:40:53

How to Cope With Grief That No One Understands

The Heart of Hospice Podcast ·

2025/12/12

There isn’t a greeting card for every type of grief. Dr. Ken Doka joins the podcast in this episode to talk about anticipatory and disenfranchised grief. Before death even occurs, people are grieving - anticipating the loss of identity, functional ability, roles, and relationships as well as the actual loss that comes with death itself. This kind of grief is felt by both the person who’s dying and the caregivers and family. Disenfranchised grief occurs when the relationship with the

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00:37:07

Back to Basics: What You Need to Know About Advance...

The Heart of Hospice Podcast ·

2025/12/05

Social Worker Rosie Gaston talks about getting back to the basics of what matters most to start an advance care plan. Reflecting on values and beliefs is a great starting place. The next step is having conversations with people who matter most to us (along with healthcare providers) to communicate the kind of care we want when our bodies begin to shut down, and what embodies quality of life. When should we make an advance care plan? Rosie recommends anyone over 18 make an ACP and revisit it

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