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PODCAST

The CHC Podcast: CHD Conversations

The CHC Podcast: Congenital Heart Conversations is a podcast for and by the CHD community. Hosted by heart mom Anna Jaworski and The CHC Podcast Team, they will talk with people about a variety of topics of interest when living with a life-threatening chronic illness.Become a supporter of this podcast: https://www.spreaker.com/podcast/the-chc-podcast-chd-conversations--5779157/support.

health & fitness medicine

All Episodes

46:59

The Pulse of Perseverance: Unveiling the Heart...

The CHC Podcast: CHD Conversations ·

2024/04/30

Imagine the strength it takes to face a heart transplant, the resilience needed to advocate for a life-saving surgery amidst the daunting challenges of a global pandemic, and the triumph of embracing a second chance at life. Our latest panel discussion brings forth a mosaic of these extraordinary journeys within the congenital heart disease community. Peg Eitl shares Joe's story, a young man with Down syndrome, as she takes us through Joe's incredible fight for a dual heart and liver transplant. At

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33:12

PHACE Syndrome Awareness Week and Congenital Heart...

The CHC Podcast: CHD Conversations ·

2024/03/23

What is PHACE Syndrome? Why is it important to the congenital heart defect community?Tune in to this episode featuring Alexis Sinclair as she shares with The CHC Podcast team her experiences with her child who was born with PHACE syndrome. While the most obvious component of PHACE syndrome are red splotches on the skin called hemangiomas, the second most prevalent condition is a cardiac condition, usually coarctation of the aorta. Fully 41-67% of children with PHACE syndrome are plagued by

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54:55

Voices of Victory: Overcoming Congenital Heart...

The CHC Podcast: CHD Conversations ·

2024/02/20

Have you ever wondered how the strength of the human spirit can triumph over medical challenges? Our latest episode offers a profound insight into the lives of those who've navigated the complexities of congenital heart defects (CHD) from infancy to adulthood. Our heart-felt panel, including Michelle De Roe, Paula Miller, and Diane Pucci, alongside hosts Nicholle Bilodeau, and Ayrton Beatty, share their personal narratives that will leave you inspired by their resilience and determination. The last

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60:58

From Theory to Reality: Stem Cell Research in the CHD...

The CHC Podcast: CHD Conversations ·

2024/01/28

As a heart mom and co-host of this transformative podcast, I'm Anna Jaworski, joined by Annie Ulchak, a resilient CHD patient, and together we're thrilled to bring you an episode brimming with hope and scientific breakthroughs. We welcome the brilliant Dr. Timothy Nelson from the Mayo Clinic, and survivors like Brenton Ball and Jennifer Gutman, who open up about the revolutionary stem cell therapies that are redefining what it means to live with congenital heart defects. Their stories are not just

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49:08

The Art of Festive Celebration with a Heart Condition

The CHC Podcast: CHD Conversations ·

2024/01/01

When the twinkling lights of the holiday season blend with the concern of congenital heart conditions, families like ours craft a celebration that's both safe and full of joy. ICo-hosts Aryton Beatty and Annie Ulchak, along with guests Chris Atherton, Leslie Castro, and John Ritchens Jr., share their heartfelt strategies for managing the festive season in the shadow of CHDs. Learn how heart mom, Chris, turns her backyard into a winter wonderland, while Leslie, a heart transplant recipient, navigates

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56:32

The Role of Mindfulness and Gratitude in Navigating...

The CHC Podcast: CHD Conversations ·

2023/12/01

As we journey through the complexities of life with a Congenital Heart Defect (CHD), our guests - Anna Marie Taylor, Nicholle Bilodeau, and Djinni Yancy - offer personal insights and shared experiences. Their powerful stories, filled with struggles and triumphs, underscore the significance of gratitude, resilience, and unwavering support from loved ones. Together, we unpack the latest advancements in medical treatments and affirm the integral role mindfulness plays in navigating the challenges posed

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59:10

Transplantation in the CHC Community

The CHC Podcast: CHD Conversations ·

2023/11/01

Today’s Town Hall Meeting deals with cardiac transplantation. The first heart transplant was done in South Africa in December of 1967 by Dr. Christiaan Barnard, with pediatric heart transplants following close behind. Through the years, the operation itself, donor and recipient matching procedures, and post-transplant management have evolved to what it is today. Heart transplantation is becoming more common in the CHD community as CHDers are living longer and running out of palliative surgical

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54:39

Relationships in the CHD Community

The CHC Podcast: CHD Conversations ·

2023/10/01

How does having a congenital heart defect complicate developing long-term, sustainable relationships? Are there specific steps we can take to develop the kind of committed relationship that is sure to last? What measures can be taken to help us become the best partners we can for our loved ones?This Town Hall Meeting deals with different aspects of being in relationships and being a part of the CHD community. These aspects range from being in a long-term, committed relationship, to being single and

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58:31

Mental Health Town Hall Meeting

The CHC Podcast: CHD Conversations ·

2023/09/03

Today’s Town Hall Meeting deals with Mental Health. This is a hot topic in the news right now. It seems as though, especially since the pandemic, more people are aware of what isolation, trauma, and illness can do to a person’s mental health. Those of us living with congenital heart defects are all too aware of how we can feel isolated, how our physical health has been compromised at different times in our lives, and anyone who has undergone open-heart surgery has suffered from medical trauma.In

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44:49

Faith & Religion in the CHD Community

The CHC Podcast: CHD Conversations ·

2023/07/31

This Town Hall Meeting deals with ‘Faith & Religion.’ This is a topic that affects everyone, but we will consider this topic through the lens of living with congenital heart conditions.How does having a critical illness affect YOUR faith and/or religion? Today we have an expert panel. Brenton Ball is a heart patient who has undergone many open-heart surgeries over the course of his life. He was raised Catholic. Ayrton Beatty is a bereaved family-member-turned-heart warrior in her own right

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50:34

Candid Conversations with CHD Dads: Strength,...

The CHC Podcast: CHD Conversations ·

2023/06/30

What does it take to be a father in the CHD (Congenital Heart Defect) community? We sat down with three amazing dads—Chris Harris, Dylan Henricks, and Michael McKelvey—to find out. Each of these men has a unique story to tell about parenting a child with CHD. Chris is the father of a baby born with a double outlet right ventricle, while Dylan is both a father and a person born with CHD himself. Michael, also born with CHD, recently became a dad to a heart-healthy child and brings a different

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46:07

Mothers as Single Parents in the CHD Community

The CHC Podcast: CHD Conversations ·

2023/05/28

In this fifth episode of "The CHC Podcast," Co-Hosts, Joe Flowers and Anna Jaworski, talk to Heart Mom, Anita Moreno Marcelo, and Heart Warrior, Misty O'Leary, about being single parents while living with congenital heart defects. Anita shares what it was like for her to be separated and then divorced, raising two sons and the symbiotic relationship she had with her mother as both caretaker and recipient of care. Misty O'Leary talks with Anna about being raised as a Heart Warrior, her surgeries, and

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54:16

Town Hall Meeting: Feeling Different

The CHC Podcast: CHD Conversations ·

2023/04/30

This is the very first Town Hall Meeting for The CHC Podcast. Our theme in this episode is “Feeling Different” and it’s no surprise that people born with a congenital heart defect/condition might grow up feeling different. Whether they had their first surgery as an infant and thus always had a scar on their chest, unlike most people, or if they didn’t discover for years that they had a heart condition, people whose hearts function differently from people with anatomically normal hearts will feel

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58:55

History of Congenital Heart Conditions (CHCs) and CHC...

The CHC Podcast: CHD Conversations ·

2023/04/01

In this third episode of The CHC Podcast, Dr. Edward Bove visits with Anna about historical figures in the field of pediatric cardiology. In the second segment, he talks to Anna about landmark surgical procedures that bear the names of some famous cardiothoracic surgeons. The episode concludes with Heart Mom Anna Jaworski chatting with Single Ventricle Heart Patient Allison Holmes. They share their feelings about the show.The "Heart to Heart with Anna" Monkey Lungs! episode:

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49:54

Taking Control of Your Heart Condition

The CHC Podcast: CHD Conversations ·

2023/03/01

This is the 2nd episode of The CHC Podcast: Congenital Heart Conversations and features co-hosts Camiecia Anthony and Anna Jaworski and Guests: Heidi, Victoria, and Rita Scoggins.In this episode, we learn more about Heidi Scoggins and her recent scare with being diagnosed with a congenital heart defect as a young adult. Victoria Scoggins is Heidi Scoggins' aunt and she was also born with a congenital heart defect. Rita Scoggins is Victoria's mother and Heidi' grandmother.In this episode, you'll

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14:59

The CHC Podcast: Inaugural Episode!

The CHC Podcast: CHD Conversations ·

2023/02/01

What is "The CHC Podcast: Congenital Heart Conversations?" Who are Anna Jaworski and Joe Flowers? Why did they start this podcast? More importantly, how can you get involved?In this inaugural episode, Anna and Joe talk about who they are, why they started this podcast, and what the first season is going to look like. January -- Inaugural EpisodeFebruary -- Heart Month! Meet the Scoggin Family and learn about the "Wear Purple for CHD" campaign!March -- The History of CHDs and CHD SurgeriesApril --

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