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PODCAST

The Heart of Hospice Podcast

Hosted by Helen Bauer, BSN RN CHPN

The Heart of Hospice podcast is dedicated to helping personal and professional caregivers who are caring for someone with serious illness. We"re here to provide information and education so people can make informed choices about end of life care.

health & fitness medicine

All Episodes

00:58:39

What You Need to Know About the End Well Project with...

The Heart of Hospice Podcast ·

2022/10/07

End Well’s Executive Director Tracy Wheeler is talking with us about end of life discussions, transforming how we think about death, and the launch of End Well’s new podcast! End Well’s goal as a non-profit organization is to “bring together a community that unites design, technology, health, policy, and activist initiatives to transform how the world thinks about caregiving, grief, illness and the end of life experience with the ultimate goal of creating a future where ending well becomes a

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00:54:54

How to Manage Disenfranchised Grief with Carol...

The Heart of Hospice Podcast ·

2022/09/30

End of life educator Carol Schoneberg is sharing wisdom about disenfranchised grief, the grief that society says isn’t real, but we all experience. There are a lot of reasons someone’s grief might be disenfranchised. Dysfunctional relationships where there was abuse, or former relationships like ex-spouses can be sources of grief that’s not recognized by the people around us. That disenfranchisement makes us feel isolated, even invisible. Carol teaches us how important it is to have

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00:58:19

Sharing CJ's Legacy: A Story About Pediatric Hospice...

The Heart of Hospice Podcast ·

2022/09/23

Warning: This episode contains a description of the loss of a terminally ill infant. It may not be for all listeners. Boy mom and advocate Kasey Carmona shares the story of her family’s hospice journey with her son CJ. Using her voice to advocate for her baby’s healthcare, Kasey and her family created quality of life for CJ. What they found were moments of joy and pockets of goodness in a difficult journey. Our gratitude goes out to Kasey for her generosity of heart in sharing their story.

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00:53:22

How to Make Funeral Planning Easier with The Love...

The Heart of Hospice Podcast ·

2022/09/16

Our guest Dean Lambert of The Love Always Project knows firsthand how difficult it is to make funeral arrangements, even after 30 years working with funeral professionals. According to The Love Always Project website, “Dean Lambert has worked with funeral professionals for nearly 30 years to help them connect and serve the families facing one of the most challenging moments of their lives: the loss of a loved one. As a father who has himself experienced the loss of a child, he knows first hand

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00:51:07

What You Need to Know About the Messiness of Grief...

The Heart of Hospice Podcast ·

2022/09/09

Widowhood, caregiving, and the messiness of grief are just some of the topics we’re talking about with guest John Polo. According to his website, johnpolocoaching.com, “John is a coach, author, and speaker. In January of 2016, John became a widower after his amazing wife, Michelle, died of cancer. From the rubble of everything that he once knew, consumed by desperation and despair, John held on long enough until he found his hope. And he slowly rebuilt. Today John helps others through his

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00:46:12

Talking about The Narrative Initiative with Dr....

The Heart of Hospice Podcast ·

2022/09/02

We’re honored to talk with Dr. Lorraine Dickey about The Narrative Initiative and the benefits of its Write-Read-Reflect method for both patients and staff. Dr. Dickey is an innovator and activist for a better experience of care within the healthcare system. She is a healthcare entrepreneur and a motivational speaker as well as a board-certified Neonatologist, board-certified Pediatric Hospice and Palliative medicine physician, and certified in Pediatric Bioethics. Lorraine is also the CEO

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00:53:03

A Conversation with Judy Cornish, Creator of the DAWN...

The Heart of Hospice Podcast ·

2022/08/26

Our guest Judy Cornish is the founder of the Dementia & Alzheimer’s Wellbeing Network and the creator of the DAWN Method, a method for working with people who have dementia that helps them develop and retain a sense of security and wellbeing. As an elder law attorney, Judy had no experience with people with dementia until she met a new neighbor and began to help her lead a full life. Judy identified that the medical model doesn’t work well when it comes to managing life with dementia. She

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00:42:17

The Heart of a Hospice Administrator with Zaundra...

The Heart of Hospice Podcast ·

2022/08/19

Our guest Zaundra Ellis believes in servant leadership and has practiced it for over 20 years serving in hospice care. Zaundra has held many positions in hospice agencies, from executive director to her current role as Vice President of Hospice Solutions for Axxess Solutions. Through the years, she’s learned lessons about leadership and the importance of caring for the hospice team while they care for patients and families. She is a nationally recognized hospice thought leader and member of

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01:01:45

A Death Perspective with Rabbi Steve Leder, Episode 116

The Heart of Hospice Podcast ·

2022/08/12

In this episode, our guest Rabbi Steve Leder shares his perspective on dying and how the death of his father forever changed him. Steve Leder is the senior rabbi of Wilshire Boulevard Temple in Los Angeles. After receiving his degree in writing and graduating cum laude from Northwestern University, and spending time studying at Trinity College, Oxford University, Leder received a master’s degree in Hebrew letters in 1986 and rabbinical ordination in 1987 from Hebrew Union College. He is the

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00:54:07

What You Need to Know about Advance Care Planning...

The Heart of Hospice Podcast ·

2022/08/05

Dr. Jim deMaine is with us to talk with us about advocacy in serious illness and his book Facing Death: Finding Dignity Hope and Healing at the End. Dr. deMaine is a retired Pulmonary and Critical Care physician, an accomplished public speaker, and an outspoken advocate for end-of-life decisions. In his book Facing Death: Finding Dignity, Hope and Healing at the End, Jim shares numerous stories that serve as cautionary tales about completing advance care planning discussions prior to a serious

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00:56:41

What You Need To Know About Medical Aid In Dying: A...

The Heart of Hospice Podcast ·

2022/08/01

Anthropologist Anita Hannig is talking with us about Medical Aid in Dying, misconceptions about assisted dying laws, and her new book The Day I Die: The Untold Story of Assisted Dying in America. Every end of life professional should be informed about what medical aid in dying really is. MAID laws, otherwise known as Death with Dignity laws, have been passed in ten states across the U.S. as well as Washington, D.C. Regardless of whether their state has a law permitting MAID, it’s important

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00:14:22

What You Need to Know About Comfort Feedings,...

The Heart of Hospice Podcast ·

2022/07/29

We’re talking about comfort feedings today, how they work and the benefits they hold for hospice patients and their caregivers. Comfort feeding, (also pleasure feeding, is the practice of feeding the patient only what the patient likes and wants. It might not be considered particularly healthy. It’s more about enhancing quality of life for the patient. The focus of food intake is on comfort rather than good nutrition. The choices about food and drink are driven by the patient’s ability to

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00:12:59

Empathy.com Supports Grievers When They Need It the Most

The Heart of Hospice Podcast ·

2022/07/22

Navigating the maze of responsibilities following a death can be overwhelming. Empathy.com can help. The Empathy founders know that loss-related tasks are many, ranging from writing an obituary to closing out business accounts and subscriptions. On the Empathy website, you’ll find resources to help with choosing a funeral home and celebrant, writing a eulogy, and dealing with issues related to the will. Empathy Care Specialists are available to offer guidance and services to walk through the

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00:58:05

How to Do Death Better with Dr. BJ Miller, Episode 113

The Heart of Hospice Podcast ·

2022/07/15

We’re honored to feature hospice physician and innovator BJ Miller in an amazing discussion about strengths, trends, and the future of end-of-life care. Dr. Miller is an advocate, thought-leader, and leader on the front lines of end-of-life care. He has been a physician for 19 years and has counseled over 1,000 patients and family members. This vast experience has led him to understand what people really need when dealing with difficult health situations. His TED Talk, What Really Matters

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00:22:07

Know Your Patient Rights Series 5, Heartbeat Episode 294

The Heart of Hospice Podcast ·

2022/07/08

In the final episode of our Patient Right series, we’re talking about the right to choose medications, equipment, and who makes visits to the home. The care that’s provided for a hospice patient is collected into something called a Plan of Care. That Plan of Care includes every intervention the hospice team provides, including medications, any medical equipment that’s needed, and which disciplines on the hospice team will make visits with the patient. There’s a lot of information in a Plan

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00:56:17

How to Care for Your Team Beyond the Ordinary with...

The Heart of Hospice Podcast ·

2022/07/01

Meet RN Keisha Jones and Dr. Michelle Owens of Hospice Austin and hear how they take extraordinary care of their hospice team with a debriefing program. . After seeing signs of accelerated compassion and moral fatigue in their hospice clinical team in 2021, Keisha and Michelle realized there was more needed beyond pizza parties. They put their heads together to create a debriefing program. As director of the clinical team, Keisha saw that nurses and other clinicians were deeply involved with

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00:13:53

Know Your Patient Rights Series #4, Heartbeat Episode...

The Heart of Hospice Podcast ·

2022/06/24

Hospice patients have the right to start and stop hospice care. Your hospice, your choices. After a physician determines that a patient has a “terminal prognosis” - a six-month life expectancy, a patient can be admitted to hospice if the patient chooses to start, or “elect”, hospice. The patient might still refuse to start hospice. There are numerous reasons why that might happen. Feeling like hospice is giving up hope, waiting for test results, or wanting to pass a milestone anniversary or

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00:08:04

Know Your Patient Rights Series #3, Heartbeat Episode...

The Heart of Hospice Podcast ·

2022/06/17

In episode 3 of our Patient Rights series, we’re talking about the right to choose a physician to manage a patient’s care while on hospice. When receiving hospice care, the patient or decision-maker has the right to choose which physician will manage care. The hospice agency is required to let the patient know he can choose an “attending physician”, a doctor who works alongside the hospice medical director and the hospice interdisciplinary team. Patients often ask a doctor who’s been their

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00:51:13

How to Be the Best Caregiver for Your Loved One with...

The Heart of Hospice Podcast ·

2022/06/15

Caregiving for someone with Alzheimer’s or dementia holds its special challenges. Jennifer Fink of the Fading Memories Podcast is with us to share her caregiving experience. Jennifer became the caregiver for her mom after the death of her dad. Experiencing all the frustration and challenges, Jennifer looked for podcasts that could help. After not finding what she needed, Jennifer launched the Fading Memories podcast. The podcast content is designed to help anyone who is providing care for

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00:13:30

Know Your Patient Rights Series #2, Heartbeat Episode...

The Heart of Hospice Podcast ·

2022/06/10

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