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PODCAST

Retina UK

Retina UK supports people affected by inherited progressive sight loss and invests in medical research to ensure that people an lead a fulfilling life, now and in the future.

business non-profit

All Episodes

00:17:09

Our community experiences of genetic testing and...

Retina UK ·

2021/04/21

Bhavini and Martin share their very different experiences of genetic testing and counselling with Kate, Retina UK’s Research Development Manager.

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00:00:46

Genetic testing and counselling - Martin's story

Retina UK ·

2021/04/21

“My genetic counselling was a very positive experience and one which I really recommend. It was undertaken in a specialist multidisciplinary genetic clinic and was combined with taking blood samples for genetic testing on the day. “The counselling was informative, thorough and sensitively carried out and covered both myself and my wider family which confirmed the “type” of RP we have. With the huge advances in genetic understanding being made in the medical sector, I believe that counselling will

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00:01:17

Genetic testing and counselling - Bhavini's story

Retina UK ·

2021/04/21

Bhavini talks about her experience of genetic testing and counselling

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00:39:07

Unlock Genetics

Retina UK ·

2021/04/21

The different tracks within this episode feature Retina UK Research Development Manager Kate Arkell in conversation with Georgina Hall, Consultant Genetic Counsellor at the Manchester Centre for Genomic Studies about why you might consider getting a genetic test. It is followed by Retina UK Information and Support Manager Denise, who speaks to Georgina about the practicalities of getting a genetic test. Finally Bhavini and Martin share their very different experiences of genetic testing and

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03:50:22

Retina UK Professionals' Conference - April 2021

Retina UK ·

2021/04/21

The Conference took place on Friday 16 April 2021. It was held online due to restrictions currently in place. The programme is available to download as follows: PDF format: https://retinauk.org.uk/wp-content/uploads/2021/04/Professionals-Conf-2021-FINAL-2.pdf Word format: https://retinauk.org.uk/wp-content/uploads/2021/04/Retina-UK-Professionals-Conference2021.docx

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04:07:25

Retina UK Annual Conference - April 2021

Retina UK ·

2021/04/21

The Conference took place on Saturday 17 April 2021. It was held online due to restrictions currently in place. The programme is available to download as follows: Programme in PDF format: https://retinauk.org.uk/wp-content/uploads/2021/04/Retina-UK-annual-conf-prog_2021-FINAL-2.pdf Programme in Word format: https://retinauk.org.uk/wp-content/uploads/2021/04/Retina-UK-Annual-Conference2021.docx The programme is also available in audio format on this channel.

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00:20:17

Retina UK Annual Conference & AGM 2021 - Programme

Retina UK ·

2021/04/15

Annual Conference - 17 April 2021, starting at 9.30am with the AGM, followed by the Conference at 10.00am. More information is available on the Retina UK website at www.RetinaUK.org.uk/annual-conference.

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00:08:38

E-Newsletter March 2021

Retina UK ·

2021/03/29

A PDF copy of this recording is available at:https://retinauk.org.uk/information-support/publications/

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00:10:08

Why you might consider getting a genetic test

Retina UK ·

2021/03/24

Retina UK Research Development Manager Kate in conversation with Georgina Hall, Consultant Genetic Counsellor at the Manchester Centre for Genomic Studies about why you might consider getting a genetic test.

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00:11:10

The practicalities of getting a genetic test

Retina UK ·

2021/03/24

Retina UK Information and Support Manager Denise Rawden speaks to Georgina Hall, Consultant Genetic Counsellor at the Manchester Centre for Genomic Medicine. Whole genome sequencing is now routine for genetic testing for inherited retinal conditions (March 2022).

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00:53:37

Look Forward - Spring 2021 - Issue 173

Retina UK ·

2021/02/24

This is the audio edition of the Retina UK Newsletter, Look Forward - Spring 2021 (Issue 173)

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00:16:17

From Small Beginnings: an interview with Lynda...

Retina UK ·

2021/02/24

A written article based on this recorded interview is available in the Spring 2021 edition of our Newsletter, Look Forward: https://retinauk.org.uk/information-support/publications/

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00:07:46

E-Newsletter January 2021

Retina UK ·

2021/01/25

A PDF copy is available here: https://retinauk.org.uk/information-support/publications/

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00:07:13

E-Newsletter December 2020

Retina UK ·

2020/12/04

Latest Retina UK Podcast features Luxturna treatment Retina UK Annual Conference The Big Give Christmas Challenge Charles Bonnet Syndrome Patient Information Event Local groups Christmas Raffle Tech tip Sight Village news 10 for 10 Virtual Challenge

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00:33:24

First NHS treatment for an inherited retinal...

Retina UK ·

2020/11/30

Retina UK Research Development Manager Kate Arkell speaks to three of the first people to receive the Luxturna (voretigene neparvovec) treatment in the UK. Jake, Lee and Matt all received the Luxturna gene therapy at the start of 2020. They all have two faulty copies of the RPE65 gene and are living with Leber congenital amaurosis type 2 (LCA2) and severe early-onset RP.

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00:52:07

Look Forward - Winter 2020 - Issue 172

Retina UK ·

2020/11/02

This is the audio edition of the Retina UK Newsletter, Look Forward - Winter 2020 (Issue 172)

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00:06:20

E-Newsletter October 2020

Retina UK ·

2020/10/13

This edition includes details about: The Retina UK Christmas raffle Usher Kids UK family Zoom calls Charles Bonnet syndrome patient information event The difference we made in 2019 Virgin Money London Marathon 2021 Volunteers needed to test new memory stick project

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00:34:34

The new MyEyeSite application and how it will give...

Retina UK ·

2020/10/06

Retina UK Research Manager, Kate Arkell, speaks to Professor Andrew Webster, Professor of Molecular Ophthalmology at University College London and Consultant Ophthalmologist at Moorfields Eye Hospital; Dr Nikolas Pontikos, Computational Scientist, currently a Eye Moorfields Charity career development Fellow at University College London and Nick Nettleton, Founder and CEO at Loft Digital. The MyEyeSite application aims to give people with living with rare eye conditions ownership of their own digital

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00:03:42

Impact Report 2019

Retina UK ·

2020/09/22

Thanks to you ... The impact we made in 2019

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00:06:56

E-Newsletter - September 2020

Retina UK ·

2020/09/15

This E-Newsletter includes information about: Our BBC Lifeline appeal Virtual local group meetings Research funding Royal Parks half marathon Volunteers needed to test new app Christmas raffle Audio material Feedback

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246 results

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