PODCAST

I"m Aware That I"m Rare: the phaware® podcast

I"m Aware That I"m Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because early

health & fitness medicine

All Episodes

Chelsea Price - phaware® interview 464

I"m Aware That I"m Rare: the phaware® podcast ·

2024/04/16

Chelsea Price shares her experience living with pulmonary arterial hypertension (PAH). She emphasizes the importance of having a good support system, including her church community and connecting with other friends with PAH. Chelsea is grateful for the good days she has and strives to be an active mom for her children. Learn even more about Chelsea and PAH at www.OutnumberPAH.com. My name is Chelsea Price. I live in St. Louis, Missouri, and I have pulmonary arterial hypertension (PAH). Shortly

11:11

Episode 464 - Chelsea Price

I"m Aware That I"m Rare: the phaware® podcast ·

2024/04/15

In this episode, Chelsea Price shares her experience living with pulmonary arterial hypertension (PAH). She emphasizes the importance of having a good support system, including her church community and connecting with other friends with PAH. Chelsea is grateful for the good days she has and strives to be an active mom for her children. Discover even more about Chelsea and PAH at www.OutnumberPAH.com. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us

Rajan Saggar, MD - phaware® interview 463

I"m Aware That I"m Rare: the phaware® podcast ·

2024/04/09

Dr. Rajan Saggar, a pulmonologist at the University of California in Los Angeles, discusses the complications of pulmonary hypertension in various lung diseases. He explains that pulmonary hypertension can either be its own disease or can complicate other conditions such as heart disease or lung tissue diseases like emphysema or fibrosis. Dr. Saggar mentions a recent FDA-approved medication for pulmonary hypertension complicating lung tissue diseases, and ongoing research to develop more

10:54

Episode 463 - Rajan Saggar, MD

I"m Aware That I"m Rare: the phaware® podcast ·

2024/04/08

In this episode, Dr. Rajan Saggar, a pulmonologist at the University of California in Los Angeles, discusses the complications of pulmonary hypertension in various lung diseases. He explains that pulmonary hypertension can either be its own disease or can complicate other conditions such as heart disease or lung tissue diseases like emphysema or fibrosis. Dr. Saggar mentions a recent FDA-approved medication for pulmonary hypertension complicating lung tissue diseases, and ongoing research to

Sandeep Sahay, MD - phaware® interview 462

I"m Aware That I"m Rare: the phaware® podcast ·

2024/04/02

Dr. Sandeep Sahay, a pulmonologist at Houston Methodist Hospital, discusses the concept of disease modification in the treatment of pulmonary hypertension (PH). He explains how traditional PH therapies focus on vasodilation, reducing pressure in the pulmonary artery by dilating blood vessels. However, newer therapies, such as sotatercept, work in different ways to reduce smooth muscle proliferation and thickness of the artery walls. Dr. Sahay suggests that if a drug is labeled as

08:45

Episode 462 - Sandeep Sahay, MD

I"m Aware That I"m Rare: the phaware® podcast ·

2024/04/01

In this episode, Dr. Sandeep Sahay, a pulmonologist at Houston Methodist Hospital, discusses the concept of disease modification in the treatment of pulmonary hypertension (PH). He explains how traditional PH therapies focus on vasodilation, reducing pressure in the pulmonary artery by dilating blood vessels. However, newer therapies, such as sotatercept, work in different ways to reduce smooth muscle proliferation and thickness of the artery walls. Dr. Sahay suggests that if a drug is labeled as

UNISUS PAH Clinical Trial - phaware® interview 461

I"m Aware That I"m Rare: the phaware® podcast ·

2024/03/26

SPECIAL EDITION Jonathan Hudson is a Global Trial Leader in Pulmonary Hypertension at Janssen Research & Development and is accompanied by colleague Josephine Garcia-Ferrer, Ph.D and Medical Manager. Jonathan and Josephine discuss Pulmonary Arterial Hypertension (PAH), the importance of clinical trials, what they entail, and share information on Janssen’s UNISUS Study for adults with PAH. Learn more about UNISUS Study with the Janssen Global Trail Finder. Steve Van Wormer: Hello, and welcome

16:04

Episode 461 - UNISUS PAH Clinical Trial

I"m Aware That I"m Rare: the phaware® podcast ·

2024/03/25

SPECIAL EDITION: Jonathan Hudson is a Global Trial Leader in Pulmonary Hypertension at Janssen Research & Development and is accompanied by colleague Josephine Garcia-Ferrer, Ph.D and Medical Manager. Jonathan and Josephine discuss Pulmonary Arterial Hypertension (PAH), the importance of clinical trials, what they entail, and share information on Janssen’s UNISUS Study for adults with PAH. Learn more about UNISUS Study with the Janssen Global Trial Finder. Learn more about pulmonary

Dr. Lewis Romer - phaware® interview 460

I"m Aware That I"m Rare: the phaware® podcast ·

2024/03/19

Dr. Lewis Romer discusses his work on the PPHNet's Kids MoD PAH Trial: Mono- vs. Duo-Therapy for Pediatric PAH patients. The Kids Mod PAH study is a research project funded by the NIH that aims to determine the best initial therapy for children with newly diagnosed pulmonary hypertension. The study compares the effectiveness of one medication (sildenafil) versus a combination of two medications (sildenafil and bosentan) in improving the quality of life and functional class of these children. The

10:46

Episode 460 - Lewis Romer, MD

I"m Aware That I"m Rare: the phaware® podcast ·

2024/03/18

Morris Salem, MD - phaware® interview 459

I"m Aware That I"m Rare: the phaware® podcast ·

2024/03/12

In this episode, Dr. Morris Salem, a pediatric cardiologist, discusses his involvement with Camp del Corazon, a camp for children with congenital heart disease. Dr. Salem emphasizes the importance of addressing the emotional well-being of these patients, in addition to their physical health. He believes that the camp helps boost their self-confidence and allows them to have normal experiences. Dr. Salem also mentions the positive impact the camp has on parents, some of whom become involved in

07:54

Episode 459 - Morris Salem, MD

I"m Aware That I"m Rare: the phaware® podcast ·

2024/03/11

Brittany Valim - phaware® interview 458

I"m Aware That I"m Rare: the phaware® podcast ·

2024/03/05

Brittany Valim shares her experience with pulmonary hypertension and her journey towards a heart and double lung transplant. She now lives a fulfilling life as a mother, student, and aspiring nurse. Brittany encourages others to embrace life and ride the wave, appreciating the rarity of their experiences. Hello, my name is Brittany Valim. I am 34 years old, and I was diagnosed with pulmonary hypertension in 2010. In 2009, I decided to go on a big hike, they're called the Punch Bowls in Santa

13:21

Episode 458 - Brittany Valim

I"m Aware That I"m Rare: the phaware® podcast ·

2024/03/04

In this episode, Brittany Valim shares her experience with pulmonary hypertension and her journey towards a heart and double lung transplant. She now lives a fulfilling life as a mother, student, and aspiring nurse. Brittany encourages others to embrace life and ride the wave, appreciating the rarity of their experiences. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware Share your

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I"m Aware That I"m Rare: the phaware® podcast

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