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PODCAST

Help 4 HD Live!

Help 4 HD Live!

Welcome to Help 4 HD Live! We are proud to broadcast credible information and education to the Huntington"s disease community on a weekly basis. Help 4 HD Live! broadcasts every week providing vital information and inspiration to our Huntington"s community. We have been blessed to interview many of our JHD/HD researchers, medical professionals, care providers and the pharmaceutical industry for six years. Join our Hosts, Lauren Holder, each week for incredible programming and don’t forget to share

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All Episodes

17:11

JHD Uncut, Halloween Edition

Help 4 HD Live! ·

2025/10/30

Happy Halloween! Melissa and Lauren talk about JHD and how we can adapt for our loved ones for holidays like Halloween.

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45:21

A Glimmer of Light in the Shadows with Jennifer Goddard

Help 4 HD Live! ·

2025/10/09

If you would like to purchase Jen's book, you can do so here.

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29:16

HD Uncut wiith Erin Paterson

Help 4 HD Live! ·

2025/10/02

Author Erin Paterson joined Lauren Holder to talk about their mixed feelings regarding UniQure's recent update.

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37:36

UniQure Update with Dr. Ed Wild

Help 4 HD Live! ·

2025/09/25

Dr. Ed Wild joins Lauren Holder to talk about the recent update from UniQure.

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50:52

Sunday Sit-down with Terina Martinez

Help 4 HD Live! ·

2025/09/14

If you'd like to learn more about C-Path, please visit their website here.

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15:54

Important Update with HD-PACE

Help 4 HD Live! ·

2025/08/28

We want to hear about your experience at HD clinics, including what worked, what didn’t, and what could be improved. We have created a short, anonymous 15-minute survey for patients and caregivers to share feedback. |Your feedback can help improve HD care—for you, your family, and the thousands of others navigating this disease. 📊 Once we have enough responses, results will be shared publicly at www.hdpace.org. Your voice matters! Please take the survey and share it with others in the HD

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29:46

HDCONNECT with Jenna Heilman

Help 4 HD Live! ·

2025/08/22

Jenna Heilman from HDYO joins me to talk about the HDCONNECT event that will be happening alongside the Help 4 HD Symposium in FT. Lauderdale, FL, in September. We also discuss more collaborative efforts within the HD community, like joining Critical Path Institute's HD-RSC group.

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92:59

Attending Events with H, Erika and Melissa

Help 4 HD Live! ·

2025/08/14

H. Patton, Erika and Melissa Boulavsky and I attended the HDYO Congress event in Prague together earlier this year. It was H's first HD event, and he decided to record his reactions while there. When we got back, all of us decided to sit down and do our own reaction video to H's reaction videos. It was a lot of fun to do! If you'd like to watch the full video, you can go here. You can also find it on HD Reach's website and YouTube channel.

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51:12

PPEM Roundtable with Jamie Holloway

Help 4 HD Live! ·

2025/08/08

Lauren and Jamie talk about the upcoming roundtable discussion happening at the Help 4 HD Symposium in September 2025.

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19:53

The Power of a Moment

Help 4 HD Live! ·

2025/07/24

I share how moments with people in the HD community have had an impact on me and refilled my "cup" when I've needed it most.

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10:26

MEND-HD with Dr. Lori Quinn and Dr. Jamie Adams

Help 4 HD Live! ·

2025/07/17

Dr. Lori Quinn and Dr. Jamie Adams share about a new observational study for the HD community, one that you can do from the comfort of your own home! It's called MEND-HD, and you can find out more information here.

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27:15

Prime Day in HD

Help 4 HD Live! ·

2025/07/11

Here's the link for a list I made with Amazon Prime Day deals that you may find helpful: https://tinyurl.com/primedayinhd

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55:22

Liv's Legacy with Esme & Gemma

Help 4 HD Live! ·

2025/07/03

Today, we’re honoring the life and legacy of Liv, a beloved HDYO Ambassador. Esme & Gemma join me to talk about mental health, advocacy, and the importance of continuing Liv’s mission. TW: Discussion of mental health challenges.

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27:53

Ingrezza with Dwight Tapp of Neurocrine

Help 4 HD Live! ·

2025/06/26

In this episode, Dwight Tapp, MS, PhD, MBA, CCRP, CRCP, FACHE, sits down with Lauren Holder to discuss the INGREZZA® expansion into the treatment of chorea associated with Huntington’s disease for adults and the development of INGREZZA SPRINKLE. Dwight is Associate Medical Director, Neurology, at Neurocrine Biosciences. Prior to joining the Medical Affairs team at Neurocrine Biosciences, Dwight worked in pharmaceutical, medical imaging and clinical trial management companies. He has advanced

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71:17

This is Me Smiling with Sarah & Randy Foster

Help 4 HD Live! ·

2025/06/19

To buy Sarah's new book, "This is Me Smiling", please click here.To find out more about Sarah and to follow her blog, please click here.

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39:56

Being United with Gracey

Help 4 HD Live! ·

2025/06/12

Gracey shares how HD has become a part of her life since she met her boyfriend, Jake, and how she supports him, making them a united front against HD.

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31:23

Spared with Lori Jones

Help 4 HD Live! ·

2025/06/05

Lori Jones is the author of Spared: A Memoir of Risk and Resolve. In it, she delves into her personal journey growing up in a family affected by Huntington’s Disease (HD), exploring themes of inherited trauma, caregiving, and ethical dilemmas.You can visit her website here.You can buy her book on Amazon here.

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37:12

POWERHD with Karmen T.

Help 4 HD Live! ·

2025/05/22

If you would like to join POWERHD, please click here.

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78:34

HDYO Congress 2025 - Keynote: Empowerment Through...

Help 4 HD Live! ·

2025/05/15

Jimmy Pollard closes HDYO's 2025 International Young Adult Congress with a speech on Empowerment Through Gratitude.You can watch the full video here.

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35:11

HD Uncut with Lance K.

Help 4 HD Live! ·

2025/05/08

Lance joins me for our HD Uncut series to share his story and how being proactive about his mental health has made such a difference.

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