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PODCAST

The Heart of Hospice Podcast

Hosted by Helen Bauer, BSN RN CHPN

The Heart of Hospice podcast is dedicated to helping personal and professional caregivers who are caring for someone with serious illness. We"re here to provide information and education so people can make informed choices about end of life care.

health & fitness medicine

All Episodes

00:46:50

Documenting the Final Journey of Hospice Nurse Allyson

The Heart of Hospice Podcast ·

2026/02/20

What happens when the hospice nurse who has long stood at the bedside of the dying becomes the patient herself? A Butterfly Has Been Released is a death-positive documentary film that follows Allyson from her terminal brain tumor diagnosis to her final breath—revealing courage, love, and the raw realities of letting go. Filmmakers Jason Zamer and Barry Koch capture Allyson’s journey in an intimate way that bears witness to the reflections of Allyson, her family, and friends during her last 39

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00:46:50

What You Need to Know About Meditative Heartbeat Therapy

The Heart of Hospice Podcast ·

2026/02/13

Hospice chaplain and end of life doula Daniel DeLoma is devoted to the sacred task of helping others die well, with dignity, presence, and the steady rhythm of the heart as their guide. His work has purpose. From the very start of Daniel’s work in end of life care, he knew the importance of working with the dying. Daniel’s chaplain work made him realize that presence and prayer were not enough to meet the spiritual needs of his patients and caregivers. The development of meditative heartbeat

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00:49:25

The Dementia Darling Shares Practical Tips for...

The Heart of Hospice Podcast ·

2026/02/06

Encore episode - Carrie Aalberts (AKA the Dementia Darling) supports dementia caregivers with her heart and soul, and a whole lot of strength. As the founder of Dementia Darling, Carrie has established herself as a leading voice in dementia education and support. She’s cultivated an online community of more than 63,000 followers, creating a nurturing space for caregivers to find education, resources, and support. Carrie's mission is to empower caregivers by fighting isolation, challenge

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00:46:44

A Palliative Doctor's Personal Story of Her Father's...

The Heart of Hospice Podcast ·

2026/01/30

Trigger Warning: The content of this episode includes narratives about suicide. If you need to, catch up with us on another episode and take time to care for yourself.Dr. Delia Chiaramonte shares the story of her father’s suicide in this deeply emotional and personal episode. She wanted the best end of life experience for her father. Because his renal failure was at the end stage, he had a terminal prognosis. As a palliative care physician, Dr. Chiaramonte made sure she and her dad had

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00:43:25

A Rare Look at the Life and Work of Dr. Elisabeth...

The Heart of Hospice Podcast ·

2026/01/23

We're honored to feature this intimate and warm conversation with Ken Ross, founder of the Elisabeth Kubler-Ross Foundation and son of Dr. Elisabeth Kubler-Ross. Ken describes the life and work of his mom, as well as her unconventional approach to the dying. Towards the end of Dr. Kubler-Ross's life, Ken was her caregiver. He describes how her open-hearted nature drove her to become one of the most widely known experts in the field of death and dying. Ken is carrying that work forward at the

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00:42:09

Spotlight on Pediatric Palliative Care With Dr. Jared...

The Heart of Hospice Podcast ·

2026/01/16

Pediatric palliative care physician Dr. Jared Rubenstein opens up about what it really means to show up for families when there’s no easy fix. Jared and his team support seriously ill kids and their families, bringing compassion and utilizing Dignity Therapy techniques modified especially for kids. The unique medical and emotional needs of those sick kids shape everything the palliative care team does. Dr. Rubenstein unpacks the realities of caring for children and their families in the midst

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00:46:58

How to Be a Badass Advocate For Your Loved One

The Heart of Hospice Podcast ·

2026/01/09

Anyone with a serious illness needs a strong advocate who has their back and makes sure their needs are met. Erin Galyean did that for her sister, learning on the job how to be an advocate as a caregiver. When her sister became ill with cancer and a serious lung disease, Erin became a long-distance champion for her sister’s care. Her book Badass Advocate: Becoming The Champion Your Seriously Ill Loved One Deserves covers everything from building a support team for both the caregiver and the

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00:42:52

How to Live Well by Learning What Matters Most

The Heart of Hospice Podcast ·

2026/01/02

End of Life Doula Diane Button has been taught how to live well by caring for the dying. Her life’s work has been to support people to find meaning, comfort, joy, and peace in life and in death. One of the biggest influences on how Diane lives was her Grandpa Charlie, and she continues to be inspired by how he lived his life. Diane has collected stories and wisdom from every person for whom she’s provided care while they were dying. In 2022, during the pandemic, Diane wrote an article for

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00:37:24

Learn About the Important Work of the Conscious Dying...

The Heart of Hospice Podcast ·

2025/12/26

RamDev Dale Borglum is a pioneering figure in the conscious dying movement, known for his contributions to end-of-life care and spiritual support. In his 40 years of work with the dying, he thinks the U.S. has made progress in our attitude towards death, but there’s still room for improvement. Dale defines conscious dying as the practice of living consciously as we die. Meditation and gratitude practices support conscious dying. Working with the dying has allowed RamDev to be present with

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00:35:30

Back to Basics: What You Need to Know About Disease...

The Heart of Hospice Podcast ·

2025/12/19

We’re deep diving into advance care planning with hospice Social Worker Rosie Gaston, talking about diagnosis specific advance directives. With diseases like Alzheimer’s and other types of dementia on the rise, the need to plan for end of life situations for neurodegenerative diagnoses is increasing. It’s hard to predict every scenario, but considering basic care needs and wants is important. Some of the things that should be considered include where the person wants to live out their life,

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00:40:53

How to Cope With Grief That No One Understands

The Heart of Hospice Podcast ·

2025/12/12

There isn’t a greeting card for every type of grief. Dr. Ken Doka joins the podcast in this episode to talk about anticipatory and disenfranchised grief. Before death even occurs, people are grieving - anticipating the loss of identity, functional ability, roles, and relationships as well as the actual loss that comes with death itself. This kind of grief is felt by both the person who’s dying and the caregivers and family. Disenfranchised grief occurs when the relationship with the

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00:37:07

Back to Basics: What You Need to Know About Advance...

The Heart of Hospice Podcast ·

2025/12/05

Social Worker Rosie Gaston talks about getting back to the basics of what matters most to start an advance care plan. Reflecting on values and beliefs is a great starting place. The next step is having conversations with people who matter most to us (along with healthcare providers) to communicate the kind of care we want when our bodies begin to shut down, and what embodies quality of life. When should we make an advance care plan? Rosie recommends anyone over 18 make an ACP and revisit it

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00:51:33

Up Close and Personal With Hospice Nurse Julie

The Heart of Hospice Podcast ·

2025/11/28

Hospice Nurse Julie McFadden is using TikTok to teach over 1 million followers what death really looks like. As a nurse with 15 years of experience in end of life care, she’s seen all the ups and downs of community-based bedside hospice care. Julie also spent years working in ICU, and learned the intense needs of the dying. Her book Nothing to Fear: Demystifying Death to Live More Fully prepares readers for death and dying, with stories interwoven throughout. Her newest book is The Nothing

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00:44:06

A Revealing Look Inside the Hospice Interdisciplinary...

The Heart of Hospice Podcast ·

2025/11/21

Dr. Jessica Zitter sees how hard family caregivers work and it inspires her to keep going as a physician and caregiver advocate. Working as a critical care and palliative care physician, an author, and a documentary film maker has positioned Dr. Zitter uniquely to advocate for caregivers and the heavy burden of family caregivers. Jessica has had personal experiences working as part of an interdisciplinary team that have made her a better practitioner and doctor, and more aware of her own

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00:51:34

The Powerful Work of a Palliative Care Chaplain

The Heart of Hospice Podcast ·

2025/11/14

Palliative Care Chaplain Cody Hufstedler shares the end of life experiences of his patients and their families using compassion, healthy boundaries, and a little bit of humor. After 12 years of working as a chaplain, he’s seen the best and worst of death and dying. Cody believes his job is to help people work through changes when bad news happens, and help them pivot back to the values they hold most dear. He’s stepping into the place where panic happens and works to be the calm inside the

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00:47:38

This is About Caregiving From a Millennial's Perspective

The Heart of Hospice Podcast ·

2025/11/06

Jessica Guthrie is more than a millennial caregiver - she’s an advocate using her voice to change how we approach the care of loved ones. When her mom Constance was diagnosed with early onset Alzheimer’s disease at 66 and Jessica was 26, Jessica began coordinating her care from a distance. The trajectory of the disease soon required a move to be closer to Constance. Jessica describes it as “a shock to the system” as she began trying to figure out how to manage her mom’s care. None of her

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00:43:03

The Dementia Deck is a Helpful EOL Conversation Starter

The Heart of Hospice Podcast ·

2025/10/31

When dementia is the diagnosis, end of life discussions can be intense and heartbreaking. Hospice social workers Lisa Pahl and Jessica Empeno shed light on how to make things easier. Whether the dementia diagnosis is the primary (or terminal) diagnosis, or it is happening alongside another serious illness, the topics to be considered are complex. Everything from incontinence management to feeding tubes to ventilator support needs to be addressed. Talks about advance care planning should

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00:51:13

Caring House Provides Dignified Care at End of Life

The Heart of Hospice Podcast ·

2025/10/24

The team at Caring House is supporting the dying with compassion and respect, and a willingness to say yes to every end of life wish. Caring House is more than a non-profit organization; it’s a home focused on helping residents and families through the end-of-life experience. It’s the only one of its kind in Los Angeles County. Executive Director David Zartman and Resident Care Manager Joanna Franco lead the Caring House team to empower the dying and their caregivers. Admission to Caring House

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00:48:24

Bringing Hope to Underserved Populations Who Need it...

The Heart of Hospice Podcast ·

2025/10/17

Elizabeth Johnson is the co-founder and Executive Director of the Peaceful Presence Project, a community-based organization in Oregon dedicated to fostering compassionate end-of-life care. Her commitment to supporting end of life planning for the unhoused population is deep, leading her to companion homeless individuals to help them complete their advance directives. The Peaceful Presence Project offers numerous resources, including end of life doula training and a free downloadable resource

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00:51:57

Suzanne O'Brien Reflects On 20 Years Serving The Dying

The Heart of Hospice Podcast ·

2025/10/10

Suzanne O’Brien has spent the last 20 years serving the dying, and supporting the ones who serve at the bedside. As a hospice nurse and founder of Doula Givers, she finds purpose and meaning in working with patients at end of life. After working most of her nursing career in oncology and hospice, Suzanne saw the gaps in care for people with advanced diseases. This led to the creation of the award-winning program DoulaGivers: End of Life End of Life Doula Training, Eldercare Doula Training,

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