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PODCAST

The POTScast

Standing Up to POTS, Inc.

Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. Each month, we feature episodes with top POTS physicians as well as POTS patients. Because many POTS

health & fitness medicine

All Episodes

00:52:57

Vascular surgeons Robert Hacker and Deena Chihade on...

The POTScast ·

2026/01/04

Vascular surgeons Dr. Robert Hacker and Dr. Deena Chihade share their unusual path to POTS via looking at the venous system, and explain what they are seeing in patients before and after addressing venous compression syndromes such as May Thurner Syndrome and Nutcracker Syndrome. Dr. Hacker estimates that venous obstructions may play a role in more POTS patients than previously thought, and Dr. Chihade shares the research study she presented at the

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00:42:19

Genetic collagen disorders and vascular issues with...

The POTScast ·

2025/12/30

Heather is a Nurse Practioner with long experience in vascular medicine, a dysautonomia patient herself, and is now working with a vascular clinic in Toledo, OH to bring genetic testing and counseling services to patients with suspected genetic connective tissue disorders, such as vascular EDS, Loeys-Dietz Syndrome, Marfan Syndrome and more. She also sees patients with vascular compressions, pelvic venous disease, venous insufficiency and more. In this

en

00:42:19

Genetic collagen disorders and vascular issues with...

The POTScast ·

2025/12/30

Heather is a Nurse Practioner with long experience in vascular medicine, a dysautonomia patient herself, and is now working with a vascular clinic in Toledo, OH to bring genetic testing and counseling services to patients with suspected genetic connective tissue disorders, such as vascular EDS, Loeys-Dietz Syndrome, Marfan Syndrome and more. She also sees patients with vascular compressions, pelvic venous disease, venous insufficiency and more. In this

en

00:43:17

Sarah from FL on life after COVID/POTS/MCAS

The POTScast ·

2025/12/21

Sarah loved her life as a busy mom an accomplished professional dog groomer, but after COVID left her with new symptoms suggestive of the 'Trifecta' (POTS, MCAS, hEDS) she is needing to make a new game plan....one that doesn't involve so many hours of standing and triggering fragrances. In this episode she discusses what she went through to get a diagnosis and how -- with the help of supportive family -- she is working through the challenges to design a

en

00:43:17

Sarah from FL on life after COVID/POTS/MCAS

The POTScast ·

2025/12/21

Sarah loved her life as a busy mom an accomplished professional dog groomer, but after COVID left her with new symptoms suggestive of the 'Trifecta' (POTS, MCAS, hEDS) she is needing to make a new game plan....one that doesn't involve so many hours of standing and triggering fragrances. In this episode she discusses what she went through to get a diagnosis and how -- with the help of supportive family -- she is working through the challenges to design a

en

01:04:43

Dr. Dempsey on leading edge treatments she is finding...

The POTScast ·

2025/12/15

One of the most common questions we get from listeners is about the novel treatments that Dr. Dempsey mentions, such as therapeutic plasmapheresis exchange (or apheresis), SOT, ozone therapy, UV light blood irradiation and more. In this episode she discusses each treatment: What it is, how it works, the risks and benefits, who is a good candidate, and more. More information about Dr. Tania Dempsey and her clinic can be found at

en

01:04:43

Dr. Dempsey on leading edge treatments she is finding...

The POTScast ·

2025/12/15

One of the most common questions we get from listeners is about the novel treatments that Dr. Dempsey mentions, such as therapeutic plasmapheresis exchange (or apheresis), SOT, ozone therapy, UV light blood irradiation and more. In this episode she discusses each treatment: What it is, how it works, the risks and benefits, who is a good candidate, and more. More information about Dr. Tania Dempsey and her clinic can be found at

en

00:51:50

New (free) AI intelligence platform for patients with...

The POTScast ·

2025/12/09

Dr. Jennifer Curtin is Medical Director of the RTHM clinic and former complex chronic illness patient herself, after having ME/CFS while in medical school. Now her team has created the RTHM intelligence platform which uses HIPAA-compliant artificial intelligence and other technology to provide guidance and care for people with Long COVID, ME/CFS, MCAS, POTS, hEDS and related conditions. In this episode she discusses the features, purpose, possibilities

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00:47:00

Jace on health policy, why “being a burden is a...

The POTScast ·

2025/12/02

Jace had hEDS and POTS for years before it was diagnosed and then had to wait MORE years to start getting any treatment, but in the meantime graduated college, got an advanced degree, worked on state and federal health policy, made art and much more. Hear Jace's advice and words of wisdom as someone who has expertise when it comes to ADA and accommodations. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If

en

00:47:00

Jace on health policy, why “being a burden is a...

The POTScast ·

2025/12/02

Jace had hEDS and POTS for years before it was diagnosed and then had to wait MORE years to start getting any treatment, but in the meantime graduated college, got an advanced degree, worked on state and federal health policy, made art and much more. Hear Jace's advice and words of wisdom as someone who has expertise when it comes to ADA and accommodations. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If

en

00:43:33

Progress for the COVID vaccine injured with REACT19...

The POTScast ·

2025/11/25

Brianne Dressen co-founded REACT19 to help support people with life-altering COVID-19 vaccine injuries after being injured herself in one of the original clinical trials, and then learning the hard way that little was available in terms of answers, research, treatments or support. Now she oversees the science-based non-profit React19, which has created a provider network, support groups, research collaborations, lobbying efforts, and a grant program to

en

00:43:33

Progress for the COVID vaccine injured with REACT19...

The POTScast ·

2025/11/25

Brianne Dressen co-founded REACT19 to help support people with life-altering COVID-19 vaccine injuries after being injured herself in one of the original clinical trials, and then learning the hard way that little was available in terms of answers, research, treatments or support. Now she oversees the science-based non-profit React19, which has created a provider network, support groups, research collaborations, lobbying efforts, and a grant program to

en

00:48:04

Dr. Eboni Cornish on root causes of brain...

The POTScast ·

2025/11/17

This is a not-to-be-missed conversation for anyone interested in brain inflammation. Dr. Eboni Cornish, M.D. is Associate Medical Director at Amen Clinics, Fellow and Treasurer of the Board for the International Lyme and Associated Diseases Society (ILADS). With research training at the National Institutes of Health as a Howard Hughes Medical Fellow, she is nationally recognized for her evidence-based work in neuroinflammation, autism, chronic toxicity,

en

00:48:04

Dr. Eboni Cornish on root causes of brain...

The POTScast ·

2025/11/17

This is a not-to-be-missed conversation for anyone interested in brain inflammation. Dr. Eboni Cornish, M.D. is Associate Medical Director at Amen Clinics, Fellow and Treasurer of the Board for the International Lyme and Associated Diseases Society (ILADS). With research training at the National Institutes of Health as a Howard Hughes Medical Fellow, she is nationally recognized for her evidence-based work in neuroinflammation, autism, chronic toxicity,

en

00:41:12

Live from the 12th annual Run for Research -...

The POTScast ·

2025/11/11

Our 12th annual 5k/2k took place virtually and at Wittenberg University in Springfield Ohio and raises funds for research to help today's struggling POTS patients. We interviewed several participants while they were waiting for the event to begin and got a chance to find out what brings them to the event, why they want to raise awareness of POTS and more. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If

en

00:41:12

Live from the 12th annual Run for Research -...

The POTScast ·

2025/11/11

Our 12th annual 5k/2k took place virtually and at Wittenberg University in Springfield Ohio and raises funds for research to help today's struggling POTS patients. We interviewed several participants while they were waiting for the event to begin and got a chance to find out what brings them to the event, why they want to raise awareness of POTS and more. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If

en

01:01:33

Dr. Robert Groysman on mechanisms, novel treatments,...

The POTScast ·

2025/11/04

Dr. Groysman is founder of the COVID Institute, where they treat POTS/dysautonomia, MCAS, ME/CFS, long COVID, and are reporting good outcomes with evidence-based treatments that are relatively novel in the U.S., such as stellate ganglion block, Epipharyngeal Abrasive Therapy (EAT), vagal nerve stimulation and more. In this episode Dr. Groysman describes his approach, the 6 main underlying mechanisms he sees at work in these conditions, novel treatments

en

01:01:33

Dr. Robert Groysman on mechanisms, novel treatments,...

The POTScast ·

2025/11/04

Dr. Groysman is founder of the COVID Institute, where they treat POTS/dysautonomia, MCAS, ME/CFS, long COVID, and are reporting good outcomes with evidence-based treatments that are relatively novel in the U.S., such as stellate ganglion block, Epipharyngeal Abrasive Therapy (EAT), vagal nerve stimulation and more. In this episode Dr. Groysman describes his approach, the 6 main underlying mechanisms he sees at work in these conditions, novel treatments

en

00:47:46

Jill Krapf, MD on painful sex, vulvovaginal disorders...

The POTScast ·

2025/10/25

Dr. Jill Krapf is a Board-Certified OB/GYN who specializes in genitopelvic pain and skin conditions, is founder of the Center for Vulvovaginal Disorders and co-author of the book When Sex Hurts: Understanding and Healing Pelvic Pain. She is a wealth of knowledge and with Dr. Dempsey they discuss the mechanisms behind these disorders, treatments, plus their findings about how mast cells may be involved. Dr. Dempsey's website is here If you liked this

en

00:47:46

Jill Krapf, MD on painful sex, vulvovaginal disorders...

The POTScast ·

2025/10/25

Dr. Jill Krapf is a Board-Certified OB/GYN who specializes in genitopelvic pain and skin conditions, is founder of the Center for Vulvovaginal Disorders and co-author of the book When Sex Hurts: Understanding and Healing Pelvic Pain. She is a wealth of knowledge and with Dr. Dempsey they discuss the mechanisms behind these disorders, treatments, plus their findings about how mast cells may be involved. Dr. Dempsey's website is here If you liked this

en

383 results

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