PODCAST

I"m Aware That I"m Rare: the phaware® podcast

I"m Aware That I"m Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because early

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All Episodes

Sophia Esteves - phaware® interview 548

I"m Aware That I"m Rare: the phaware® podcast ·

2025/11/26

Scars and Survival: Rebuilding Life After a Devastating Diagnosis After countless hospital stays, new medications, and near-breaking points, Sophia Esteves found the reason she wanted to live—and it wasn't just for herself. This episode dives into her spiritual and emotional transformation from patient to powerhouse advocate, and how she now helps others reclaim hope through honesty and grit. My name is Sophia Esteves. I am living in San Antonio where I grew up. My connection to pulmonary

13:05

Episode 548 - Sophia Esteves

I"m Aware That I"m Rare: the phaware® podcast ·

2025/11/25

Scars and Survival: Rebuilding Life After a Devastating Diagnosis After countless hospital stays, new medications, and near-breaking points, Sophia Esteves found the reason she wanted to live—and it wasn't just for herself. This episode dives into her spiritual and emotional transformation from patient to powerhouse advocate, and how she now helps others reclaim hope through honesty and grit. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social

Richard Channick, MD - phaware® interview 547

I"m Aware That I"m Rare: the phaware® podcast ·

2025/11/19

The Silent Rise of Chronic Pulmonary Embolism and the Tech That's Changing Everything From portable ECMO to catheter breakthroughs, the treatment of pulmonary embolism has come a long way. Dr. Richard Channick takes us behind the scenes of cutting-edge interventions and shares the empowering truth: even community hospitals now have lifelines to expert centers. The care you need might be closer than you think. Hello, I'm Rich Channick. I'm Professor of Medicine at UCLA Medical Center and Co-Director

08:22

Episode 547 - Richard Channick, MD

I"m Aware That I"m Rare: the phaware® podcast ·

2025/11/18

The Silent Rise of Chronic Pulmonary Embolism and the Tech That's Changing Everything From portable ECMO to catheter breakthroughs, the treatment of pulmonary embolism has come a long way. Dr. Richard Channick takes us behind the scenes of cutting-edge interventions and shares the empowering truth: even community hospitals now have lifelines to expert centers. The care you need might be closer than you think. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials

Jenny Yang, MD - phaware® interview 546

I"m Aware That I"m Rare: the phaware® podcast ·

2025/11/12

The One Type of PH You Can Actually Cure Dr. Jenny Yang dives into the rare but life-changing world of CTEPH, the only form of pulmonary hypertension that may be curable. From early warning signs to surgical options, this episode explains why ruling out CTEPH should be step one for any PH diagnosis. My name is Jenny Yang. I am currently at UC San Diego. My background is in pulmonary and critical care. I did all of my training at UC San Diego and was exposed to pulmonary hypertension there

13:10

Episode 546 - Jenny Yang, MD

I"m Aware That I"m Rare: the phaware® podcast ·

2025/11/11

The One Type of PH You Can Actually Cure Dr. Jenny Yang dives into the rare but life-changing world of CTEPH, the only form of pulmonary hypertension that may be curable. From early warning signs to surgical options, this episode explains why ruling out CTEPH should be step one for any PH diagnosis. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware Share your

Victor Test, MD - phaware® interview 545

I"m Aware That I"m Rare: the phaware® podcast ·

2025/11/05

The Diagnosis Delay That's Still Hurting Patients Despite better tools and more awareness, people with PH are still being diagnosed too late. Dr. Victor Test opens up about the biggest barrier in PH today: getting diagnosed on time. Learn why shortness of breath is often dismissed and how both patients and doctors can work together to catch pulmonary hypertension earlier. I'm Dr. Victor Test, the Chief of Pulmonary Medicine and Critical Care at Texas Tech University in Lubbock, Texas, and Director

05:58

Episode 545 - Victor Test, MD

I"m Aware That I"m Rare: the phaware® podcast ·

2025/11/04

The Diagnosis Delay That's Still Hurting Patients Despite better tools and more awareness, people with PH are still being diagnosed too late. Dr. Victor Test opens up about the biggest barrier in PH today: getting diagnosed on time. Learn why shortness of breath is often dismissed—and how both patients and doctors can work together to catch pulmonary hypertension earlier. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Engage for a

LaRae Hacker - phaware® interview 544

I"m Aware That I"m Rare: the phaware® podcast ·

2025/10/29

How TBX4Life Is Fueling a Global Collaboration LaRae Hacker never set out to become a rare disease advocate—but when her daughter's TBX4 diagnosis left her feeling helpless, she found power in connection. Discover how TBX4Life became her anchor in uncertainty and why she believes parent-led advocacy is the key to progress in rare disease research. My name is LaRae Hacker. I am a mother of a four-year-old little girl who has pulmonary hypertension as the result of a genetic mutation in the TBX4

09:05

Episode 544 - LaRae Hacker

I"m Aware That I"m Rare: the phaware® podcast ·

2025/10/28

How TBX4Life Is Fueling a Global Collaboration LaRae Hacker never set out to become a rare disease advocate—but when her daughter's TBX4 diagnosis left her feeling helpless, she found power in connection. Discover how TBX4Life became her anchor in uncertainty and why she believes parent-led advocacy is the key to progress in rare disease research. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a

Anthony Carrasco - phaware® interview 543

I"m Aware That I"m Rare: the phaware® podcast ·

2025/10/22

How I Survived Meth Addiction, Lung Failure, and Found Purpose Anthony Carrasco was a meth addict by 15, and nearly dead by 35. Diagnosed with PH after years of drug use, his story spiraled from homelessness to hospice. But a double lung transplant and a deep surrender to recovery transformed everything. This Special Edition Episode Sponsored by: Johnson & Johnson My name is Anthony Carrasco. I'm from the Bay Area, born and raised there. I'm here to discuss what my part in the pulmonary

15:28

Episode 543 - Anthony Carrasco

I"m Aware That I"m Rare: the phaware® podcast ·

2025/10/21

How I Survived Meth Addiction, Lung Failure, and Found Purpose Anthony Carrasco was a meth addict by 15, and nearly dead by 35. Diagnosed with PH after years of drug use, his story spiraled from homelessness to hospice. But a double lung transplant and a deep surrender to recovery transformed everything. This Special Edition Episode Sponsored by: Johnson & Johnson Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a

Brandon Jakubowski, MD - phaware® interview 542

I"m Aware That I"m Rare: the phaware® podcast ·

2025/10/15

Treating Meth-Associated PAH Without Judgment Dr. Brandon Jakubowski takes us into the underrecognized world of stimulant-induced pulmonary arterial hypertension. From misdiagnoses to under-prescribing life-saving therapies, he lays out the systemic gaps and stigmas preventing patients from getting the care they need. This Special Edition Episode Sponsored by: Johnson & Johnson My name is Brandon Jakubowski. I'm an Assistant Professor of Internal Medicine at the University of Texas at

11:57

Episode 542 - Brandon Jakubowski, MD

I"m Aware That I"m Rare: the phaware® podcast ·

2025/10/14

Treating Meth-Associated PAH Without Judgment Dr. Brandon Jakubowski takes us into the underrecognized world of stimulant-induced pulmonary arterial hypertension. From misdiagnoses to under-prescribing life-saving therapies, he lays out the systemic gaps and stigmas preventing patients from getting the care they need. This Special Edition Episode Sponsored by: Johnson & Johnson Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware

Nicholas Kolaitis, MD - phaware® interview 541

I"m Aware That I"m Rare: the phaware® podcast ·

2025/10/08

The Face of Addiction Isn’t Who You Think It Is Once thought to be a West Coast issue, methamphetamine-associated pulmonary hypertension is now a nationwide and global crisis. Dr. Nicholas Kolaitis reveals how building trust with meth associated-PAH patients can lead to incredible turnarounds, including sobriety, trial participation, and successful transplant. This Special Edition Episode Sponsored by: Johnson & Johnson I am Nicholas Kolaitis. I am a pulmonologist at UC San Francisco. I primarily

14:45

Episode 541 - Nicholas Kolaitis, MD

I"m Aware That I"m Rare: the phaware® podcast ·

2025/10/07

Peter J. Leary, MD - phaware® interview 540

I"m Aware That I"m Rare: the phaware® podcast ·

2025/10/01

How Stigma Blocks Meth-PAH Treatment and How to Stop It Patients with methamphetamine-associated-PAH often arrive at clinics already carrying heavy shame. But shame shouldn’t be part of their medical history. In this compelling episode, Dr. Peter Leary explains how stigma—from both society and providers—can delay life-saving care. Learn how a change in mindset, language, and compassion can transform outcomes for a neglected and growing patient population. This Special Edition Episode Sponsored

18:27

Episode 540 - Peter J. Leary, MD

I"m Aware That I"m Rare: the phaware® podcast ·

2025/09/30

Vinicio de Jesus Perez, MD - phaware® interview 539

I"m Aware That I"m Rare: the phaware® podcast ·

2025/09/24

The Hidden Epidemic: Meth and PHMeth-Associated PAH is on the rise across the United States, yet many patients are not receiving the treatment they need. Dr. Vinicio de Jesus Perez discusses the shifting demographics of meth users, the challenges of treating addiction in cardiopulmonary care, and the need for compassionate, stigma-free screening. This Special Edition Episode Sponsored by: Johnson & Johnson My name is Vinicio de Jesus Perez. I am a Professor of Medicine at Stanford University. I

21:18

Episode 539 - Vinicio de Jesus Perez, MD

I"m Aware That I"m Rare: the phaware® podcast ·

2025/09/23

The Hidden Epidemic: Meth and PHMeth-Associated PAH is on the rise across the United States, yet many patients are not receiving the treatment they need. Dr. Vinicio de Jesus Perez discusses the shifting demographics of meth users, the challenges of treating addiction in cardiopulmonary care, and the need for compassionate, stigma-free screening. This Special Edition Episode Sponsored by: Johnson & Johnson Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials

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I"m Aware That I"m Rare: the phaware® podcast

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