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PODCAST

Retina UK

Retina UK supports people affected by inherited progressive sight loss and invests in medical research to ensure that people an lead a fulfilling life, now and in the future.

business non-profit

All Episodes

01:05:56

Look Forward - Spring 2026 (issue 189)

Retina UK ·

2026/02/26

This is the audio edition of the Retina UK Newsletter, Look Forward - Spring 2026 (Issue 189). You can download a copy in PDF and Word format on the Retina UK website: https://retinauk.org.uk/resources.Contents in this edition are as follows:A heartfelt thank you for standing with us (Tina Garvey)Staying connected: Small changes, big impactJoin us for the grand finale to our 50th anniversary year!Research news round upTwo journeys, one desertVolunteer spotlight: Building peer support in the

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00:20:04

Podcast: Meet the Professionals - Genetic Counsellor

Retina UK ·

2026/02/25

In this opening episode of our Meet the Professionals series, Lauren speaks with Sian, a Genetic Counsellor supporting people living with inherited retinal conditions. Together, they unpack what genetic counselling involves, how it can help individuals and families understand their diagnosis, and what to expect from the genetic testing process.Sian discusses her background, the emotional and practical support she provides, and the types of questions people often bring to their appointments. She also

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00:36:17

Podcast: Steps through the sand: stories from the...

Retina UK ·

2026/01/20

In “Steps Through the Sand: stories from the Retina UK Sahara Trek”, you’ll hear firsthand from some of our amazing trekkers who took on this once-in-a-lifetime challenge – trekking across the vast Sahara Desert to raise vital funds and awareness for people affected by inherited sight loss.Our speakers share their personal stories, memorable moments, and the highs and lows of life in the desert, from the blazing dunes to the powerful sense of teamwork and purpose that carried them through.Whether

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00:08:49

E-Newsletter January 2026

Retina UK ·

2026/01/16

The latest e-newsletter from Retina UK.

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00:35:58

Podcast: Eye tests: find out more about what to...

Retina UK ·

2025/12/19

In this Retina UK podcast, Research Development Manager Kate Arkell is joined by Laura Taylor, Research Optometrist with the Oxford Eye Research Group, and Randa Li, Ophthalmologist at Moorfields Eye Hospital, to explain the wide range of tests used in the diagnosis and monitoring of inherited retinal diseases (IRDs).Across the discussion, Laura and Randa address common misconceptions, practical tips for preparing for appointments, and the importance of regular monitoring. The episode aims to give

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00:49:07

Webinar: Ask the expert with Professor Marcela Votruba

Retina UK ·

2025/12/15

Joining us for an "Ask the Expert" session is Professor Marcela Votruba, Professor of Ophthalmology at Cardiff University and consultant at University Hospital Wales where she runs a genetic eye clinic.During the session, participants had the opportunity to ask questions submitted in advance as well as engage in a live Q&A. The discussion covered a wide range of topics, from personal concerns to the latest developments in ophthalmology research.Thank you to everyone who joined us and

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00:05:53

E-Newsletter December 2025

Retina UK ·

2025/12/11

The latest e-Newsletter from Retina UK.Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit https://retinauk.org.uk/get-involved/donate/ to sign up, or, if you prefer, call us on 01280 821442

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00:11:07

Podcast: Retina UK BBC Lifeline Appeal with Louisa...

Retina UK ·

2025/11/28

In this special episode of the Retina UK Podcast, Lauren is joined by actress and BBC Lifeline spokesperson Louisa Lytton to talk about the recent BBC Lifeline Appeal in support of Retina UK.Louisa opens up about her personal connection to inherited sight loss, what inspired her to champion the appeal, and the moments during filming that stayed with her. Together, Lauren and Louisa explore why raising awareness matters, how Retina UK supports individuals and families across the country, and the

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01:02:33

Look Forward - Winter 2025 (Issue 188)

Retina UK ·

2025/11/19

This is the audio edition of the Retina UK Newsletter, Look Forward - Winter 2025 (Issue 188). You can download a copy in PDF and Word format on the Retina UK website: ⁠⁠⁠⁠⁠⁠⁠RetinaUK.org.uk/resources⁠⁠⁠⁠⁠⁠⁠.Contents in this edition are as follows:A fantastic start to our Anniversary year (Tina Garvey)Keep laughingAn incredible couple of days!Research news round upTake on a challenge and help change livesTop tech newsThank youPAID ADVERTISEMENT: Navis touchpulse - Your Guide to the WorldDouble your

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01:13:53

Retina UK Sight Loss Survey 2025

Retina UK ·

2025/11/19

Findings from our survey of over 600 people living with inherited sight loss.June 2025Copies of this report in plain text and PDF formats can be found on the Retina UK website: RetinaUK.org.uk/resource/retina-uk-sight-loss-survey/

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00:15:36

The year ahead in fundraising with Retina UK

Retina UK ·

2025/10/29

In this episode we are joined by two of our fantastic fundraising team members; Joe, our Community and Events Coordinator and James, our Head of Income Generation - to give us a sneak peek at some of the exciting events and appeals we have coming up over the next year. We have lots going on as we continue to celebrate our 50th year at Retina UK, and there is something for everyone!

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00:10:14

E-Newsletter October 2025

Retina UK ·

2025/10/24

The latest e-Newsletter from Retina UK.Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit https://retinauk.org.uk/get-involved/donate/ to sign up, or, if you prefer, call us on 01280 821442

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00:43:49

Webinar: Getting active: sport and sight loss with...

Retina UK ·

2025/10/21

Retina UK is delighted to be hosting a webinar with British Blind Sport.This session will highlight how sport and physical activity can play a powerful role in boosting health, confidence and wellbeing for people living with sight loss. You’ll also hear from British Blind Sport about who they are, the support they offer, and the wide range of opportunities available through their membership, events and activities.Whether you’re already active or just looking to get started, this webinar will provide

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00:41:33

Annual Conference 2025 - Ask the expert

Retina UK ·

2025/09/25

Professor Julie Silvestri

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00:59:10

Annual Conference 2025: Together we thrive: Exploring...

Retina UK ·

2025/09/25

Community members share their experiences:EmploymentSport and leisureMobility and travelDay-to-day living

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00:26:56

Annual Conference 2025: Creating change together

Retina UK ·

2025/09/25

James Clarke, Head of Income Generation, Retina UK

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00:23:07

Annual Conference 2025: Iterative innovation and...

Retina UK ·

2025/09/25

Christopher Patnoe, Head of EMEA Accessibility and Disability Innovation at Google

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00:30:09

Annual Conference 2025: From bench to breakthrough:...

Retina UK ·

2025/09/25

Speakers from AAVantgarde, Octant, Alkeus Pharmaceuticals, Sepul Bio and Beacon Therapeutics

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00:21:49

Annual Conference 2025: Restoring the retina: a...

Retina UK ·

2025/09/25

Professor Jane Sowden, Professor of Developmental Biology and Genetics at University College London (UCL) Great Ormond Street Institute of Child Health

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00:26:48

Annual Conference 2025: The journey so far: genes,...

Retina UK ·

2025/09/25

Professor Michel Michaelides, Professor of Ophthalmology, University College London and Consultant Ophthalmic Surgeon, Moorfields Eye Hospital

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