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PODCAST

Help 4 HD Live!

Help 4 HD Live!

Welcome to Help 4 HD Live! We are proud to broadcast credible information and education to the Huntington"s disease community on a weekly basis. Help 4 HD Live! broadcasts every week providing vital information and inspiration to our Huntington"s community. We have been blessed to interview many of our JHD/HD researchers, medical professionals, care providers and the pharmaceutical industry for six years. Join our Hosts, Lauren Holder, each week for incredible programming and don’t forget to share

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All Episodes

35:11

HD Uncut with Lance K.

Help 4 HD Live! ·

2025/05/08

Lance joins me for our HD Uncut series to share his story and how being proactive about his mental health has made such a difference.

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32:31

Rare Disease Warriors at WODC USA 2025

Help 4 HD Live! ·

2025/05/01

The "Power Panel" at the World Orphan Drug Congress USA in Boston, MA, spoke about addressing common barriers in rare hereditary, progressive adult-onset diseases. You can watch the video here.

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58:42

HD Uncut with Corrie Harris

Help 4 HD Live! ·

2025/04/17

Corrie Harris shares her family's HD journey with us, and it is both raw and beautiful. She shows how, for her family, there are no coincidences and love never fails.

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24:28

Resources Review: Apps Edition

Help 4 HD Live! ·

2025/04/03

These are the top 3 apps that I personally use.You can access the Goblin Tools browser version here.You can find more information on Visible here.You can find more information about Bearable here.

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54:31

Badass Women of HD with Erika B.

Help 4 HD Live! ·

2025/03/27

March is Women's History Month, and our HD community has so many women who are truly badasses - from leadership in our Patient Advocacy Organizations to the JHD moms and caregivers to the people with HD who fight every single day. I wanted to take a moment to acknowledge that. :)Erika Boulavsky of HD Reach and I not only take some time to honor the badass women of the HD community. We also talk about our recent experience at the HDYO Congress in Prague, and we talk about HD Reach's upcoming event in

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30:01

HD in Costa Rica with Juan Carlos

Help 4 HD Live! ·

2025/03/21

You can find the Fundación Familia Huntington Costa Rica on Facebook and Instagram

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12:01

HDYO Congress in Prague!

Help 4 HD Live! ·

2025/03/15

I'm attending and speaking at the HDYO Congress Event in Prague! Take a listen!

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28:40

HD-PACE with Christy Dearien

Help 4 HD Live! ·

2025/03/06

If you would like to learn more about how to get involved, please email me at lauren@help4hd.org

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7:10

Show Your Stripes with Lauren Holder

Help 4 HD Live! ·

2025/02/27

Rare Disease Day is Feb 28, 2025. Please visit NORD's website for information and resources for their #ShowYourStripes campaign. They have a social media toolkit, as well as playbooks with step-by-step guides on how to raise awareness for Rare Disease Day.Another great organization with resources is Global Genes. You can participate in their #ZebraTales and #CareAboutRare campaigns.

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27:11

HD Gratitude Day with Jimmy Pollard

Help 4 HD Live! ·

2025/02/20

Jimmy Pollard joined me to talk about HD Gratitude Day on 3/23/2025. Recognizing Huntington’s Gratitude DayWhat? A social media event recognizing the unique partnership between families and scientists working together towards an effective treatment, or “cure,” for HD on March 23rd, the anniversary of the discovery of the gene.It spotlights the contributions to that milestone achievement of impoverished families living with HD in Venezuela. They contributed their DNA to scientists of the

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58:29

H4HD audio panel discussion - increasing patient...

Help 4 HD Live! ·

2025/02/13

This panel discussion occurred at the 2025 Southeast HD Symposium in Nashville, TN. The panelists included Maryann Emerick of HDSA, Jamie Holloway of Help 4 HD, Jenna Heilman of HDYO, and Erika Boulavsky of HD Reach. Author and advocate Christy Dearien facilitated the discussion. You can also watch this on Lauren's YouTube channel - Dying To Live.

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34:28

HD Uncut with Josh Holder

Help 4 HD Live! ·

2025/02/10

This is an HD Uncut series episode with my husband, Josh Holder. I interview him for the 1st time in our 20-year marriage.

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18:47

HDYO Ambassadors: Hannah

Help 4 HD Live! ·

2025/01/30

Hannah joins me to share her story about being a young caregiver and becoming an HDYO Ambassador.

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32:09

HD Uncut with Amy Ogilvie

Help 4 HD Live! ·

2025/01/23

Amy Ogilvie joins Lauren to discuss her HD journey and how it has led her to do research in HD.

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29:03

HD Resources Review - Relationships

Help 4 HD Live! ·

2025/01/16

Jamie Holloway joined me to talk about intimacy and share relationship resources.Webinar with Dr. Karen Anderson and Erika Boulavsky of HD Reach: Sex and Intimacy within the Huntington's Disease JourneyHuntington's Disease Youth Organization - Relationships Relationships - NYA Huntington's Disease Youth Organization - Talking About HD with Family and Friends Huntington's Disease Youth Organization - Being a Partner to a Young Person Impacted by HD Huntington's Disease Youth Organization - Potential

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35:13

Help 4 HD Updates for 2025 with Katie Jackson

Help 4 HD Live! ·

2025/01/02

Help 4 HD Updates for 2025 with Katie Jackson

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16:28

Bloopy the Alien Learns about HD with Emma & Erin

Help 4 HD Live! ·

2024/12/26

Emma Wajswasser is a 12-year-old student from Toronto whose grandpa is living with HD. Shewrote this book because she wanted to educate kids and adults about the disease and how tointeract with people in a kind and compassionate way. This is not just a book about Huntington’s disease; it is about having empathy and understanding for any older adults in our lives.The book is published by Lemonade Press, a social purpose publisher that works withunderrepresented medical communities to create

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37 results

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