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PODCAST

Foundation Fighting Blindness

Foundation Fighting Blindness

The Foundation Fighting Blindness is the driving force in the global development of treatments and cures for blinding diseases. To learn more, go to FightingBlindness.org.

science

All Episodes

00:04:31

News | Bionic Sight Reports Vision Improvements for...

Foundation Fighting Blindness ·

2023/04/20

Clinical trial participants with advanced vision loss from RP were able to identify fruits and vegetables

en

00:18:19

Eye on the Cure Podcast | Episode 44: Jason Taylor

Foundation Fighting Blindness ·

2023/04/14

April 14, 2023. Electronica musician and composer Jason Taylor, aka Aether, talks with podcast host Ben Shaberman about his craft, inspirations, and how vision loss from retinitis pigmentosa has influenced his work. Jason's ambient, ethereal music has been featured in a variety of popular video games including: viewfinder, mythwrecked: ambrosia island, Rocket League, and Kingdoms and Castles. He has a new EP out called Moonstone. Learn more at aetheraudio.co.uk and @atheraudio.

en

00:22:13

Eye on the Cure Podcast | Episode 43: Marinna Madrid,...

Foundation Fighting Blindness ·

2023/03/31

March 31, 2023. Marinna Madrid, PhD, co-founder and chief product officer at Cellino, talks about her groundbreaking work in developing lasers as a doctoral student and her company’s innovative approach for manufacturing personalized cell-based therapies including those for retinal diseases.

en

00:02:33

News | Vision Improvements Reported for RP Patients...

Foundation Fighting Blindness ·

2023/03/30

Most participants with advanced retinitis pigmentosa (RP) in the trial had improved navigation and/or object discrimination in reduced lighting conditions

en

00:18:44

Eye on the Cure Podcast | Episode 42: Paul Bresge

Foundation Fighting Blindness ·

2023/03/10

March 10, 2023. Paul Bresge, chief executive officer at Ray Therapeutics, talks to host Ben Shaberman about his company’s emerging optogenetic therapy for restoring vision to people with advanced forms of retinitis pigmentosa (RP), Stargardt disease, and geographic atrophy (advanced dry age-related macular degeneration). Paul also reflects on his prior role as chief executive officer at jCyte and how the diagnosis of RP for his daughter changed the trajectory of his career.

en

00:26:03

Eye on the Cure Podcast | Episode 41: Dean Bok, PhD

Foundation Fighting Blindness ·

2023/02/24

February 24, 2023. Dean Bok, PhD, a distinguished professor and renowned researcher at UCLA, talks with host Ben Shaberman about his pivotal discovery in the late 1960s of the daily renewal process for photoreceptors in the retina and other early, groundbreaking discoveries about retinal diseases that laid a foundation for therapy development for years to come.

en

00:31:51

Eye on the Cure Podcast | Episode 40: Rebecca Alexander

Foundation Fighting Blindness ·

2023/02/10

February 10, 2023. Rebecca Alexander — a psychotherapist, keynote speaker, author, fitness instructor, and disability rights advocate — talks candidly with host Ben Shaberman about her journey with Usher syndrome. Reflecting on her own experiences, she discusses how people with vision loss and their loved ones can practice good emotional care and advocate for their needs.

en

00:31:58

Eye on the Cure Podcast | Episode 39: Paul Bernstein,...

Foundation Fighting Blindness ·

2023/01/20

January 20, 2023. Paul Bernstein, MD, PhD, from the Moran Eye Center, University of Utah, and a member of the Foundation’s Scientific Advisory Board talks to host Ben Shaberman about his clinical practice for retinal disease patients, his early research into vitamin A metabolism in the retina, and nutrition for people with retinal conditions such as retinitis pigmentosa and Stargardt disease.

en

00:20:52

Eye on the Cure Podcast | Episode 38: Ben Shaberman

Foundation Fighting Blindness ·

2023/01/06

January 6, 2023. For the first Eye on the Cure episode for 2023, host Ben Shaberman highlights some of the promising clinical advancement made in therapy development over the last year. His recap includes discussions of emerging treatments from: SparingVision, Atsena Therapeutics, Alkeus, Belite, Apellis, Iveric Bio, MeiraGTx, AGTC, 4DMT, and Opus Genetics, which, after the recording of the episode, reported its acquisition of rights to gene therapies for Best disease and RP (RHO).

en

00:34:38

Eye on the Cure Podcast | Episode 37: Rando...

Foundation Fighting Blindness ·

2022/12/16

December 16, 2022. Rando Allikmets, PhD, from Columbia University, talks to host Ben Shaberman about his remarkable and serendipitous discovery more than two decades ago of ABCA4, the gene associated with Stargardt disease. The breakthrough changed the trajectory of his career, changed the landscape of Stargardt disease research, and led to the development of gene therapies and visual cycle modulators.

en

00:02:52

SparingVision Receives Authorization to Launch US...

Foundation Fighting Blindness ·

2022/12/02

The emerging therapy is designed to work independent of the mutated gene causing retinitis pigmentosa

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00:03:06

News | Opus Genetics to Launch Gene Therapy Clinical...

Foundation Fighting Blindness ·

2022/12/02

The LCA5 gene therapy will be the first emerging Opus treatment to move into a human study

en

00:23:21

Eye on the Cure Podcast | Episode 36: Sue Bramhall

Foundation Fighting Blindness ·

2022/12/02

December 2, 2022. Host Ben Shaberman interviews Sue Bramhall who launched Mind's Eye Travel to host journeys around the world for people with vision loss. Affected with RP, Sue channels her passion for travel and planning to organize group adventures that include great eating, tactile experiences, and other non-visual experiences for her guests. Sighted guides also join the excursions to help along the way. Upcoming trips include Europe, Africa, and New Zealand. Learn more at

en

00:21:14

Eye on the Cure Podcast | Episode 35: Kenji Fujita, MD

Foundation Fighting Blindness ·

2022/11/18

November 18, 2022. Kenji Fujita, MD, chief medical officer at Atsena Therapeutics, talks to host Ben Shaberman about retinal disease gene therapies including positive results from his company's gene therapy clinical trial for people with Leber congenital amaurosis 1 (GUCY2D mutations) as well as Atsena's emerging gene therapies for X-linked retinoschisis and Usher syndrome type 1B.

en

00:04:31

Editas Reports Results for 14 Participants in its...

Foundation Fighting Blindness ·

2022/11/18

The company is seeking a partner to move the LCA10 program forward

en

00:25:07

Eye on the Cure Podcast | Episode 34: LambdaVision

Foundation Fighting Blindness ·

2022/11/04

November 4, 2022. In this episode of Eye on the Cure, host Ben Shaberman talks with LambdaVision's Nicole Wagner, PhD, and Jordan Greco, PhD, about the company's emerging protein-based artificial retina, the promise it holds for restoring vision, and the low-gravity, manufacturing experiments that have been conducted at the International Space Station.

en

00:04:09

#ShareYourVision | Advice for the Newly Diagnosed

Foundation Fighting Blindness ·

2022/10/30

A blinding disease diagnosis can be overwhelming. Some good advice can go a long way. Do you have any advice for someone newly diagnosed? #ShareYourVision

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00:03:01

#ShareYourVision | How to Assist a Visually Impaired...

Foundation Fighting Blindness ·

2022/10/28

Ask. Questions. #ShareYourVision to tell others how to best support you.Learn more about how you can #ShareYourVision at: www.FightingBlindness.org/ShareYourVision

en

00:00:50

#ShareYourVision Story: Monica Pruitt

Foundation Fighting Blindness ·

2022/10/27

Monica Pruitt shares her #ShareYourVision story about being diagnosed with Usher syndrome.

en

00:04:01

#ShareYourVision Story: Dan Day

Foundation Fighting Blindness ·

2022/10/26

Dan Day shares his #ShareYourVision story about being diagnosed with retinitis pigmentosa.

en

255 results

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