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PODCAST

The POTScast

Standing Up to POTS, Inc.

Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. Each month, we feature episodes with top POTS physicians as well as POTS patients. Because many POTS

health & fitness medicine

All Episodes

01:07:08

Patrick Ussher, author of Understanding ME/CFS and...

The POTScast ·

2025/10/07

Patrick Ussher is an author, advocate, educator and patient himself. His book Understanding ME/CFS and Strategies for Healing explains current research and theory about a unifying explanation for ME/CFS and what that means for treatment strategies. He explains the Mitodicure initiative to actually cure ME/CFS (pending funding), and also discusses some experimental (**i.e., not recommended: consult YOUR doctor about what's right for you**) treatments

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00:46:34

Kirti Sivakoti, MD, pediatric dysautonomia and...

The POTScast ·

2025/09/28

Pediatric dysautonomia expert Dr. Kirti Sivakoti, MD, is a pediatrician specializing in complex chronic illness, Associate Professor of Pediatrics at University of Utah, and Associate Medical Director of the Pain and Autonomic Symptoms Evaluation (PAUSE) Program at Primary Children's Center. In this episode she discusses her observations in this patient population, why she left a more conventional community-based practice to lead a program focused on

en

00:46:34

Kirti Sivakoti, MD, pediatric dysautonomia and...

The POTScast ·

2025/09/28

Pediatric dysautonomia expert Dr. Kirti Sivakoti, MD, is a pediatrician specializing in complex chronic illness, Associate Professor of Pediatrics at University of Utah, and Associate Medical Director of the Pain and Autonomic Symptoms Evaluation (PAUSE) Program at Primary Children's Center. In this episode she discusses her observations in this patient population, why she left a more conventional community-based practice to lead a program focused on

en

00:34:28

Taylor’s pleasure cruise that turned into another...

The POTScast ·

2025/09/22

Taylor caught COVID on a pleasure cruise and life has been pretty different ever since, but she is doing everything in her power to regain function and wellness, including going to top institutions and adding a service dog, Milo, to her already significant set of furry family members. Listen to her upbeat tales about living with POTS, gastroparesis and hypermobility. You can find Taylor on Instagram here. If you liked this episode, we hope you will click

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00:50:05

Dr. Greg Plotnikoff on favorite new findings and a...

The POTScast ·

2025/09/14

Dr. Greg Plotnikoff is a thought leader in dysautonomia/MCAS and complex chronic illness and in this episode he is freshly returned from giving two presentations at the Dysautonomia International Conference. He and Dr. Dempsey discuss what he learned and what he is currently excited/hopeful about, including new data about hypermobility as a potential underlying factor and how thiamine and other nutrients may theoretically play a key role in dysautonomia

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00:50:05

Dr. Greg Plotnikoff on favorite new findings and a...

The POTScast ·

2025/09/14

Dr. Greg Plotnikoff is a thought leader in dysautonomia/MCAS and complex chronic illness and in this episode he is freshly returned from giving two presentations at the Dysautonomia International Conference. He and Dr. Dempsey discuss what he learned and what he is currently excited/hopeful about, including new data about hypermobility as a potential underlying factor and how thiamine and other nutrients may theoretically play a key role in dysautonomia

en

00:41:42

Valerie is thriving in law school after a...

The POTScast ·

2025/09/08

Valerie had a life-threatening reaction to a medication administered in the ER, and she has had POTS ever since. Valerie's advice to other patients with many sensitivities is to consider getting pharmacogenetic testing to see which drugs may be more or less well tolerated. Despite many challenges, Valerie is now thriving in law school, following her passion for justice reform. If you liked this episode, we hope you will click subscribe so that you don't

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00:45:53

Dr. Jeffrey Boris on the genetic landscape of POTS

The POTScast ·

2025/09/01

Dr. Boris is a Pediatric Cardiologist, Pediatrician, and leading expert on pediatric POTS. Here he explains his team's new findings about the genetic signals found in pediatric POTS patients: What they found, what this might mean for our understanding of POTS, and more. He also shares findings from his latest publication on longterm outcomes in POTS, and shares which hormones/oral contraceptives are helping some of the many patients who have worsening

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00:01:12

12th Annual 5k/2k Invitation

The POTScast ·

2025/08/31

Please join us in Going The Distance for POTS Research by participating in our 12th annual 5k/2k event, which can be done virtually or in person at the Wittenberg campus in Springfield, OH. More information and registration is at https://www.standinguptopots.org/annual-5k

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00:01:12

12th Annual 5k/2k Invitation

The POTScast ·

2025/08/31

Please join us in Going The Distance for POTS Research by participating in our 12th annual 5k/2k event, which can be done virtually or in person at the Wittenberg campus in Springfield, OH. More information and registration is at https://www.standinguptopots.org/annual-5k

en

00:26:08

POTS Diaries with Mackenzie from Massachusetts

The POTScast ·

2025/08/24

Mackenzie from Massachusetts enjoys all kinds of artistic pursuits including writing and illustrating her own children's book. In this episode she describes her journey, including how a TikTok video helped her discover and manage her own POTS a couple years before the medical system diagnosed her. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support

en

00:26:08

POTS Diaries with Mackenzie from Massachusetts

The POTScast ·

2025/08/24

Mackenzie from Massachusetts enjoys all kinds of artistic pursuits including writing and illustrating her own children's book. In this episode she describes her journey, including how a TikTok video helped her discover and manage her own POTS a couple years before the medical system diagnosed her. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support

en

00:50:08

MCAS symptoms “down there” with Dr. Tania Dempsey

The POTScast ·

2025/08/16

MCAS doesn't ignore the nether-regions, so in this episode, Dr. Dempsey discusses symptoms and treatments in the genitourinary and surrounding areas, including some novel uses of antihistamines and mast cell stabilizers, as described in this research article. She also answers listener questions about hormones, hormone replacement, reactions to ultrasounds and ultrasound gel (this is the gel with fewer known allergens), and more. Dr. Dempsey's website is

en

00:50:08

MCAS symptoms “down there” with Dr. Tania Dempsey

The POTScast ·

2025/08/16

MCAS doesn't ignore the nether-regions, so in this episode, Dr. Dempsey discusses symptoms and treatments in the genitourinary and surrounding areas, including some novel uses of antihistamines and mast cell stabilizers, as described in this research article. She also answers listener questions about hormones, hormone replacement, reactions to ultrasounds and ultrasound gel (this is the gel with fewer known allergens), and more. Dr. Dempsey's website is

en

00:45:38

Bria from Wales, a professional patient rights advocate

The POTScast ·

2025/08/09

Bria started having symptoms in college, as an art and theater major, and told her doctor she suspected POTS. It still took her 8 more years to get a formal diagnosis. Bria is still looking for better solutions and answers (using ChatGPT), constantly experimenting and also working on acceptance. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support

en

00:45:38

Bria from Wales, a professional patient rights advocate

The POTScast ·

2025/08/09

Bria started having symptoms in college, as an art and theater major, and told her doctor she suspected POTS. It still took her 8 more years to get a formal diagnosis. Bria is still looking for better solutions and answers (using ChatGPT), constantly experimenting and also working on acceptance. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support

en

01:09:29

Dr. Asad Khan on long COVID, micro-clots and more

The POTScast ·

2025/08/04

Dr. Asad Khan was a pulmonologist on the front lines of COVID in Manchester England when he became a long COVID patient himself. Now retired due to chronic illness, he is a leader in patient advocacy and has contributed to cutting edge research related to hypercoagulation and micro-clotting in long COVID and related conditions. In this episode he discusses the research and his own experiences with treatments for long COVID and micro-clots. Off-label

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00:30:04

POTS Diaries with Randi: Surgical nurse, stoic and...

The POTScast ·

2025/07/29

Having POTS, myocarditis, COVID and a heart attack right before your 40th birthday is not for the faint of heart, but Randi is a smart, strong, stoic surgical nurse who tells us all about it and more in this episode. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you

en

00:50:58

Vagal nerve stimulation and heart rate variability...

The POTScast ·

2025/07/20

Caelum Schild is a Senior Exercise Physiologist in Adelaide Australia who specializes in POTS and related conditions. In this episode he describes some of the tools he uses, such as tVNS (transcutaneous vagal nerve stimulation) and HRV (heart rate variability), sharing some important research findings plus his clinic experience with these therapies. Caelum's website is https://loftyhealth.com.au/ If you liked this episode, we hope you will click

en

00:50:58

Vagal nerve stimulation and heart rate variability...

The POTScast ·

2025/07/20

Caelum Schild is a Senior Exercise Physiologist in Adelaide Australia who specializes in POTS and related conditions. In this episode he describes some of the tools he uses, such as tVNS (transcutaneous vagal nerve stimulation) and HRV (heart rate variability), sharing some important research findings plus his clinic experience with these therapies. Caelum's website is https://loftyhealth.com.au/ If you liked this episode, we hope you will click

en

359 results

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