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PODCAST

My journey with Parkinson"s

I have had a blog called "Parkies and me - my journey with Parkinson"s" for the past four years. Now that I have finished work and have more time, I wanted to add a Podcast to provide more information and interest for my followers. I also hope to get guests on my Podcast on specialist subjects that would be useful to know for both carers and those they support. Look out for interviews regarding important legal decisions that is well worth a look. If you are interested in my Blog, you can find it on

health & fitness

All Episodes

00:05:59

I have a confession to make - Episode 13

My journey with Parkinson"s ·

2024/12/19

A conversation with my husband yesterday made me think about my future and when I might have to face leaving this home and my husband. I hope that is many years in the future. But, it made me think about all the conversations I had over 20 years as a Social Worker and now the tables are turned. I get it now! It's no longer me doing a job - which I did care about - but it is about being on the other side of things and what that realisation felt like.

en-nz

00:08:07

Going down memory lane - Episode 12

My journey with Parkinson"s ·

2024/12/19

This is one of the podcasts that doesn't directly relate to Parkinson's itself perhaps, but in a way everything in life is affected by having this condition isn't it! I was feeling in a reflective mood with Christmas fast approaching and some memories came back to me from when my children were young . It was nice strolling down memory lane and a simpler time.

en-nz

00:04:27

'Ode to shopping for shoes and finding a mate - a...

My journey with Parkinson"s ·

2024/12/18

I wrote this many years ago as part of my degree course. Internet dating was very new at the time and I was on a dating site myself. So, I wrote this poem. I hope you enjoy it.

en-nz

00:04:47

'What's precious?' - Episode 10

My journey with Parkinson"s ·

2024/12/18

How do we know what is precious, if we don't ask and how can we be annoyed/angry at someone who couldn't possibly know that it is more than just a thing!? Inspired by something that happened in hospital when about to have an x-ray. A necklace was grabbed that had huge significance for me, but how was that person to know?

en-nz

00:08:21

My 4th Anniversary with Parkinson's - Episode 9

My journey with Parkinson"s ·

2024/12/15

On 15/12/2020 I was diagnosed with Parkinson's. It has changed my life in so many ways, while I remain a 'slow burner' as it hasn't made me deteriorate in my functioning much at all.

en-nz

00:06:31

Christmas, 'Loved Ones' and Parkies Anniversaries -...

My journey with Parkinson"s ·

2024/12/13

In this podcast I talk about Christmas and an awareness that it is not always a happy time for people. Also, the term 'Loved Ones' that I have always detested and why. I also acknowledged that in two days time it is my Parkies Anniversary of 4 years since diagnosis on 15/12/2020.

en-nz

00:05:14

Party Priorities - Men vs Women Episode 7

My journey with Parkinson"s ·

2024/12/12

This is one of many poems I have written over time. I have been writing poetry since I was 5 years old. Strangely, since being diagnosed with Parkinson's I have been able to write more poetry and of a higher standard than ever before. I have read that Parkinson's or Parkies can enhance any artistic abilities a person may have and it certainly has been the case for me. This poem is very tongue in cheek and very biased in the direction of women, of which I am one of course! I hope you will receive it

en-nz

00:03:38

Ducking and Diving and Downright hiding - Episode 6

My journey with Parkinson"s ·

2024/12/12

I am using a walker due to pain issues with a back injury. I hate it if I think people think my Parkies has progressed. I don't know why, there is no logic to this, but I do! So, this is a funny incident that happened because of that. My mobility issues are nothing to do with Parkinson's.

en-nz

00:05:24

Sometimes it's hard to socialise - Episode 5

My journey with Parkinson"s ·

2024/12/10

I've been retired since early May this year. So, I am at home on my own much more. I am trying to keep busy, but with my pain issues that's not always easy.

en-nz

00:01:57

Where am I now - four years on from diagnosis? -...

My journey with Parkinson"s ·

2024/12/08

It's always good to stop and review how things are going I think. To take a step back and ask yourself how life is from time to time. Am I still doing and achieving the things I wanted to at this stage in my journey?

en-nz

00:06:32

Making memories - Episode 3 Podcast

My journey with Parkinson"s ·

2024/12/08

One of the things that was important to me when I was diagnosed was a sense that I didn't want to waste any time that I had and I wanted to spend more time with those I loved. We made a conscious effort to make plans to visit family, both here in NZ and overseas.

en-nz

00:08:14

Discussing the future - Episode 4

My journey with Parkinson"s ·

2024/12/08

One topic that comes up often when talking to newly diagnosed people, is have they discussed the future with anyone close to them. They can present at hospital later on in their journey without the subject of the future ever being broached. Note: This is a replacement for a previously recorded episode, one of my first. The quality was poor and hopefully, this new episode is much clearer.

en-nz

00:03:44

My road to diagnosis and who did you tell? - Episode 2

My journey with Parkinson"s ·

2024/12/08

I am a second generation person with Parkinson's . Both my parents had it and so I grew up knowing about this condition. I started a blog to help me process what was happening for me and hopefully to help others. Now, I want to make some podcasts as another way to reach people. I will continue with a similar work to my blog, in that my life is not just about Parkinson's and so I talk also about other aspects of my life from time to time. Also, as a recently retired Social Worker working in

en-nz

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