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PODCAST

The POTScast

Standing Up to POTS, Inc.

Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. Each month, we feature episodes with top POTS physicians as well as POTS patients. Because many POTS

health & fitness medicine

All Episodes

00:45:53

Dr. Jeffrey Boris on the genetic landscape of POTS

The POTScast ·

2025/09/01

Dr. Boris is a Pediatric Cardiologist, Pediatrician, and leading expert on pediatric POTS. Here he explains his team's new findings about the genetic signals found in pediatric POTS patients: What they found, what this might mean for our understanding of POTS, and more. He also shares findings from his latest publication on longterm outcomes in POTS, and shares which hormones/oral contraceptives are helping some of the many patients who have worsening

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00:01:12

12th Annual 5k/2k Invitation

The POTScast ·

2025/08/31

Please join us in Going The Distance for POTS Research by participating in our 12th annual 5k/2k event, which can be done virtually or in person at the Wittenberg campus in Springfield, OH. More information and registration is at https://www.standinguptopots.org/annual-5k

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00:01:12

12th Annual 5k/2k Invitation

The POTScast ·

2025/08/31

Please join us in Going The Distance for POTS Research by participating in our 12th annual 5k/2k event, which can be done virtually or in person at the Wittenberg campus in Springfield, OH. More information and registration is at https://www.standinguptopots.org/annual-5k

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00:26:08

POTS Diaries with Mackenzie from Massachusetts

The POTScast ·

2025/08/24

Mackenzie from Massachusetts enjoys all kinds of artistic pursuits including writing and illustrating her own children's book. In this episode she describes her journey, including how a TikTok video helped her discover and manage her own POTS a couple years before the medical system diagnosed her. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support

en

00:26:08

POTS Diaries with Mackenzie from Massachusetts

The POTScast ·

2025/08/24

Mackenzie from Massachusetts enjoys all kinds of artistic pursuits including writing and illustrating her own children's book. In this episode she describes her journey, including how a TikTok video helped her discover and manage her own POTS a couple years before the medical system diagnosed her. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support

en

00:50:08

MCAS symptoms “down there” with Dr. Tania Dempsey

The POTScast ·

2025/08/16

MCAS doesn't ignore the nether-regions, so in this episode, Dr. Dempsey discusses symptoms and treatments in the genitourinary and surrounding areas, including some novel uses of antihistamines and mast cell stabilizers, as described in this research article. She also answers listener questions about hormones, hormone replacement, reactions to ultrasounds and ultrasound gel (this is the gel with fewer known allergens), and more. Dr. Dempsey's website is

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00:50:08

MCAS symptoms “down there” with Dr. Tania Dempsey

The POTScast ·

2025/08/16

MCAS doesn't ignore the nether-regions, so in this episode, Dr. Dempsey discusses symptoms and treatments in the genitourinary and surrounding areas, including some novel uses of antihistamines and mast cell stabilizers, as described in this research article. She also answers listener questions about hormones, hormone replacement, reactions to ultrasounds and ultrasound gel (this is the gel with fewer known allergens), and more. Dr. Dempsey's website is

en

00:45:38

Bria from Wales, a professional patient rights advocate

The POTScast ·

2025/08/09

Bria started having symptoms in college, as an art and theater major, and told her doctor she suspected POTS. It still took her 8 more years to get a formal diagnosis. Bria is still looking for better solutions and answers (using ChatGPT), constantly experimenting and also working on acceptance. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support

en

00:45:38

Bria from Wales, a professional patient rights advocate

The POTScast ·

2025/08/09

Bria started having symptoms in college, as an art and theater major, and told her doctor she suspected POTS. It still took her 8 more years to get a formal diagnosis. Bria is still looking for better solutions and answers (using ChatGPT), constantly experimenting and also working on acceptance. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support

en

01:09:29

Dr. Asad Khan on long COVID, micro-clots and more

The POTScast ·

2025/08/04

Dr. Asad Khan was a pulmonologist on the front lines of COVID in Manchester England when he became a long COVID patient himself. Now retired due to chronic illness, he is a leader in patient advocacy and has contributed to cutting edge research related to hypercoagulation and micro-clotting in long COVID and related conditions. In this episode he discusses the research and his own experiences with treatments for long COVID and micro-clots. Off-label

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00:30:04

POTS Diaries with Randi: Surgical nurse, stoic and...

The POTScast ·

2025/07/29

Having POTS, myocarditis, COVID and a heart attack right before your 40th birthday is not for the faint of heart, but Randi is a smart, strong, stoic surgical nurse who tells us all about it and more in this episode. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you

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00:50:58

Vagal nerve stimulation and heart rate variability...

The POTScast ·

2025/07/20

Caelum Schild is a Senior Exercise Physiologist in Adelaide Australia who specializes in POTS and related conditions. In this episode he describes some of the tools he uses, such as tVNS (transcutaneous vagal nerve stimulation) and HRV (heart rate variability), sharing some important research findings plus his clinic experience with these therapies. Caelum's website is https://loftyhealth.com.au/ If you liked this episode, we hope you will click

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00:50:58

Vagal nerve stimulation and heart rate variability...

The POTScast ·

2025/07/20

Caelum Schild is a Senior Exercise Physiologist in Adelaide Australia who specializes in POTS and related conditions. In this episode he describes some of the tools he uses, such as tVNS (transcutaneous vagal nerve stimulation) and HRV (heart rate variability), sharing some important research findings plus his clinic experience with these therapies. Caelum's website is https://loftyhealth.com.au/ If you liked this episode, we hope you will click

en

00:46:42

Kai, on living with profound ME/CFS

The POTScast ·

2025/07/13

Kai has severe ME/CFS, and is using precious energy for this episode to help us understand what life is like with profound energy limitations: what an average day is like, the price paid for doing basic activities, what it's like to pass the time avoiding sound and light, and what more people should understood about severe profound ME/CFS. Kai wrote this document for anyone who wants to learn more. If you liked this episode, we hope you will click

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00:46:42

Kai, on living with profound ME/CFS

The POTScast ·

2025/07/13

Kai has severe ME/CFS, and is using precious energy for this episode to help us understand what life is like with profound energy limitations: what an average day is like, the price paid for doing basic activities, what it's like to pass the time avoiding sound and light, and what more people should understood about severe profound ME/CFS. Kai wrote this document for anyone who wants to learn more. If you liked this episode, we hope you will click

en

01:02:37

Todd Maderis, ND on novel treatments - Mast Cell...

The POTScast ·

2025/07/07

Dr. Todd Maderis is a naturopathic physician in Marin, CA, who began his career in environmental medicine and now specializes in helping complex patients by searching for the root causes of their illness. He and Dr. Dempsey discuss their hypotheses about how and why some patients can get so sick, their favorite newer tests and treatments -- including genetic testing, SOT, phosphatidylcholine -- and how excess fibrin production may contribute to excessive

en

01:02:37

Todd Maderis, ND on novel treatments - Mast Cell...

The POTScast ·

2025/07/07

Dr. Todd Maderis is a naturopathic physician in Marin, CA, who began his career in environmental medicine and now specializes in helping complex patients by searching for the root causes of their illness. He and Dr. Dempsey discuss their hypotheses about how and why some patients can get so sick, their favorite newer tests and treatments -- including genetic testing, SOT, phosphatidylcholine -- and how excess fibrin production may contribute to excessive

en

00:38:42

Clare on being in law school with seizures and POTS

The POTScast ·

2025/06/28

Clare is a law student who has a genetic condition that causes epileptic seizures, which may have ultimately led to POTS. She is unfortunately highly experienced in losing consciousness. But she is still rocking law school (and studying health law) and in this episode discusses how she makes it all work. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to

en

00:38:42

Clare on being in law school with seizures and POTS

The POTScast ·

2025/06/28

Clare is a law student who has a genetic condition that causes epileptic seizures, which may have ultimately led to POTS. She is unfortunately highly experienced in losing consciousness. But she is still rocking law school (and studying health law) and in this episode discusses how she makes it all work. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to

en

00:52:42

POTS Practitioners: Dr. Jen Curtin on the RTHM...

The POTScast ·

2025/06/23

Dr. Jennifer Curtin is using the latest technologies to improve patient care and offerings. She was a ME/CFS patient herself when she went to medical school, and now is Medical Director of the RTHM Clinic. Dr. Curtin describes her approach to care including traditional clinic care plus several innovative offerings that allow patients easier and remote access to common safe treatments for dysautonomia, MCAS, ME/CFS, long COVID and other common comorbid

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