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PODCAST

My journey with Parkinson"s

I have had a blog called "Parkies and me - my journey with Parkinson"s" for the past four years. Now that I have finished work and have more time, I wanted to add a Podcast to provide more information and interest for my followers. I also hope to get guests on my Podcast on specialist subjects that would be useful to know for both carers and those they support. Look out for interviews regarding important legal decisions that is well worth a look. If you are interested in my Blog, you can find it on

health & fitness

All Episodes

00:13:08

Priorities - what do you focus on?

My journey with Parkinson"s ·

2025/11/23

A video popped up on a Facebook Page for people with Parkinson's and those that support them. A husband was talking about how he would have a different priority if he were to have his time again with his wife. It resonated with me and these are my thoughts.

en-nz

00:07:19

"Is lefty doing their job?"

My journey with Parkinson"s ·

2025/11/21

Some reflections and strategies for assessing how much my left side is compromised compared to my right side and how I am trying to monitor and improve left sided involvement.

en-nz

00:13:33

"Forgetting words - Is helping, helping or hindering?"

My journey with Parkinson"s ·

2025/11/20

Lately I have noticed a bit more trouble with finding words or remembering what I was going to say. Even I don't even know if I want help, so how does my poor husband know?

en-nz

00:10:48

"Pride goes before a fall" - What does that even mean?

My journey with Parkinson"s ·

2025/11/14

I was brought up - particularly by my mother - that it was a bad thing to "blow your own trumpet" and I should always be modest about my achievements. I never heard my mother say she was proud of me. So, I always ensured that my children were always told how proud I was of them and how loved they were.

en-nz

00:04:58

"Cultural Confusion"

My journey with Parkinson"s ·

2025/11/11

I have written a poem about Cultural Confusion. The child of a Kiwi mum and Pommy Dad, I found myself straddling two cultures not knowing quite where I fitted in.

en-nz

00:12:44

"Checking in. How am I doing?"

My journey with Parkinson"s ·

2025/11/09

Every now and again I feel the need to do a bit of a check-in with myself and with those close to me to gauge how Parkies is behaving, or not as the case may be." This is one of those check-ups.

en-nz

00:14:26

"By eck, By gum would you Adam and Eve it!"

My journey with Parkinson"s ·

2025/11/07

Just a few musings on the use of language. Even if you seem to be speaking the same language, if you are from different countries it is the use of that language with local sayings, etc that can make life interesting!

en-nz

00:13:14

The Evolution of Christmas or "Oh god, are we talking...

My journey with Parkinson"s ·

2025/11/05

Over the years there have been many changes to how we 'do' Christmas. It can be a stressful time, trying to accommodate everyone's wishes and needs. This year, I decided we needed a complete change.

en-nz

00:16:17

Moving to the beat of my own drum

My journey with Parkinson"s ·

2025/10/27

I have always struggled with people's expectations that I act in a certain way and not allowing me to do things my own way. I know that to be the best that I can be, I need to find my own path and trust in myself.

en-nz

00:09:59

Parkinson's is it hereditary and would you want to...

My journey with Parkinson"s ·

2025/10/27

When I first started on this journey, it wasn't when I was diagnosed, it was when first my Dad and then my Mum got diagnosed. It got me thinking about heredity. Did I need to know whether there was a genetic factor or not?

en-nz

00:11:53

Am I too hard on myself?

My journey with Parkinson"s ·

2025/10/24

Almost without a doubt, I will admit that I can be incredibly hard on myself. Today was not a great day...

en-nz

00:13:18

Michael J Fox and giving Parkies a voice

My journey with Parkinson"s ·

2025/10/22

I stumbled across an interview with Michael J Fox talking about the foundation he founded reaching 25 years this year. He said, 'It's not about me, it's about helping others with Parkinson's' or similar wording. It made me think about why I do my blog www.parkiesandme.com and why I do these podcasts...

en-nz

00:13:55

Live for the moment, but plan for the future

My journey with Parkinson"s ·

2025/10/18

From the time I was first diagnosed, I was determined not to look too far ahead and to do lots of travelling and spending time with family and not put things off. Living for the moment is how I get through, but some sensible plans for the future are also important. Talk about the future stuff like we did and then you can put it away and focus on here and now.

en-nz

00:09:30

What will they remember? The gift we give our...

My journey with Parkinson"s ·

2025/10/18

The only thing that really matters is spending time with grandchildren and knowing that they know they are loved. Memories of time spent remain strong even 60+ years, thinking about precious time spent with my Nanna.

en-nz

00:02:50

Grandchildren are a gift

My journey with Parkinson"s ·

2025/10/18

I have been spending time with my granddaughters recently one on one. It has been lovely getting to interact with each of them as individuals. Hopefully, we are building memories for both of us.

en-nz

00:10:14

Love me for what I am

My journey with Parkinson"s ·

2025/10/14

This post was inspired by a Carpenters song "Love me for what I am". It is about acceptance of who we are as a person and how important that is for me.

en-nz

00:13:20

Competition, Complexity and Conceit

My journey with Parkinson"s ·

2025/10/11

I think we all potentially have the ability to be competitive. I know I can be. But, in thinking about who is the main person I compete against, I realised that person is actually me!

en-nz

00:10:51

Life, Love and Loss

My journey with Parkinson"s ·

2025/10/04

today is the 5th anniversary of my son's passing. I wanted to acknowledge that, he is never far from my thoughts, but the loss is always more keenly felt on this day, the day we lost him.

en-nz

00:15:28

Finding new ways to be .... going with things not...

My journey with Parkinson"s ·

2025/10/02

OMG. I have just listened to this with my headphones on and it sounded terrible! Then suddenly thought to try it through my speakers and it was much improved!Perhaps if Parkies wasn't messing with my brain, I might have thought of that sooner!See below:"This has been a challenge in editing, with interference on playback. It is an example of the learning curve for someone with Parkinson's doing something so new to them at age 64. I have edited as well as I can, but it is of course not

en-nz

00:13:48

Resilience - the good, bad and the ugly

My journey with Parkinson"s ·

2025/10/01

For those of us who have had a number of difficulties in our lives, it is good to remember some of those tougher times. To remember that we got through them and now we will face this interloper - Parkinson's - and face him head on and our resilience will get us through.

en-nz

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