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PODCAST

The Eye Believe Podcast

A Cure In Sight

Join A Cure in Sight, an ocular melanoma foundation, in sharing stories + raising awareness for OM patients and their families. Here we share information and insights on treatment, research, and living with ocular melanoma.

health & fitness medicine

All Episodes

07:31

E52: Steps for Sight 2023 is NOW OPEN for registration!

The Eye Believe Podcast ·

2022/12/22

STEPS FOR SIGHT 2023 is now open! www.charityfootprints.com/SFS is where to go to get started! Tune in for what the movement is about, and how you can get involved! Our challenge to you? Register! And then call or text at LEAST one other OM friend to encourage them to join your team or create their own! Grab your friends and Family and let’s walk towards a cure for Ocular Melanoma! We are challenging you to join individuals from around the world by taking 7,000 steps every day in the month of

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32:06

E49: One-eyed Fly Guy, an OM survival story with Greg...

The Eye Believe Podcast ·

2022/12/19

A Cure in Sight is joined by Greg Hobbs, aka the one-eyed fly guy. He is a renowned disc golfer who has refused to let being one-eyed hold him back from playing the game he loves, while sharing about OM in the process! Here’s a little of Greg’s story—we’re excited to chat with him this next week! “July 17, 2013 I noticed my vision was a little weird. I went to my eye doctor on Thursday and he sent me to a specialist on Friday. He saw it and said he wanted it out that day. I wanted a second

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01:38:48

Eye Believe 2022: D2T1 FINAL SESSION ”New Advances...

The Eye Believe Podcast ·

2022/12/15

2 part session: Join the following three physicians as they discuss new advances in treatment of uveal melanoma of the eye. This session was sponsored in part by Aura Biosciences. They discuss the following: -RADIATION RETINOPATHY -Pars plana vitrectomy (PPV) with diode -ENDORESECTION -ADVANCES IN TREATMENT OF THE EYE (Aura presentation) Dr. Scott Walter, a practicing ophthalmologist in Hartford, Connecticut and is affiliated with Hartford Hospital. Dr. David Reichstein, an ocular oncologist,

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43:51

E51: Why Liver Directed Therapies with Dr. Marlana...

The Eye Believe Podcast ·

2022/12/15

A Cure in Sight is joined by Dr. Marlana Orloff, MD, for a brief but highly informative discussion on liver-directed therapies when navigating metastatic disease. Dr. Marlana Orloff is an associate professor of medicine and medical oncologist at Thomas Jefferson University Hospital – Sidney Kimmel Cancer Center in Philadelphia, PA. In this discussion, Dr. Orloff shares a few slides (you can find those attached at the link below!) talking about the different types of LDT (liver directed therapies)

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46:50

E50: The One-Eyed Cooking Show with Alec MacKenzie

The Eye Believe Podcast ·

2022/12/15

A Cure in Sight is joined by Alec Mackenzie, a patient diagnosed 3 years ago with ocular melanoma. Alec recently participated in the #lookinforacure walk for OM in Santa Monica and was the top fundraiser of the event! We're so excited to have him on live to share his journey and why he started "The One-Eyed Cooking Show." Alec’s story: “I had absolutely no warning in terms of diagnosis. I’m not one of those people who had any symptoms. Things were fine, we went away for a long weekend, and on that

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43:21

Eye Believe 2022: D2T2 ”Healing with your story”

The Eye Believe Podcast ·

2022/12/05

In this session, fellow ocular melanoma patient Dr. Terry Watson teaches how to use the telling of your story to aid in the healing journey after a traumatic diagnosis. Dr. Terry Watson is a graduate of the University of Louisville School of Dentistry and the owner of Midtown Smiles here in Nashville, Tennessee. He received specialized training in cosmetic dentistry, dental implants, orthodontics, and facial pain therapy. He serves on the faculty for the Tennessee College of Applied

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49:09

Eye Believe 2022: D2T2 ”What we can expect of our...

The Eye Believe Podcast ·

2022/12/05

Join fellow omie, Anne Osborn, as she helps patients navigate "What we can expect of our friends after an OM diagnosis." Welcome our friend Anne Osborn helping us to understand What we can expect of our friends after an OM diagnosis. Anne Osborn, Author, as a teen grew up in the shadows of OM when her mother died of OM. Forty years later, she was diagnosed with OM, Class 2. Anne spent her career in human services, trained as a psychotherapist. Her specialties include initially being a

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34:35

Eye Believe 2022: D2T2 ”Low Vision Resources”

The Eye Believe Podcast ·

2022/12/05

Welcome to your Track 2 session for 9am! In this session you will hear from Dr. John Pino in a talk about low vision. Dr. John Pino has been providing primary eye care for 36 years. As clinical director of one of the largest Optometric practices in Tennessee, Dr. Pino focuses on providing the latest technology to his patients. He is a member of both the American Optometric Association and the Tennessee Optometric Association. Dr. Pino is also a fellow of the International Academy of Low Vision

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34:33

Eye Believe 2022: D2T2 ”Navigating Insurance” with...

The Eye Believe Podcast ·

2022/12/05

In this session from our second track, Joanna from Triage Cancer discusses navigating insurance. Thank you Triage Cancer for your invaluable information. Joanna is a cancer rights attorney, speaker, and author, dedicated to improving access to and availability of quality information on cancer survivorship issues. Monica is the co-founder and Chief Executive Officer for Triage Cancer, a national, nonprofit organization that provides education on the practical and legal issues that may impact

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28:33

Eye Believe 2022: Patient Mini Interview Panel

The Eye Believe Podcast ·

2022/12/05

Join 5 patients as they discuss their ocular melanoma diagnosis, and some of the struggles, and the strange but welcome gifts that have come despite their diagnosis. Patients participating: Mike Stansbury - diagnosed Dec 2018, metastatic June 2021 Julie Le Blanc - Diagnosed Sept 2018, metastatic in March 2022 Laura Cunningham - Diagnosed June 2013, metastatic in Dec 2013 Steve Durrant - Diagnosed Spring 2017, NED Danet Peterson (your host) July 2020, metastatic in Nov 2022 Tune in for an amazing

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56:05

Eye Believe 2022: D2T1 ”Your Eye After Treatment”

The Eye Believe Podcast ·

2022/12/05

Join Dr. David Reichstein of Tennessee Retina to discuss what to expect in your eye after treatment. Dr. Reichstein is a graduate of the world's premier Ocular Oncology Fellowship at Wills Eye Hospital, under the direction of Drs. Jerry and Carol Shields. Dr. Reichstein's interests include the diagnosis and management of patients with all types of ophthalmic tumors, including uveal melanoma or nevus, retinoblastoma, vitreoretinal and choroidal lymphoma, vascular tumors of the posterior segment, and

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57:52

Eye Believe 2022: D2T1 ”Standards of Care for Uveal...

The Eye Believe Podcast ·

2022/12/05

In this session, Dr. Reichstein, Dr. Schefler, Dr. Hovland, and Dr. Walter will be discussing "Standards of Care for Uveal Melanoma, are there any?" Topics addressed include: - NCCN/TNM Staging & guidelines -Types of Plaque/Proton Beam Treatment -Transpupillary Thermotherapy (TTT) alone (and why we shouldn't do it) Dr. David Reichstein, an ocular oncologist, who studied at the renowned Wills Eye Hospital here from Tennessee Retina. Dr. Amy Schefler, ocular oncologist and renowned eye cancer

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01:11:46

Eye Believe 2022: D2T1 ”KIMMTRAK approved; NOW WHAT?”

The Eye Believe Podcast ·

2022/12/05

Join Dr. Justin Moser and Dr. Meredith McKean to learn more about the approval of KIMMTRAK and what this means for you as a patient, whether you are HLA-0201 positive and qualify for this treatment drug, or if you do not and wonder what is out there treatment wise for you. Dr. Moser is a Medical Oncologist who specializes in phase 1 clinical trials, drug development, and cutaneous malignancies. He leads the Melanoma program at HonorHealth Research Institute, and runs one of the only programs

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49:41

Eye Believe 2022: D2T1 Ocular Melanoma Met’s Explained

The Eye Believe Podcast ·

2022/12/05

Join Dr. Justin Moser and Dr. Meredith McKean, together with Dr. Sanger to discuss navigating an ocular melanoma mets diagnosis. Dr. Moser is a Medical Oncologist who specializes in phase 1 clinical trials, drug development, and cutaneous malignancies. He leads the Melanoma program at HonorHealth Research Institute, and runs one of the only programs dedicated to uveal melanoma in Arizona. Dr. Meredith McKean received her bachelor's degree from Iowa State University, where the promising athlete

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08:21

Eye Believe 2022-Welcome with Dr. Reichstein

The Eye Believe Podcast ·

2022/12/05

Welcome to Eye Believe 2022! Welcome message from Dr. David Reichstein.

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31:36

E48: Shared decision Making with Patients with Dr. Patel

The Eye Believe Podcast ·

2022/11/18

A Cure in Sight is joined by Dr. Sapna Patel, MD, of MD Anderson in Texas. She joins in for a discussion on how she guides patients through the decision making process, as well as some of the key things to be aware of as a patient as you are making decisions about navigating your diagnosis. Sapna Patel, MD, is a board-certified medical oncology physician, Associate Professor, Uveal Melanoma Program Director, Fellowship Program Director, and Director of Online Medicine in the Department of

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36:24

E45: Radical Acceptance in an OM Diagnosis with...

The Eye Believe Podcast ·

2022/11/12

A Cure in Sight is joined by Allie, diagnosed June 1, 2022 at the age of 26 with a small choroidal melanoma. Tune in to hear her story and some of her coping skills she has leaned into as a psychologist by profession. I don’t really know how to say this, but I was diagnosed with an incredibly rare eye cancer, choroidal melanoma, last week. Thankfully, we caught it early. There’s a lot of uncertainty and of course shock, grief, sadness, etc. Just last month, I graduated and made a post where I

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36:08

Eye Believe 2022: D1 ”Understanding a registry?”

The Eye Believe Podcast ·

2022/11/12

In this session, learn what a registry is and what it can tell us with Dr. Armin Afshar from UCSF ocular oncology and one of the investigators of the Insight Registry. Join the Insight registry below, and be sure to keep updating your surveys. www.insight.iamrare.org Dr. Armin Afshar, MD is an ophthalmologist who specializes in treating eye tumors and disorders of the retina and vitreous (the gel-like substance at the back of the eye). He has special expertise in managing ocular surface tumors

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56:16

E47: Managing METS & Clinical Trials with Dr. Carvajal

The Eye Believe Podcast ·

2022/11/12

A Cure in Sight is joined by Dr. Richard Carvajal for a medical webinar-style discussion on: - how to understand the data behind a clinical trial? - What the decision making process can look like for managing surveillance, ahead of metastatic discovery, or after and what components go into that process? - Recommended scan protocol from uveal melanoma oncology teams and how they differ and why Come prepared with questions and an enlightening and empowering discussion. A little about Dr

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31:28

E46: The Importance of Self-Compassion with Dr....

The Eye Believe Podcast ·

2022/11/12

A Cure in Sight is joined by Dr. Kristin Markell, M.D., an integrative women’s health provider, to discuss the importance of self-compassion in times of high stress. Dr. Kristin Markell is a double board-certified Integrative Gynecologist practicing in Fayetteville, Arkansas. As a practicing OB/GYN for over a decade, she began experiencing burnout symptoms. While researching and exploring ways to support her health, she found integrative and functional medicine and the personalized options

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