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PODCAST

The POTScast

Standing Up to POTS, Inc.

Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. Each month, we feature episodes with top POTS physicians as well as POTS patients. Because many POTS

health & fitness medicine

All Episodes

00:43:33

Progress for the COVID vaccine injured with REACT19...

The POTScast ·

2025/11/25

Brianne Dressen co-founded REACT19 to help support people with life-altering COVID-19 vaccine injuries after being injured herself in one of the original clinical trials, and then learning the hard way that little was available in terms of answers, research, treatments or support. Now she oversees the science-based non-profit React19, which has created a provider network, support groups, research collaborations, lobbying efforts, and a grant program to

en

00:48:04

Dr. Eboni Cornish on root causes of brain...

The POTScast ·

2025/11/17

This is a not-to-be-missed conversation for anyone interested in brain inflammation. Dr. Eboni Cornish, M.D. is Associate Medical Director at Amen Clinics, Fellow and Treasurer of the Board for the International Lyme and Associated Diseases Society (ILADS). With research training at the National Institutes of Health as a Howard Hughes Medical Fellow, she is nationally recognized for her evidence-based work in neuroinflammation, autism, chronic toxicity,

en

00:48:04

Dr. Eboni Cornish on root causes of brain...

The POTScast ·

2025/11/17

This is a not-to-be-missed conversation for anyone interested in brain inflammation. Dr. Eboni Cornish, M.D. is Associate Medical Director at Amen Clinics, Fellow and Treasurer of the Board for the International Lyme and Associated Diseases Society (ILADS). With research training at the National Institutes of Health as a Howard Hughes Medical Fellow, she is nationally recognized for her evidence-based work in neuroinflammation, autism, chronic toxicity,

en

00:41:12

Live from the 12th annual Run for Research -...

The POTScast ·

2025/11/11

Our 12th annual 5k/2k took place virtually and at Wittenberg University in Springfield Ohio and raises funds for research to help today's struggling POTS patients. We interviewed several participants while they were waiting for the event to begin and got a chance to find out what brings them to the event, why they want to raise awareness of POTS and more. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If

en

00:41:12

Live from the 12th annual Run for Research -...

The POTScast ·

2025/11/11

Our 12th annual 5k/2k took place virtually and at Wittenberg University in Springfield Ohio and raises funds for research to help today's struggling POTS patients. We interviewed several participants while they were waiting for the event to begin and got a chance to find out what brings them to the event, why they want to raise awareness of POTS and more. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If

en

01:01:33

Dr. Robert Groysman on mechanisms, novel treatments,...

The POTScast ·

2025/11/04

Dr. Groysman is founder of the COVID Institute, where they treat POTS/dysautonomia, MCAS, ME/CFS, long COVID, and are reporting good outcomes with evidence-based treatments that are relatively novel in the U.S., such as stellate ganglion block, Epipharyngeal Abrasive Therapy (EAT), vagal nerve stimulation and more. In this episode Dr. Groysman describes his approach, the 6 main underlying mechanisms he sees at work in these conditions, novel treatments

en

01:01:33

Dr. Robert Groysman on mechanisms, novel treatments,...

The POTScast ·

2025/11/04

Dr. Groysman is founder of the COVID Institute, where they treat POTS/dysautonomia, MCAS, ME/CFS, long COVID, and are reporting good outcomes with evidence-based treatments that are relatively novel in the U.S., such as stellate ganglion block, Epipharyngeal Abrasive Therapy (EAT), vagal nerve stimulation and more. In this episode Dr. Groysman describes his approach, the 6 main underlying mechanisms he sees at work in these conditions, novel treatments

en

00:47:46

Jill Krapf, MD on painful sex, vulvovaginal disorders...

The POTScast ·

2025/10/25

Dr. Jill Krapf is a Board-Certified OB/GYN who specializes in genitopelvic pain and skin conditions, is founder of the Center for Vulvovaginal Disorders and co-author of the book When Sex Hurts: Understanding and Healing Pelvic Pain. She is a wealth of knowledge and with Dr. Dempsey they discuss the mechanisms behind these disorders, treatments, plus their findings about how mast cells may be involved. Dr. Dempsey's website is here If you liked this

en

00:47:46

Jill Krapf, MD on painful sex, vulvovaginal disorders...

The POTScast ·

2025/10/25

Dr. Jill Krapf is a Board-Certified OB/GYN who specializes in genitopelvic pain and skin conditions, is founder of the Center for Vulvovaginal Disorders and co-author of the book When Sex Hurts: Understanding and Healing Pelvic Pain. She is a wealth of knowledge and with Dr. Dempsey they discuss the mechanisms behind these disorders, treatments, plus their findings about how mast cells may be involved. Dr. Dempsey's website is here If you liked this

en

00:36:37

Tristan, from hiking, skating and EMT training to a...

The POTScast ·

2025/10/19

Tristan was an avid hiker, skate boarder and EMT-in-training when his world suddenly started spinning. Although his doctor diagnosed POTS and referred him to a top specialist, he has been waiting two years for that appointment. In the meantime he deals with a lot of symptoms (e.g., starting each day vomiting) and is unable to work, however he remains upbeat and even shares his successful chronic illness reference on Tinder. If you liked this episode, we

en

00:49:37

Dr. Kendal Stewart on a ‘hypo-adrenergic’ variant of...

The POTScast ·

2025/10/12

Dr. Kendal Stewart, former skull surgeon, now specializes in addressing root causes of neuroimmune conditions like POTS. In this episode he discusses seeing 'hypo-adrenergic' POTS, the underlying genetics that may cause it, value of genetic testing, nutrigenomics, plus novel treatments such as exosomes, peptides, CBD, and much more. You can find Dr. Stewart at https://www.drkendalstewart.com/ or his podcast, Coffee with Dr. Stewart. If you liked this

en

00:49:37

Dr. Kendal Stewart on a ‘hypo-adrenergic’ variant of...

The POTScast ·

2025/10/12

Dr. Kendal Stewart, former skull surgeon, now specializes in addressing root causes of neuroimmune conditions like POTS. In this episode he discusses seeing 'hypo-adrenergic' POTS, the underlying genetics that may cause it, value of genetic testing, nutrigenomics, plus novel treatments such as exosomes, peptides, CBD, and much more. You can find Dr. Stewart at https://www.drkendalstewart.com/ or his podcast, Coffee with Dr. Stewart. If you liked this

en

01:07:08

Patrick Ussher, author of Understanding ME/CFS and...

The POTScast ·

2025/10/07

Patrick Ussher is an author, advocate, educator and patient himself. His book Understanding ME/CFS and Strategies for Healing explains current research and theory about a unifying explanation for ME/CFS and what that means for treatment strategies. He explains the Mitodicure initiative to actually cure ME/CFS (pending funding), and also discusses some experimental (**i.e., not recommended: consult YOUR doctor about what's right for you**) treatments

en

01:07:08

Patrick Ussher, author of Understanding ME/CFS and...

The POTScast ·

2025/10/07

Patrick Ussher is an author, advocate, educator and patient himself. His book Understanding ME/CFS and Strategies for Healing explains current research and theory about a unifying explanation for ME/CFS and what that means for treatment strategies. He explains the Mitodicure initiative to actually cure ME/CFS (pending funding), and also discusses some experimental (**i.e., not recommended: consult YOUR doctor about what's right for you**) treatments

en

00:46:34

Kirti Sivakoti, MD, pediatric dysautonomia and...

The POTScast ·

2025/09/28

Pediatric dysautonomia expert Dr. Kirti Sivakoti, MD, is a pediatrician specializing in complex chronic illness, Associate Professor of Pediatrics at University of Utah, and Associate Medical Director of the Pain and Autonomic Symptoms Evaluation (PAUSE) Program at Primary Children's Center. In this episode she discusses her observations in this patient population, why she left a more conventional community-based practice to lead a program focused on

en

00:46:34

Kirti Sivakoti, MD, pediatric dysautonomia and...

The POTScast ·

2025/09/28

Pediatric dysautonomia expert Dr. Kirti Sivakoti, MD, is a pediatrician specializing in complex chronic illness, Associate Professor of Pediatrics at University of Utah, and Associate Medical Director of the Pain and Autonomic Symptoms Evaluation (PAUSE) Program at Primary Children's Center. In this episode she discusses her observations in this patient population, why she left a more conventional community-based practice to lead a program focused on

en

00:34:28

Taylor’s pleasure cruise that turned into another...

The POTScast ·

2025/09/22

Taylor caught COVID on a pleasure cruise and life has been pretty different ever since, but she is doing everything in her power to regain function and wellness, including going to top institutions and adding a service dog, Milo, to her already significant set of furry family members. Listen to her upbeat tales about living with POTS, gastroparesis and hypermobility. You can find Taylor on Instagram here. If you liked this episode, we hope you will click

en

00:50:05

Dr. Greg Plotnikoff on favorite new findings and a...

The POTScast ·

2025/09/14

Dr. Greg Plotnikoff is a thought leader in dysautonomia/MCAS and complex chronic illness and in this episode he is freshly returned from giving two presentations at the Dysautonomia International Conference. He and Dr. Dempsey discuss what he learned and what he is currently excited/hopeful about, including new data about hypermobility as a potential underlying factor and how thiamine and other nutrients may theoretically play a key role in dysautonomia

en

00:50:05

Dr. Greg Plotnikoff on favorite new findings and a...

The POTScast ·

2025/09/14

Dr. Greg Plotnikoff is a thought leader in dysautonomia/MCAS and complex chronic illness and in this episode he is freshly returned from giving two presentations at the Dysautonomia International Conference. He and Dr. Dempsey discuss what he learned and what he is currently excited/hopeful about, including new data about hypermobility as a potential underlying factor and how thiamine and other nutrients may theoretically play a key role in dysautonomia

en

00:41:42

Valerie is thriving in law school after a...

The POTScast ·

2025/09/08

Valerie had a life-threatening reaction to a medication administered in the ER, and she has had POTS ever since. Valerie's advice to other patients with many sensitivities is to consider getting pharmacogenetic testing to see which drugs may be more or less well tolerated. Despite many challenges, Valerie is now thriving in law school, following her passion for justice reform. If you liked this episode, we hope you will click subscribe so that you don't

en

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