PODCAST

I"m Aware That I"m Rare: the phaware® podcast

I"m Aware That I"m Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because early

health & fitness medicine

All Episodes

Gaurav Choudhary, MD - phaware® interview 557

I"m Aware That I"m Rare: the phaware® podcast ·

2026/01/28

How an AI Stethoscope Could Transform Global Healthcare What if diagnosing PH didn't require an echo or heart catheterization—but just a AI powered stethoscope? Dr. Gaurav Choudhary talks real-world use cases, validation studies, and the global potential of portable, AI-powered diagnostics in under-resourced settings. My name is Gaurav Choudhary. I'm a cardiologist. I'm in Providence, Rhode Island. I'm a Professor of Medicine at Brown University, Alpert Medical School of Brown University. As

16:21

Episode 557 - Gaurav Choudhary, MD

I"m Aware That I"m Rare: the phaware® podcast ·

2026/01/27

How an AI Stethoscope Could Transform Global Healthcare What if diagnosing PH didn't require an echo or heart catheterization—but just a AI powered stethoscope? Dr. Gaurav Choudhary talks real-world use cases, validation studies, and the global potential of portable, AI-powered diagnostics in under-resourced settings. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware

Lenise Whitley - phaware® interview 556

I"m Aware That I"m Rare: the phaware® podcast ·

2026/01/21

The Loneliness of Pulmonary Hypertension After years of being dismissed, misdiagnosed, and told nothing was wrong, Lenise Whitley finally got an answer - pulmonary hypertension. In this powerful episode, she shares her journey through cardiac arrest, loss, faith, and isolation, and how support groups, advocacy, and self-belief helped her reclaim her voice. A raw, honest reminder of why being heard can be lifesaving. My name is Lenise Whitley. I currently live in Brooklyn, New York. I've been there

12:47

Episode 556 - Lenise Whitley

I"m Aware That I"m Rare: the phaware® podcast ·

2026/01/20

Nicole Fitzgerald - phaware® interview 555

I"m Aware That I"m Rare: the phaware® podcast ·

2026/01/14

One Teacher's Unexpected Battle with a Silent Killer Nicole Fitzgerald was a full-time special ed teacher juggling work, family, and a big move—until breathlessness and fatigue nearly took her life. What started as stress turned into a life-threatening diagnosis. This is the story of how she faced pulmonary hypertension head-on and redefined her purpose. My name is Nicole Fitzgerald. I am 43 years old. I'm originally from Los Angeles, but I now live in Oklahoma City. I was diagnosed in February of

18:58

Episode 555 - Nicole Fitzgerald

I"m Aware That I"m Rare: the phaware® podcast ·

2026/01/13

One Teacher's Unexpected Battle with a Silent Killer Nicole Fitzgerald was a full-time special ed teacher juggling work, family, and a big move—until breathlessness and fatigue nearly took her life. What started as stress turned into a life-threatening diagnosis. This is the story of how she faced pulmonary hypertension head-on and redefined her purpose. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a

Jean Elwing, MD phaware® interview 554

I"m Aware That I"m Rare: the phaware® podcast ·

2026/01/07

Telehealth Is Ending: What That Means for PH Patients Telehealth use surged during COVID, but what happens next? Dr. Jean Elwing discusses the rapid expansion of telemedicine in pulmonary hypertension, the upcoming expiration of COVID-era telehealth funding in 2026, and why licensure and reimbursement policies could dramatically affect patient care. This episode highlights what's at stake for rare disease patients and why advocacy and awareness are essential to sustaining virtual care options. My

09:37

Episode 554 - Jean Elwing, MD

I"m Aware That I"m Rare: the phaware® podcast ·

2026/01/06

Jasmine Wells - phaware® interview 553

I"m Aware That I"m Rare: the phaware® podcast ·

2025/12/31

You Can Grieve and Still Fight: Love, Loss, and Living with PAH She cried for the life she lost. Then, she fought for the one she has. PAH patient, Jasmine Wells discusses what it really means to grieve the old you while finding purpose in the new. From navigating relationships, infections, and fear of transplant, to leading support groups and fighting misinformation. My name is Jasmine Wells. I grew up in Jackson, Michigan. I moved to Texas when I was married. Then, I moved back with my ex to

13:16

Episode 553 - Jasmine Wells

I"m Aware That I"m Rare: the phaware® podcast ·

2025/12/30

You Can Grieve and Still Fight: Love, Loss, and Living with PAH She cried for the life she lost. Then, she fought for the one she has. PAH patient, Jasmine Wells discusses what it really means to grieve the old you while finding purpose in the new. From navigating relationships, infections, and fear of transplant, to leading support groups and fighting misinformation. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a

Kevin Allen - phaware® interview 552

I"m Aware That I"m Rare: the phaware® podcast ·

2025/12/24

The Pulse of a Fighter: Survival, Stigma, and Shaking Up HealthcareThey told him he had months to live. He used them to rewrite the rules. Kevin Allen survived near-death, systemic medical neglect, and an invisible disability most physicians don't understand. Today, he's pushing policy, pressuring universities, and pioneering new models of PH patient-centered care. My name is Kevin Allen. I am a psychological science pre-med major at Texas Tech University in Lubbock, Texas. I was diagnosed with

27:12

Episode 552 - Kevin Allen

I"m Aware That I"m Rare: the phaware® podcast ·

2025/12/23

The Pulse of a Fighter: Survival, Stigma, and Shaking Up HealthcareThey told him he had months to live. He used them to rewrite the rules. Kevin Allen survived near-death, systemic medical neglect, and an invisible disability most physicians don't understand. Today, he's pushing policy, pressuring universities, and pioneering new models of PH patient-centered care. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a

Russel Hirsch, MD - phaware® interview 551

I"m Aware That I"m Rare: the phaware® podcast ·

2025/12/17

Why Families Belong at the Table: PHriends of the PPHNet Dr. Russel Hirsch breaks down the core pillars of the PPHNet, from shared research to consistent care standards, and explains why the next chapter in pediatric pulmonary hypertension care must be written with families, not just for them through the PHriends family-led committee. My name is Russel Hirsch. I'm a physician, pediatrician, pediatric cardiologist, and I work out of Cincinnati Children's Hospital. I've been in the United States now

10:27

Episode 551 - Russel Hirsch, MD

I"m Aware That I"m Rare: the phaware® podcast ·

2025/12/16

Why Families Belong at the Table: PHriends of the PPHNet Dr. Russel Hirsch breaks down the core pillars of the PPHNet, from shared research to consistent care standards, and explains why the next chapter in pediatric pulmonary hypertension care must be written with families, not just for them through the PHriends family-led committee. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate

Jennifer Keeley, DPN and Mary Whittenhall, MSN -...

I"m Aware That I"m Rare: the phaware® podcast ·

2025/12/10

Jennifer Keeley and Mary Whittenhall, experienced nurse practitioners in the field of pulmonary hypertension, discuss the management of cough in patients receiving inhaled therapies for pulmonary hypertension and interstitial lung disease. #GossamerBioPartner #sponsored This Special Edition episode is sponsored by Gossamer Bio. Jennifer Keeley, DPN: My name's Jennifer Keeley. I'm a nurse practitioner and I practice in a large academic institution in Pittsburgh, Pennsylvania, Allegheny Health

29:41

Episode 550 - Jennifer Keeley, DPN and Mary...

I"m Aware That I"m Rare: the phaware® podcast ·

2025/12/09

Jennifer Keeley and Mary Whittenhall, experienced nurse practitioners in the field of pulmonary hypertension, discuss the management of cough in patients receiving inhaled therapies for pulmonary hypertension and interstitial lung disease. #GossamerBioPartner #sponsored This Special Edition episode is sponsored by Gossamer Bio. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Engage for a cure: www.phaware.global/donate #phaware Share your

Ashlee Gambino - phaware® interview 549

I"m Aware That I"m Rare: the phaware® podcast ·

2025/12/03

My name is Ashlee "The Mobwife" Gambino. I'm a retired professional fighter. I've acted. I've done a lot of different things. I am now diagnosed with idiopathic pulmonary arterial hypertension. I'm in the severe category, so it's pretty far along. I can no longer fight, unfortunately. I have a central line pumping life-sustaining medication directly into my heart right now. I performed on Fremont Street for two years when we first moved to Las Vegas. As a fighter, I would hand people a pair of

12:24

Episode 549 - Ashlee Gambino

I"m Aware That I"m Rare: the phaware® podcast ·

2025/12/01

FIGHTER TO SURVIVOR: ASHLEE GAMBINO'S BATTLE BEYOND THE RING In this gripping episode, Ashlee "The Mobwife" Gambino shares her journey from a fierce MMA and professional boxing career to battling idiopathic pulmonary arterial hypertension. Discover how she turned her fighter's mindset into a lifeline, navigating the unimaginable loss of her daughter, Katana, and fighting for her life with relentless determination. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials

Sophia Esteves - phaware® interview 548

I"m Aware That I"m Rare: the phaware® podcast ·

2025/11/26

Scars and Survival: Rebuilding Life After a Devastating Diagnosis After countless hospital stays, new medications, and near-breaking points, Sophia Esteves found the reason she wanted to live—and it wasn't just for herself. This episode dives into her spiritual and emotional transformation from patient to powerhouse advocate, and how she now helps others reclaim hope through honesty and grit. My name is Sophia Esteves. I am living in San Antonio where I grew up. My connection to pulmonary

13:05

Episode 548 - Sophia Esteves

I"m Aware That I"m Rare: the phaware® podcast ·

2025/11/25

Scars and Survival: Rebuilding Life After a Devastating Diagnosis After countless hospital stays, new medications, and near-breaking points, Sophia Esteves found the reason she wanted to live—and it wasn't just for herself. This episode dives into her spiritual and emotional transformation from patient to powerhouse advocate, and how she now helps others reclaim hope through honesty and grit. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social

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I"m Aware That I"m Rare: the phaware® podcast

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