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PODCAST

The Heart of Hospice Podcast

Hosted by Helen Bauer, BSN RN CHPN

The Heart of Hospice podcast is dedicated to helping personal and professional caregivers who are caring for someone with serious illness. We"re here to provide information and education so people can make informed choices about end of life care.

health & fitness medicine

All Episodes

00:21:57

How to Create Your Advance Care Plan Series with The...

The Heart of Hospice Podcast ·

2022/11/15

In the 3rd episode of our Advance Care Plan series, Rosemary Lloyd talks about how faith communities can support Advance Care Plan discussions using resources from The Conversation Project. Rev. Rosemary Lloyd was formerly the Advisor to Faith Communities for The Conversation Project. She’s also a registered nurse, hospice volunteer, and an ordained Unitarian Universalist minister. Rosemary is an outspoken advocate for including our spiritual beliefs in advance care planning. Using resources

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00:43:27

How To Create Treasured End Of Life Memories With The...

The Heart of Hospice Podcast ·

2022/11/11

Dr. Thanh Neville is talking with us about the benefits of granting end of life wishes through the 3 Wishes Program at UCLA Health. Dr. Neville joined the faculty in the UCLA Division of Pulmonary and Critical Care in 2012 and is both a clinician and a researcher. In 2017, she co-founded the 3 Wishes Program and is currently its Medical Director. According to the UCLA Health website, clinical staff works with the patient and family, finding favorite memories or special qualities about the

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00:28:32

How to Create Your Advance Care Plan Series with The...

The Heart of Hospice Podcast ·

2022/11/08

Welcome to the second episode of our Advance Care Plan Series in partnership with The Conversation Project, featuring TCP’s Improvement Advisor for Community Engagement and Learning Patty Webster! Whether you want to have ACP conversations in a group of 5 of 500, The Conversation Project has the resources to get those discussions started. Through shared stories on TCP’s website, users can find examples of how other community groups are utilizing TCP’s resources. There’s a Starter Guide to

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00:46:38

Learn How GrandPad Can Make Life Better for Seniors...

The Heart of Hospice Podcast ·

2022/11/04

GrandPad founder Scott Lien is talking with us about GrandPad's best features and how it keeps older adults connected. Older adults often feel isolated, and the pandemic separated them even more from family and friends. The GrandPad device is simple for seniors to set up. Customers can access white glove customer support with questions 24/7/365. The best thing about GrandPad’s convenience is the inclusion of 4G LTE, so it doesn’t require the household to have wifi. Offering things like games,

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00:06:34

How to Create Your Advance Care Plan Series with The...

The Heart of Hospice Podcast ·

2022/11/01

Need some help with those difficult Advance Care Plan discussions? Welcome to our special Advance Care Plan Series featuring Kate Debartolo and the team from The Conversation Project! Conversations about end of life wishes can happen in different places - in family groups, community groups, or inside communities of faith. No matter where you want to have those ACP discussions, The Conversation Project has a resource you can use. This special series features experts from The Conversation

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01:00:52

What You Need to Know About Palliative Care From Dr....

The Heart of Hospice Podcast ·

2022/10/28

Our guest Dr. Arian Nachat is an advocate for palliative care services, informed advance care planning, and optimizing quality of life. As founder of Pallity, Arian guides the organization to focus on “you, the patient, helping you to manage your disease symptoms and treatment side effects while focusing on your quality of life”. According to their website, Pallity can “help you to better understand the options available to manage the symptoms of your disease and the side effects of treatment

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00:47:01

How to Write a Spiritual Care Directive with Rhonda...

The Heart of Hospice Podcast ·

2022/10/21

End of Life Coach and home funeral guide Rhonda Lopresti is talking with us about spiritual care directives, and their importance as part of an advance care plan. Rhonda Lopresti is a certified End of Life and Life Coach and has been a Holistic Health Practitioner for 30 years. According to her website (peacefully-prepared.com), Rhonda is “passionate in holding and creating sacred space, personal ritual, spiritual practice, and creative choices through dying and deathcare”. She believes

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00:43:35

What to Know About Zen Buddhist Practices at End of...

The Heart of Hospice Podcast ·

2022/10/14

Board Certified Clinical Chaplain Jonathan Prescott is back with us to discuss end of life practices in the Zen Buddhist tradition. Jon is a student of Zen Master Thich Nhat Hanh. Jonathan’s practice as a Clinical Chaplain and Pastoral Counselor is to “support people experiencing illness and end of life, foster effective caregiving and reconnect people with their innate wisdom and compassion”. As co-founder of the non-profit organization Radiant Light Zen, Jon works with a team to “offer

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00:58:39

What You Need to Know About the End Well Project with...

The Heart of Hospice Podcast ·

2022/10/07

End Well’s Executive Director Tracy Wheeler is talking with us about end of life discussions, transforming how we think about death, and the launch of End Well’s new podcast! End Well’s goal as a non-profit organization is to “bring together a community that unites design, technology, health, policy, and activist initiatives to transform how the world thinks about caregiving, grief, illness and the end of life experience with the ultimate goal of creating a future where ending well becomes a

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00:54:54

How to Manage Disenfranchised Grief with Carol...

The Heart of Hospice Podcast ·

2022/09/30

End of life educator Carol Schoneberg is sharing wisdom about disenfranchised grief, the grief that society says isn’t real, but we all experience. There are a lot of reasons someone’s grief might be disenfranchised. Dysfunctional relationships where there was abuse, or former relationships like ex-spouses can be sources of grief that’s not recognized by the people around us. That disenfranchisement makes us feel isolated, even invisible. Carol teaches us how important it is to have

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00:58:19

Sharing CJ's Legacy: A Story About Pediatric Hospice...

The Heart of Hospice Podcast ·

2022/09/23

Warning: This episode contains a description of the loss of a terminally ill infant. It may not be for all listeners. Boy mom and advocate Kasey Carmona shares the story of her family’s hospice journey with her son CJ. Using her voice to advocate for her baby’s healthcare, Kasey and her family created quality of life for CJ. What they found were moments of joy and pockets of goodness in a difficult journey. Our gratitude goes out to Kasey for her generosity of heart in sharing their story.

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00:53:22

How to Make Funeral Planning Easier with The Love...

The Heart of Hospice Podcast ·

2022/09/16

Our guest Dean Lambert of The Love Always Project knows firsthand how difficult it is to make funeral arrangements, even after 30 years working with funeral professionals. According to The Love Always Project website, “Dean Lambert has worked with funeral professionals for nearly 30 years to help them connect and serve the families facing one of the most challenging moments of their lives: the loss of a loved one. As a father who has himself experienced the loss of a child, he knows first hand

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00:51:07

What You Need to Know About the Messiness of Grief...

The Heart of Hospice Podcast ·

2022/09/09

Widowhood, caregiving, and the messiness of grief are just some of the topics we’re talking about with guest John Polo. According to his website, johnpolocoaching.com, “John is a coach, author, and speaker. In January of 2016, John became a widower after his amazing wife, Michelle, died of cancer. From the rubble of everything that he once knew, consumed by desperation and despair, John held on long enough until he found his hope. And he slowly rebuilt. Today John helps others through his

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00:46:12

Talking about The Narrative Initiative with Dr....

The Heart of Hospice Podcast ·

2022/09/02

We’re honored to talk with Dr. Lorraine Dickey about The Narrative Initiative and the benefits of its Write-Read-Reflect method for both patients and staff. Dr. Dickey is an innovator and activist for a better experience of care within the healthcare system. She is a healthcare entrepreneur and a motivational speaker as well as a board-certified Neonatologist, board-certified Pediatric Hospice and Palliative medicine physician, and certified in Pediatric Bioethics. Lorraine is also the CEO

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00:53:03

A Conversation with Judy Cornish, Creator of the DAWN...

The Heart of Hospice Podcast ·

2022/08/26

Our guest Judy Cornish is the founder of the Dementia & Alzheimer’s Wellbeing Network and the creator of the DAWN Method, a method for working with people who have dementia that helps them develop and retain a sense of security and wellbeing. As an elder law attorney, Judy had no experience with people with dementia until she met a new neighbor and began to help her lead a full life. Judy identified that the medical model doesn’t work well when it comes to managing life with dementia. She

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00:42:17

The Heart of a Hospice Administrator with Zaundra...

The Heart of Hospice Podcast ·

2022/08/19

Our guest Zaundra Ellis believes in servant leadership and has practiced it for over 20 years serving in hospice care. Zaundra has held many positions in hospice agencies, from executive director to her current role as Vice President of Hospice Solutions for Axxess Solutions. Through the years, she’s learned lessons about leadership and the importance of caring for the hospice team while they care for patients and families. She is a nationally recognized hospice thought leader and member of

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01:01:45

A Death Perspective with Rabbi Steve Leder, Episode 116

The Heart of Hospice Podcast ·

2022/08/12

In this episode, our guest Rabbi Steve Leder shares his perspective on dying and how the death of his father forever changed him. Steve Leder is the senior rabbi of Wilshire Boulevard Temple in Los Angeles. After receiving his degree in writing and graduating cum laude from Northwestern University, and spending time studying at Trinity College, Oxford University, Leder received a master’s degree in Hebrew letters in 1986 and rabbinical ordination in 1987 from Hebrew Union College. He is the

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00:54:07

What You Need to Know about Advance Care Planning...

The Heart of Hospice Podcast ·

2022/08/05

Dr. Jim deMaine is with us to talk with us about advocacy in serious illness and his book Facing Death: Finding Dignity Hope and Healing at the End. Dr. deMaine is a retired Pulmonary and Critical Care physician, an accomplished public speaker, and an outspoken advocate for end-of-life decisions. In his book Facing Death: Finding Dignity, Hope and Healing at the End, Jim shares numerous stories that serve as cautionary tales about completing advance care planning discussions prior to a serious

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00:56:41

What You Need To Know About Medical Aid In Dying: A...

The Heart of Hospice Podcast ·

2022/08/01

Anthropologist Anita Hannig is talking with us about Medical Aid in Dying, misconceptions about assisted dying laws, and her new book The Day I Die: The Untold Story of Assisted Dying in America. Every end of life professional should be informed about what medical aid in dying really is. MAID laws, otherwise known as Death with Dignity laws, have been passed in ten states across the U.S. as well as Washington, D.C. Regardless of whether their state has a law permitting MAID, it’s important

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00:14:22

What You Need to Know About Comfort Feedings,...

The Heart of Hospice Podcast ·

2022/07/29

We’re talking about comfort feedings today, how they work and the benefits they hold for hospice patients and their caregivers. Comfort feeding, (also pleasure feeding, is the practice of feeding the patient only what the patient likes and wants. It might not be considered particularly healthy. It’s more about enhancing quality of life for the patient. The focus of food intake is on comfort rather than good nutrition. The choices about food and drink are driven by the patient’s ability to

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