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PODCAST

The POTScast

Standing Up to POTS, Inc.

Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. Each month, we feature episodes with top POTS physicians as well as POTS patients. Because many POTS

health & fitness medicine

All Episodes

00:37:02

The Dysautonomia Workbook with Joanna Behm, EDD OTR/L...

The POTScast ·

2026/02/17

Joanna Behm, EDD OTR/L and Madison Thornton, OTD, OTR/L are experts in occupational therapy (OT) as therapists, dysautonomia patients, and Joanna is even a professor of OT. Together they created a workbook that first shares the latest evidence and then leads readers through a series of worksheets and questions to help them find their best OT-based solutions and routines for living better with dysautonomia and related challenges. In this episode they

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00:40:09

Dr. Casey Kelley on Mast Cell Matters

The POTScast ·

2026/02/10

Dr. Casey Kelley is Board Certified in family and integrative medicine, teaches on the faculty of the Northwestern Medical School, and her care is informed by her own past experience having complex chronic invisible illness. Now she treats some of the very toughest cases, including Lyme, POTS, PANS/PANDAS, MCAS and more. In this episode she and Dr. Dempsey discuss cutting-edge treatment approaches for these conditions in pediatric patients, and we

en

00:40:09

Dr. Casey Kelley on Mast Cell Matters

The POTScast ·

2026/02/10

Dr. Casey Kelley is Board Certified in family and integrative medicine, teaches on the faculty of the Northwestern Medical School, and her care is informed by her own past experience having complex chronic invisible illness. Now she treats some of the very toughest cases, including Lyme, POTS, PANS/PANDAS, MCAS and more. In this episode she and Dr. Dempsey discuss cutting-edge treatment approaches for these conditions in pediatric patients, and we

en

00:41:40

Sophie on life after severe COVID

The POTScast ·

2026/02/03

Surviving severe COVID was just beginning of Sophie's health adventure. She discusses her unexpected COVID-related medical challenges, new job and living situation, the stenting procedure that helped (but not as much as hoped), how she has adjusted to her new situation and how it all has made her even better at her work in healthcare. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved,

en

00:41:40

Sophie on life after severe COVID

The POTScast ·

2026/02/03

Surviving severe COVID was just beginning of Sophie's health adventure. She discusses her unexpected COVID-related medical challenges, new job and living situation, the stenting procedure that helped (but not as much as hoped), how she has adjusted to her new situation and how it all has made her even better at her work in healthcare. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved,

en

00:42:22

Attorney Nancy Cavey on disability benefits for...

The POTScast ·

2026/01/27

Attorney Nancy Cavey has spent 39 years representing people with disabilities all over the U.S., and is an expert in helping people qualify based on POTS, MCAS, hEDS and other invisible illness. In this episode she describes the process, how to maximize your chances of success, common pitfalls, important deadlines and more. We will have a part 2 with Nancy's colleague in a few weeks, to address disability benefits for people under age 18. Nancy's book

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00:42:22

Attorney Nancy Cavey on disability benefits for...

The POTScast ·

2026/01/27

Attorney Nancy Cavey has spent 39 years representing people with disabilities all over the U.S., and is an expert in helping people qualify based on POTS, MCAS, hEDS and other invisible illness. In this episode she describes the process, how to maximize your chances of success, common pitfalls, important deadlines and more. We will have a part 2 with Nancy's colleague in a few weeks, to address disability benefits for people under age 18. Nancy's book

en

00:44:56

Singer-songwriter Nellie Clay on “the hangover...

The POTScast ·

2026/01/20

Western folk singer-songwriter Nellie has recorded multiple albums and EPs, toured nationally from Alaska to Nashville, appeared on PBS’s Songs at the Center, opened for Grammy-nominated artists, and become a beloved regular at the Woody Guthrie Folk Festival. Most recently, she was profiled in Forbes for her life as an artist living with postural orthostatic tachycardia syndrome, bringing huge mainstream attention to POTS in the process. In this episode

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01:02:23

Zac Spiritos, MD, MPH on neurogastroenterology with...

The POTScast ·

2026/01/13

Dr. Spiritos is double board certified in gastroenterologist and internal medicine, and specializes in IBS, gut motility, POTS and the complex conditions and symptoms that go along with it. He and Dr. Dempsey discuss IBS, parasites, SIBO, CD117 staining, GLP-1 drugs for MCAS, his treatment approach, some promising news on the awareness front, and much more. Dr. Spiritos's website is here Dr. Dempsey's website is here If you liked this episode, we hope

en

01:02:23

Zac Spiritos, MD, MPH on neurogastroenterology with...

The POTScast ·

2026/01/13

Dr. Spiritos is double board certified in gastroenterologist and internal medicine, and specializes in IBS, gut motility, POTS and the complex conditions and symptoms that go along with it. He and Dr. Dempsey discuss IBS, parasites, SIBO, CD117 staining, GLP-1 drugs for MCAS, his treatment approach, some promising news on the awareness front, and much more. Dr. Spiritos's website is here Dr. Dempsey's website is here If you liked this episode, we hope

en

00:52:57

Vascular surgeons Robert Hacker and Deena Chihade on...

The POTScast ·

2026/01/04

Vascular surgeons Dr. Robert Hacker and Dr. Deena Chihade share their unusual path to POTS via looking at the venous system, and explain what they are seeing in patients before and after addressing venous compression syndromes such as May Thurner Syndrome and Nutcracker Syndrome. Dr. Hacker estimates that venous obstructions may play a role in more POTS patients than previously thought, and Dr. Chihade shares the research study she presented at the

en

00:52:57

Vascular surgeons Robert Hacker and Deena Chihade on...

The POTScast ·

2026/01/04

Vascular surgeons Dr. Robert Hacker and Dr. Deena Chihade share their unusual path to POTS via looking at the venous system, and explain what they are seeing in patients before and after addressing venous compression syndromes such as May Thurner Syndrome and Nutcracker Syndrome. Dr. Hacker estimates that venous obstructions may play a role in more POTS patients than previously thought, and Dr. Chihade shares the research study she presented at the

en

00:42:19

Genetic collagen disorders and vascular issues with...

The POTScast ·

2025/12/30

Heather is a Nurse Practioner with long experience in vascular medicine, a dysautonomia patient herself, and is now working with a vascular clinic in Toledo, OH to bring genetic testing and counseling services to patients with suspected genetic connective tissue disorders, such as vascular EDS, Loeys-Dietz Syndrome, Marfan Syndrome and more. She also sees patients with vascular compressions, pelvic venous disease, venous insufficiency and more. In this

en

00:42:19

Genetic collagen disorders and vascular issues with...

The POTScast ·

2025/12/30

Heather is a Nurse Practioner with long experience in vascular medicine, a dysautonomia patient herself, and is now working with a vascular clinic in Toledo, OH to bring genetic testing and counseling services to patients with suspected genetic connective tissue disorders, such as vascular EDS, Loeys-Dietz Syndrome, Marfan Syndrome and more. She also sees patients with vascular compressions, pelvic venous disease, venous insufficiency and more. In this

en

00:43:17

Sarah from FL on life after COVID/POTS/MCAS

The POTScast ·

2025/12/21

Sarah loved her life as a busy mom an accomplished professional dog groomer, but after COVID left her with new symptoms suggestive of the 'Trifecta' (POTS, MCAS, hEDS) she is needing to make a new game plan....one that doesn't involve so many hours of standing and triggering fragrances. In this episode she discusses what she went through to get a diagnosis and how -- with the help of supportive family -- she is working through the challenges to design a

en

00:43:17

Sarah from FL on life after COVID/POTS/MCAS

The POTScast ·

2025/12/21

Sarah loved her life as a busy mom an accomplished professional dog groomer, but after COVID left her with new symptoms suggestive of the 'Trifecta' (POTS, MCAS, hEDS) she is needing to make a new game plan....one that doesn't involve so many hours of standing and triggering fragrances. In this episode she discusses what she went through to get a diagnosis and how -- with the help of supportive family -- she is working through the challenges to design a

en

01:04:43

Dr. Dempsey on leading edge treatments she is finding...

The POTScast ·

2025/12/15

One of the most common questions we get from listeners is about the novel treatments that Dr. Dempsey mentions, such as therapeutic plasmapheresis exchange (or apheresis), SOT, ozone therapy, UV light blood irradiation and more. In this episode she discusses each treatment: What it is, how it works, the risks and benefits, who is a good candidate, and more. More information about Dr. Tania Dempsey and her clinic can be found at

en

01:04:43

Dr. Dempsey on leading edge treatments she is finding...

The POTScast ·

2025/12/15

One of the most common questions we get from listeners is about the novel treatments that Dr. Dempsey mentions, such as therapeutic plasmapheresis exchange (or apheresis), SOT, ozone therapy, UV light blood irradiation and more. In this episode she discusses each treatment: What it is, how it works, the risks and benefits, who is a good candidate, and more. More information about Dr. Tania Dempsey and her clinic can be found at

en

00:51:50

New (free) AI intelligence platform for patients with...

The POTScast ·

2025/12/09

Dr. Jennifer Curtin is Medical Director of the RTHM clinic and former complex chronic illness patient herself, after having ME/CFS while in medical school. Now her team has created the RTHM intelligence platform which uses HIPAA-compliant artificial intelligence and other technology to provide guidance and care for people with Long COVID, ME/CFS, MCAS, POTS, hEDS and related conditions. In this episode she discusses the features, purpose, possibilities

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00:47:00

Jace on health policy, why “being a burden is a...

The POTScast ·

2025/12/02

Jace had hEDS and POTS for years before it was diagnosed and then had to wait MORE years to start getting any treatment, but in the meantime graduated college, got an advanced degree, worked on state and federal health policy, made art and much more. Hear Jace's advice and words of wisdom as someone who has expertise when it comes to ADA and accommodations. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If

en

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