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PODCAST

Foundation Fighting Blindness

Foundation Fighting Blindness

The Foundation Fighting Blindness is the driving force in the global development of treatments and cures for blinding diseases. To learn more, go to FightingBlindness.org.

science

All Episodes

00:02:25

Octant Bio Begins Clinical Testing Oral Treatment for...

Foundation Fighting Blindness ·

2026/03/11

First-of-its-kind small molecule therapy targets protein misfolding at the root of RHO-adRP

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00:02:37

Opus Genetics Reports Promising Early Results from...

Foundation Fighting Blindness ·

2026/03/02

First patient shows vision improvements with a good safety profile.

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00:35:57

Eye on the Cure Podcast | Episode 100: BEST OF

Foundation Fighting Blindness ·

2026/02/27

To celebrate episode 100 of Eye on the Cure, host Ben Shaberman features highlights from conversations with some of his previous guests including: Dr. Dean Bok from UCLA, Dr. Michel Michaelides from Moorfields Eye Hospital, actor Ben Mehl, triathlete Michael Stone, and jazz keyboardist Matthew Whitaker. This "Best Of" episode is Ben's final for Eye on the Cure, but the podcast will continue on with a new host. Stay tuned!

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00:02:32

SparingVision Completes Dosing in Gene-Agnostic...

Foundation Fighting Blindness ·

2026/02/11

Novel neuroprotective approach could benefit RP patients regardless of genetic mutation

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00:15:28

Blind & Beyond Radio Spotlight: Jason Menzo on Vision...

Foundation Fighting Blindness ·

2026/02/08

Listen to the latest episode of the Blind & Beyond radio show featuring Foundation Fighting Blindness CEO Jason Menzo. Jason discusses the Foundation's mission and the remarkable progress achieved over the past 55 years in advancing diagnostics, treatments, and cures for blinding diseases. He also shares insights into ongoing advocacy efforts on Capitol Hill to preserve critical vision research funding through the FDA and National Eye Institute. The conversation concludes with an invitation for

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00:28:24

Eye on the Cure Podcast | Episode 99: Dr. Prem...

Foundation Fighting Blindness ·

2026/02/06

Dr. Prem Subramanian, of the University of Colorado Sue Anschutz-Rodgers Eye Center and School of Medicine, talks with host Ben Shaberman about thyroid eye disease (TED), a condition that is often misdiagnosed and can cause a range of symptoms including discomfort and vision loss. Dr. Subramanian discusses potential causes, symptoms, and therapeutic approaches. This episode is sponsored by Amgen.

en

00:02:21

Opus Genetics Receives Funding for Gene Therapy...

Foundation Fighting Blindness ·

2026/01/28

Marking an important milestone for this rare form of retinitis pigmentosa (RP)

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00:02:22

AAVantgarde Completes Enrollment in Retinal Gene...

Foundation Fighting Blindness ·

2026/01/16

Milestone brings hope to patients with rare inherited retinal disease

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00:03:13

SpliceBio Begins Dose-Expansion Phase of Clinical...

Foundation Fighting Blindness ·

2026/01/13

First patient treated in Part B of ASTRA trial evaluating SB-007.

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00:47:01

Eye on the Cure Podcast | Episode 98: Jonathan & Josh...

Foundation Fighting Blindness ·

2026/01/09

Josh Steinberg and his father, Jon, talk with host Ben Shaberman about their close-knit family's journey with Josh's vision loss and eventual diagnosis of retinitis pigmentosa, as well as their volunteer leadership roles in driving the Foundation's mission. Jon is Chair of the Foundation's Science Committee and Vice Chair for Science on the Board. Josh is the former Chair of the Strategic Council and also a Board director.

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00:39:37

Eye on the Cure Podcast | Episode 97: Lindsey Rambo

Foundation Fighting Blindness ·

2025/12/19

Lindsey Rambo, a special education teaching assistant, mom, and wife, talks to host Ben Shaberman about her journey with Leber congenital amaurosis 5 (LCA5), participation in Opus Genetics' LCA5 gene therapy clinical trial, and her appearance on Good Morning America to tell her story about meaningful vision improvements.

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00:02:12

Beacon Therapeutics Launches Clinical Trial for...

Foundation Fighting Blindness ·

2025/12/18

The company has also fully enrolled the Phase 2/3 VISTA clinical trial for its XLRP gene therapy.

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00:43:36

Eye on the Cure Podcast | Episode 96: Dr. Deniz Dalkara

Foundation Fighting Blindness ·

2025/12/05

Dr. Deniz Dalkara, a research director at INSERM in France, talks to hose Ben Shaberman about her emerging gene-agnostic, gene therapy designed to restore cone-mediated vision in people with advanced retinitis pigmentosa. Known as SPVN20 and clinically developed by SparingVision, the treatment recently moved into a clinical trial in Europe. Dr. Dakara also discusses her earlier work in retinal gene and optogenetic therapy development.

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00:03:06

Belite Bio to Seek FDA Approval for its Stargardt...

Foundation Fighting Blindness ·

2025/12/02

Tinlarebant slowed disease progression by 36 percent in the Dragon Phase 3 clinical trial.

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00:02:39

Opus Genetics Launches Gene Therapy Clinical Trial...

Foundation Fighting Blindness ·

2025/11/14

The Foundation funded preclinical studies for the approach and launched Opus.

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00:20:49

Eye on the Cure Podcast | Episode 95: Greta Streimikyte

Foundation Fighting Blindness ·

2025/11/14

Greta Streimikyte, a blind para-athletic running champion from Ireland, talks to host Ben Shaberman about growing up with substantial vision loss from retinopathy of prematurity and her competitive running career. Greta has won gold in the women's 1500 meters at the 2018 and 2021 European Para Athletic Championships and is a three-time Paralympian.

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00:53:56

Eye on the Cure Podcast | Episode 94: Dr. Victoria...

Foundation Fighting Blindness ·

2025/10/31

October 31, 2025. Dr. Victoria Claire has commissioned more than 200 sculptures, received an honorary doctorate, and is pursuing a PhD. She talks with host Ben Shaberman about her journey with retinitis pigmentosa, and how blindness has provided her with new and profound insights into herself and perceiving the world. Visitors to her current exhibition, "The Sense of Sculpture" (Oct. 18 - Nov. 1) at The Art House in Wakefield, England, are interacting with her sculptures tactilely in complete

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00:04:23

SparingVision Launches Clinical Trial for Therapy to...

Foundation Fighting Blindness ·

2025/10/28

The approach may provide better visual acuity than current optogenetic therapies in clinical trials.

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00:41:57

Eye on the Cure Podcast | Episode 93: Sam Seavey

Foundation Fighting Blindness ·

2025/10/17

October 17, 2025. Sam Seavey, founder and host of the acclaimed The Blind Life YouTube channel, talks with host Ben Shaberman about his journey with Stargardt disease, some of the latest assistive technologies, and how the 900+ videos on The Blind Life can be informative and helpful for people with low vision.

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00:03:20

Sepul Bio’s LCA10 RNA Therapy Moves into Phase 3...

Foundation Fighting Blindness ·

2025/10/02

The emerging therapy improved vision for some participants in an earlier clinical trial.

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252 results

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