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PODCAST

The Heart of Hospice Podcast

Hosted by Helen Bauer, BSN RN CHPN

The Heart of Hospice podcast is dedicated to helping personal and professional caregivers who are caring for someone with serious illness. We"re here to provide information and education so people can make informed choices about end of life care.

health & fitness medicine

All Episodes

00:51:34

The Powerful Work of a Palliative Care Chaplain

The Heart of Hospice Podcast ·

2025/11/14

Palliative Care Chaplain Cody Hufstedler shares the end of life experiences of his patients and their families using compassion, healthy boundaries, and a little bit of humor. After 12 years of working as a chaplain, he’s seen the best and worst of death and dying. Cody believes his job is to help people work through changes when bad news happens, and help them pivot back to the values they hold most dear. He’s stepping into the place where panic happens and works to be the calm inside the

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00:47:38

This is About Caregiving From a Millennial's Perspective

The Heart of Hospice Podcast ·

2025/11/06

Jessica Guthrie is more than a millennial caregiver - she’s an advocate using her voice to change how we approach the care of loved ones. When her mom Constance was diagnosed with early onset Alzheimer’s disease at 66 and Jessica was 26, Jessica began coordinating her care from a distance. The trajectory of the disease soon required a move to be closer to Constance. Jessica describes it as “a shock to the system” as she began trying to figure out how to manage her mom’s care. None of her

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00:43:03

The Dementia Deck is a Helpful EOL Conversation Starter

The Heart of Hospice Podcast ·

2025/10/31

When dementia is the diagnosis, end of life discussions can be intense and heartbreaking. Hospice social workers Lisa Pahl and Jessica Empeno shed light on how to make things easier. Whether the dementia diagnosis is the primary (or terminal) diagnosis, or it is happening alongside another serious illness, the topics to be considered are complex. Everything from incontinence management to feeding tubes to ventilator support needs to be addressed. Talks about advance care planning should

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00:51:13

Caring House Provides Dignified Care at End of Life

The Heart of Hospice Podcast ·

2025/10/24

The team at Caring House is supporting the dying with compassion and respect, and a willingness to say yes to every end of life wish. Caring House is more than a non-profit organization; it’s a home focused on helping residents and families through the end-of-life experience. It’s the only one of its kind in Los Angeles County. Executive Director David Zartman and Resident Care Manager Joanna Franco lead the Caring House team to empower the dying and their caregivers. Admission to Caring House

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00:48:24

Bringing Hope to Underserved Populations Who Need it...

The Heart of Hospice Podcast ·

2025/10/17

Elizabeth Johnson is the co-founder and Executive Director of the Peaceful Presence Project, a community-based organization in Oregon dedicated to fostering compassionate end-of-life care. Her commitment to supporting end of life planning for the unhoused population is deep, leading her to companion homeless individuals to help them complete their advance directives. The Peaceful Presence Project offers numerous resources, including end of life doula training and a free downloadable resource

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00:51:57

Suzanne O'Brien Reflects On 20 Years Serving The Dying

The Heart of Hospice Podcast ·

2025/10/10

Suzanne O’Brien has spent the last 20 years serving the dying, and supporting the ones who serve at the bedside. As a hospice nurse and founder of Doula Givers, she finds purpose and meaning in working with patients at end of life. After working most of her nursing career in oncology and hospice, Suzanne saw the gaps in care for people with advanced diseases. This led to the creation of the award-winning program DoulaGivers: End of Life End of Life Doula Training, Eldercare Doula Training,

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01:10:36

Learn Some Surprising Insider Secrets at a Hospice...

The Heart of Hospice Podcast ·

2025/10/03

We’re excited to feature a roundtable discussion with a group of amazing hospice nurses discussing what makes a “good death” and the rituals they’ve created for themselves and caregivers. Jean Ann Menna, Carrie Oram, and Shelley Henry have many years of end of life nursing experience. Along with Helen, they share the many facets of helping patients create good deaths for themselves. This conversation is a great inside look into how hospice nurses care for families when death occurs. Find

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00:48:08

Bedside Wisdom: Powerful Lessons From a Hospice Doctor

The Heart of Hospice Podcast ·

2025/09/26

Hospice doctor Dr. Alen Voskanian is sharing the lessons he’s learned at the bedside of the dying, including why managing compassion fatigue is so vital. Working with AIDs patients led him to hospice work and to obtaining his board certification in hospice and palliative care medicine. Through his practice, Alen tries to humanize his patients and tries to connect with them. He works to find the best balance of doing his job and seeing the patients as human beings. Debriefing with the hospice

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00:58:59

Empowering the Dying for a Better Ending

The Heart of Hospice Podcast ·

2025/09/19

Elizabeth Uslander is empowering the dying every day to create a better ending. As co-founder and CEO of Empowered Endings, Elizabeth is passionate about helping people with serious illness to find the death that aligns with their values and wishes. Her social worker background equips her with problem solving skills she can use to be an advocate for patients and their caregivers. Elizabeth’s theological training lets her support the religious, faith, and spiritual beliefs of her

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00:51:19

Learn About the Important Work of The Peaceful...

The Heart of Hospice Podcast ·

2025/09/12

Hospice nurse and End of Life Doula Erin Collins puts her heart and mind into helping people make peace with the end of life through compassionate, reflective conversations. As co-founder of The Peaceful Presence Project, Erin has seen the comfort and calm that advance care planning brings to not only those who are dying, but also to their family caregivers and the end of life workers who are serving them. Facilitating end of life conversations is one of Erin’s gifts. The Peaceful Presence

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00:51:30

International End of Life Doula Association is Making...

The Heart of Hospice Podcast ·

2025/09/05

The International End of Life Doula Association believes everyone deserves compassionate, respectful care at the end of life. Executive Director Doug Simpson is working with the INELDA team to make that happen. Doug’s journey to EOL doula work began with the death of his own father, followed by the birth of his son. Drawn to end of life work, Doug trained as a doula in 2018 and became an INELDA volunteer in 2019. He moved into the Executive Director position in 2022, and has never lost sight

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00:56:34

How a Pediatric Palliative Care Physician Found...

The Heart of Hospice Podcast ·

2025/08/29

Trigger Warning: The content of this episode includes narratives about seriously ill children. If you need to sit this one out, catch up with us on another episode and please take time to care for yourself.In his memoir titled “Because I Knew You: How Some Remarkable Sick Kids Healed a Doctor’s Soul”, Dr. Robert Macauley tells the story of the patients who have impacted his life, and how he’s changed for good. As a pediatric palliative care physician, Bob walks alongside kids and their

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00:54:32

How a Quality of Life Navigator Improves Patient...

The Heart of Hospice Podcast ·

2025/08/22

DNP Elena Prendergast is empowering people with serious illness to find their voices, and advocate for their best quality of life. Working with patients who are dealing with end of life issues showed her how much extra support is needed, even when there’s a healthcare team providing care. Elena helps clients navigate the confusing maze of the US healthcare system. She listens to what they think is important, and equips them with the tools to make their needs and wishes known. Her education

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00:54:10

How to Find Hope When the Burnout is Real

The Heart of Hospice Podcast ·

2025/08/15

Palliative physician Emma Jones knows the real effects of burnout, and now she’s coaching others to rise from the ashes. While working in a high-pressure pediatric palliative care job, she found herself suffering the fallout of severe burnout. Emma was told to go home and figure out what was going on, but she realized there was no guide for how to do that. She began dealing with depression, trying to rebuild her self care. The care started with yoga, and grew to include healthy

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01:01:09

Before the Casket Provides Helpful Education for End...

The Heart of Hospice Podcast ·

2025/08/08

With honest information and gentle humor, the founders of Before the Casket are teaching us how to plan for more than just funeral arrangements. Hospice nurses Erin Putney and Amy Hensley have designed workshops that educate attendees about hard end of life decisions, empowering them and their decision-makers and making the whole experience easier. Before the Casket also provides education for healthcare professionals, offering content on end of life interventions and compassionate

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00:44:35

An Authentic Conversation With End Well Founder Dr....

The Heart of Hospice Podcast ·

2025/08/01

In this open and vulnerable interview, Dr. Shoshana Ungerleider talks about her caregiving experiences during her dad’s illness and death. Shoshana discovered early on that she wasn’t prepared for the complicated decision making that comes with serious illness caregiving, despite her medical training. Reflecting back at the experience, she talks openly about what she would have done differently. Difficult conversations about treatment, challenges with appetite and weight loss, and the genetic

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00:59:10

End of Life Options: The Powerful Story of Brittany...

The Heart of Hospice Podcast ·

2025/07/25

End of life option advocate Dan Diaz is sharing the story of his wife Brittany Maynard and her pursuit of a gentle death. Diagnosed at age 29 with a terminal brain tumor, Brittany chose to move 600 miles to a state that allowed for death with dignity, utilizing Medical Aid in Dying. In this powerful interview, Dan describes the impact of her life and death on compassionate death choices and legislation. Since Brittany’s death in 2014, Medical Aid in Dying laws have expanded to eleven

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00:30:34

Back to Basics: What You Need to Know About Live...

The Heart of Hospice Podcast ·

2025/07/18

Hospice nurse Beth Cavenaugh helps to clear up confusion around live discharges from hospice services. Sometimes people on hospice care improve or stabilize, and no longer meet the criteria to receive care from the hospice agency. The discharge process can be confusing, and it’s important to know the things that need to happen. Here are a few highlights from this episode:Live discharges are initiated by the hospice agency when the patient no longer qualifies.Sometimes hospice patients

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00:39:13

Alz Authors Bring Powerful, Personal Stories to the...

The Heart of Hospice Podcast ·

2025/07/11

Author and Alzheimer’s caregiver Marianne Scuicco shares her powerful story of caring for her mother and stepdad through dementia diagnosis and end of life. She describes the roller coaster of her caregiving journey, all the ups and downs that her family experienced. After her stepfather was diagnosed with mixed dementia and her mother declined, Marianne and her siblings had to find a balance to ensure they were well cared for. She’s able to say she has very few regrets about her time as a

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00:28:39

Back to Basics: What You Need to Know About Complaints

The Heart of Hospice Podcast ·

2025/07/04

We’re getting back to the basics of hospice care, sharing information about complaints, when to make them, and what should happen when you do. Hospice Social Worker Lisa Pahl (creator of The Death Deck and End of Life Deck) helps drive this discussion. Here are a few highlights from our discussion: •Patients and/or caregivers have a right to make a complaint. •There are numerous reasons a complaint might be needed: visits aren’t being made, symptoms aren’t being managed,

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