PODCAST

I"m Aware That I"m Rare: the phaware® podcast

I"m Aware That I"m Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because early

health & fitness medicine

All Episodes

Peter J. Leary, MD - phaware® interview 540

I"m Aware That I"m Rare: the phaware® podcast ·

2025/10/01

How Stigma Blocks Meth-PAH Treatment and How to Stop It Patients with methamphetamine-associated-PAH often arrive at clinics already carrying heavy shame. But shame shouldn’t be part of their medical history. In this compelling episode, Dr. Peter Leary explains how stigma—from both society and providers—can delay life-saving care. Learn how a change in mindset, language, and compassion can transform outcomes for a neglected and growing patient population. This Special Edition Episode Sponsored

18:27

Episode 540 - Peter J. Leary, MD

I"m Aware That I"m Rare: the phaware® podcast ·

2025/09/30

Vinicio de Jesus Perez, MD - phaware® interview 539

I"m Aware That I"m Rare: the phaware® podcast ·

2025/09/24

The Hidden Epidemic: Meth and PHMeth-Associated PAH is on the rise across the United States, yet many patients are not receiving the treatment they need. Dr. Vinicio de Jesus Perez discusses the shifting demographics of meth users, the challenges of treating addiction in cardiopulmonary care, and the need for compassionate, stigma-free screening. This Special Edition Episode Sponsored by: Johnson & Johnson My name is Vinicio de Jesus Perez. I am a Professor of Medicine at Stanford University. I

21:18

Episode 539 - Vinicio de Jesus Perez, MD

I"m Aware That I"m Rare: the phaware® podcast ·

2025/09/23

The Hidden Epidemic: Meth and PHMeth-Associated PAH is on the rise across the United States, yet many patients are not receiving the treatment they need. Dr. Vinicio de Jesus Perez discusses the shifting demographics of meth users, the challenges of treating addiction in cardiopulmonary care, and the need for compassionate, stigma-free screening. This Special Edition Episode Sponsored by: Johnson & Johnson Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials

John Kingrey, MD - phaware® interview 538

I"m Aware That I"m Rare: the phaware® podcast ·

2025/09/17

Dr. John Kingrey exposes the rising crisis of meth-associated pulmonary hypertension, a condition spreading fast across the U.S. He challenges misconceptions, highlights urgent research, and stresses the need for compassion in treating both PAH and addiction. This Special Edition Episode Sponsored by: Johnson & Johnson My name's John Kingrey. I live in Oklahoma City. I'm a pulmonologist. I've been doing pulmonary hypertension for 10 years now. I came to Oklahoma with my wife and three kids to

15:45

Episode 538 - John Kingrey, MD

I"m Aware That I"m Rare: the phaware® podcast ·

2025/09/16

Dr. John Kingrey exposes the rising crisis of meth-associated pulmonary hypertension, a condition spreading fast across the U.S. He challenges misconceptions, highlights urgent research, and stresses the need for compassion in treating both PAH and addiction. This Special Edition Episode Sponsored by: Johnson & Johnson Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Engage for a cure: www.phaware.global/donate #phaware Share your story: info@phaware.com Like,

Kari Gillmeyer, MD, MSC - phaware® interview 537

I"m Aware That I"m Rare: the phaware® podcast ·

2025/09/10

Delays in diagnosing and treating pulmonary hypertension (PH) can have life-altering consequences. In this episode, Dr. Kari Gillmeyer, discusses her groundbreaking study on PH care networks. She explores why so many patients experience delays, how geography and provider access play a role, and what can be done to improve timeliness of care. This Special Edition Episode Sponsored by: Johnson & Johnson My name is Kari Gillmeyer. I am a pulmonary and critical care physician and a clinical and health

13:08

Episode 537 - Kari Gillmeyer, MD, MSC

I"m Aware That I"m Rare: the phaware® podcast ·

2025/09/09

Delays in diagnosing and treating pulmonary hypertension (PH) can have life-altering consequences. In this episode, Dr. Kari Gillmeyer, discusses her groundbreaking study on PH care networks. She explores why so many patients experience delays, how geography and provider access play a role, and what can be done to improve timeliness of care. This Special Edition Episode Sponsored by: Johnson & Johnson Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Engage for a

Eric Borstein - phaware® interview 536

I"m Aware That I"m Rare: the phaware® podcast ·

2025/09/03

A 200 Mile Journey from LA to San Diego to Raise Awareness for PH When Eric Borstein collapsed in his bedroom in 2020, doctors gave him just months to live. Instead, he fought back with walking, mental health, and the support of his community. Now, he’s leading a movement, raising hundreds of thousands for pulmonary hypertension research, and walking 200 miles down the California coast to prove hope has no limits. Learn more about the 2nd Annual Where is EB? 5K Walk and Fundraiser September 7,

23:26

Episode 536 - Eric Borstein

I"m Aware That I"m Rare: the phaware® podcast ·

2025/09/02

Akshay Muralidhar, MD - phaware® interview 535

I"m Aware That I"m Rare: the phaware® podcast ·

2025/08/27

Dr. Akshay Muralidhar, Co-Director of the Pulmonary Hypertension Center of Excellence at Arizona Pulmonary Specialist in Phoenix, discusses the importance of having a specialized center for pulmonary hypertension. Dr. Muralidhar also highlights the challenges of managing patients with substance abuse issues, particularly methamphetamine use. Dr. Muralidhar emphasizes the importance of access to care, particularly for underserved communities, and the need for outreach programs to ensure that all

13:52

Episode 535 - Akshay Muralidhar, MD

I"m Aware That I"m Rare: the phaware® podcast ·

2025/08/26

In this episode, Dr. Akshay Muralidhar, Co-Director of the Pulmonary Hypertension Center of Excellence at Arizona Pulmonary Specialist in Phoenix, discusses the importance of having a specialized center for pulmonary hypertension. Dr. Muralidhar also highlights the challenges of managing patients with substance abuse issues, particularly methamphetamine use. Dr. Muralidhar emphasizes the importance of access to care, particularly for underserved communities, and the need for outreach programs to

Raj Parikh, MD, MPH - phaware® interview 534

I"m Aware That I"m Rare: the phaware® podcast ·

2025/08/20

Dr. Raj Parikh from Hartford Hospital discusses building on foundational pathways with treatment options for Pulmonary Arterial Hypertension (PAH) patients. He also emphasizes the value of clinical trials as well as the importance of a good doctor/patient relationship. This Special Edition Episode Sponsored by: Johnson & Johnson My name's Raj Parikh. I'm the Director of the Pulmonary Hypertension Center at Hartford Hospital in Hartford, Connecticut. I did a lot of my training kind of all over. I

14:46

Episode 534 - Raj Parikh, MD, MPH

I"m Aware That I"m Rare: the phaware® podcast ·

2025/08/19

Dr. Raj Parikh from Hartford Hospital discusses building on foundational pathways with treatment options for Pulmonary Arterial Hypertension (PAH) patients. He also emphasizes the value of clinical trials as well as the importance of a good doctor/patient relationship. This Special Edition Episode Sponsored by: Johnson & Johnson Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Engage for a cure: www.phaware.global/donate #phaware Share your

Robert Frantz, MD - phaware® interview 533

I"m Aware That I"m Rare: the phaware® podcast ·

2025/08/13

Dr. Robert Frantz breaks down the key metrics behind risk stratification—functional class, six-minute walk distance, and brain natriuretic peptide levels—and explains how they shape treatment plans. He also explores the role of echocardiography, right heart catheterization, and cutting-edge therapies in improving patient outcomes. This Special Edition Episode Sponsored by: Johnson & Johnson I'm Dr. Bob Frantz. I'm a cardiologist at the Mayo Clinic in Rochester, Minnesota, and Co-Director of the

17:20

Episode 533 - Robert Frantz, MD

I"m Aware That I"m Rare: the phaware® podcast ·

2025/08/12

Dr. Robert Frantz breaks down the key metrics behind risk stratification—functional class, six-minute walk distance, and brain natriuretic peptide levels—and explains how they shape treatment plans. He also explores the role of echocardiography, right heart catheterization, and cutting-edge therapies in improving patient outcomes. Read the proceedings of the Task Force on Risk Stratification from the Seventh World Symposium on Pulmonary Hypertension. This Special Edition Episode Sponsored by:

Jean M Elwing, MD - phaware® interview 532

I"m Aware That I"m Rare: the phaware® podcast ·

2025/08/06

ICU & You: What Happens When Pulmonary Hypertension Turns Critical? Pulmonary hypertension is already a complex condition, but what happens when it becomes life-threatening? Dr. Jean Elwing breaks down what patients and families can expect when someone with PH ends up in the ICU. My name is Dr. Jean Elwing, and I'm a professor of medicine, and I'm the director of the Pulmonary Hypertension Program at the University of Cincinnati, and I've been there about two decades now, really focused the entire

12:06

Episode 532 - Jean M Elwing, MD

I"m Aware That I"m Rare: the phaware® podcast ·

2025/08/05

ICU & You: What Happens When Pulmonary Hypertension Turns Critical? Pulmonary hypertension is already a complex condition, but what happens when it becomes life-threatening? Dr. Jean Elwing breaks down what patients and families can expect when someone with PH ends up in the ICU. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Engage for a cure: www.phaware.global/donate #phaware Share your story: info@phaware.com Like, Subscribe and Follow us:

John Granton, MD - phaware® interview 531

I"m Aware That I"m Rare: the phaware® podcast ·

2025/07/30

Dr. John Granton, a critical care and transplant physician at Toronto General Hospital, shares his journey in pulmonary hypertension and lung transplantation, detailing the groundbreaking advancements in transplant technology. He discusses the evolution of lung preservation methods, the challenges of chronic rejection, and the hope for longer-lasting transplants. With a passion for improving patient outcomes, Dr. Granton envisions a future where transplant becomes obsolete—replaced by treatments

10:33

Episode 531 - John Granton, MD

I"m Aware That I"m Rare: the phaware® podcast ·

2025/07/29

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I"m Aware That I"m Rare: the phaware® podcast

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