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PODCAST

The Eye Believe Podcast

A Cure In Sight

A Cure In Sight (ACIS) is a nonprofit organization committed to improving the lives of those affected by ocular melanoma. Through education, patient support programs, advocacy, and research funding, ACIS works to raise awareness and accelerate progress toward better treatments and outcomes. The Eye Believe Podcast, hosted by A Cure In Sight, brings together patients, caregivers, researchers, and medical professionals to share stories, discuss advances in ocular melanoma research, and highlight the

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All Episodes

31:34

My 15 Years | Episode 4: Ocular Melanoma...

The Eye Believe Podcast ·

2026/03/05

Ocular melanoma is one of the rarest forms of cancer — and because of that, it’s often misunderstood.In Episode 4 of My 15 Years, Melody talks about some of the most common misconceptions surrounding ocular melanoma, including funding challenges that come with such a rare diagnosis. She also reflects on what advocacy looked like in the early days of her journey, when awareness of ocular melanoma was limited and resources for patients were far fewer than they are today. Melody shares how those

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33:46

Standardizing MUM Surveillance: COOG Panel Discussion...

The Eye Believe Podcast ·

2026/03/02

In this special episode of the Eye Believe Podcast, we bring together six leading experts to discuss newly established consensus guidelines for metastatic uveal melanoma (MUM) surveillance. Through a modified Delphi panel led by the Collaborative Ocular Oncology Group (COOG), 41 experts from more than 25 centers worked to create standardized surveillance recommendations in an area where high-level evidence remains limited. Joining us for this conversation are: Dr. Sunandana Chandra Dr. Juan

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55:23

Where to Turn for Help: OM Resources Beyond Treatment...

The Eye Believe Podcast ·

2026/02/23

In this episode of the Eye Believe Podcast, we welcome back returning guest Ashley McCrary, founder of the Eye On Grace Foundation. Ashley joins Danet to share valuable insight into the many resources available to ocular melanoma patients and families navigating diagnosis, treatment, and beyond. While she discusses the mission and support offered through Eye On Grace Foundation, this conversation goes even further—highlighting a wide range of organizations, financial assistance programs, and

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47:28

Using TikTok to Empower Patients with Dr. Zack Oakey...

The Eye Believe Podcast ·

2026/02/16

In this episode of the Eye Believe Podcast, we’re joined by Dr. Zack Oakey, a board-certified ophthalmologist and ocular oncologist with extensive training in retinal disease and ocular oncology. Dr. Oakey shares his unique approach to using social media—especially TikTok—to educate patients, combat misinformation, and make complex ocular melanoma topics more accessible. Drawing from his training at institutions including the NIH, UC Irvine, the University of Wisconsin, and the Cleveland Clinic’s

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27:08

How Oncology Social Workers Help Patients Find...

The Eye Believe Podcast ·

2026/02/09

In this episode of the Eye Believe Podcast, we’re joined by Molly Vocino, LCSW, an oncology social worker at the Sidney Kimmel Comprehensive Cancer Center at Jefferson Health in Philadelphia. Molly is passionate about ensuring all people have access to quality healthcare and compassionate support—especially individuals and families navigating serious illness. In this conversation, she helps patients better understand the types of professionals available to support them throughout their cancer

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25:52

My 15 Years | Episode 3: Ocular Melanoma 101 & My...

The Eye Believe Podcast ·

2026/02/05

Episode 3: Ocular Melanoma 101 & My Treatment Experience Understanding a rare cancer can feel overwhelming — especially at the moment of diagnosis. n Episode 3 of My 15 Years, Melody breaks down the basics of ocular melanoma (OM 101) in a clear, approachable way. She explains what ocular melanoma is, and how she felt as a newly diagnosed patients. Melody also goes deeper into her personal treatment experience, sharing what plaque brachytherapy was like — from preparing for the procedure to

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46:58

I Didn't Ask For Any Of This | The Eye Believe Podcast

The Eye Believe Podcast ·

2026/02/02

In this powerful episode of the Eye Believe Podcast, we are honored to be joined by Allan Finnegan—a reverend, comedian, and former Britain’s Got Talent finalist—who is living with metastatic ocular melanoma. Allan shares an extraordinary, hope-filled conversation about life, faith, purpose, and finding light even in the most difficult seasons. With honesty, warmth, and humor, he reflects on what it means to live fully, love deeply, and hold onto hope through uncertainty. We also discuss Allan’s

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37:20

My 15 Years | Episode 2: Mental Health After Diagnosis

The Eye Believe Podcast ·

2026/01/29

A cancer diagnosis doesn’t just affect the body — it touches every part of life. In Episode 2 of My 15 Years, released during Mental Health Month, Melody opens up about the emotional reality of the months following her ocular melanoma diagnosis. She shares the fear, grief, and isolation she experienced, how her marriage began to fall apart, and the complex ways she related to her family during that time. This episode is an honest conversation about mental health, relationships, and the invisible

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21:47

My 15 Years | Episode 1: My Diagnosis

The Eye Believe Podcast ·

2026/01/27

Episode 1: My Diagnosis Fifteen years ago, Melody heard the words that would change her life forever: you have ocular melanoma. In the first episode of My 15 Years, Melody — founder and president of A Cure in Sight — shares an overview of her diagnosis and the moments surrounding it. From the initial symptoms and medical appointments to the shock, fear, and uncertainty that followed, this episode begins the story at its starting point. This conversation lays the foundation for the series, offering

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55:58

ESMO 2025 Highlights: Key Uveal Melanoma Trial...

The Eye Believe Podcast ·

2026/01/27

In this episode of the Eye Believe Podcast, we’re joined by Dr. Hadfield, a medical oncologist treating uveal melanoma patients in the Northeast, for an in-depth discussion of the most important takeaways from ESMO 2025. Dr. Hadfield breaks down key study results and emerging data from major trials, including the CHOPIN Trial, Immatics Trial, IDEAYA Trial, and more—offering expert insight into what these findings may mean for patients, caregivers, and the future of uveal melanoma treatment. Links

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54:03

Exploring the TIL Trial: Sophie's Story | The Eye...

The Eye Believe Podcast ·

2026/01/20

In this episode of the Eye Believe Podcast, we’re joined by Sophie Cantu, who shares her personal experience participating in a TIL (Tumor-Infiltrating Lymphocyte) clinical trial for ocular melanoma. After previous treatments were unsuccessful, Sophie enrolled in the TIL trial—and saw encouraging results, including tumor shrinkage. She speaks candidly about what led her to the trial, what the experience was like, and how it changed her outlook moving forward. Sophie’s story offers hope to

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38:12

Mental Health With A Dash Of Humor with Frank King |...

The Eye Believe Podcast ·

2026/01/12

Mental Health With A Dash Of Humor with Frank King | The Eye Believe Podcast In this powerful episode of the Eye Believe Podcast, we sit down with Frank King, the Mental Health Comedian, for an honest, eye-opening, and surprisingly hopeful conversation about mental health. Frank shares practical guidance on how to start conversations about mental health, key signs to look for in people experiencing depression or suicidal thoughts, and—most importantly—what we can actually do to help. Drawing

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47:29

Collective Grief, Collective Hope | The Eye Believe...

The Eye Believe Podcast ·

2026/01/05

In this episode of the Eye Believe Podcast, we are joined by Carol McColl, an ocular melanoma patient of more than seven years, who offers a powerful and deeply human perspective on collective grief and collective hope. Carol shares how community and connection play a vital role in navigating the grief and loss that often accompany an OM diagnosis. Through shared experiences, meaningful conversations, and mutual support, patients can find purpose, develop resilience, and cultivate hope—even on the

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31:05

Turning Loss Into Impact with Megan Morelli | The Eye...

The Eye Believe Podcast ·

2025/12/29

In this powerful episode of the Eye Believe Podcast, we’re joined by Megan Morelli, who shares the story of her mother, Tami Sulistyo, an ocular melanoma patient whose legacy continues to inspire meaningful change. Following Tami’s passing, Megan and her family found purposeful ways to honor her life, strength, and impact—including the creation of the Tami Sulistyo Memorial Research Grant. Through this grant, Tami’s legacy lives on by supporting vital ocular melanoma research and helping move the

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24:19

Steps For Sight 2026 with Kristen MacDonald | The Eye...

The Eye Believe Podcast ·

2025/12/21

🎙️ Steps For Sight 2026 with Kristen MacDonald | The Eye Believe Podcast In this episode of the Eye Believe Podcast, we’re talking all about Steps For Sight 2026, A Cure In Sight’s annual fundraiser supporting the ocular melanoma community and funding research toward a cure. Steps For Sight runs January 1–31, and participants commit to walking 7,000 steps a day to honor the 7,000 people diagnosed with ocular melanoma each year. Hosts Danet and Megan are joined by ocular melanoma patient

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23:17

Why Rachel Sindaco Says She’s Lucky to Have MS | The...

The Eye Believe Podcast ·

2025/12/15

In this inspiring episode of the Eye Believe Podcast, we welcome author and advocate Rachel Sindaco, whose journey through Multiple Sclerosis (MS) and Ocular Melanoma (OM) reshaped her life in unimaginable ways—and ultimately saved it. Rachel maintains a remarkable positive outlook, openly sharing how she considers herself lucky to have MS. It was her MS diagnosis that led to increased medical monitoring, allowing her ocular melanoma to be caught early—a discovery that may have saved her life

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89:39

Eye on COOG | What's New in Uveal Melanoma Risk Reports?

The Eye Believe Podcast ·

2025/12/11

👁️ Eye on COOG – Special Eye Believe Mini-Seminar (Recording) 📅 Recorded on December 6, 2025 🔗 Learn more or register for future events: https://www.acureinsight.org/education-events If you missed the live session — or want to watch it again — you're in the right place! This recorded webinar breaks down the latest updates from COOG 2 uveal melanoma studies and explains what they mean for GEP results, PRAME status, and mutation testing. Our expert speakers guide patients and caregivers through

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37:14

Eye Believe Survivorship Seminar 2025 | Yesterday,...

The Eye Believe Podcast ·

2025/12/09

Welcome to Session 1 of the Eye Believe Survivorship Seminar 2025! This 8:00 AM session features renowned ocular oncologist Dr. MATERIN (Duke Health) as he presents “Yesterday, Today & Tomorrow in Ocular Melanoma.” In this powerful opening session, Dr. Materin walks attendees through: 🔹 The history and evolution of ocular melanoma care 🔹 Current diagnostic tools, treatments, and patient management approaches 🔹 What’s ahead in research, technology, and survivorship support 🔹 How patients,

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36:15

Eye On Research | Session 2: Adjuvant Therapies –...

The Eye Believe Podcast ·

2025/12/09

Eye On Research | Session 2: Adjuvant Therapies – What’s New Today? (And What Can You Do About It!?) Join us for Session 2 of Eye On Research, presented by A Cure In Sight 💙. In this insightful session, top experts in the field—Dr. Carvajal, Dr. Lutzky, and Dr. Kahn—discuss the latest developments in adjuvant therapies for ocular melanoma. 🕦 Time: 11:30 AM EST 👩‍⚕️ Speakers: Dr. Carvajal Dr. Lutzky Dr. Kahn ✨ Topics Covered: What’s new and emerging in adjuvant therapies 🔬 The science

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28:43

Can Ocular Melanoma Be Hereditary? Danny Powell’s...

The Eye Believe Podcast ·

2025/12/07

In this episode, we interview Danny Powell, an ocular melanoma (OM) patient whose tumor was identified early thanks to his eye doctor noticing a change and acting quickly. Danny explains his diagnosis, his treatment with brachytherapy, and how he later discovered that his grandmother also had OM—an extremely rare family connection. This prompted genetic testing, which revealed that Danny carries a BAP1 gene mutation. He discusses what that means for his ongoing care, his decision to join a clinical

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238 results

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