The POTScast

00:27:02

Madeline on creating the POTSie app to help manage POTS

The POTScast ·

2026/10/04

In this episode, Madeline shares her experience of living with POTS, from diagnosis to the daily routines that helped her improve over time. She talks about how exhausting it can be to live with a condition that often feels like a full-time job, and how creating simple systems made her POTS more manageable. That experience led her to build POTSie, a mobile app created to help others reduce the mental load of living with POTS and make daily life a little

en

00:53:38

Robert Groysman, MD on identifying mechanisms driving...

The POTScast ·

2026/09/29

After successfully treating his own Long COVID, founding the COVID Institute, treating hundreds of patients, and publishing the seven-volume Complete Long COVID Handbook series, Dr. Robert Groysman has published a peer-reviewed article in Frontiers in Medicine proposing a new way to understand Long COVID as a “network disorder.” In this episode, Dr. Groysman explains his mechanism-anchored model, in which six primary biological domains can interact with

en

00:50:15

Dr. David Kaufman & Paddy Monahan on Vindara Health...

The POTScast ·

2026/09/20

Vindara Health is the new telehealth specialty clinic created by Dr. David Kaufman and Paddy Monahan, to improve access to expert care for patients with the most complex conditions, including POTS, long COVID, ME/CFS, MCAS, autoimmunity, Lyme, fibromyalgia and more. In this episode they discuss how it works, why they were inspired to create a new model, why they think there is increasing complex chronic illness, why working within the standard medical

en

00:50:15

Dr. David Kaufman & Paddy Monahan on Vindara Health...

The POTScast ·

2026/09/20

Vindara Health is the new telehealth specialty clinic created by Dr. David Kaufman and Paddy Monahan, to improve access to expert care for patients with the most complex conditions, including POTS, long COVID, ME/CFS, MCAS, autoimmunity, Lyme, fibromyalgia and more. In this episode they discuss how it works, why they were inspired to create a new model, why they think there is increasing complex chronic illness, why working within the standard medical

en

00:53:29

Campaign against synthetic fragrances with Attorney...

The POTScast ·

2026/09/13

In this episode, we explore the legal and civil rights issues surrounding chemical and fragrance intolerance, including what happens when people are unable to safely access hotels, businesses, and other public spaces that use synthetic fragrances in their air systems and cleaning (or other) products. Our guest is Scott Cole, founder of Cole & Van Note, a law firm with more than 30 years of experience in civil rights, consumer, and class action

en

00:53:29

Campaign against synthetic fragrances with Attorney...

The POTScast ·

2026/09/13

In this episode, we explore the legal and civil rights issues surrounding chemical and fragrance intolerance, including what happens when people are unable to safely access hotels, businesses, and other public spaces that use synthetic fragrances in their air systems and cleaning (or other) products. Our guest is Scott Cole, founder of Cole & Van Note, a law firm with more than 30 years of experience in civil rights, consumer, and class action

en

00:36:03

Michelle co-founded CANrise19 to help Canada’s COVID...

The POTScast ·

2026/09/07

Michelle was a busy mom, business owner and back country adventurer whose life changed dramatically in the 36 hours following her second COVID shot. After finding little help locally in Canada, she traveled to the US for visits with leading specialists in dysautonomia, MCAS, small fiber neuropathy and more. She recounts some of the treatments she has had -- including IVIg, EBOO, and even brain surgery -- and challenges encountered. She ultimately

en

00:36:03

Michelle co-founded CANrise19 to help Canada’s COVID...

The POTScast ·

2026/09/07

Michelle was a busy mom, business owner and back country adventurer whose life changed dramatically in the 36 hours following her second COVID shot. After finding little help locally in Canada, she traveled to the US for visits with leading specialists in dysautonomia, MCAS, small fiber neuropathy and more. She recounts some of the treatments she has had -- including IVIg, EBOO, and even brain surgery -- and challenges encountered. She ultimately

en

00:48:41

Four Insights for Providers with Dr. Kirti Sivakoti, MD

The POTScast ·

2026/08/30

Pediatric dysautonomia expert Dr. Kirti Sivakoti, MD, is a pediatrician specializing in complex chronic illness, Associate Professor of Pediatrics at University of Utah, and Associate Medical Director of the Pain and Autonomic Symptoms Evaluation (PAUSE) Program at Primary Children's Center. In this episode she shares findings and lessons from one case report and 3 recent research publications: Impact of Excessive Postural Tachycardia on Disability in

en

00:48:41

Four Insights for Providers with Dr. Kirti Sivakoti, MD

The POTScast ·

2026/08/30

Pediatric dysautonomia expert Dr. Kirti Sivakoti, MD, is a pediatrician specializing in complex chronic illness, Associate Professor of Pediatrics at University of Utah, and Associate Medical Director of the Pain and Autonomic Symptoms Evaluation (PAUSE) Program at Primary Children's Center. In this episode she shares findings and lessons from one case report and 3 recent research publications: Impact of Excessive Postural Tachycardia on Disability in

en

00:44:58

When “Inactive” Ingredients Aren’t: The ICU stay that...

The POTScast ·

2026/08/23

For patients with medication hypersensitivities, figuring out exactly what is in a medication can be surprisingly difficult. In episode 247 of The POTScast, data scientist Mike Brook discussed research showing that the excipient, or “inactive ingredient,” lists in DailyMed drug labels were internally inconsistent in 39% of 100 commonly prescribed drug formulations examined. For patients who react to excipients and rely on these labels to choose safer

en

00:44:58

When “Inactive” Ingredients Aren’t: The ICU stay that...

The POTScast ·

2026/08/23

For patients with medication hypersensitivities, figuring out exactly what is in a medication can be surprisingly difficult. In episode 247 of The POTScast, data scientist Mike Brook discussed research showing that the excipient, or “inactive ingredient,” lists in DailyMed drug labels were internally inconsistent in 39% of 100 commonly prescribed drug formulations examined. For patients who react to excipients and rely on these labels to choose safer

en

00:33:21

Lyme disease and MCAS Q&A with Dr. Tania Dempsey as...

The POTScast ·

2026/08/15

In this episode Dr. Dempsey answers listener questions about Lyme disease, sharing why it can be complex, her treatment approach at different stages, how she starts treatment on highly reactive MCAS patients, thoughts on the new Lyme vaccine, SOT therapy and more. Dr. Dempsey's episode discussing SOT therapy in more depth can be found here. Dr. Dempsey's website is https://drtaniadempsey.com/ If you have questions for Dr. Dempsey about mast cells and

en

00:33:21

Lyme disease and MCAS Q&A with Dr. Tania Dempsey as...

The POTScast ·

2026/08/15

In this episode Dr. Dempsey answers listener questions about Lyme disease, sharing why it can be complex, her treatment approach at different stages, how she starts treatment on highly reactive MCAS patients, thoughts on the new Lyme vaccine, SOT therapy and more. Dr. Dempsey's episode discussing SOT therapy in more depth can be found here. Dr. Dempsey's website is https://drtaniadempsey.com/ If you have questions for Dr. Dempsey about mast cells and

en

00:39:34

Emily on her daughter’s 20-year medical Odyssey,...

The POTScast ·

2026/08/08

Emily's daughter had sensitivities since a very young age. Emily recounts their journey with mysterious symptoms, good and bad medical encounters, conventional and unconventional treatments, faith and prayer, an unfortunate drug reaction, progress and setbacks, and how her family has coped through it all. Here are the links for the mentioned RTHM Intelligence platform and the Long COVID Treatment Guide. If you liked this episode, we hope you will click

en

00:39:34

Emily on her daughter’s 20-year medical Odyssey,...

The POTScast ·

2026/08/08

Emily's daughter had sensitivities since a very young age. Emily recounts their journey with mysterious symptoms, good and bad medical encounters, conventional and unconventional treatments, faith and prayer, an unfortunate drug reaction, progress and setbacks, and how her family has coped through it all. Here are the links for the mentioned RTHM Intelligence platform and the Long COVID Treatment Guide. If you liked this episode, we hope you will click

en

00:37:21

Founder Austin Walker on Building the AI Layer for...

The POTScast ·

2026/08/02

Austin Walker sold his last company in 2020, then got COVID and never recovered. He spent 9 months bedridden, saw 20+ doctors who all dismissed it as stress. He eventually got better by joining online patient communities, collecting what was working from other people, and running self-experiments on himself.That experience turned him into a patient trying to solve this for complex chronic illness, and he's been working on turning what he learned into a

en

00:37:21

Founder Austin Walker on Building the AI Layer for...

The POTScast ·

2026/08/02

Austin Walker sold his last company in 2020, then got COVID and never recovered. He spent 9 months bedridden, saw 20+ doctors who all dismissed it as stress. He eventually got better by joining online patient communities, collecting what was working from other people, and running self-experiments on himself.That experience turned him into a patient trying to solve this for complex chronic illness, and he's been working on turning what he learned into a

en

01:07:07

Connecting the Dots in Long COVID with Dr. Robert...

The POTScast ·

2026/07/28

After successfully treating his own Long COVID, founding the COVID Institute, treating hundreds of patients, and publishing the seven-volume Complete Long COVID Handbook series, Dr. Robert Groysman has published a peer-reviewed article in Frontiers in Medicine proposing a new way to understand Long COVID as a “network disorder.” In this episode, Dr. Groysman explains his mechanism-anchored model, in which six primary biological domains can interact with

en

01:08:27

Tiffany Hoke DNP, Complex neurovascular patient...

The POTScast ·

2026/07/21

Tiffany, a Doctor of Nursing Practice (with 6 other nursing/neurological credentials), relates her epic journey to uncover her own - and her family history of - neurovascular, neurometabolic and genetic issues contributing to her POTS and many other symptoms. After multiple discoveries, surgeries, stents, dietary and lifestyle modifications Tiffany reports being again functional, happy, relatively pain-free, and pursing her passion to continue gaining

en

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