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PODCAST

The CHC Podcast: CHD Conversations

The CHC Podcast: Congenital Heart Conversations is a podcast for and by the CHD community. Hosted by heart mom Anna Jaworski and The CHC Podcast Team, they will talk with people about a variety of topics of interest when living with a life-threatening chronic illness.Become a supporter of this podcast: https://www.spreaker.com/podcast/the-chc-podcast-chd-conversations--5779157/support.

health & fitness medicine

All Episodes

47:02

Living Authentically: Trans Journeys with CHD

The CHC Podcast: CHD Conversations ·

2025/11/28

In this powerful episode of The CHC Podcast: Congenital Heart Conversations, host Anna Jaworski and co-host Ayrton Beatty honor Trans Awareness Month by delving into the intersection of congenital heart defects (CHD) and trans identities. Featuring heartfelt discussions with three unique guests—Hope Jaworski, Helen, and Kai Ayscue—the episode sheds light on the challenges faced by those living with CHD while navigating their gender identities. The episode also highlights the emotional and

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45:08

Rescue & Resilience: Preventing Sudden Cardiac Arrest

The CHC Podcast: CHD Conversations ·

2025/10/26

In the 10th episode of season three of The CHC Podcast: Congenital Heart Conversations, host Anna Jaworski and co-host Ayrton Beatty discuss the importance of understanding CPR and sudden cardiac arrest.Guests Ben Weisbuch, a survivor of 135 sudden cardiac arrests and founder of the Heart Hope Foundation, and Dr. John Rogers, a cardiologist specializing in heart rhythm disorders and advocate for CPR and AED education, join them.The episode explores Ben's astonishing survival story, the genetic

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52:41

World Heart Day 2025:Uniting Hearts Around the Globe

The CHC Podcast: CHD Conversations ·

2025/10/01

In this episode of The CHC Podcast: Congenital Heart Conversations, co-hosts Annie Ulchak and Ayrton Beatty discuss the significance of World Heart Day for the congenital heart defect (CHD) community. Featuring inspiring interviews with Raadhiyah Matthews and Belen Blanton, founders of Brave Little Hearts South Africa and Little Star of Bethlehem respectively, the episode explores their life's work in advocacy, support programs, and the unique challenges they face. From educational initiatives for

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53:38

Love Beats On: Marriage & CHD Journeys

The CHC Podcast: CHD Conversations ·

2025/08/24

In this episode of 'The CHC Podcast Congenital Heart Conversations,' host Anna Jaworski, a heart mom to an adult with a single ventricle heart, is joined by her co-host Nicholle Bilodeau, who was born with a bicuspid aortic valve. The episode explores the unique challenges faced by individuals living with congenital heart disease (CHD) who are also married. Two couples, Jason and Jen Crutchley, as well as Mark and Michelle DeRoo, share their stories of navigating marriage, medical uncertainties, and

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34:26

Bridging Gaps: Rare Conditions and Congenital Heart...

The CHC Podcast: CHD Conversations ·

2025/07/28

In this episode of The CHC Podcast: Congenital Heart Conversations, co-hosts Annie Ulchak and Ayrton Beatty tackle the complexities of living with congenital heart disease combined with other rare conditions.Special guests Hope Simmons, Scott Salvaggio, and Julia Mayfield share their personal stories and the unique challenges they face, from hospitalizations and multiple diagnoses to self-advocacy and forming supportive communities. The episode highlights the importance of understanding your own

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48:49

How Fathers Navigate the World of Congenital Heart...

The CHC Podcast: CHD Conversations ·

2025/07/02

(00:00:00) How Fathers Navigate the World of Congenital Heart Defects(00:10:58) Advice for CHD Fathers Fatherhood transforms when your child has a congenital heart defect—or when you're a heart warrior becoming a dad yourself. This powerful episode brings together fathers from across the CHD spectrum to share their journeys of strength, vulnerability, and unexpected wisdom.Shaun Jones takes us through the harrowing early days with his son Ledger, who underwent his first open-heart surgery at just

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52:27

Child-Free Futures and Family Planning with CHD

The CHC Podcast: CHD Conversations ·

2025/06/01

In the 29th episode of The CHC Podcast, host Anna Jaworski, a heart mom to an adult with a single ventricle heart, and co-host Annie Ulchak, along with co-producers Nicholle Bilodeau and Guy Simkhay, discuss family planning choices for adults born with critical congenital heart defects (CHD). The episode features guests Amy Erhart and Meagan Houpt, both born with Hypoplastic Left Heart Syndrome (HLHS), who share their unique paths—choosing a child-free life and adopting, respectively. The

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44:02

Heart Stories: Triumphs and Trials of Multiple...

The CHC Podcast: CHD Conversations ·

2025/05/01

In this episode of The CHC Podcast: Congenital Heart Conversations, co-hosts Jason Crutchley and Jess Cowin, delve into the complex lives of multiple transplant recipients. Guests Krysta Falloon and Chuck Estrada share their poignant journeys through heart transplants necessitated by congenital conditions, providing a raw look at the ongoing challenges faced post-transplant. The discussion touches on the emotional and physical tolls, medical innovations, and the stark reality that transplantation is

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41:12

From Heart to Hustle: Navigating Careers with...

The CHC Podcast: CHD Conversations ·

2025/04/20

(00:00:00) Introduction and Host Welcome(00:00:42) Meet the Co-Hosts and Panelists (00:02:23) Discussion on Disclosing Heart Conditions to Employers (00:05:20) Accommodations and Modifications in the Workplace (00:09:46) Insurance Benefits for CHD Employees (00:12:20) Networking and Job Search Tips (00:14:07) Interviewing Etiquette and Legalities (00:19:43) Audience and Q & A Session (00:29:58) Panelist Reflections and Takeaways (00:40:02) Conclusion and Next Episode Preview (00:40:02) Conclusion

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59:27

From Patients to Professionals: CHD Survivors Healing...

The CHC Podcast: CHD Conversations ·

2025/02/24

What if your personal journey with a congenital heart defect could shape a meaningful career in healthcare? Join us as we explore this compelling intersection of life experience and professional aspiration. Our guests, including Lorrie Hill, Christy Stillman, and Roslyn Rivera, share their remarkable transitions from CHD patients to healthcare professionals. Their stories illustrate not just the resilience and determination demanded by their journeys, but also the unique perspective they bring to

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55:54

Embracing Growth Celebrating Our Podcast Family

The CHC Podcast: CHD Conversations ·

2025/01/26

The CHC Podcast: Congenital Heart Conversations has reached a remarkable milestone with its 25th episode, and the team is bursting with excitement and gratitude. What started as a simple idea has blossomed into a powerful community platform that connects, supports, and empowers families touched by congenital heart defects.At the heart of this podcast is a passionate team driven by personal experiences and a shared mission.Each team member brings a unique perspective - from Ayrton's efforts to expand

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57:23

End-of-Life Planning for Congenital Heart Patients

The CHC Podcast: CHD Conversations ·

2024/12/31

Imagine having a heart condition and facing the daunting task of end-of-life planning—this is the reality that Ayrton Beatty, Megan Tones, and John Latsha bravely discuss on our latest CHC Podcast: Congenital Heart Conversations episode. Join us as John shares his compelling journey living with tetralogy of Fallot and the life-saving role of his implantable cardioverter device (ICD). We delve into the critical importance of MRI compatibility and the proactive steps necessary to maintain a high

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29:02

Resilience and Acceptance: Navigating Late Diagnoses...

The CHC Podcast: CHD Conversations ·

2024/11/30

Could you imagine mountain biking and suddenly facing a life-altering heart event? That's just part of Boots Knighton's gripping story, one of the incredible journeys we explore in this episode. Together with Nicholle Bilodeau and Rachael Gott, we uncover the unique experiences of those who’ve faced late diagnoses of congenital heart defects. From Boots’ heart attack that led to open-heart surgery to Nicholle’s struggle to maintain her weightlifting passion after discovering a bicuspid aortic valve,

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56:11

Nurturing the Nurturers: Insights into CHD Caregiving

The CHC Podcast: CHD Conversations ·

2024/10/31

What if caring for someone else starts with caring for yourself? Join us in a heartfelt episode as we promise to uncover the often-ignored side of caregiving in the Congenital Heart Defect (CHD) community: the self-care of the caregivers. Our engaging conversation features insights from Roseanne Franco, a dedicated heart parent, and Mark DeRoo, who reveals how he and his wife Michelle turned the simple act of reading into a powerful self-care routine amidst the hustle of medical appointments

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52:13

Survival Against the Odds: One or No Open-Heart...

The CHC Podcast: CHD Conversations ·

2024/10/01

In the latest episode of the CHC Podcast: Congenital Heart Conversations, hosts Anna Jaworski and Annie Ulchak discuss the experiences of living with congenital heart disease (CHD) as adults, focusing on those who have had zero or only one open-heart surgery. Panelists Amy Erhart, Ben Johnson, and Michelle DeRoo share their personal stories, childhood experiences, adaptations, and medical journeys.The discussion also covers the importance of fitness, nutrition, and mental health in managing CHD

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44:30

Enduring Sibling Struggles: Strengthening Bonds...

The CHC Podcast: CHD Conversations ·

2024/08/19

In this episode of The CHC Podcast, hosts Anna Jaworski and Ayrton Beatty discuss the emotional and life-changing impacts heart transplants have on the siblings of heart warriors. Joined by a special panel of guests, Roy Simkhay, Michelle Steltzer, Stephen Guerin, and Amy Cowin, they explore personal stories, challenges, and the deep connections forged through the shared experiences of managing congenital heart defects and transplants. Produced by Annie Ulchak and Guy Simkhay, the episode delves

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61:32

Siblings in the Congenital Heart Defect Community

The CHC Podcast: CHD Conversations ·

2024/08/02

Parents of children with congenital heart defects may worry that their afflicted child's siblings will have a rough go of things considering the hospitalizations, doctor's appointments, therapy treatments, and more. They may worry that siblings will resent the extra time they need to spend with their medically fragile children.This episode features four adults who grew up with a brother or a sister who was born with a congenital heart defect. Tune in to hear what struggles they faced, how their

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61:08

Living with Heart Rhythm Challenges: Insights from...

The CHC Podcast: CHD Conversations ·

2024/06/24

Ever wondered how congenital heart disease (CHD) and heart rhythm disorders intertwine? Join us for a compelling episode where Dr. Samuel Asivatham (Dr. Sam) from the Mayo Clinic, volunteer Ayrton Beatty, and CRNA Frank Jaworski share their invaluable insights. Dr. Asivatham takes us through the latest in managing fast and slow heart rhythms, including cutting-edge procedures like ablation and defibrillator placement. Ayrton gives a heartfelt account of living with drug-induced long QT syndrome,

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43:39

Parental Advocacy and Love in the Face of Congenital...

The CHC Podcast: CHD Conversations ·

2024/05/28

Imagine handing over your two-day-old infant for surgery, not knowing what the future holds. Join us in this poignant episode of The CHC Podcast as we share the incredible journeys of Regina Lawrence, Anna Jaworski, and Hava Simkhay, three mothers whose lives were forever changed by their children's congenital heart defects. They recount their experiences of navigating multiple surgeries, the anguish of delayed diagnoses, and the resilience needed to support their children through critical medical

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46:59

The Pulse of Perseverance: Unveiling the Heart...

The CHC Podcast: CHD Conversations ·

2024/04/30

Imagine the strength it takes to face a heart transplant, the resilience needed to advocate for a life-saving surgery amidst the daunting challenges of a global pandemic, and the triumph of embracing a second chance at life. Our latest panel discussion brings forth a mosaic of these extraordinary journeys within the congenital heart disease community. Peg Eitl shares Joe's story, a young man with Down syndrome, as she takes us through Joe's incredible fight for a dual heart and liver transplant. At

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35 results

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